Variations in specialist palliative care referrals: findings from a population-based patient cohort of acute myeloid leukaemia, diffuse large B-cell lymphoma and myeloma.

abstract：BACKGROUND:In healthcare, many service evaluation questionnaires use free-text boxes without formal mechanisms for analysis. Patients and carers spend time documenting concerns that are often ignored or managed locally in an ad hoc manner. Currently, palliative care experiences of patients and carers in Wales are measu...

journal_title：BMJ supportive & palliative care

authors： Bowyer AV,Finlay I,Baillie J,Byrne A,McCarthy J,Sampson C,Snow V,Nelson A

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:The key challenge for most developed countries is meeting the needs of our ageing population, in particular, those nearing the end of their lives - population-based end-of-life care. Building on a public health approach to meet needs of an area-wide population, and a practical approach of enabling generalist...

journal_title：BMJ supportive & palliative care

authors： Thomas K

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Compared with the current inpatient consultation model, a novel corounding model of care whereby palliative specialists round with oncology teams, increases healthcare collaboration and may improve quality of care for inpatients. Whether this translates to better pain control for patients is unexplored. OBJ...

journal_title：BMJ supportive & palliative care

authors： Ng CZ,Cheung YB,Koh ARX,Teo HR,Mok NKM,Yang GM

更新日期：2020-12-18 00:00:00

abstract：PURPOSE:Advanced pancreatic cancer has a universally poor survival rate. Patients frequently develop malabsorption that requires pancreatic enzyme replacement therapy (PERT). This study explores the experience of patient engagement with PERT and how the medication is taken and tolerated. METHODS:Participants with adva...

journal_title：BMJ supportive & palliative care

authors： Landers A,McKenzie C,Pitama SG,Brown H

更新日期：2020-03-22 00:00:00

abstract：INTRODUCTION:The collaboration between palliative care and neurology has developed over the last 25 years and this study aimed to ascertain the collaboration between the specialties across Europe. METHODS:This online survey aimed to look at collaboration across Europe, using the links of the European Association for P...

journal_title：BMJ supportive & palliative care

authors： Oliver D,Borasio GD,Veronese S,Voltz R,Lorenzl S,Hepgul N

更新日期：2020-07-10 00:00:00

abstract：BACKGROUND:Randomised controlled trials (RCTs) of palliative care interventions are challenging to conduct and evaluate. Tools used to judge the quality of RCTs do not account for the complexities of conducting research in seriously ill populations and may artificially downgrade confidence in palliative care research. ...

journal_title：BMJ supportive & palliative care

authors： Isenberg SR,Kavalieratos D,Chow R,Le L,Wegier P,Zimmermann C

更新日期：2020-11-18 00:00:00

abstract：:Palliative sedation is the intentional use of sedatives to manage refractory symptom(s), such as pain and/or terminal restlessness. This case report describes the successful use of propofol, an ultra-fast-acting anaesthetic agent commonly used for anaesthesia induction and maintenance to manage refractory agitated del...

journal_title：BMJ supportive & palliative care

authors： Sulistio M,Wojnar R,Michael NG

更新日期：2020-03-01 00:00:00

abstract：:Medicine regards the prevention of death as an important priority. Yet patients may have a range of priorities of equal or greater importance. These other priorities are often not discussed or appreciated by treating doctors. OBJECTIVES:We sought to identify priorities of care for patients attending an advance care p...

journal_title：BMJ supportive & palliative care

authors： Milnes S,Corke C,Orford NR,Bailey M,Savulescu J,Wilkinson D

更新日期：2019-09-01 00:00:00

abstract：BACKGROUND:The role of the Community Matron was introduced in 2005 (DoH 2005a) to case-manage those patients deemed as very high intensity service users to prevent and reduce unscheduled admission to secondary care. Related studies on the effectiveness of managed care indicated the need to manage the demand of high ser...

journal_title：BMJ supportive & palliative care

authors： Barkham A

更新日期：2015-04-01 00:00:00

abstract：INTRODUCTION:Of the 40 million people globally in need of palliative care (PC), just 14% receive it, predominantly in high-income countries. Within fragile health systems that lack PC, incurable illness is often marked by pain and suffering, as well as burdensome costs. In high-income settings, PC decreases healthcare ...

journal_title：BMJ supportive & palliative care

authors： Reid EA,Kovalerchik O,Jubanyik K,Brown S,Hersey D,Grant L

更新日期：2019-06-01 00:00:00

abstract：OBJECTIVE:Evaluate the internal consistency and temporal stability of advance directives (ADs) generated by an interactive, online computer program. METHODS:33 participants completed the program at three visits, 2 weeks apart. Agreement rates were calculated for the General Wishes component of the AD. The test-retest ...

journal_title：BMJ supportive & palliative care

authors： Schubart JR,Camacho F,Green MJ,Rush KA,Levi BH

更新日期：2017-03-01 00:00:00

abstract：OBJECTIVE:P-cadherin can act both as a tumour suppressor and an oncogene. The clinical prognostic value of P-cadherin overexpression in breast cancer (BC) remains unclear. We conducted a study-level meta-analysis to determine whether P-cadherin expression can help predict prognosis in BC. METHODS:A systematic literatu...

journal_title：BMJ supportive & palliative care

authors： Qi R,Lin J,Chen S,Jiang J,Zhang X,Yao B,Zheng H,Jin Z,Yuan Y,Hou W,Hua B,Guo Q

更新日期：2020-09-17 00:00:00

abstract：OBJECTIVES:People with dementia and their carers may experience poor end of life care, often having to navigate complex health and social care systems. The objectives of this study were to identify: (1) barriers for people with dementia and their carers in accessing good quality end of life care and (2) cost-effective ...

journal_title：BMJ supportive & palliative care

authors： Sampson E,Mandal U,Holman A,Greenish W,Dening KH,Jones L

更新日期：2012-06-01 00:00:00

abstract：OBJECTIVES:This study aimed to identify gaps in palliative care (PC) provision across the National Cancer Grid (NCG) centres in India. METHODS:We performed a cross-sectional validated web-based survey on 102 NCG cancer centres (Nov '17 to April '18). The survey questionnaire had seven sections collecting data relating...

journal_title：BMJ supportive & palliative care

authors： Damani A,Salins N,Ghoshal A,Chowdhury J,Muckaden MA,Deodhar J,Pramesh CS

更新日期：2020-06-09 00:00:00

abstract：BACKGROUND:In Switzerland, helping with assisted suicide under certain conditions is not prosecuted. With approximately 300 cases annually, this leaves behind a large group of bereaved people where its consequences are mostly unknown. The study aimed to explore family involvement in decision making prior to assisted su...

journal_title：BMJ supportive & palliative care

authors： Gamondi C,Pott M,Forbes K,Payne S

更新日期：2015-06-01 00:00:00

abstract：BACKGROUND:Health service planning in paediatric palliative care is complex, with the diverse geographical and demographic characteristics adding to the challenge of developing services across different nations. Accurate and reliable data are essential to inform effective, efficient and equitable health services. AIM:...

journal_title：BMJ supportive & palliative care

authors： Bowers AP,Bradford N,Chan RJ,Herbert A,Yates P

更新日期：2020-10-13 00:00:00

abstract：OBJECTIVES:Venous thromboembolism (VTE) is common in advanced cancer. Guidelines suggest that indefinite anticoagulation be considered for patients with ongoing active cancer. There are no data on the management of cancer-associated thrombosis (CAT) at the end of life or when to stop anticoagulation as death approaches...

journal_title：BMJ supportive & palliative care

authors： Noble S,Banerjee S,Pease NJ

更新日期：2019-06-25 00:00:00

abstract：BACKGROUND:A diagnosis of cancer and anticipated death of a loved one has a significant impact on the whole family. Research has mainly focused on carers, with little emphasis on the wider, long-term implications. AIM:To explore the cancer beliefs of patients with advanced cancer and their relatives. The focus was on ...

journal_title：BMJ supportive & palliative care

authors： Baker N,Armour K,Meystre C,Redwood S,Dawson A

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Amyotrophic lateral sclerosis (ALS) develops into a life-threatening condition 2 to 4 years after the onset of symptoms. Although many people with the disease decide in favour of life-sustaining measures, thoughts about hastening death are not uncommon. OBJECTIVES:Our aim was to examine the scope of literat...

journal_title：BMJ supportive & palliative care

authors： Erdmann A,Spoden C,Hirschberg I,Neitzke G

更新日期：2021-01-04 00:00:00

abstract：OBJECTIVE:Evidence is mixed regarding the impact of advance care planning (ACP) on place of death. This cohort study investigated the effect of ACP programmes on place of death and utilisation of life-sustaining treatments for patients during end-of-life (EOL) care. METHODS:This prospective cohort study identified dec...

journal_title：BMJ supportive & palliative care

authors： Yen YF,Lee YL,Hu HY,Sun WJ,Ko MC,Chang SS,Chen CC,Huang SJ,Chu D

更新日期：2020-10-28 00:00:00

abstract：:Conscience objection is a proposed way of ensuring that medical practitioners who object to physician-assisted suicide may avoid having to be involved in such a procedure if this is legalised. This right on the part of healthcare professionals already exists in certain circumstances. This paper examines the ethical an...

journal_title：BMJ supportive & palliative care

authors： Willis D,George R

更新日期：2019-12-01 00:00:00

abstract：BACKGROUND:In Ireland, weekend and night medical cover for community based patients is largely provided by general practice co-operatives. Doctors working in this service do not have direct access to patients' medical records which challenges continuity of care. OBJECTIVES:This study investigates the opinion of genera...

journal_title：BMJ supportive & palliative care

authors： Kiely F,Murphy M,O'Brien T

更新日期：2013-12-01 00:00:00

abstract：BACKGROUND:Communication about the end of life is especially important in the family context, as patients and their families are considered as the care unit in palliative care. Open end-of-life communication can positively affect medical, psychological and relational outcomes during the dying process for patient and fa...

journal_title：BMJ supportive & palliative care

authors： Nagelschmidt K,Leppin N,Seifart C,Rief W,von Blanckenburg P

更新日期：2020-08-27 00:00:00

abstract：BACKGROUND:Resistance training (RT) is an effective way to increase muscle mass but little is known about its role to prevent sarcopenia in advanced cancer. Furthermore, the preferred setting for this training is not known. Considering home is frequently the place of care and death preferred by cancer patients, it is i...

journal_title：BMJ supportive & palliative care

authors： Ribeiro C,Santos R,Correia P,Maddocks M,Gomes B

更新日期：2020-08-13 00:00:00

abstract：AIM:Junior doctors are frequently required to discuss resuscitation status with patients. They generally lack experience, confidence and skill in having these conversations. However, there is currently no formal postgraduate education requirement to improve or develop in this area. The aim of this educational intervent...

journal_title：BMJ supportive & palliative care

authors： Ferguson L,Clark H,de Beer W

更新日期：2020-08-21 00:00:00

abstract：OBJECTIVES:Palliative care needs rounds are triage meetings that have been introduced in residential care for older adults to help identify and prioritise care for people most at risk for unplanned dying with inadequately controlled symptoms. This study sought to generate an evidence-based checklist in order to support...

journal_title：BMJ supportive & palliative care

authors： Forbat L,Chapman M,Lovell C,Liu WM,Johnston N

更新日期：2018-09-01 00:00:00

abstract：BACKGROUND:There has been a dramatic increase in liver disease over recent decades, with morbidity and mortality rates predicted to rise significantly. In order to effectively support this growing patient population we need to understand the experiences, key issues and priorities of people living and dying with advance...

journal_title：BMJ supportive & palliative care

authors： Kimbell B,Murray SA

更新日期：2015-12-01 00:00:00

abstract：:Adrenocortical carcinoma (ACC) comprises approximately 0.02% of all malignant tumours, which are a very small fraction of a group of cancers that affect in 0.7 to 2 in 1 000 000 people per year. Recurrence is very common even after complete resection and prognosis is poor. We report a case of a sporadic form of ACC fo...

journal_title：BMJ supportive & palliative care

authors： Shuayb M,Das A,Uddin MN

更新日期：2019-03-01 00:00:00

abstract：BACKGROUND:Patients with heart failure often receive little supportive or palliative care. 'Better Together' was a 2-year pilot study of a palliative care service for patients with advanced congestive heart failure (CHF). OBJECTIVE:To determine if the intervention made it more likely that patients would be cared for a...

journal_title：BMJ supportive & palliative care

authors： Pattenden JF,Mason AR,Lewin RJ

更新日期：2013-03-01 00:00:00

abstract：OBJECTIVES:The present study examined the impact of a patient-tailored complementary/integrative medicine (CIM) programme on sleep quality in patients undergoing chemotherapy for breast and gynaecological cancer. METHODS:Study participants received standard supportive care, with or without weekly CIM treatments. Distu...

journal_title：BMJ supportive & palliative care

authors： Kerner H,Samuels N,Ben Moshe S,Sharabi IS,Ben-Arye E

更新日期：2020-09-01 00:00:00