Abstract:
OBJECTIVE:Prompt treatment for lupus is important to prevent morbidity. A potential barrier to early treatment of pediatric lupus is delayed presentation to a pediatric rheumatologist. To better understand factors contributing to delayed presentation among pediatric lupus patients, we examined differences in demographic and clinical characteristics of lupus patients within the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Legacy Registry with regard to time between symptom onset and presentation to a pediatric rheumatologist. METHODS:We analyzed data from 598 CARRA Legacy Registry participants for differences between those who presented early (within <1 month of symptom onset), between 1-3 months (typical presentation), with moderate delays (3-12 months), and with severe delays (≥1 year). Factors associated with early presentation, moderate delay, and severe delay were determined by multinomial logistic regression. RESULTS:Forty-four percent of patients presented early, while 23% had moderate delays and 9% had severe delays. Family history of lupus, absence of discoid rash, and location in a state with a higher density of pediatric rheumatologists were associated with earlier presentation. Younger age, low household income (<$25,000 per year), and a family history of lupus were associated with severe delay. CONCLUSION:Delays to care ≥1 year exist in a notable minority of pediatric lupus patients from the CARRA Legacy Registry. In this large and diverse sample of patients, access to care and family resources played an important role in predicting time to presentation to a pediatric rheumatologist.
journal_name
Arthritis Care Res (Hoboken)journal_title
Arthritis care & researchauthors
Rubinstein TB,Mowrey WB,Ilowite NT,Wahezi DM,Childhood Arthritis and Rheumatology Research Alliance INVESTIGATORS.doi
10.1002/acr.23285subject
Has Abstractpub_date
2018-03-01 00:00:00pages
420-427issue
3eissn
2151-464Xissn
2151-4658journal_volume
70pub_type
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journal_title:Arthritis care & research
pub_type: 杂志文章,多中心研究
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journal_title:Arthritis care & research
pub_type: 杂志文章
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journal_title:Arthritis care & research
pub_type: 杂志文章,多中心研究
doi:10.1002/acr.22022
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journal_title:Arthritis care & research
pub_type: 杂志文章,多中心研究
doi:10.1002/acr.20047
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journal_title:Arthritis care & research
pub_type: 杂志文章
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journal_title:Arthritis care & research
pub_type: 杂志文章
doi:10.1002/acr.20023
更新日期:2010-01-15 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章,多中心研究
doi:10.1002/acr.22630
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journal_title:Arthritis care & research
pub_type: 杂志文章
doi:10.1002/acr.23780
更新日期:2019-02-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章
doi:10.1002/acr.20087
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journal_title:Arthritis care & research
pub_type: 杂志文章
doi:10.1002/acr.24224
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journal_title:Arthritis care & research
pub_type: 杂志文章,meta分析,评审
doi:10.1002/acr.20146
更新日期:2010-07-01 00:00:00
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pub_type: 杂志文章
doi:10.1002/acr.20042
更新日期:2010-04-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章
doi:10.1002/acr.22600
更新日期:2016-01-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章
doi:10.1002/acr.20571
更新日期:2011-11-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章
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更新日期:2014-12-01 00:00:00
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pub_type: 杂志文章
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journal_title:Arthritis care & research
pub_type: 临床试验,杂志文章,多中心研究
doi:10.1002/acr.20035
更新日期:2010-04-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章,随机对照试验
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更新日期:2014-03-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章,多中心研究
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pub_type: 杂志文章
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journal_title:Arthritis care & research
pub_type: 杂志文章,多中心研究
doi:10.1002/acr.20104
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journal_title:Arthritis care & research
pub_type: 杂志文章
doi:10.1002/acr.20301
更新日期:2011-01-01 00:00:00
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pub_type: 杂志文章
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更新日期:2017-09-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章
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更新日期:2011-09-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章
doi:10.1002/acr.23152
更新日期:2017-06-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章,多中心研究
doi:10.1002/acr.22667
更新日期:2016-03-01 00:00:00
abstract:OBJECTIVE:To explore the link between a patient acceptable symptom state (PASS) and patient-perceived impact in rheumatoid arthritis (RA) and psoriatic arthritis (PsA). METHODS:This was a cross-sectional study of unselected patients with definite RA or PsA. Pain, functional capacity, fatigue, coping, and sleep disturb...
journal_title:Arthritis care & research
pub_type: 杂志文章
doi:10.1002/acr.23176
更新日期:2017-10-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章
doi:10.1002/acr.22082
更新日期:2013-12-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章,评审
doi:10.1002/acr.20188
更新日期:2010-08-01 00:00:00
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journal_title:Arthritis care & research
pub_type: 杂志文章,评审
doi:10.1002/acr.24137
更新日期:2020-01-07 00:00:00