Abstract:
BACKGROUND:The prioritization of sustainable patient-centered care in contemporary health care has resulted in an increased focus on patient empowerment, which in turn is considered to facilitate patient independence, self-management, and self-efficacy. However, a definitional consensus of empowerment remains elusive, impeding efforts to translate the conceptual ideals of empowerment into a measurable entity associated with changes in health care behavior or outcomes. The rapid integration of technology in health care serves to add another layer of complexity in the measurability and operationalization of empowerment and helps to create a specific context in which this conceptual entity should be further examined. OBJECTIVE:The primary objective of this scoping review was to explore the concept of patient empowerment within the electronic health (eHealth) context. A further focus on the association or measurement of this concept in conjunction with tethered patient portal use was also employed. METHODS:In this scoping review, a six-step framework was used to guide the search and paper selection process. The review was initiated with two broad research questions, which are as follows: (1) What is the relationship between empowerment and the use of eHealth technologies from a patient perspective? (2) How is patient empowerment (and/or engagement or activation) influenced by accessing personal health information through a tethered patient portal? Multiple databases were employed in a comprehensive search strategy, and papers were primarily evaluated and selected for inclusion by 2 review authors, and a third author was consulted to resolve any issues in reaching consensus. RESULTS:From an initial count of 1387 publications, this review returned nine systematic or literature review papers and 19 empirical studies that pertained to patient empowerment (and/or engagement and activation) in relation to the use of tethered patient portals providing access to electronic health records (EHRs). Of the 19 empirical publications, only four were found to have used specific patient empowerment measures with significant variety in their identified conceptual elements. CONCLUSIONS:There is a persistent lack of conceptual clarity in patient empowerment research, and this has extended to study within the eHealth context. The interchangeable use or conflation of terms such as patient empowerment, engagement, and activation, has further complicated the advancement of distinct conceptual measures. To more strongly align changes in patient empowerment with supportive eHealth solutions, the challenges of achieving a consensus on how best to operationalize and measure patient empowerment must be met.
journal_name
J Med Internet Resjournal_title
Journal of medical Internet researchauthors
Risling T,Martinez J,Young J,Thorp-Froslie Ndoi
10.2196/jmir.7809subject
Has Abstractpub_date
2017-09-29 00:00:00pages
e329issue
9eissn
1439-4456issn
1438-8871pii
v19i9e329journal_volume
19pub_type
杂志文章,评审abstract:BACKGROUND:The Health Information Technology for Economic and Clinical Health (HITECH) Act imposes pressure on health care organizations to qualify for "Meaningful Use". It is assumed that portals should increase patient participation in medical decisions, but whether or not the use of portals improves outcomes remains...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.3171
更新日期:2015-02-10 00:00:00
abstract:BACKGROUND:In December 2019, pneumonia cases of unknown origin were reported in Wuhan City, Hubei Province, China. Identified as the coronavirus disease (COVID-19), the number of cases grew rapidly by human-to-human transmission in Wuhan. Social media, especially Sina Weibo (a major Chinese microblogging social media s...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/19087
更新日期:2020-05-17 00:00:00
abstract:BACKGROUND:Over the last two decades, patient review websites have emerged as an essential online platform for doctor ratings and reviews. Recent studies suggested the significance of such websites as a data source for patients to choose doctors for healthcare providers to learn and improve from patient feedback and to...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/18652
更新日期:2020-07-07 00:00:00
abstract:BACKGROUND:Self-guided internet-based cognitive behavioral therapies (iCBTs) for depressive symptoms may substantially increase accessibility to mental health treatment. Despite this, questions remain as to the generalizability of the research on self-guided iCBT. OBJECTIVE:We sought to describe the clinical entry cri...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/10113
更新日期:2018-11-09 00:00:00
abstract:BACKGROUND:As breast cancer survival rates improve and structural health resources are increasingly being stretched, health providers require people living with and beyond breast cancer (LwBBC) to self-manage aspects of their care. OBJECTIVE:This study aimed to explore how women use and experience social media to self...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/16902
更新日期:2020-05-25 00:00:00
abstract:BACKGROUND:The Internet has the potential to provide large populations with individual health promotion advice at a relatively low cost. Despite the high rates of Internet access, actual reach by Web-based interventions is often disappointingly low, and differences in use between demographic subgroups are present. Furt...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.2229
更新日期:2012-12-17 00:00:00
abstract:BACKGROUND:The Internet is a significant source of medical information and is now being shown to be an important conduit for delivering various health-related interventions. OBJECTIVE:This paper aimed to examine the utility and impact of an Internet intervention for childhood encopresis as part of standard medical car...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.1081
更新日期:2008-06-30 00:00:00
abstract:BACKGROUND:Web-based behavioral programs efficiently disseminate health information to a broad population, and online tailoring may increase their effectiveness. While the number of Internet-based behavioral interventions has grown in the last several years, additional information is needed to understand the characteri...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.1086
更新日期:2009-08-26 00:00:00
abstract:BACKGROUND:Theoretical models help to explain or predict the adoption of electronic health (eHealth) technology and illustrate the complexity of the adoption process. These models provide insights into general factors that influence the use of eHealth technology. However, they do not give hospitals much actionable know...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/16921
更新日期:2020-05-19 00:00:00
abstract:BACKGROUND:Since the outbreak of COVID-19, the Chinese government and the Chinese Center for Disease Control and Prevention have released COVID-19-related information to the public through various channels to raise their concern level of the pandemic, increase their knowledge of disease prevention, and ensure the uptak...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/20487
更新日期:2020-11-09 00:00:00
abstract:BACKGROUND:Mobile health (mHealth) technology holds promise for promoting health education and reducing health disparities and inequalities in underserved populations. However, little research has been done to develop mHealth interventions for family caregivers of people with dementia, particularly those in rural Hispa...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/11682
更新日期:2018-12-10 00:00:00
abstract:BACKGROUND:Systemic lupus erythematosus (SLE), a systemic autoimmune disease with no known cure, remains poorly understood and patients suffer from many gaps in care. Recent work has suggested that dietary and other lifestyle factors play an important role in triggering and propagating SLE in some susceptible individua...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/23868
更新日期:2020-10-20 00:00:00
abstract:BACKGROUND:The literature indicates that Web-based health information seeking is mostly used for seeking information on well-established diseases. However, only a few studies report health information seeking in the absence of a doctor's visit and in the context of acute symptoms. OBJECTIVE:This survey aimed to estima...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/15148
更新日期:2020-01-10 00:00:00
abstract:BACKGROUND:As the population ages, many more people will be in need of long-term care. According to a recent report by Alzheimer's Disease International and the Karolinska Institute, 84% of people with dementia are cared for at home and 16% in nursing homes. Several Web-based interventions have been developed to assist...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/12504
更新日期:2019-11-28 00:00:00
abstract::[This corrects the article DOI: .]. ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,已发布勘误
doi:10.2196/17123
更新日期:2019-11-19 00:00:00
abstract:BACKGROUND:Parents are likely to seek Web-based communities to verify their suspicions of autism spectrum disorder markers in their child. Automated tools support human decisions in many domains and could therefore potentially support concerned parents. OBJECTIVE:The objective of this study was to test the feasibility...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9496
更新日期:2018-04-24 00:00:00
abstract:BACKGROUND:Relapse is a common experience for people diagnosed with psychosis, which is associated with increased service costs and profound personal and familial distress. EMPOWER (Early signs Monitoring to Prevent relapse in psychosis and prOmote Well-being, Engagement, and Recovery) is a peer worker-supported digita...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/14366
更新日期:2019-10-24 00:00:00
abstract:BACKGROUND:Preexposure prophylaxis (PrEP) is available as a daily pill for preventing infection with the human immunodeficiency virus (HIV). Innovative methods of administering PrEP systemically or topically are being discussed and developed. OBJECTIVE:The objective of our study was to assess attitudes toward differen...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.5713
更新日期:2016-05-19 00:00:00
abstract::Digital health is an advancing phenomenon in modern health care systems. Currently, numerous stakeholders in various countries are evaluating the potential benefits of digital health solutions at the individual, population, and/or organizational levels. Additionally, driving factors are being created from the customer...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9732
更新日期:2018-05-18 00:00:00
abstract:BACKGROUND:Information has been identified as a commonly unmet supportive care need for those living with cancer (ie, patients and their friends and family). The information needed to help individuals plan their lives around the consequences of cancer, such as the receipt of health care, is an example of an important i...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/20510
更新日期:2020-10-29 00:00:00
abstract:BACKGROUND:eHealth is widely used as a tool for improving health care delivery and information. However, distinct policies and strategies are required for its proper implementation and integration at national and international levels. OBJECTIVE:To determine the scope of policy issues faced by individuals, institutions...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.1633
更新日期:2012-02-17 00:00:00
abstract:BACKGROUND:The potential for machine learning to disrupt the medical profession is the subject of ongoing debate within biomedical informatics and related fields. OBJECTIVE:This study aimed to explore general practitioners' (GPs') opinions about the potential impact of future technology on key tasks in primary care. ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/12802
更新日期:2019-03-20 00:00:00
abstract:BACKGROUND:Since December 2019, an outbreak of the coronavirus disease (COVID-19) caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) has spread rapidly in Wuhan and worldwide. However, previous studies on pregnant patients were limited. OBJECTIVE:The aim of this study is to evaluate the clinical ch...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/19642
更新日期:2020-08-24 00:00:00
abstract:BACKGROUND:The COVID-19 outbreak has affected the lives of millions of people by causing a dramatic impact on several healthcare systems and the global economy. This devastating pandemic has brought communities across the globe to work on this issue in an unprecedented manner. OBJECTIVE:This case study describes the s...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/25283
更新日期:2021-01-16 00:00:00
abstract:BACKGROUND:With advances in technology, the adoption of wearable devices has become a viable adjunct in poststroke rehabilitation. Regaining ambulation is a top priority for an increasing number of stroke survivors. However, despite an increase in research exploring these devices for lower limb rehabilitation, little i...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.5891
更新日期:2016-10-07 00:00:00
abstract:BACKGROUND:Only a few telemedicine applications have made their way into regular care. One reason is the lack of acceptance of telemedicine by potential end users. OBJECTIVE:The aim of this systematic review was to identify theoretical predictors that influence the acceptance of telemedicine. METHODS:An electronic se...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/13117
更新日期:2019-05-21 00:00:00
abstract:BACKGROUND:The spread of healthy behaviors through social networks may be accelerated by influential individuals. Previous studies have used lay health influencers to prevent sexually transmitted infections (STIs) among internet-using men who have sex with men (MSM). However, there is a lack of understanding of the cha...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/10171
更新日期:2019-01-21 00:00:00
abstract:BACKGROUND:Internet use for health information is important, given the rise of electronic health (eHealth) that integrates technology into health care. Despite the perceived widespread use of the internet, a persistent "digital divide" exists in which many individuals have ready access to the internet and others do not...
journal_title:Journal of medical Internet research
pub_type: 历史文章,杂志文章
doi:10.2196/11931
更新日期:2019-05-14 00:00:00
abstract:BACKGROUND:A 2012 World Health Organization report recognizes betel nut use as an urgent public health threat faced by the Western Pacific region. However, compared with other addictive substances, little is known about how betel nuts are depicted on social media platforms. In particular, image-based social media platf...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/13954
更新日期:2020-07-09 00:00:00
abstract:BACKGROUND:Smokers are a stigmatized population, but an important population to reach for the purpose of research. Therefore, innovative recruitment methods are needed that are both cost-effective and efficacious in recruiting this population. OBJECTIVE:The aim of the present article was to evaluate the feasibility of...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.5502
更新日期:2016-06-15 00:00:00