Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation.

Abstract:

:This qualitative study explores the illness experiences, the efficacy of pulmonary rehabilitation as perceived by patients with chronic obstructive pulmonary disease (COPD) and their rationale for improvements in health. 23 patients participated in a daily, three-month home-based pulmonary rehabilitation. A pre-post self-perceived assessment of efficacy was conducted. Semi-structured interviews, illness narratives and participant-observation provided a "dense description" of patients' lived-experience before and after the program. Interviews and narratives were tape-recorded, transcribed and coded. Qualitative data was subjected to "thematic content analysis" and "contextualized semantic interpretation". Patients compare functional status before and after falling ill, experience loss, stigma and depression, describe health improvements and judge the pulmonary rehabilitation's efficacy. Giving voice to chronically-ill patients, as individuals, is needed. To reduce clinical conflicts, health professionals should encourage illness narratives and value their patients' lived-experience.

journal_name

Cad Saude Publica

authors

Pinto JM,Martín-Nogueras A,Nations M

doi

10.1590/0102-311x00072313

subject

Has Abstract

pub_date

2014-06-01 00:00:00

pages

1270-80

issue

6

eissn

0102-311X

issn

1678-4464

pii

S0102-311X2014000601270

journal_volume

30

pub_type

杂志文章
  • [Health policies and politicized health? An analysis of sexual and reproductive health policies in Peru from the perspective of medical ethics, quality of care, and human rights].

    abstract::Health professionals view medical ethics as a discipline that provides the basis for more adequate patient care. In recent years the concepts of quality of care and human rights - with their attending discourses - have joined the concept of medical ethics among the paradigms to consider in care for humans both at the ...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章,评审

    doi:10.1590/s0102-311x2008000100002

    authors: Miranda JJ,Yamin AE

    更新日期:2008-01-01 00:00:00

  • [Estimation of the frequency of Hereditary Persistence of Fetal Hemoglobin in Brazil].

    abstract::Hereditary Persistence of Fetal Hemoglobin (HPFH) is a benign clinical condition characterized by the synthesis of HbF and which continues without hematological alterations during adult life. Since the function of HPFH in many hemoglobinopathies is that of a severity modulator, it is important to learn its frequency. ...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2002000500040

    authors: Costa VA,Acedo MJ,Polimeno NC,Bertuzzo CS

    更新日期:2002-09-01 00:00:00

  • [Urbanization and dengue ecology].

    abstract::Demographic changes occurring in underdeveloped countries due to intense rural-urban migration since the 1960s have resulted in overcrowded cities with multiple deficiencies, particularly in housing and basic sanitation. Some 20% of the population in large and medium-sized cities live in slums or under similar conditi...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:

    authors: Tauil PL

    更新日期:2001-01-01 00:00:00

  • [A profile of elderly members of community groups in Belo Horizonte, Minas Gerais State, Brazil].

    abstract::This study focused on elderly members of community groups, specifically their physical, social, psychological, and economic conditions. A descriptive cross-sectional study included 197 individuals, using the modified Brazilian Old Age Schedule, with questions on physical health, medical services, activities of daily l...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2008001200008

    authors: Borges PL,Bretas RP,Azevedo SF,Barbosa JM

    更新日期:2008-12-01 00:00:00

  • The Welfare State in Latin America: reform, innovation and fatigue.

    abstract::This paper analyses the challenges of building the Welfare State in late democracies in Latin America. The author shows how the literature has identified different social protection patterns in the region and how recent reform models have transformed institutions, in an unfavorable socioeconomic context. The results p...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.15090/0102-311X00058116

    authors: Fleury S

    更新日期:2017-07-27 00:00:00

  • [Performance autoethnography and qualitative research in Collective Health: methodological (mis)encounters].

    abstract::Performance autoethnography is qualitative research methodology that aims to problematize resistances between the "self" (auto-) and the collective (ethno-) in the act of writing (-graphy). The article thus aims to discuss the theoretical and practical construction of performance autoethnography and its applicability ...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311X00095320

    authors: Raimondi GA,Moreira C,Brilhante AV,Barros NF

    更新日期:2020-12-18 00:00:00

  • [Use of potentially inappropriate medication by the elderly in São Paulo, Brazil: SABE Study].

    abstract::Various medicines are considered unsuitable for older adults due to alterations in pharmacokinetics/pharmacodynamics, lack of therapeutic efficacy, and/or increased risk of adverse events exceeding potential benefits. The aim of this study was to determine the prevalence of potentially inappropriate medication among o...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311x00055613

    authors: Cassoni TC,Corona LP,Romano-Lieber NS,Secoli SR,Duarte YA,Lebrão ML

    更新日期:2014-08-01 00:00:00

  • Vulnerability to severe forms of COVID-19: an intra-municipal analysis in the city of Rio de Janeiro, Brazil.

    abstract::Given the characteristics of the COVID-19 pandemic and the limited tools for orienting interventions in surveillance, control, and clinical care, the current article aims to identify areas with greater vulnerability to severe cases of the disease in Rio de Janeiro, Brazil, a city characterized by huge social and spati...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311x00075720

    authors: Santos JPCD,Siqueira ASP,Praça HLF,Albuquerque HG

    更新日期:2020-01-01 00:00:00

  • [Repetition Strain Injury]

    abstract::Muscular-skeletal disorders of the upper limbs resulting from work involving repetition strain (RSI) are now the most frequent work-related diseases in early or late industrialized countries. The author maintains that in addition to being work-related diseases, RSIs are symbolic illnesses revealing the contradictions ...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:

    authors: Ribeiro HP

    更新日期:1997-01-01 00:00:00

  • Association of metabolic syndrome with inflammatory markers in a sample of community-dwelling older adults.

    abstract::The study aimed to identify the cutoff points for inflammatory markers that best discriminate the occurrence of metabolic syndrome in community-dwelling older adults. Baseline data were used from the elderly cohort in the city of Bambuí, Minas Gerais State, Brazil. The target exposure was presence of metabolic syndrom...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311X00129918

    authors: Neves CVB,Mambrini JVM,Torres KCL,Teixeira-Carvalho A,Martins-Filho OA,Lima-Costa MF,Peixoto SV

    更新日期:2019-03-25 00:00:00

  • School trajectory and teenage pregnancy in three Brazilian state capitals.

    abstract::This paper describes the relationship between school trajectory and incidence of teenage pregnancy. A cross-sectional residence-based questionnaire was applied, interviewing 4,634 youth ages 18 to 24 years, selected through a stratified three-stage sample. For the present study, young people ages 20 to 24 years (65.6%...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2006000700005

    authors: Almeida Mda C,Aquino EM,de Barros AP

    更新日期:2006-07-01 00:00:00

  • [Control of malaria transmission in a gold-mining area in Amapá State, Brazil, with participation by private enterprise].

    abstract::This paper reports on the epidemiological characterization of malaria following implementation of a program to control the endemic in a gold-mining area in northern Amapá State. The study focuses on total malaria cases in Amapá and the impact of the disease on the population, as represented by the Mineração Novo Astro...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2001000400023

    authors: Couto AA,Calvosa VS,Lacerda R,Castro F,Santa Rosa E,Nascimento JM

    更新日期:2001-07-01 00:00:00

  • Structure in Brazilian maternity hospitals: key characteristics for quality of obstetric and neonatal care.

    abstract::This study aimed to evaluate key characteristics of structure in a sample of maternity hospitals in Brazil. Structure was evaluated according to Ministry of Health criteria and included: geographic location, obstetric volume, presence of ICU, teaching activities, staff qualifications, and availability of equipment and...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311x00176913

    authors: Azevedo Bittencourt SD,Costa Reis LG,Ramos MM,Rattner D,Rodrigues PL,Neves DC,Arantes SL,Carmo Leal Md

    更新日期:2014-08-01 00:00:00

  • Individual and contextual predictors of children's hemoglobin levels from Southern Brazilian municipalities in social vulnerability.

    abstract::Few studies have investigated the simultaneous effect of individual and contextual factors on the occurrences of anemia. This study aims to evaluate the variability of children's hemoglobin levels from municipalities in social vulnerability and its association with factors of individual and municipal nature. This is a...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311X00166619

    authors: Silva DLF,Höfelmann DA,Taconeli CA,Lang RMF,Dallazen C,Tietzmann DC,Moreira JD,Silva SAD,Nilson EAF,Gonçalves VSS,Crispim SP

    更新日期:2021-01-11 00:00:00

  • [Production of]

    abstract::We propose a critical reflection on quality of information concerning violence in Brazil, emphasizing some of the main sources of primary data: Public Law Enforcement Departments, Police, and Municipal and State Secretaries of Health. The city of Rio de Janeiro is taken as a typical "case" in this analysis. The hypoth...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x1997000300016

    authors: Njaine K,Souza ER,Minayo MC,Assis SG

    更新日期:1997-07-01 00:00:00

  • [Risk factors for respiratory morbidity at 12 to 36 months in very low birth weight premature infants previously admitted to a public neonatal intensive care unit].

    abstract::The aim of this paper was to estimate respiratory morbidity and its determinants for premature infants aged 12 to 36 months. The population comprised 84 infants from a cohort of very low birth weight premature infants. The outcome was the respiratory morbidity incidence rate. The relationship between the independent v...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2009000600022

    authors: Chalfun G,Mello RR,Dutra MV,Andreozzi VL,Silva KS

    更新日期:2009-06-01 00:00:00

  • [Prevalence and factors associated with hospital admissions in a population-based study in a southern Brazilian city].

    abstract::This cross-sectional study investigates the use of health services and associated factors in individuals > or = 14 years of age in Canoas, Rio Grande do Sul, Brazil. 1,954 persons were interviewed in 40 census tracts. One-year prevalence of hospital admissions was 9.4%. Adjusted data analysis showed that hospitalizati...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2007000100023

    authors: Garbinato LR,Béria JU,Figueiredo AC,Raymann B,Gigante LP,Palazzo Ldos S,Aerts DR

    更新日期:2007-01-01 00:00:00

  • [Paideia training for matrix support: a pedagogical strategy centered on reflection of practice].

    abstract::The study analyzed the use of the Paideia Method for training professionals that use matrix support in Curitiba (Paraná State), Uberlândia (Minas Gerais State), and Campinas (São Paulo State), Brazil. An 18-month training process (Specialization Course) was developed for this purpose with matrix support professionals....

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311X00123617

    authors: Viana MMO,Campos GWS

    更新日期:2018-08-20 00:00:00

  • [Cross-cultural adaptation of section A of the Cambridge Examination for Mental Disorders of the Elderly-Revised Version (CAMDEX-R) for dementia diagnosis].

    abstract::This article concerns the first phase of the cross-cultural equivalence of Section A in the Cambridge Examination for Mental Disorders of the Elderly-Revised Version (CAMDEX-R), a clinical interview for dementia diagnosis. Evaluating conceptual and item equivalencies involved a literature review and expert groups. Sem...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2010000700013

    authors: Lima DA,Lourenço RA

    更新日期:2010-07-01 00:00:00

  • [Prevalence of antidepressant use and associated factors among adults in Pelotas, Rio Grande do Sul State, Brazil, 2006].

    abstract::The objective of this study was to estimate the prevalence and determinants of antidepressant use among adults in a city in southern Brazil. The cross-sectional study was based on interviews with adults 40 years or older living in the urban area of Pelotas, Rio Grande do Sul State, Brazil, 2006. The chi-squared test w...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2008000700011

    authors: Garcias CM,Pinheiro RT,Garcias Gde L,Horta BL,Brum CB

    更新日期:2008-07-01 00:00:00

  • Life expectancy with negative physical oral health impact on quality of life in older adults.

    abstract::Oral impairments can affect overall health and life expectancy in older adults. Our study evaluates the life expectancy with negative physical oral health impact on quality of life (POHIQoL) among older adults. Life expectancy with negative POHIQoL was estimated by the Sullivan method, using the prevalence of POHIQoL ...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311X00119119

    authors: Oliveira EJP,Alves LC,Duarte YAO,Andrade FB

    更新日期:2020-06-26 00:00:00

  • Structural equation modeling in epidemiology.

    abstract::Structural equation modeling (SEM) is an important statistical tool for evaluating complex relations in several research areas. In epidemiology, the use and discussion of SEM have been limited thus far. This article presents basic principles and concepts in SEM, including an application using epidemiological data anal...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2010001200004

    authors: Amorim LD,Fiaccone RL,Santos CA,Santos TN,Moraes LT,Oliveira NF,Barbosa SO,Santos DN,Santos LM,Matos SM,Barreto ML

    更新日期:2010-12-01 00:00:00

  • [Non-adherence to continuous treatment and associated factors: prevalence and determinants in adults 40 years and older].

    abstract::This study investigates factors associated with non-adherence to continuous drug therapy in individuals 40 years and older. A population-based survey was conducted in Cambé, Paraná State, Brazil. Treatment adherence was assessed with the four-item Morisky et al. medication adherence scale. The study also assessed soci...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311x00092613

    authors: Remondi FA,Cabrera MA,Souza RK

    更新日期:2014-01-01 00:00:00

  • Time spent by Brazilian students in different modes of transport going to school: changes over a decade (2001-2011).

    abstract::To examine changes in the time spent in each mode of transportation used for going to school by gender and age among adolescents from Santa Catarina State, Brazil. Two school-based surveys were performed in 2001 (N = 5,028) and 2011 (N = 6,529) in high school students (15-19 years old). The mode of transportation (on ...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311x00161913

    authors: Silva KS,Lopes AD,Silva RC,Costa FF,Assis MA,Nahas MV

    更新日期:2014-11-01 00:00:00

  • [Evaluation of human albumin use in a Brazilian hospital].

    abstract::Human albumin is frequently used without regard for the relationship between its pharmacological properties and the respective disease. We investigated the prescription of human albumin in a Brazilian public hospital with emphasis on adherence to international guidelines. Data were gathered from pharmacy and medical r...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2005000400025

    authors: Matos GC,Rozenfeld S

    更新日期:2005-07-01 00:00:00

  • [Regular consumption of fruits and vegetables by university students in Rio Branco, Acre State, Brazil: prevalence and associated factors].

    abstract::This cross-sectional study with university students examined the prevalence of regular consumption of fruits and vegetables and associated factors among students at a Federal university in Rio Branco, Acre State, Brazil. 863 undergraduates were interviewed in 2010. Overall prevalence of regular consumption of fruits a...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2012000700018

    authors: Ramalho AA,Dalamaria T,Souza OF

    更新日期:2012-07-01 00:00:00

  • [Media, cloning, and bioethics].

    abstract::This article was based on an analysis of three hundred articles from mainstream Brazilian periodicals over a period of eighteen months, beginning with the announcement of the Dolly case in February 1997. There were two main objectives: to outline the moral constants in the press associated with the possibility of clon...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2000000100016

    authors: Costa SI,Diniz D

    更新日期:2000-01-01 00:00:00

  • [Ceará State Pharmacovigilance System: a year of experience].

    abstract::This paper summarizes the first year of activity of the Ceará State Pharmacovigilance System (SIFACE) as a strategy to discuss practical and methodological problems related to developing pharmacovigilance in Brazil. Siface is being structured by the Group for the Prevention of Improper Use of Pharmaceuticals (GPUIM), ...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x1999000300021

    authors: Coêlho HL,Arrais PS,Gomes AP

    更新日期:1999-07-01 00:00:00

  • [Conflicts and impasses in the judicialization of the supply of medicines: circuit court rulings on claims brought against the State of Rio de Janeiro, Brazil, in 2005].

    abstract::Based on an analysis of individual claims for provision of medicines brought by users of the Unified National Health System (SUS) against the State of Rio de Janeiro, Brazil, in the year 2005, this study aims to discuss the action and behavior of the court system in ruling on these suits. The study adopted a semi-qual...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/s0102-311x2010000100007

    authors: Borges Dda C,Ugá MA

    更新日期:2010-01-01 00:00:00

  • [Trends in the use of medical and dental services and associations with educational level and private health plan coverage in Brazil, 1998-2013].

    abstract::The public-private mix in the Brazilian health system favors double coverage of health services for individuals with private health plans and may aggravate inequities in the use of services. The aim of this study was to describe trends in the use of medical and dental services and associations with schooling and priva...

    journal_title:Cadernos de saude publica

    pub_type: 杂志文章

    doi:10.1590/0102-311X00052017

    authors: Pilotto LM,Celeste RK

    更新日期:2018-03-29 00:00:00