Abstract:
BACKGROUND:Clefting of the lip and/or palate (CL/P) is amongst the five most common birth defects reported in South Africa. The emotional impact on parents at the birth of their new-born with CL/P could affect parent-child relationships. In light of insufficient scholarly attention parental experiences and perceptions, this study reports on caregivers' perceptions of health service provision and support for children born with cleft lip and palate in South Africa. METHODS:The study setting consisted of 11 academic hospital centres situated in six of South Africa's nine provinces. At each of the academic centres cleft clinic, five to ten parents or caregivers were selected purposively. Participants were interviewed, using a semi-structured interview schedule that elicited socio-demographic information, explored the family experiences of having a child with CL/P, and their perceptions of care provision and support services available. The interviews were analysed using thematic content analysis. RESULTS:Seventy-nine participants were interviewed. Their mean age was 33.3 years (range 17-68 years). The majority of the parents were black African (72%), unemployed (72%), single (67%) and with only primary school education (58%). The majority of the children were male, with a mean age of 3.8 (SD = ±4.3) years. Five broad themes emerged from the interviews: emotional experiences following the birth of a child with cleft lip and palate; reactions from family, friends or the public; the burden of care provision; health system responsiveness; and social support services. Caregivers reported feelings of shock, anxiety, and sadness, exacerbated by the burden of care provision, health system deficiencies, lack of public awareness and insufficient social support services. CONCLUSIONS:The findings have implications for the integrated management of children with cleft lip and/or palate, including information to parents, the education and training of healthcare providers, raising public awareness of birth defects, and social support.
journal_name
BMC Public Healthjournal_title
BMC public healthauthors
Hlongwa P,Rispel LCdoi
10.1186/s12889-018-5421-xsubject
Has Abstractpub_date
2018-04-16 00:00:00pages
506issue
1issn
1471-2458pii
10.1186/s12889-018-5421-xjournal_volume
18pub_type
杂志文章abstract:BACKGROUND:The HIV epidemic in Russia is concentrated among injection drug users (IDUs). This is especially true for St. Petersburg where high HIV incidence persists among the city's estimated 80,000 IDUs. Although sterile syringes are legally available, access for IDUs may be hampered. To explore the feasibility of us...
journal_title:BMC public health
pub_type: 杂志文章
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更新日期:2018-07-16 00:00:00
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pub_type: 杂志文章,多中心研究,随机对照试验
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pub_type: 杂志文章,随机对照试验
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更新日期:2013-01-18 00:00:00
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更新日期:2012-09-11 00:00:00
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更新日期:2017-07-03 00:00:00
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更新日期:2011-10-04 00:00:00
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更新日期:2009-08-05 00:00:00
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更新日期:2018-05-15 00:00:00
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pub_type: 杂志文章
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更新日期:2019-07-08 00:00:00