Research directions in genetic counselling: a review of the literature.

Abstract:

:There is a growing body of literature considering genetic counselling services in a variety of clinical settings. This literature encompasses both predictive and diagnostic testing, from the viewpoints of service providers and recipients. It also embraces a wide range of conceptions of the nature and goals of genetic counselling. However, research in this area has been criticised for a focus on outcome rather than process, and it has been suggested that this focus limits its practical use. The purpose of this review is twofold: (1) to describe the varying concepts of counselling which appear to be utilised in published work and (2) to discuss the possible applications of this work to practice.

journal_name

Patient Educ Couns

authors

Pilnick A,Dingwall R

doi

10.1016/s0738-3991(00)00181-6

subject

Has Abstract

pub_date

2001-08-01 00:00:00

pages

95-105

issue

2

eissn

0738-3991

issn

1873-5134

pii

S0738-3991(00)00181-6

journal_volume

44

pub_type

杂志文章,评审
  • The patient, the doctor and the emergency department: a cross-sectional study of patient-centredness in 1990 and 2005.

    abstract:OBJECTIVE:To compare and contrast the duration and content of physician-patient interaction for patients presenting to an emergency department with problems of low acuity in 1990 and 2005 treated by different grades of physician. METHODS:Observational study with data collection in May-July 1990 and May-July 2005. Pati...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2008.02.005

    authors: Dale J,Sandhu H,Lall R,Glucksman E

    更新日期:2008-08-01 00:00:00

  • Addressing mental health issues in primary care: an initial curriculum for medical residents.

    abstract:OBJECTIVE:Many express concern that modern medicine fails to provide adequate psychosocial and mental health care. Our educational system has not trained the primary care providers who care for most of these patients. Our objective here is to propose a quantum change: prepare residents and students during all years of ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2013.09.010

    authors: Smith RC,Laird-Fick H,D'Mello D,Dwamena FC,Romain A,Olson J,Kent K,Blackman K,Solomon D,Spoolstra M,Fortin AH 6th,Frey J,Ferenchick G,Freilich L,Meerschaert C,Frankel R

    更新日期:2014-01-01 00:00:00

  • The association of health literacy and blood pressure reduction in a cohort of patients with hypertension: The heart healthy lenoir trial.

    abstract:OBJECTIVE:Lower health literacy is associated with poorer health outcomes. Few interventions poised to mitigate the impact of health literacy in hypertensive patients have been published. We tested if a multi-level quality improvement intervention could differentially improve Systolic Blood Pressure (SBP) more so in pa...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.10.015

    authors: Halladay JR,Donahue KE,Cené CW,Li Q,Cummings DM,Hinderliter AL,Miller CL,Garcia BA,Little E,Rachide M,Tillman J,Ammerman AS,DeWalt D

    更新日期:2017-03-01 00:00:00

  • Participant reactions to a computerized telephone system for nutrition and exercise counseling.

    abstract::This paper reports on an evaluation of the reactions of participants in a computer-controlled telephone conversation system (telephone-linked care, TLC) designed to offer nutrition and exercise counseling. After 6 months in the study, subjects were asked a series of questions about their opinions of the TLC system, in...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/s0738-3991(02)00076-9

    authors: Glanz K,Shigaki D,Farzanfar R,Pinto B,Kaplan B,Friedman RH

    更新日期:2003-02-01 00:00:00

  • Patient age: a neglected factor when considering disease management in adults with type 2 diabetes.

    abstract:OBJECTIVE:The average age at diagnosis for type 2 diabetes is decreasing. However, because age is most often controlled for in clinical research, little is known regarding how adult age is associated with diabetes disease-related variables. METHODS:In a community based study with type 2 diabetes patients (N=506), afte...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2010.10.030

    authors: Hessler DM,Fisher L,Mullan JT,Glasgow RE,Masharani U

    更新日期:2011-11-01 00:00:00

  • Evaluating the use of text message communication in a postpartum patient navigation program for publicly insured women.

    abstract:OBJECTIVE:To compare communication between navigators and women according to follow-up status in a postpartum patient navigation program ("Navigating New Motherhood" [NNM]). METHODS:This is a mixed methods secondary analysis of text message and email transcripts from NNM. Transcripts were analyzed by number of message...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2018.10.028

    authors: Strohbach A,Hu F,Martinez NG,Yee LM

    更新日期:2019-04-01 00:00:00

  • Patients' perspectives of the doctor-patient relationship and information giving across a range of literacy levels.

    abstract:OBJECTIVE:This study explored the patient's experience of the doctor-patient relationship and information giving in health care. The views of patients with a range of literacy levels were examined. METHOD:321 patients at an in-patient cardiology unit provided the sample. The Health Literacy (HL) of participants was as...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2008.09.026

    authors: Shaw A,Ibrahim S,Reid F,Ussher M,Rowlands G

    更新日期:2009-04-01 00:00:00

  • Missing the forest for the trees.

    abstract::Despite my efforts and those of quite a few experienced colleagues we failed to diagnose our friend's wife illness and prevent her demise. But a sad and frustrating experience also stimulates reflection and dwelling on potential errors we made and hope to identify the next time. ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2018.07.017

    authors: Schattner A

    更新日期:2018-11-01 00:00:00

  • An experiment in common sense: education at blood pressure screening.

    abstract::This study compared the impact of three educational messages about hypertension used at a worksite blood pressure screening program. The messages sought to change beliefs and health behaviors related to hypertension. Each participant who had either been previously diagnosed as hypertensive or had an elevated blood pre...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/0738-3991(89)90007-4

    authors: Baumann LJ,Zimmerman RS,Leventhal H

    更新日期:1989-08-01 00:00:00

  • Detecting implicit racial bias in provider communication behaviors to reduce disparities in healthcare: Challenges, solutions, and future directions for provider communication training.

    abstract::Since publication of Unequal Treatment by the Institute of Medicine in 2003, there has been a growing recognition of the role of provider implicit racial bias in patient care. Provider implicit racial bias has been consistently negatively associated with both care satisfaction and provider trust among racial/ethnic mi...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2019.04.023

    authors: Hagiwara N,Elston Lafata J,Mezuk B,Vrana SR,Fetters MD

    更新日期:2019-09-01 00:00:00

  • The influence of limited English proficiency on outcome in patients treated with radiotherapy for head and neck cancer.

    abstract:OBJECTIVE:To evaluate how limited English proficiency affects treatment outcome in head and neck cancer (HNC) patients treated with curative intent radiation therapy (RT). METHODS:From 2004 to 2010, 131 patients with HNC underwent RT. Patient's self-reported primary language and race/ethnicity were obtained at hospita...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2014.07.031

    authors: Qureshi MM,Romesser PB,Jalisi S,Zaner KS,Cooley TP,Grillone G,Kachnic LA,Truong MT

    更新日期:2014-11-01 00:00:00

  • Association of age, health literacy, and medication management strategies with cardiovascular medication adherence.

    abstract:OBJECTIVE:To examine patients' use of medication management strategies (e.g., reminders, pill boxes), and to determine how their use influences the relationship between patient characteristics and medication adherence. METHODS:Retrospective and cross-sectional study of 434 patients with coronary heart disease, examini...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2010.04.030

    authors: Kripalani S,Gatti ME,Jacobson TA

    更新日期:2010-11-01 00:00:00

  • Management of stable COPD.

    abstract::Chronic obstructive pulmonary disease (COPD) is a systemic disease with major impact worldwide. In the treatment of COPD a holistic approach should be taken. In order to reach this, an individual treatment plan should be made which includes at least elements of smoking cessation, optimisation of pulmonary status by ph...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/S0738-3991(03)00095-8

    authors: van der Valk P,Monninkhof E,van der Palen J,Zielhuis G,van Herwaarden C

    更新日期:2004-03-01 00:00:00

  • Development of a questionnaire to evaluate the information needs of cancer patients: the EORTC questionnaire.

    abstract::Information disclosure is one of the key areas of support that patients may receive. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group has a group working on the development of a questionnaire that evaluates information received by cancer patients at different stages of their...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/S0738-3991(03)00240-4

    authors: Arraras JI,Wright S,Greimel E,Holzner B,Kuljanic-Vlasic K,Velikova G,Eisemann M,Visser A,EORTC Quality of Life Group.

    更新日期:2004-08-01 00:00:00

  • Validation of the Norwegian version of MAPPIN'SDM, an observation-based instrument to measure shared decision-making in clinical encounters.

    abstract:OBJECTIVE:To validate the Norwegian version of MAPPIN'SDM observer scales with regard to reliability, accuracy and the extent to which the scales include the essentials of the shared decision-making concept. METHODS:Three MAPPIN'SDM scales, focusing on the skills of doctor, patient and dyad, were applied to audiovisua...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.10.023

    authors: Kienlin S,Kristiansen M,Ofstad E,Liethmann K,Geiger F,Joranger P,Tveiten S,Kasper J

    更新日期:2017-03-01 00:00:00

  • Development and evaluation of a multimedia CD-ROM for exercise during pregnancy and postpartum.

    abstract:OBJECTIVE:To meet the need for an interactive product on exercise during pregnancy and postpartum, we developed and evaluated a personally tailored multimedia CD-ROM. METHODS:Pregnant and postpartum women, who were randomly assigned to either the experimental group (PregXercise CD-ROM) or the control group (CD-ROM wit...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.pec.2007.10.017

    authors: Hausenblas HA,Brewer BW,Van Raalte JL,Cook B,Downs DS,Weis CA,Nigg C,Cruz A

    更新日期:2008-02-01 00:00:00

  • Caregiving tasks and unmet supportive care needs of family caregivers: A U.S. population-based study.

    abstract:OBJECTIVE:To describe the type of care provided by a nationally-representative sample of informal caregivers, the frequency of unmet supportive care needs, and examine characteristics associated with unmet needs. METHODS:Using data from the Health Information National Trends Survey, we identified caregivers of an adul...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2019.10.015

    authors: Mollica MA,Smith AW,Kent EE

    更新日期:2020-03-01 00:00:00

  • Incorporating shared decision making into communication with older adults with cancer and their caregivers: Development and evaluation of a geriatric shared decision-making communication skills training module.

    abstract:OBJECTIVE:The purpose of this study was to evaluate a Communication Skills Training (CST) module for health care providers (HCPs) applying a shared decision-making approach to a meeting with an older adult with cancer and his/her family. METHODS:Ninety-nine HCPs from community-based centers, cancer centers, and hospit...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.04.032

    authors: Shen MJ,Manna R,Banerjee SC,Nelson CJ,Alexander K,Alici Y,Gangai N,Parker PA,Korc-Grodzicki B

    更新日期:2020-11-01 00:00:00

  • Relationship between improvements in heart failure patient disease specific knowledge and clinical events as part of a randomized controlled trial.

    abstract:OBJECTIVE:To examine the changes in performance on heart failure knowledge assessments administered before and after discharge education. METHODS:We conducted a randomized controlled trial comparing the effects of a 1-h, one-on-one teaching session with a nurse educator to the standard discharge process in patients wi...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2011.05.019

    authors: Kommuri NV,Johnson ML,Koelling TM

    更新日期:2012-02-01 00:00:00

  • Perception of diagnosis and openness of patients about infertility.

    abstract::The perception of the diagnosis of infertility and the openness of patients about infertility was investigated among 108 infertile couples. Husbands and wives answered a structured questionnaire. The perception of diagnosis was in 38% of the cases different from the medical diagnosis. Patients perceived the diagnosis ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(95)00852-7

    authors: van Balen F,Trimbos-Kemper T,Verdurmen J

    更新日期:1996-08-01 00:00:00

  • Belief in numbers: When and why women disbelieve tailored breast cancer risk statistics.

    abstract:OBJECTIVE:To examine when and why women disbelieve tailored information about their risk of developing breast cancer. METHODS:690 women participated in an online program to learn about medications that can reduce the risk of breast cancer. The program presented tailored information about each woman's personal breast c...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2013.03.016

    authors: Scherer LD,Ubel PA,McClure J,Greene SM,Alford SH,Holtzman L,Exe N,Fagerlin A

    更新日期:2013-08-01 00:00:00

  • The information-seeking behavior of cancer outpatients: a description of the situation.

    abstract::The information-seeking behavior of cancer outpatients has been studied with the purpose of collecting data for the development of an educational intervention: stimulating communication between cancer outpatients and their specialists. The intention to seek information, the realization of the intention and the reasons...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(93)90087-d

    authors: Borgers R,Mullen PD,Meertens R,Rijken M,Eussen G,Plagge I,Visser AP,Blijham GH

    更新日期:1993-11-01 00:00:00

  • Applying the Verona coding definitions of emotional sequences (VR-CoDES) to code medical students' written responses to written case scenarios: Some methodological and practical considerations.

    abstract:OBJECTIVE:To investigate whether the Verona Coding Definitions of Emotional Sequences to code health providers' responses (VR-CoDES-P) can be used for assessment of medical students' responses to patients' cues and concerns provided in written case vignettes. METHODS:Student responses in direct speech to patient cues ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.08.026

    authors: Ortwein H,Benz A,Carl P,Huwendiek S,Pander T,Kiessling C

    更新日期:2017-02-01 00:00:00

  • Effective or ineffective: attribute framing and the human papillomavirus (HPV) vaccine.

    abstract:OBJECTIVE:To experimentally test whether presenting logically equivalent, but differently valenced effectiveness information (i.e. attribute framing) affects perceived effectiveness of the human papillomavirus (HPV) vaccine, vaccine-related intentions and policy opinions. METHODS:A survey-based experiment (N=334) was ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2010.08.014

    authors: Bigman CA,Cappella JN,Hornik RC

    更新日期:2010-12-01 00:00:00

  • Therapeutic communication training in long-term care institutions: recommendations for future research.

    abstract:OBJECTIVE:The purpose of this review is to critique contemporary experimental research and to recommend future directions for research interventions on nursing aides' therapeutic communication with older adults who have cognitive impairment and/or dementia in institutional long-term care settings. METHODS:This literat...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2008.05.026

    authors: Levy-Storms L

    更新日期:2008-10-01 00:00:00

  • Patients' medical knowledge and health counseling: what kind of information helps to make communication patient-centered?

    abstract:OBJECTIVE:To examine how physicians use information about a patient's background knowledge when both anticipating what a patient knows and producing actual answers in an email counseling setting. METHODS:A fictitious patient used a (high vs. low) level of technical jargon in an email inquiry about diabetes and provide...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2012.01.011

    authors: Jucks R,Paus E,Bromme R

    更新日期:2012-08-01 00:00:00

  • "It's not like I can change my mind later": reversibility and decision timing in prostate cancer treatment decision-making.

    abstract:OBJECTIVE:To explore whether reversibility, decision timing, and uncertainty are relevant to men deciding on treatment for localized prostate cancer (LPC). DESIGN:Secondary qualitative data analysis of unstructured interviews. METHODS:Content analysis of previously collected qualitative data (31 individual interviews...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2009.03.017

    authors: Henrikson NB,Ellis WJ,Berry DL

    更新日期:2009-11-01 00:00:00

  • Once a week not enough, twice a week not feasible? A randomised controlled exercise trial in long-term care facilities [ISRCTN87177281].

    abstract:OBJECTIVE:To evaluate the effectiveness of three different training protocols on physical function of older adults living in long-term care facilities. Emphasis was placed on feasibility in real-life situations. METHODS:Subjects (N=224) were randomised to 6 months of twice weekly (1) resistance training; (2) all-round...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.pec.2005.10.008

    authors: Chin A Paw MJ,van Poppel MN,Twisk JW,van Mechelen W

    更新日期:2006-10-01 00:00:00

  • Biomarker feedback intervention for smoking cessation among Alaska Native pregnant women: Randomized pilot study.

    abstract:OBJECTIVE:There is some evidence for biomarker feedback when combined with cessation counseling for reducing smoking in pregnancy. This randomized controlled pilot study evaluated feasibility and potential efficacy of a social-cognitive theory (SCT)-based biomarker feedback intervention among pregnant Alaska Native (AN...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2018.10.009

    authors: Patten CA,Koller KR,Flanagan CA,Hiratsuka VY,Hughes CA,Wolfe AW,Decker PA,Fruth K,Brockman TA,Korpela M,Gamez D,Bronars C,Murphy NJ,Hatsukami D,Benowitz NL,Thomas TK

    更新日期:2019-03-01 00:00:00

  • The physician-patient working alliance: Theory, research, and future possibilities.

    abstract:OBJECTIVE:This article discusses the physician-patient working alliance and reviews the empirical research that has been generated on the working alliance to date. METHODS:The paper presents a brief history of the study of the physician-patient relationship, and discusses constructs that have examined aspects of the r...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,meta分析,评审

    doi:10.1016/j.pec.2016.10.018

    authors: Fuertes JN,Toporovsky A,Reyes M,Osborne JB

    更新日期:2017-04-01 00:00:00