Evaluation of the effectiveness of professionally guided self-care for people with multiple sclerosis living in the community: a randomized controlled trial.

Abstract:

OBJECTIVE:The aim of the study was to assess the efficacy of a patient-focused professionally guided self-care programme for the management of multiple sclerosis (MS) in the community. DESIGN:This was a single-blind randomized controlled trial. SETTING:The study was conducted with people with MS living in the community. PARTICIPANTS:Two hundred and seventy-eight people with MS were invited to take part in the study. One hundred and eighty-nine people consented to take part (68%). Of these 183 began the study and 169 (92.3%) completed it. Seventy-three individuals were in the intervention group and 96 were in the control group. INTERVENTION:The intervention comprised discussion of self-care based on client priorities, using an information booklet about self-care. MAIN OUTCOME MEASURES:These included the Barthel Index, a measure of mobility, the SF-36, and the Standard Day Dependency Record (SDDR) which measures the need for assistance with daily activities. Assessments were conducted at baseline and again six months later. RESULTS:Changes in health status were small. However, at follow-up the intervention group had better SF-36 health scores, in mental health (p = 0.04), and vitality (p = 0.05) and considered help with daily activities to be less essential, as measured by the SDDR (p = 0.04), than the control group. Participants in the intervention group had maintained levels of independence at follow-up (p = 0.62) while the control group showed a significant decrease in independence (p= 0.001). CONCLUSION:This intervention could be a useful aid for health professionals who are supporting people with MS living in the community.

journal_name

Clin Rehabil

journal_title

Clinical rehabilitation

authors

O'Hara L,Cadbury H,De SL,Ide L

doi

10.1191/0269215502cr478oa

subject

Has Abstract

pub_date

2002-03-01 00:00:00

pages

119-28

issue

2

eissn

0269-2155

issn

1477-0873

journal_volume

16

pub_type

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