Abstract:
BACKGROUND:Facial nerve palsy leaves people unable to move muscles on the affected side of their face. Challenges exist in patients accessing facial neuromuscular retraining (NMR), a therapy used to strengthen muscle and improve nerve function. Access to therapy could potentially be improved through the use of digital technology. However, there is limited research available on patients' and clinicians' views about the potential benefits of such telerehabilitation based on their lived experiences of treatment pathways. OBJECTIVE:This study aims to gather information about facial palsy treatment pathways in the United Kingdom, barriers to accessing NMR, factors influencing patient adherence, measures used to monitor recovery, and the potential value of emerging wearable digital technology. METHODS:Separate surveys of patients with facial palsy and facial therapy specialists were conducted. Questionnaires explored treatment pathways and views on telerehabilitation, were co-designed with users, and followed a similar format to enable cross-referencing of responses. A follow-up survey of national specialists investigated methods used to monitor recovery in greater detail. Analysis of quantitative data was conducted allowing for data distribution. Open-text responses were analyzed using thematic content analysis. RESULTS:A total of 216 patients with facial palsy and 25 specialist therapists completed the national surveys. Significant variations were observed in individual treatment pathways. Patients reported an average of 3.27 (SD 1.60) different treatments provided by various specialists, but multidisciplinary team reviews were rare. For patients diagnosed most recently, there was evidence of more rapid initial prescribing of corticosteroids (prednisolone) and earlier referral for NMR therapy. Barriers to NMR referral included difficulties accessing funding, shortage of specialist therapists, and limited awareness of NMR among general practitioners. Patients traveled long distances to reach an NMR specialist center; 9% (8/93) of adults reported traveling ≥115 miles. The thematic content analysis demonstrates positive attitudes to the introduction of digital technology, with similar incentives and barriers identified by both patients and clinicians. The follow-up survey of 28 specialists uncovered variations in the measures currently used to monitor recovery and no agreed definitions of a clinically significant change for any of these. The main barriers to NMR adherence identified by patients and therapists could all be addressed by using suitable real-time digital technology. CONCLUSIONS:The study findings provide valuable information on facial palsy treatment pathways and views on the future introduction of digital technology. Possible ways in which emerging sensor-based digital technology can improve rehabilitation and provide more rigorous evidence on effectiveness are described. It is suggested that one legacy of the COVID-19 pandemic will be lower organizational barriers to this introduction of digital technology to assist NMR delivery, especially if cost-effectiveness can be demonstrated.
journal_name
J Med Internet Resjournal_title
Journal of medical Internet researchauthors
Szczepura A,Holliday N,Neville C,Johnson K,Khan AJK,Oxford SW,Nduka Cdoi
10.2196/20406subject
Has Abstractpub_date
2020-10-05 00:00:00pages
e20406issue
10eissn
1439-4456issn
1438-8871pii
v22i10e20406journal_volume
22pub_type
杂志文章abstract:BACKGROUND:The Librarian Infobutton Tailoring Environment (LITE) is a Web-based knowledge capture, management, and configuration tool with which users can build profiles used by OpenInfobutton, an open source infobutton manager, to provide electronic health record users with context-relevant links to online knowledge r...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.4281
更新日期:2015-11-30 00:00:00
abstract:BACKGROUND:Online social networking use has increased rapidly among African American and Latino men who have sex with men (MSM), making it important to understand how these technologies can be used to reach, retain, and maintain individuals in care and promote health wellness. In particular, the Internet is increasingl...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.3311
更新日期:2014-04-24 00:00:00
abstract:BACKGROUND:There has been an exponential increase in the general population's usage of the internet and of information accessibility; the current demand for online consumer health information (OCHI) is unprecedented. There are multiple studies on internet access and usage, quality of information, and information needs....
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9326
更新日期:2018-05-04 00:00:00
abstract:BACKGROUND:Despite the amount of online health information, there are several barriers that limit the Internet's adoption as a source of health information. One of these barriers is highlighted in conceptualizations of the digital divide which include the differential possession of Internet skills, or "eHealth literacy...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.1581
更新日期:2011-04-29 00:00:00
abstract:BACKGROUND:The contents of traditional communication media and new internet social media reflect the interests of society. However, certain barriers and a lack of attention towards mental disorders have been previously observed. OBJECTIVE:The objective of this study is to measure the relevance of influential American ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9582
更新日期:2018-05-28 00:00:00
abstract:BACKGROUND:The prioritization of sustainable patient-centered care in contemporary health care has resulted in an increased focus on patient empowerment, which in turn is considered to facilitate patient independence, self-management, and self-efficacy. However, a definitional consensus of empowerment remains elusive, ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.7809
更新日期:2017-09-29 00:00:00
abstract:BACKGROUND:Adherence to childhood immunization schedules is a function of various factors. Given the increased use of technology as a strategy to increase immunization coverage, it is important to investigate how parents perceive different forms of communication, including traditional means and text-message reminders. ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.1976
更新日期:2012-06-06 00:00:00
abstract:BACKGROUND:Despite the widespread use and advancements of mobile technology that facilitate rich communication modes, there is little evidence demonstrating the value of smartphones for effective interclinician communication and knowledge processes. OBJECTIVE:The objective of this study was to determine the effects of...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.2758
更新日期:2013-11-27 00:00:00
abstract:BACKGROUND:Smokers are a stigmatized population, but an important population to reach for the purpose of research. Therefore, innovative recruitment methods are needed that are both cost-effective and efficacious in recruiting this population. OBJECTIVE:The aim of the present article was to evaluate the feasibility of...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.5502
更新日期:2016-06-15 00:00:00
abstract:BACKGROUND:Men who use the Internet to seek sex with other men (MISM) are increasingly using the Internet to find sexual health information and to seek sexual partners, with some research suggesting HIV transmission is associated with sexual partnering online. Aiming to "meet men where they are at," some AIDS service o...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.4503
更新日期:2015-12-09 00:00:00
abstract:BACKGROUND:Advance care planning is the process of discussing health care treatment preferences based on patients' personal values, and it often involves the completion of advance directives. In the first months of 2020, a novel coronavirus, severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), began circulatin...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/21385
更新日期:2020-08-11 00:00:00
abstract:BACKGROUND:Web-based self-directed mental health applications are rapidly emerging to address health service gaps and unmet needs for information and support. OBJECTIVE:The aim of this study was to determine if a multicomponent, moderated Web-based mental health application could benefit individuals with mental health...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.2196/10838
更新日期:2019-06-04 00:00:00
abstract:BACKGROUND:Reporting cumulative antimicrobial susceptibility testing data on a regular basis is crucial to inform antimicrobial resistance (AMR) action plans at local, national, and global levels. However, analyzing data and generating a report are time consuming and often require trained personnel. OBJECTIVE:This stu...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,多中心研究
doi:10.2196/19762
更新日期:2020-10-02 00:00:00
abstract:BACKGROUND:Mental disorders are highly prevalent for the people who are aged between 16 and 25 years and can permanently disrupt the development of these individuals. Easily available mobile health (mHealth) apps for mobile phones have great potential for the prevention and early intervention of mental disorders in you...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.6775
更新日期:2017-05-12 00:00:00
abstract:BACKGROUND:Over the last two decades, the number of studies on electronic symptom reporting has increased greatly. However, the field is very heterogeneous: the choices of patient groups, health service innovations, and research targets seem to involve a broad range of foci. To move the field forward, it is necessary t...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.2214
更新日期:2012-10-03 00:00:00
abstract:BACKGROUND:Advance care planning (ACP) is a process with the overall aim to enhance care in concordance with patients' preferences. Key elements of ACP are to enable persons to define goals and preferences for future medical treatment and care, to discuss these with family and health care professionals, and to document...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/15578
更新日期:2020-03-17 00:00:00
abstract:BACKGROUND:Nutrigenomics forms the basis of personalized nutrition by customizing an individual's dietary plan based on the integration of life stage, current health status, and genome information. Some common genes that are included in nutrition-based multigene test panels include CYP1A2 (rate of caffeine break down),...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/12580
更新日期:2019-06-28 00:00:00
abstract:BACKGROUND:Cardiovascular diseases are a leading cause of premature death worldwide. International guidelines recommend routine delivery of all phases of cardiac rehabilitation. Uptake of traditional cardiac rehabilitation remains suboptimal, as attendance at formal hospital-based cardiac rehabilitation programs is low...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9181
更新日期:2018-05-08 00:00:00
abstract:BACKGROUND:Although the use of patient-generated data (PGD) in the optimization of patient care shows great promise, little is known about whether patients who track their PGD necessarily share the data with their clinicians. Meanwhile, health literacy-an important construct that captures an individual's ability to man...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/18937
更新日期:2020-12-22 00:00:00
abstract:BACKGROUND:As the process of producing official health statistics for lifestyle diseases is slow, researchers have explored using Web search data as a proxy for lifestyle disease surveillance. Existing studies, however, are prone to at least one of the following issues: ad-hoc keyword selection, overfitting, insufficie...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/13347
更新日期:2020-01-27 00:00:00
abstract:BACKGROUND:The availability of Internet-based continuing medical education is rapidly increasing, but little is known about recruitment of physicians to these interventions. OBJECTIVE:The purpose of this study was to examine predictors of physician participation in an Internet intervention designed to increase screeni...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.7.4.e48
更新日期:2005-09-02 00:00:00
abstract:BACKGROUND:Exercise is an effective intervention for the prevention of falls; however, some forms of exercises have been shown to be more effective than others. There is a need to identify effective and efficient methods for training health professionals in exercise prescription for falls prevention. OBJECTIVE:The obj...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.1680
更新日期:2011-12-22 00:00:00
abstract:BACKGROUND:In this digital era, eHealth literacy is an essential skill set to leverage health information available online to promote health outcomes. South Korea has an advanced health information technology infrastructure, including widespread use of the internet and mobile phones. A few studies have explored eHealth...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.8759
更新日期:2018-04-20 00:00:00
abstract:BACKGROUND:Over the past decade, physician-rating websites have been gaining attention in scientific literature and in the media. However, little knowledge is available about the awareness and the impact of using such sites on health care professionals. It also remains unclear what key predictors are associated with th...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.2702
更新日期:2013-08-28 00:00:00
abstract:BACKGROUND:Efficiently sharing health data produced during standard care could dramatically accelerate progress in cancer treatments, but various barriers make this difficult. Not sharing these data to ensure patient privacy is at the cost of little to no learning from real-world data produced during cancer care. Furth...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/16810
更新日期:2020-03-20 00:00:00
abstract:BACKGROUND:Primary care settings are uniquely positioned to reach individuals at risk of alcohol use disorder through technology-delivered behavioral health interventions. Despite emerging effectiveness data, few efforts have been made to summarize the collective findings from these delivery approaches. OBJECTIVE:The ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/10859
更新日期:2019-04-08 00:00:00
abstract:BACKGROUND:Health systems have recently started to activate patient-facing application programming interfaces (APIs) to facilitate patient access to health data and other interactions. OBJECTIVE:This study sought to ascertain health systems' understanding, strategies, governance, and organizational infrastructure arou...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/16813
更新日期:2020-04-03 00:00:00
abstract:BACKGROUND:The implementation of a personal electronic health record (PHR) is a central objective of digitalization policies in the German health care system. Corresponding legislation was passed with the 2015 Act for Secure Digital Communication and Applications in the Health Sector (eHealth Act). However, compared wi...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/15102
更新日期:2020-01-29 00:00:00
abstract::The use of Web-based methods to deliver and evaluate interventions is growing in popularity, particularly in a health care context. They have shown particular promise in responding to sensitive or stigmatized issues such as mental health and sexually transmitted infections. In the field of domestic violence (DV), howe...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.7039
更新日期:2017-03-28 00:00:00
abstract:BACKGROUND:Relatively little is known about the extent to which young adults use the Internet as a health information resource and whether there are factors that distinguish between those who do and do not go online for health information. OBJECTIVE:The aim was to identify the sociodemographic, physical, mental, and r...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.4048
更新日期:2015-05-18 00:00:00