Abstract:
OBJECTIVES:To understand the experiences of parents of infants who required surgery early in life. To identify messages and training needs for the extended clinical teams caring for these families-including paediatric surgeons, neonatologists, nurses, obstetricians, midwives and sonographers. SETTING:UK-wide interview study, including England, Wales and Scotland. PARTICIPANTS:In-depth interviews were conducted with 44 parents who had a baby who underwent early abdominal surgery. Conditions included those diagnosed antenatally (eg, exomphalos, gastroschisis, congenital diaphragmatic hernia) or those which were detected postnatally (eg, Hirschsprung's disease, necrotising enterocolitis). Interviews were video and audio recorded and analysed using a modified grounded-theory approach. RESULTS:While some parents reported experiencing excellent communication and felt they were listened to and involved by the care team, this was not always the case. Dealing with large, complex medical and surgical teams could result in conflicting messages, uncertainty and distress. Parents wanted information but also described being overwhelmed and wanting to distance themselves to maintain hope. Information and support from other parents in hospital and online groups were highly valued. Of particular concern was support when going home and caring for their baby after discharge; an open access policy for readmission offered a helpful safety net. CONCLUSIONS:Listening to the experience of parents provides rich data to enhance clinical understandings on how to improve information and communication with parents, and ameliorate the deep and lasting distress and anxiety that some parents feel when their infants face early surgery. We suggest that the writings of Bourdieu could have resonance in interpreting the experiences of parents as they enter the world of highly technical neonatal medicine and surgery and the knowledge of the professionals who work in these environments.
journal_name
BMJ Openjournal_title
BMJ openauthors
Hinton L,Locock L,Long AM,Knight Mdoi
10.1136/bmjopen-2017-020921subject
Has Abstractpub_date
2018-06-30 00:00:00pages
e020921issue
6issn
2044-6055pii
bmjopen-2017-020921journal_volume
8pub_type
杂志文章相关文献
BMJ Open文献大全abstract:INTRODUCTION:In patients with large abdominal aortic aneurysm (AAA), open surgical or endovascular aneurysm repair procedures are often used to minimise the risk of aneurysm-related rupture and death; however, aneurysm repair itself carries a high risk. Low cardiopulmonary fitness is associated with an increased risk o...
journal_title:BMJ open
pub_type: 杂志文章,随机对照试验
doi:10.1136/bmjopen-2013-004094
更新日期:2014-01-10 00:00:00
abstract:OBJECTIVES:To clarify the association between glucose intolerance and high altitudes (2900-4800 m) in a hypoxic environment in Tibetan highlanders and to verify the hypothesis that high altitude dwelling increases vulnerability to diabetes mellitus (DM) accelerated by lifestyle change or ageing. DESIGN:Cross-sectional...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2015-009728
更新日期:2016-02-23 00:00:00
abstract:INTRODUCTION:Recommendations on energy intake are key in body weight management to improve glycaemic control in people with type 2 diabetes (T2D). International clinical guidelines recommend a variety of eating patterns to promote energy restriction as the primary dietetic approach to body weight control in managing T2...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2019-032893
更新日期:2019-11-21 00:00:00
abstract:OBJECTIVE:To identify the main areas of uncertainty and subsequent research priorities to inform the ongoing debate around assisted dying. DESIGN:Two-round electronic modified Delphi consultation with experts and interested bodies. SETTING AND PARTICIPANTS:110 groups and individuals interested in the subject of end-o...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2016-012213
更新日期:2016-06-07 00:00:00
abstract:OBJECTIVES:The aim was to study whether a workplace-registered frequent short-term sick leave spell pattern was an early indicator of future disability pension or future long-term sick leave among municipal eldercare workers. SETTING:The municipal healthcare sector in the city of Aarhus, which is the second largest ci...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2013-003941
更新日期:2014-02-07 00:00:00
abstract:INTRODUCTION:Individuals with Parkinson's disease (PD) have to deal with several aspects of voice and speech decline and thus alteration of communication ability during the course of the disease. Among these communication impairments, 3 major challenges include: (1) dysarthria, consisting of orofacial motor dysfunction...
journal_title:BMJ open
pub_type: 杂志文章,多中心研究
doi:10.1136/bmjopen-2016-012885
更新日期:2016-11-17 00:00:00
abstract:OBJECTIVE:The global research group, DIPLOMATIC (Using eviDence, Implementation science, and a clinical trial PLatform to Optimise MATernal and newborn health in low Income Countries), aims to reduce stillbirths and preterm births and optimise outcomes for babies born preterm. Minimum datasets for routine data collecti...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2020-038859
更新日期:2020-11-24 00:00:00
abstract:OBJECTIVES:In 2012, Australia was the first country in the world to introduce plain or standardised tobacco packaging, coupled with larger graphic health warnings. This policy was fiercely opposed by industry. Media coverage can be an influential contributor to public debate, and both public health advocates and indust...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2018-023485
更新日期:2018-09-17 00:00:00
abstract:OBJECTIVES:To assess the effectiveness of a combined classroom curriculum and parental intervention (the Steps Towards Alcohol Misuse Prevention Programme (STAMPP)), compared with alcohol education as normal (EAN), in reducing self-reported heavy episodic drinking (HED) and alcohol-related harms (ARHs) in adolescents. ...
journal_title:BMJ open
pub_type: 杂志文章,随机对照试验
doi:10.1136/bmjopen-2017-019722
更新日期:2018-03-09 00:00:00
abstract:INTRODUCTION:The study 'Mental healthcare provision for adults with intellectual disability and a mental disorder' (MEMENTA) is a cross-sectional epidemiological study carried out in three different regions of Germany. Its main aim is to assess the prevalence of mental disorders in adults with intellectual disability (...
journal_title:BMJ open
pub_type: 杂志文章,多中心研究
doi:10.1136/bmjopen-2014-004878
更新日期:2014-05-20 00:00:00
abstract:OBJECTIVES:To investigate the accuracy, reproducibility and costs of different laboratory assays for the monitoring of unfractionated heparin (UFH) in clinical practice and to study test utilisation in Switzerland. DESIGN:Prospective evaluation study and survey among Swiss hospitals and laboratories. SETTING:Secondar...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2018-022943
更新日期:2018-06-09 00:00:00
abstract:OBJECTIVES:To investigate how patients prefer to be addressed by healthcare providers and to assess their knowledge of their attending medical team's identity in an Australian Hospital. SETTING:Single-centre, large tertiary hospital in Australia. PARTICIPANTS:300 inpatients were included in the survey. Patients were ...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2015-008473
更新日期:2016-01-06 00:00:00
abstract:INTRODUCTION:Community-based interventions have been found to effectively increase the implementation of alcohol management practices and reduce excessive alcohol use and alcohol-related harm at sports clubs. However, once implementation support ceases there may be a reduction in such intervention effects. Thus, ongoin...
journal_title:BMJ open
pub_type: 杂志文章,随机对照试验
doi:10.1136/bmjopen-2017-017796
更新日期:2018-01-23 00:00:00
abstract:OBJECTIVES:The optimal method of identifying people with chronic obstructive pulmonary disease (COPD) from electronic primary care records is not known. We assessed the accuracy of different approaches using the Clinical Practice Research Datalink, a UK electronic health record database. SETTING:951 participants regis...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2014-005540
更新日期:2014-07-23 00:00:00
abstract:OBJECTIVE:Psychological distress is generally associated with poor dietary intake, but this has never been investigated among residents after a major disaster. We attempted to reveal the associations between dietary intake and non-specific mental health distress as well as traumatic symptoms among evacuees after the Gr...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2016-011534
更新日期:2016-07-05 00:00:00
abstract:OBJECTIVE:Despite the increasing numbers of published trials of quality improvement (QI) interventions in diabetes, little is known about the risk of bias in this literature. DESIGN:Secondary analysis of a systematic review. DATA SOURCES:Medline, the Cochrane Effective Practice and Organisation of Care (EPOC) databas...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2013-002727
更新日期:2013-04-09 00:00:00
abstract:OBJECTIVES:Data have indicated low to non-existent increased mortality risk for individuals with prediabetes, but it is unclear if the risk is increased when the patient has elevated iron markers. Our purpose was to examine the mortality risk among adults with prediabetes in the context of coexisting elevated transferr...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2014-006491
更新日期:2014-12-11 00:00:00
abstract:INTRODUCTION:Although physical activity may reduce disease burden, fatigue and disability, and improve quality of life among people with multiple sclerosis (MS), many people with MS are physically inactive and spend significant time in sedentary behaviour. Behaviour change interventions may assist people with MS to inc...
journal_title:BMJ open
pub_type: 杂志文章,随机对照试验
doi:10.1136/bmjopen-2017-018875
更新日期:2017-11-15 00:00:00
abstract:OBJECTIVES:To conduct a fully independent, external validation of a research study based on one electronic health record database using a different database sampling from the same population. DESIGN:Retrospective cohort analysis of β-blocker therapy and all-cause mortality in patients with cancer. SETTING:Two UK nati...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2014-007299
更新日期:2015-04-13 00:00:00
abstract:OBJECTIVE:To evaluate the impact of a model of rural community health service (CHS) on the use and acceptability of primary healthcare services. DESIGN:Quasi-experimental. SETTING:Two adjacent rural counties in China. PARTICIPANTS:5842 residents in 2009 and 3807 in 2010 from 980 households in 7 intervention township...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2013-004148
更新日期:2014-02-28 00:00:00
abstract:INTRODUCTION:Low-cost interventions providing self-management support are needed for people with coronary artery disease (CAD) and diabetes. Mobile phone text messaging provides a potential vehicle for this. The SupportMe Trial aims to assess the feasibility of embedding a text messaging programme into routine clinical...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2018-025923
更新日期:2019-06-19 00:00:00
abstract:OBJECTIVE:To determine levels of public registration for a cohort of clinical trials reviewed and given a favourable opinion by research ethics committees in the United Kingdom. STUDY DESIGN:Audit of records. SETTING:Clinical trials receiving a favourable ethics opinion between 1 January 2016 and 30 June 2016. MAIN ...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2018-026840
更新日期:2019-02-21 00:00:00
abstract:OBJECTIVES:Chromosome 9p21 single nucleotide polymorphism (SNP) is a susceptibility variant for acute myocardial infarction (AMI) in the primary prevention setting. However, it is controversial whether this SNP is also associated with recurrent myocardial infarction (ReMI) in the secondary prevention setting. The purpo...
journal_title:BMJ open
pub_type: 杂志文章,多中心研究
doi:10.1136/bmjopen-2014-005438
更新日期:2014-01-01 00:00:00
abstract:BACKGROUND:The amount of scientific literature available is often overwhelming, making it difficult for researchers to have a good overview of the literature and to see relations between different developments. Visualisation techniques based on bibliometric data are helpful in obtaining an overview of the literature on...
journal_title:BMJ open
pub_type: 杂志文章,评审
doi:10.1136/bmjopen-2013-004468
更新日期:2014-03-13 00:00:00
abstract:INTRODUCTION:Commonly used clinical tests for posterior cruciate ligament (PCL) rupture detection exhibit several limitations, thus requiring more precise clinical PCL tests. The lateral-anterior drawer (LAD) test has been proposed as a manually applied testing alternative but not yet been evaluated in vivo. METHODS A...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2017-020999
更新日期:2018-05-29 00:00:00
abstract:OBJECTIVES:Internalised homonegativity (IH) is hypothesised to be associated with HIV risk behaviour and HIV testing in men who have sex with men (MSM). We sought to determine the social and individual variables associated with IH and the associations between IH and HIV-related behaviours. DESIGN AND SETTING:We examin...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2012-001928
更新日期:2013-02-04 00:00:00
abstract:OBJECTIVES:It is unclear how newer methods of respiratory support for infants born extremely preterm (EP; 22-27 weeks gestation) have affected in-hospital sequelae. We aimed to determine changes in respiratory support, survival and morbidity in EP infants since the early 1990s. DESIGN:Prospective longitudinal cohort s...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2020-037507
更新日期:2020-09-10 00:00:00
abstract:OBJECTIVES:Rugby has a high injury incidence and therefore BokSmart introduced the Safe Six injury prevention programme in 2014 in an attempt to decrease this incidence. In 2015, BokSmart used a 'targeted marketing approach' to increase the awareness and knowledge of the Safe Six. Therefore, the aim of this study was t...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2017-018575
更新日期:2017-11-03 00:00:00
abstract::Objectives To develop and validate a scoring tool based on demographic and injecting risk behaviours to identify those who require additional, non-routine serological screening for hepatitis C virus (HCV) by assessing their personal risk. Design Cross-sectional and prospective cohorts. Setting People who inject drug...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2011-000387
更新日期:2012-01-04 00:00:00
abstract:BACKGROUND:Cervical cancer rates are higher in low-resourced countries than high, partly due to lower rates of screening. Incidence in Thailand is nearly three times higher than in the USA (16.2 vs 6.5 age-standardised incidence), even with Thailand's universal health coverage, which includes screening, suggesting that...
journal_title:BMJ open
pub_type: 杂志文章
doi:10.1136/bmjopen-2019-031957
更新日期:2019-11-03 00:00:00