Reducing Negative Outcomes of Online Consumer Health Information: Qualitative Interpretive Study with Clinicians, Librarians, and Consumers.

Abstract:

BACKGROUND:There has been an exponential increase in the general population's usage of the internet and of information accessibility; the current demand for online consumer health information (OCHI) is unprecedented. There are multiple studies on internet access and usage, quality of information, and information needs. However, few studies explored negative outcomes of OCHI in detail or from different perspectives, and none examined how these negative outcomes could be reduced. OBJECTIVE:The aim of this study was to describe negative outcomes associated with OCHI use in primary care and identify potential preventive strategies from consumers', health practitioners', and health librarians' perspectives. METHODS:This included a two-stage interpretive qualitative study. In the first stage, we recruited through a social media survey, a purposeful sample of 19 OCHI users who had experienced negative outcomes associated with OCHI. We conducted semistructured interviews and performed a deductive-inductive thematic analysis. The results also informed the creation of vignettes that were used in the next stage. In the second stage, we interviewed a convenient sample of 10 key informants: 7 health practitioners (3 family physicians, 2 nurses, and 2 pharmacists) and 3 health librarians. With the support of the vignettes, we asked participants to elaborate on (1) their experience with patients who have used OCHI and experienced negative outcomes and (2) what strategies they suggest to reduce these outcomes. We performed a deductive-inductive thematic analysis. RESULTS:We found that negative outcomes of OCHI may occur at three levels: internal (such as increased worrying), interpersonal (such as a tension in the patient-clinician relationship), and service-related (such as postponing a clinical encounter). Participants also proposed three types of strategies to reduce the occurrence of these negative outcomes, namely, providing consumers with reliable OCHI, educating consumers on how to assess OCHI websites, and helping consumers present and discuss the OCHI they find with a health professional in their social network or a librarian for instance. CONCLUSIONS:We examined negative outcomes associated with using OCHI from five complementary perspectives (consumers, family physicians, pharmacists, nurses, and health librarians). We identified a construct of OCHI use-related tension that included and framed all negative outcomes. This construct has three dimensions (three interdependent levels): internal, interpersonal, and service-related tensions. Future research can focus on the implementation and effectiveness of the proposed strategies, which might contribute to reducing these tensions.

journal_name

J Med Internet Res

authors

El Sherif R,Pluye P,Thoër C,Rodriguez C

doi

10.2196/jmir.9326

subject

Has Abstract

pub_date

2018-05-04 00:00:00

pages

e169

issue

5

eissn

1439-4456

issn

1438-8871

pii

v20i5e169

journal_volume

20

pub_type

杂志文章
  • Towards ethical guidelines for dealing with unsolicited patient emails and giving teleadvice in the absence of a pre-existing patient-physician relationship systematic review and expert survey.

    abstract:BACKGROUND:Many health information providers on the Internet and doctors with email accounts are confronted with the phenomenon of receiving unsolicited emails from patients asking for medical advice. Also, a growing number of websites offer "ask-the-doctor" services, where patients can ask questions to health professi...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.2.1.e1

    authors: Eysenbach G

    更新日期:2000-01-01 00:00:00

  • Impact of Illness on Electronic Health Use (The Seventh Tromsø Study - Part 2): Population-Based Questionnaire Study.

    abstract:BACKGROUND:Patients who suffer from different diseases may use different electronic health (eHealth) resources. Thus, those who plan eHealth interventions should take into account which eHealth resources are used most frequently by patients that suffer from different diseases. OBJECTIVE:The aim of this study was to un...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/13116

    authors: Marco-Ruiz L,Wynn R,Oyeyemi SO,Budrionis A,Yigzaw KY,Bellika JG

    更新日期:2020-03-05 00:00:00

  • Exploring the Privacy-Preserving Properties of Word Embeddings: Algorithmic Validation Study.

    abstract:BACKGROUND:Word embeddings are dense numeric vectors used to represent language in neural networks. Until recently, there had been no publicly released embeddings trained on clinical data. Our work is the first to study the privacy implications of releasing these models. OBJECTIVE:This paper aims to demonstrate that t...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/18055

    authors: Abdalla M,Abdalla M,Hirst G,Rudzicz F

    更新日期:2020-07-15 00:00:00

  • Telemonitoring for Patients With COVID-19: Recommendations for Design and Implementation.

    abstract::Despite significant efforts, the COVID-19 pandemic has put enormous pressure on health care systems around the world, threatening the quality of patient care. Telemonitoring offers the opportunity to carefully monitor patients with a confirmed or suspected case of COVID-19 from home and allows for the timely identific...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/20953

    authors: Silven AV,Petrus AHJ,Villalobos-Quesada M,Dirikgil E,Oerlemans CR,Landstra CP,Boosman H,van Os HJA,Blanker MH,Treskes RW,Bonten TN,Chavannes NH,Atsma DE,Teng YKO

    更新日期:2020-09-02 00:00:00

  • Physician choice making and characteristics associated with using physician-rating websites: cross-sectional study.

    abstract:BACKGROUND:Over the past decade, physician-rating websites have been gaining attention in scientific literature and in the media. However, little knowledge is available about the awareness and the impact of using such sites on health care professionals. It also remains unclear what key predictors are associated with th...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.2702

    authors: Emmert M,Meier F,Pisch F,Sander U

    更新日期:2013-08-28 00:00:00

  • Effectiveness of a Web-based tailored interactive health communication application for patients with type 2 diabetes or chronic low back pain: randomized controlled trial.

    abstract:BACKGROUND:The prevalence of chronic diseases such as type 2 diabetes and chronic low back pain is rising. Patient empowerment is a key strategy in the management of chronic diseases. Patient empowerment can be fostered by Web-based interactive health communication applications (IHCAs) that combine health information w...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,随机对照试验

    doi:10.2196/jmir.3904

    authors: Weymann N,Dirmaier J,von Wolff A,Kriston L,Härter M

    更新日期:2015-03-03 00:00:00

  • Online social network use by health care providers in a high traffic patient care environment.

    abstract:BACKGROUND:The majority of workers, regardless of age or occupational status, report engaging in personal Internet use in the workplace. There is little understanding of the impact that personal Internet use may have on patient care in acute clinical settings. OBJECTIVE:The objective of this study was to investigate t...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.2421

    authors: Black E,Light J,Paradise Black N,Thompson L

    更新日期:2013-05-17 00:00:00

  • Exploring Strategies for Using Social Media to Self-Manage Health Care When Living With and Beyond Breast Cancer: In-Depth Qualitative Study.

    abstract:BACKGROUND:As breast cancer survival rates improve and structural health resources are increasingly being stretched, health providers require people living with and beyond breast cancer (LwBBC) to self-manage aspects of their care. OBJECTIVE:This study aimed to explore how women use and experience social media to self...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/16902

    authors: Ure C,Cooper-Ryan AM,Condie J,Galpin A

    更新日期:2020-05-25 00:00:00

  • Researchers' needs for resource discovery and collaboration tools: a qualitative investigation of translational scientists.

    abstract:BACKGROUND:A critical aspect of clinical and translational science (CTS) is interdisciplinary and collaborative research, which increasingly requires a wide range of computational and human resources. However, few studies have systematically analyzed such resource needs of CTS researchers. OBJECTIVE:To improve our und...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.1905

    authors: Bhavnani SK,Warden M,Zheng K,Hill M,Athey BD

    更新日期:2012-06-05 00:00:00

  • Assessing Patient Experience and Healthcare Quality of Dental Care Using Patient Online Reviews in the United States: Mixed Methods Study.

    abstract:BACKGROUND:Over the last two decades, patient review websites have emerged as an essential online platform for doctor ratings and reviews. Recent studies suggested the significance of such websites as a data source for patients to choose doctors for healthcare providers to learn and improve from patient feedback and to...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/18652

    authors: Lin Y,Hong YA,Henson BS,Stevenson RD,Hong S,Lyu T,Liang C

    更新日期:2020-07-07 00:00:00

  • InsuOnline, an Electronic Game for Medical Education on Insulin Therapy: A Randomized Controlled Trial With Primary Care Physicians.

    abstract:BACKGROUND:Most patients with diabetes mellitus (DM) are followed by primary care physicians, who often lack knowledge or confidence to prescribe insulin properly. This contributes to clinical inertia and poor glycemic control. Effectiveness of traditional continuing medical education (CME) to solve that is limited, so...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,随机对照试验

    doi:10.2196/jmir.6944

    authors: Diehl LA,Souza RM,Gordan PA,Esteves RZ,Coelho IC

    更新日期:2017-03-09 00:00:00

  • Economic Burden and Health Care Access for Patients With Inflammatory Bowel Diseases in China: Web-Based Survey Study.

    abstract:BACKGROUND:The increasing incidence of inflammatory bowel disease (IBD) has imposed heavy financial burdens for Chinese patients; however, data about their financial status and access to health care are still lacking. This information is important for informing patients with IBD about disease treatment budgets and heal...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/20629

    authors: Yu Q,Zhu C,Feng S,Xu L,Hu S,Chen H,Chen H,Yao S,Wang X,Chen Y

    更新日期:2021-01-05 00:00:00

  • Feasibility of a wiki as a participatory tool for patients in clinical guideline development.

    abstract:BACKGROUND:Patient participation is essential in developing high-quality guidelines but faces practical challenges. Evidence on timing, methods, evaluations, and outcomes of methodologies for patient participation in guideline development is lacking. OBJECTIVE:To assess the feasibility of a wiki as a participatory too...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.2080

    authors: den Breejen EM,Nelen WL,Knijnenburg JM,Burgers JS,Hermens RP,Kremer JA

    更新日期:2012-10-26 00:00:00

  • Clarifying the Concept of Adherence to eHealth Technology: Systematic Review on When Usage Becomes Adherence.

    abstract:BACKGROUND:In electronic health (eHealth) evaluations, there is increasing attention for studying the actual usage of a technology in relation to the outcomes found, often by studying the adherence to the technology. On the basis of the definition of adherence, we suggest that the following three elements are necessary...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,评审

    doi:10.2196/jmir.8578

    authors: Sieverink F,Kelders SM,van Gemert-Pijnen JE

    更新日期:2017-12-06 00:00:00

  • Short-term trajectories of use of a caloric-monitoring mobile phone app among patients with type 2 diabetes mellitus in a primary care setting.

    abstract:BACKGROUND:Self-management plays an important role in maintaining good control of diabetes mellitus, and mobile phone interventions have been shown to improve such self-management. The Health Promotion Board of Singapore has created a caloric-monitoring mobile health app, the "interactive Diet and Activity Tracker" (iD...

    journal_title:Journal of medical Internet research

    pub_type: 临床试验,杂志文章

    doi:10.2196/jmir.3938

    authors: Goh G,Tan NC,Malhotra R,Padmanabhan U,Barbier S,Allen JC Jr,Østbye T

    更新日期:2015-02-03 00:00:00

  • Differences in reach and attrition between Web-based and print-delivered tailored interventions among adults over 50 years of age: clustered randomized trial.

    abstract:BACKGROUND:The Internet has the potential to provide large populations with individual health promotion advice at a relatively low cost. Despite the high rates of Internet access, actual reach by Web-based interventions is often disappointingly low, and differences in use between demographic subgroups are present. Furt...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,随机对照试验

    doi:10.2196/jmir.2229

    authors: Peels DA,Bolman C,Golsteijn RH,De Vries H,Mudde AN,van Stralen MM,Lechner L

    更新日期:2012-12-17 00:00:00

  • How to Measure Costs and Benefits of eHealth Interventions: An Overview of Methods and Frameworks.

    abstract::Information on the costs and benefits of eHealth interventions is needed, not only to document value for money and to support decision making in the field, but also to form the basis for developing business models and to facilitate payment systems to support large-scale services. In the absence of solid evidence of it...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,评审

    doi:10.2196/jmir.4521

    authors: Bergmo TS

    更新日期:2015-11-09 00:00:00

  • Evaluation of a Web-Based E-Learning Platform for Brief Motivational Interviewing by Nurses in Cardiovascular Care: A Pilot Study.

    abstract:BACKGROUND:Brief motivational interviewing (MI) can contribute to reductions in morbidity and mortality related to coronary artery disease, through health behavior change. Brief MI, unlike more intensive interventions, was proposed to meet the needs of clinicians with little spare time. While the provision of face-to-f...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.6298

    authors: Fontaine G,Cossette S,Heppell S,Boyer L,Mailhot T,Simard MJ,Tanguay JF

    更新日期:2016-08-18 00:00:00

  • Artificial Intelligence Learning Semantics via External Resources for Classifying Diagnosis Codes in Discharge Notes.

    abstract:BACKGROUND:Automated disease code classification using free-text medical information is important for public health surveillance. However, traditional natural language processing (NLP) pipelines are limited, so we propose a method combining word embedding with a convolutional neural network (CNN). OBJECTIVE:Our object...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.8344

    authors: Lin C,Hsu CJ,Lou YS,Yeh SJ,Lee CC,Su SL,Chen HC

    更新日期:2017-11-06 00:00:00

  • Intelligent Sensing to Inform and Learn (InSTIL): A Scalable and Governance-Aware Platform for Universal, Smartphone-Based Digital Phenotyping for Research and Clinical Applications.

    abstract::In this viewpoint we describe the architecture of, and design rationale for, a new software platform designed to support the conduct of digital phenotyping research studies. These studies seek to collect passive and active sensor signals from participants' smartphones for the purposes of modelling and predicting healt...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/16399

    authors: Barnett S,Huckvale K,Christensen H,Venkatesh S,Mouzakis K,Vasa R

    更新日期:2019-11-06 00:00:00

  • A Diabetes Self-Management Program: 12-Month Outcome Sustainability From a Nonreinforced Pragmatic Trial.

    abstract:BACKGROUND:Diabetes self-management education has been shown to be effective in controlled trials. The 6-week Better Choices, Better Health-Diabetes (BCBH-D) self-management program was also associated with an improvement in health outcomes in a 6-month translation study. OBJECTIVE:The objective of this study was to d...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.6484

    authors: Lorig K,Ritter PL,Turner RM,English K,Laurent DD,Greenberg J

    更新日期:2016-12-15 00:00:00

  • Recruitment to a randomized web-based nutritional intervention trial: characteristics of participants compared to non-participants.

    abstract:BACKGROUND:Web-based behavioral programs efficiently disseminate health information to a broad population, and online tailoring may increase their effectiveness. While the number of Internet-based behavioral interventions has grown in the last several years, additional information is needed to understand the characteri...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.1086

    authors: Stopponi MA,Alexander GL,McClure JB,Carroll NM,Divine GW,Calvi JH,Rolnick SJ,Strecher VJ,Johnson CC,Ritzwoller DP

    更新日期:2009-08-26 00:00:00

  • Smartphone-Based Self-Assessment of Stress in Healthy Adult Individuals: A Systematic Review.

    abstract:BACKGROUND:Stress is a common experience in today's society. Smartphone ownership is widespread, and smartphones can be used to monitor health and well-being. Smartphone-based self-assessment of stress can be done in naturalistic settings and may potentially reflect real-time stress level. OBJECTIVE:The objectives of ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,评审

    doi:10.2196/jmir.6397

    authors: Þórarinsdóttir H,Kessing LV,Faurholt-Jepsen M

    更新日期:2017-02-13 00:00:00

  • Usability, Acceptability, and Adherence to an Electronic Self-Monitoring System in Patients With Major Depression Discharged From Inpatient Wards.

    abstract:BACKGROUND:Patients suffering from depression have a high risk of relapse and readmission in the weeks following discharge from inpatient wards. Electronic self-monitoring systems that offer patient-communication features are now available to offer daily support to patients, but the usability, acceptability, and adhere...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.6673

    authors: Lauritsen L,Andersen L,Olsson E,Søndergaard SR,Nørregaard LB,Løventoft PK,Svendsen SD,Frøkjær E,Jensen HM,Hageman I,Kessing LV,Martiny K

    更新日期:2017-04-21 00:00:00

  • A Typology of Patients Based on Decision-Making Styles: Cross-Sectional Survey Study.

    abstract:BACKGROUND:Although previous research shows broad differences in the impact of online health information on patient-practitioner decision making, specific research is required to identify and conceptualize patient decision-making styles related to the use of online health information and to differentiate segments accor...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/15332

    authors: FitzPatrick MA,Hess AC,Sudbury-Riley L,Schulz PJ

    更新日期:2019-11-20 00:00:00

  • Early Perceptions of COVID-19 Contact Tracing Apps in German-speaking Countries: A Comparative Mixed Methods Study.

    abstract:BACKGROUND:The main German-speaking countries (Germany, Austria, Switzerland) have implemented digital contact tracing apps to assist the authorities' COVID-19 containment strategies. Low user rates can impact contact tracing and thus the ability to control the spread of the novel coronavirus. OBJECTIVE:This study aim...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/25525

    authors: Zimmermann BM,Fiske A,Prainsack B,Hangel N,McLennan S,Buyx A

    更新日期:2021-01-09 00:00:00

  • Evaluation of Pollen Apps Forecasts: The Need for Quality Control in an eHealth Service.

    abstract:BACKGROUND:Pollen forecasts are highly valuable for allergen avoidance and thus raising the quality of life of persons concerned by pollen allergies. They are considered as valuable free services for the public. Careful scientific evaluation of pollen forecasts in terms of accurateness and reliability has not been avai...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.7426

    authors: Bastl K,Berger U,Kmenta M

    更新日期:2017-05-08 00:00:00

  • Patient-Reported Outcomes During Immunotherapy for Metastatic Melanoma: Mixed Methods Study of Patients' and Clinicians' Experiences.

    abstract:BACKGROUND:The benefits of electronic patient reported outcomes (PRO) questionnaires have been demonstrated in many settings, including in hospitals and patient homes. However, it remains to be investigated how melanoma patients and their treating clinicians experience the electronic self-reporting of side effects and ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/14896

    authors: Tolstrup LK,Pappot H,Bastholt L,Zwisler AD,Dieperink KB

    更新日期:2020-04-09 00:00:00

  • Patient Portal Barriers and Group Differences: Cross-Sectional National Survey Study.

    abstract:BACKGROUND:Past studies examining barriers to patient portal adoption have been conducted with a small number of patients and health care settings, limiting generalizability. OBJECTIVE:This study had the following two objectives: (1) to assess the prevalence of barriers to patient portal adoption among nonadopters and...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/18870

    authors: Turner K,Clary A,Hong YR,Alishahi Tabriz A,Shea CM

    更新日期:2020-09-17 00:00:00

  • The Computer-Assisted Brief Intervention for Tobacco (CABIT) program: a pilot study.

    abstract:BACKGROUND:Health care providers do not routinely carry out brief counseling for tobacco cessation despite the evidence for its effectiveness. For this intervention to be routinely used, it must be brief, be convenient, require little investment of resources, require little specialized training, and be perceived as eff...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.2074

    authors: Boudreaux ED,Bedek KL,Byrne NJ,Baumann BM,Lord SA,Grissom G

    更新日期:2012-12-03 00:00:00