Abstract:
BACKGROUND:Although the use of patient-generated data (PGD) in the optimization of patient care shows great promise, little is known about whether patients who track their PGD necessarily share the data with their clinicians. Meanwhile, health literacy-an important construct that captures an individual's ability to manage their health and to engage with their health care providers-has often been neglected in prior studies focused on PGD tracking and sharing. To leverage the full potential of PGD, it is necessary to bridge the gap between patients' data tracking and data sharing practices by first understanding the interrelationships between these practices and the factors contributing to these practices. OBJECTIVE:This study aims to systematically examine the interrelationships between PGD tracking practices, data sharing practices, and health literacy among individual patients. METHODS:We surveyed 109 patients at the time they met with a clinician at a university health center, unlike prior research that often examined patients' retrospective experience after some time had passed since their clinic visit. The survey consisted of 39 questions asking patients about their PGD tracking and sharing practices based on their current clinical encounter. The survey also contained questions related to the participants' health literacy. All the participants completed the survey on a tablet device. The onsite survey study enabled us to collect ecologically valid data based on patients' immediate experiences situated within their clinic visit. RESULTS:We found no evidence that tracking PGD was related to self-reports of having sufficient information to manage one's health; however, the number of data types participants tracked positively related to their self-assessed ability to actively engage with health care providers. Participants' data tracking practices and their health literacy did not relate to their data sharing practices; however, their ability to engage with health care providers positively related to their willingness to share their data with clinicians in the future. Participants reported several benefits of, and barriers to, sharing their PGD with clinicians. CONCLUSIONS:Although tracking PGD could help patients better engage with health care providers, it may not provide patients with sufficient information to manage their health. The gaps between tracking and sharing PGD with health care providers call for efforts to inform patients of how their data relate to their health and to facilitate efficient clinician-patient communication. To realize the full potential of PGD and to promote individuals' health literacy, empowering patients to effectively track and share their PGD is important-both technologies and health care providers can play important roles.
journal_name
J Med Internet Resjournal_title
Journal of medical Internet researchauthors
Luo Y,Oh CY,Jean BS,Choe EKdoi
10.2196/18937subject
Has Abstractpub_date
2020-12-22 00:00:00pages
e18937issue
12eissn
1439-4456issn
1438-8871pii
v22i12e18937journal_volume
22pub_type
杂志文章abstract:BACKGROUND:There is no functional pharmacovigilance system in Cambodia to our knowledge. Mobile phone-based tools, such as short message service (SMS) text messages, are increasingly used for surveillance purposes. OBJECTIVE:To pilot-test the FrontlineSMS mobile phone-based tool for notification of adverse events, usi...
journal_title:Journal of medical Internet research
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journal_title:Journal of medical Internet research
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pub_type: 杂志文章,随机对照试验
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