Internet cancer support groups: legal and ethical issues for nurse researchers.

Abstract:

PURPOSE/OBJECTIVES:To explore the legal and ethical issues surrounding the use of information obtained from Internet cancer support groups (ICSGs) in research. DATA SOURCES:Published articles, news broadcasts, books, government reports. DATA SYNTHESIS:ICSGs are a rich source of information for people with cancer, their families, caregivers, and nurse researchers. Because ICSGs are new in research, potential legal and ethical conflicts in this setting exist. CONCLUSIONS:ICSGs are an early prototype of patient groups empowered to seek health through the use of information technology. Nurses are ideally suited to advance this new area of healthcare technology. Honoring the trust that patients have always placed in nurses is essential if this technology is to be developed further. IMPLICATIONS FOR NURSING PRACTICE:Given the dearth of guidelines to direct researchers, legal and ethical conflicts may occur. Nurse researchers should be cognizant of the potential legal and ethical implications involved in conducting research via the Internet.

journal_name

Oncol Nurs Forum

journal_title

Oncology nursing forum

authors

Klemm P,Nolan MT

subject

Has Abstract

pub_date

1998-05-01 00:00:00

pages

673-6

issue

4

eissn

0190-535X

issn

1538-0688

journal_volume

25

pub_type

杂志文章,评审
  • Children's medical fears, coping behaviors, and pain perceptions during a lumbar puncture.

    abstract::This study explored the relationships among medical fears, coping behaviors, and acute pain perceptions in 17 children with cancer who were encountering a painful medical procedure. The children completed the Child Medical Fear Scale (CMFS) before undergoing a lumbar puncture (LP), which was videotaped. The children's...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:

    authors: Broome ME,Bates TA,Lillis PP,McGahee TW

    更新日期:1990-05-01 00:00:00

  • Symptom Clusters in Patients With Pancreatic Cancer Undergoing Surgical Resection: Part II.

    abstract:OBJECTIVES:To explore the relationship between 16 symptom clusters (SCs), clinical and demographic influencing factors, and clinical outcomes over time in patients with pancreatic cancer (PC) undergoing surgical resection. SAMPLE & SETTING:143 patients with stage II PC undergoing surgical resection were recruited ...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/18.ONF.E53-E66

    authors: Burrell SA,Yeo TP,Smeltzer SC,Leiby BE,Lavu H,Kennedy EP,Yeo CJ

    更新日期:2018-07-02 00:00:00

  • Professional and ethical considerations in the use of high-tech pain management.

    abstract::Pain management, a primary focus of the oncology nurse, is undergoing a technologic boom. Assessment of high-tech treatments in medicine is an underdeveloped and controversial area. This paper is intended to promote critical thinking about methods of high-tech pain relief such as subcutaneous, IV, and intraspinal anal...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:

    authors: Whedon M,Ferrell BR

    更新日期:1991-09-01 00:00:00

  • The oncology nurse's role in patient advance directives.

    abstract::In December 1991, Patient Self-Determination Amendment (PSDA) legislation was implemented. The PSDA requires facilities funded by Medicare/Medicaid to inform patients of their decision-making rights regarding medical care. An advance directive (AD), a living will, or a durable power of attorney for health care contain...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:

    authors: Dimond EP

    更新日期:1992-07-01 00:00:00

  • Feasibility and Acceptability of Distress Screening for Family Caregivers at a Cancer Surgery Center.

    abstract:OBJECTIVES:To determine the feasibility and acceptability of a validated electronic distress screening program for cancer caregivers. SAMPLE & SETTING:17 informal caregivers presenting with a patient with cancer to an ambulatory cancer surgery center. METHODS & VARIABLES:Caregivers completed the CancerSupport...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/19.ONF.159-169

    authors: Shaffer KM,Benvengo S,Zaleta AK,Levine M,Bellantoni C,Dannaoui A,Buzaglo JS,Applebaum AJ

    更新日期:2019-03-01 00:00:00

  • Does emotional expression make a difference in reactions to breast cancer?

    abstract:PURPOSE/OBJECTIVES:To examine the feasibility of using an emotional expression intervention with patients with cancer and test the hypothesis that emotional expression improves psychosocial adjustment. DESIGN:Sequentially randomized pretest/post-test design with repeated measures. SETTING:Two radiation therapy (RT) f...

    journal_title:Oncology nursing forum

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:

    authors: Walker BL,Nail LM,Croyle RT

    更新日期:1999-07-01 00:00:00

  • Guideline-Recommended Symptom Management Strategies That Cross Over Two or More Cancer Symptoms.

    abstract:PROBLEM IDENTIFICATION:Patients with cancer experience multiple symptoms, but current practice is driven by guidelines that address single symptoms. Identifying symptom management strategies recommended across two or more symptoms could relieve multiple symptoms and reduce patient burden. LITERATURE SEARCH:The Oncolog...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/20.ONF.498-511

    authors: Kwekkeboom KL,Wieben A,Stevens J,Tostrud L,Montgomery K

    更新日期:2020-09-01 00:00:00

  • Taste dysfunction in head and neck cancer survivors.

    abstract:PURPOSE/OBJECTIVES:To describe the prevalence of issues with taste function in survivors of head and neck cancer. DESIGN:Exploratory, cross-sectional. SETTING:Outpatients from Saint Louis University Cancer Center in Missouri. SAMPLE:92 adult head and neck cancer survivors, heterogeneous in cancer site, treatment typ...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/13.ONF.E4-E13

    authors: McLaughlin L

    更新日期:2013-01-01 00:00:00

  • Quality of life and sociodemographic characteristics of patients with cancer in Turkey.

    abstract:PURPOSE/OBJECTIVES:To determine whether a relationship exists between quality of life (QOL) and the sociodemographic characteristics of gender, age, marital status, educational level, occupation, and level of income in patients with cancer in Turkey. DESIGN:Exploratory study using a convenience sample. SETTING:Five h...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/06.ONF.1171-1176

    authors: Güner P,Isikhan V,Kömürcü S,Il S,Oztürk B,Arpaci F,Ozet A

    更新日期:2006-11-27 00:00:00

  • Feasibility of a patient-controlled cognitive-behavioral intervention for pain, fatigue, and sleep disturbance in cancer.

    abstract:PURPOSE/OBJECTIVES:To evaluate the feasibility of a patient-controlled cognitive-behavioral intervention for pain, fatigue, and sleep disturbance during treatment for advanced cancer and to assess initial efficacy of the intervention. DESIGN:One group pre- and post-test design. SETTING:Outpatient oncology clinics at ...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/10.ONF.E151-E159

    authors: Kwekkeboom KL,Abbott-Anderson K,Wanta B

    更新日期:2010-05-01 00:00:00

  • Incorporating supportive care into routine cancer care: the benefits and challenges to clinicians' practice.

    abstract:PURPOSE/OBJECTIVES:To investigate clinicians' experiences with supportive care screening and referral, and identify perceived barriers and benefits associated with implementation into the clinical setting. DESIGN:Qualitative, exploratory approach based on interviews. SETTING:A large regional hospital in Victoria, Aus...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/11.ONF.E204-E211

    authors: Ristevski E,Breen S,Regan M

    更新日期:2011-05-01 00:00:00

  • Expressive writing in women with advanced breast cancer.

    abstract:PURPOSE/OBJECTIVES:To explore the relationships between patterns of affective word use (words with positive or negative connotations) in expressive writing conducted over four consecutive days and quality of life (QOL) three months after the writing exercise in women with metastatic breast cancer. DESIGN:Descriptive, ...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章,多中心研究

    doi:10.1188/07.ONF.1019-1024

    authors: Laccetti M

    更新日期:2007-09-01 00:00:00

  • Transitions of male partners of women with breast cancer: hope, guilt, and quality of life.

    abstract:PURPOSE/OBJECTIVES:To (a) describe the types of transitions experienced by male spousal caregivers of women with breast cancer and the strategies used by male spouses to deal with these transitions and (b) examine factors related to their quality of life, including demographic variables, self-efficacy, caregiver guilt,...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/15.ONF.134-141

    authors: Duggleby W,Thomas J,Montford K,Thomas R,Nekolaichuk C,Ghosh S,Cumming C,Tonkin K

    更新日期:2015-03-01 00:00:00

  • The human genome exposed: a glimpse of promise, predicament, and impact on practice.

    abstract:PURPOSE/OBJECTIVES:To review basic gene biology, discuss current genetic advances, and project the potential impact of these advances on oncology nursing practice. DATA SOURCES:Published professional articles, tests, proceedings, governmental and lay publications. DATA SYNTHESIS:The Human Genome Project seeks to bett...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章,评审

    doi:

    authors: Engelking C

    更新日期:1995-03-01 00:00:00

  • Advanced practice issues: results of the ONS Advanced Practice Nursing survey.

    abstract:PURPOSE/OBJECTIVES:To ascertain the critical issues in current advanced practice nurse (APN) roles in oncology. DESIGN:Descriptive. SETTING:National. SAMPLE:368 Oncology Nursing Society (ONS) APNs in oncology practice. METHODS:Subjects completed an 11-page self-administered questionnaire comprised of 62 multiple-ch...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:

    authors: Lynch MP,Cope DG,Murphy-Ende K

    更新日期:2001-11-01 00:00:00

  • Perspectives of Inpatients With Cancer on Engagement in Fall Prevention.

    abstract:PURPOSE:To explore perspectives of hospitalized adults with cancer regarding engagement in fall prevention plans. The primary aim was to discover new knowledge about patients' perspectives and improve the design of fall prevention strategies. A secondary aim was to compare fall-related perspectives of patients who had ...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/20.ONF.457-468

    authors: Twibell KR,Siela D,Delaney L,Avila P,Spradlin AM,Coers G

    更新日期:2020-07-01 00:00:00

  • The relationships between family primary caregiver characteristics and satisfaction with hospice care, quality of life, and burden.

    abstract:PURPOSE/OBJECTIVES:To examine relationships between family primary caregiver characteristics and satisfaction with hospice care, quality of life (QOL), and burden. DESIGN:Exploratory, quantitative. SETTING:Five hospice organizations in Eastern Washington and Northern Idaho. SAMPLE:44 primary caregivers of patients e...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章,多中心研究

    doi:

    authors: Meyers JL,Gray LN

    更新日期:2001-01-01 00:00:00

  • Priorities for oncology nursing research: the 2013 national survey.

    abstract:PURPOSE/OBJECTIVES:To advance the goals of evidence-based care and prioritize the knowledge generation that addresses contemporary challenges in oncology nursing. Results are used to inform the development of the Oncology Nursing Society (ONS) Research Agenda and by the ONS Foundation to develop strategic research init...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/14.ONF.67-76

    authors: LoBiondo-Wood G,Brown CG,Knobf MT,Lyon D,Mallory G,Mitchell SA,Von Ah D,Wesmiller S,Fellman B

    更新日期:2014-01-01 00:00:00

  • Update on the state of the science: sleep-wake disturbances in adult patients with cancer.

    abstract:PURPOSE/OBJECTIVES:To update the state of the science on sleep-wake disturbances in adult patients with cancer, focusing on insomnia in the areas of prevalence, mechanisms and models, measurement, interventions, and implications for practice, health policy, education, and research. DATA SOURCES:Published articles, boo...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章,评审

    doi:10.1188/09.ONF.E165-E177

    authors: Berger AM

    更新日期:2009-07-01 00:00:00

  • Prevention of dimethylsulfoxide-related nausea and vomiting by prophylactic administration of ondansetron for patients receiving autologous cryopreserved peripheral blood stem cells.

    abstract:PURPOSE/OBJECTIVES:To evaluate the effectiveness of ondansetron for the prevention of nausea and vomiting from dimethylsulfoxide (DMSO) during autologous stem cell transplantation (ASCT) infusion. DESIGN:Nonrandomized cohort using historical control. SETTING:Comprehensive cancer center outpatient infusion department....

    journal_title:Oncology nursing forum

    pub_type: 临床试验,杂志文章

    doi:10.1188/13.ONF.285-292

    authors: Eisenberg S,Wickline M,Linenberger M,Gooley T,Holmberg L

    更新日期:2013-05-01 00:00:00

  • A decision aid to improve smoking abstinence for families facing cancer.

    abstract:PURPOSE/OBJECTIVES:To test the feasibility of a multidisciplinary, multicomponent, theory-based decision aid. DESIGN:Prospective, one-group repeated measures. SETTING:Thoracic surgery clinic in a university hospital cancer center in central Virginia. SAMPLE:8 dyads, consisting of 16 total participants. METHODS:A mu...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/14.ONF.649-658

    authors: McDonnell KK,Bullock LF,Kozower BD,Hollen PJ,Heath J,Rovnyak V

    更新日期:2014-11-01 00:00:00

  • Relationships among pain, fatigue, insomnia, and gender in persons with lung cancer.

    abstract:PURPOSE/OBJECTIVES:To examine the relationships among pain, fatigue, insomnia, and gender while controlling for age, comorbidities, and stage of cancer in patients newly diagnosed with lung cancer within 56 days of receiving chemotherapy. DESIGN:Secondary data analysis. SETTING:Accrual from four sites: two clinical c...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/07.ONF.785-792

    authors: Hoffman AJ,Given BA,von Eye A,Gift AG,Given CW

    更新日期:2007-07-01 00:00:00

  • Pandemic Paradox.

    abstract::The COVID-19 crisis continues. Worldwide, there have been roughly 6.3 million cases and 380,000 deaths. In the United States, at the time of this writing, there were 106,200 deaths. As life has changed on many fronts, some predictable effects of the pandemic have occurred, including socioeconomic hardships, social iso...

    journal_title:Oncology nursing forum

    pub_type: 社论

    doi:10.1188/20.ONF.371-372

    authors: Lyon D

    更新日期:2020-07-01 00:00:00

  • Oncology outpatient and provider responses to a computerized symptom assessment system.

    abstract:PURPOSE/OBJECTIVES:To assess patient and provider responses to a computerized symptom assessment system. DESIGN:Descriptive, longitudinal study with retrospective, longitudinal medical records review. SETTING:University-based National Cancer Institute-designated outpatient cancer center. SAMPLE:80 oncology outpatien...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:10.1188/08/ONF.661-669

    authors: Carpenter JS,Rawl S,Porter J,Schmidt K,Tornatta J,Ojewole F,Helft P,Potter DA,Sweeney C,Giesler RB

    更新日期:2008-07-01 00:00:00

  • Prevention and treatment of acute radiation dermatitis: a literature review.

    abstract:PURPOSE/OBJECTIVES:To review historical and current research data on prevention and treatment of acute radiation dermatitis. DATA SOURCES:18 research trials and 1 case report published from 1967-2001 and 1 unpublished research trial from 1972. DATA SYNTHESIS:Washing the skin with mild soap and water and the hair with...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章,评审

    doi:10.1188/04.ONF.237-247

    authors: Wickline MM

    更新日期:2004-03-01 00:00:00

  • Effects of exercise in combination with epoetin alfa during high-dose chemotherapy and autologous peripheral blood stem cell transplantation for multiple myeloma.

    abstract:PURPOSE/OBJECTIVES:To determine the effect of aerobic and strength resistance training and epoetin alfa (EPO) therapy on transfusions, stem cell collections, transplantation recovery, and multiple myeloma treatment response. DESIGN:Randomized clinical trial. SETTING:A myeloma research and therapy center in the south ...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章,随机对照试验

    doi:10.1188/08.ONF.E53-E61

    authors: Coleman EA,Coon SK,Kennedy RL,Lockhart KD,Stewart CB,Anaissie EJ,Barlogie B

    更新日期:2008-05-01 00:00:00

  • Methodologic issues in collecting data from debilitated patients with cancer near the end of life.

    abstract:PURPOSE/OBJECTIVES:To report the experience of a group of researchers who have had a year of experience in a clinical trial with homecare hospice patients. SAMPLE:150 hospice patients with cancer and their primary caregivers who were accrued to a National Cancer Institute-funded clinical trial focusing on quality of l...

    journal_title:Oncology nursing forum

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1188/03.ONF.123-129

    authors: McMillan SC,Weitzner MA

    更新日期:2003-01-01 00:00:00

  • Skin self-examination in patients at high risk for melanoma: a pilot study.

    abstract:PURPOSE/OBJECTIVES:To compare the effect of providing high-risk patients with standard brochures versus personalized photo books as part of a comprehensive nursing intervention on knowledge, awareness, and confidence with skin self-examination (SSE) performance, as well as compliance in performing SSE. DESIGN:Randomiz...

    journal_title:Oncology nursing forum

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1188/03.ONF.1029-1036

    authors: Phelan DL,Oliveria SA,Christos PJ,Dusza SW,Halpern AC

    更新日期:2003-11-01 00:00:00

  • New chemotherapy treatment options and implications for nursing care.

    abstract:PURPOSE/OBJECTIVES:To review the drug profiles and nursing implications of Camptosar (irinotecan) (pharmacia & Upjohn, Inc., Kalamazoo, MI), Hycamtin (topotecan) (SmithKline Beecham Oncology,Philadelphia, PA), 9-aminocamptothecin TM (9-AC) (Pharmacia & Upjohn, Inc.), Taxotere (docetaxel) (Rhône-Poulenc Rorer Pharmaceut...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章,评审

    doi:

    authors: Berg DT

    更新日期:1997-01-01 00:00:00

  • Abnormal Pap screening among Mexican-American women: impediments to receiving and reporting follow-up care.

    abstract:PURPOSE/OBJECTIVES:To understand impediments to receiving and reporting timely follow-up care for abnormal Pap tests among Hispanic women. DESIGN:Descriptive, qualitative. SETTING:A federally funded cancer screening clinic in urban South Texas. SAMPLE:11 Mexican/Mexican-American women over 40 years old who appear in...

    journal_title:Oncology nursing forum

    pub_type: 杂志文章

    doi:

    authors: Hunt LM,de Voogd KB,Akana LL,Browner CH

    更新日期:1998-11-01 00:00:00