Abstract：
:Information disclosure is one of the key areas of support that patients may receive. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group has a group working on the development of a questionnaire that evaluates information received by cancer patients at different stages of their disease--EORTC QLQ-INFO30. This instrument is being developed by professionals from most European regions. The questionnaire aims to evaluate the information received by cancer patients on different areas of the disease, diagnosis, treatment and care. Besides, the instrument also assesses qualitative aspects of the information they have received. The present paper presents the first two phases of the module development process that include literature review, interviews with patients and professionals, and formulation of the items. All these steps have been carried out in different countries and have been approved by the EORTC QLG.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Arraras JI,Wright S,Greimel E,Holzner B,Kuljanic-Vlasic K,Velikova G,Eisemann M,Visser A,EORTC Quality of Life Group.doi
10.1016/S0738-3991(03)00240-4subject
Has Abstractpub_date
2004-08-01 00:00:00pages
235-41issue
2eissn
0738-3991issn
1873-5134pii
S0738399103002404journal_volume
54pub_type
杂志文章abstract：:Surveys estimate that 3-6% of the patients seen by physicians are gay or lesbian. There are unique health risks of gays and lesbians that are important to the clinician in determining an accurate diagnosis, providing patient education, and arriving at an appropriate treatment plan. One of the most significant medical ...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/s0738-3991(02)00189-1
更新日期：2003-10-01 00:00:00
abstract：OBJECTIVE:This paper describes a translational project that explored the feasibility and effect of introducing a coordinated approach to emotional care. METHODS:The project was undertaken using Action Research on one ward at St John of God Hospital Subiaco, Western Australia. A senior Registered Nurse was appointed to...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2008.04.011
更新日期：2008-10-01 00:00:00
abstract：:Socioeconomically disadvantaged elderly are less likely to participate in fecal occult blood testing (FOBT). A quasi-experimental design was used in this operational replication study to determine predictors at baseline of subsequent participation in FOBT. Sixty-five percent of the 211 participants in the replication ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(97)00088-8
更新日期：1998-06-01 00:00:00
abstract：:This study aims to find out how hospital patients in Finland perceive and evaluate the education they receive. It represents the first part of a patient education project at one university hospital in which the ultimate goal is to support patients' decision-making and self-care and in this way to facilitate the indepe...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(02)00223-9
更新日期：2003-11-01 00:00:00
abstract：:Advances in technology are rapidly expanding health educators' resources for presenting information tailored to meet individual health needs and interests. A self-administered questionnaire was given to 510 youths in grades 6 through 9 to ascertain adolescents' health concerns and thus develop more appropriate educati...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(83)90063-0
更新日期：1983-07-01 00:00:00
abstract：OBJECTIVE:To study how comprehension of cardiovascular disease (CVD) risk is influenced by: (1) infographics about qualitative risk information, with/without risk numbers; (2) which qualitative risk dimension is emphasized; (3) heart age vs. traditional risk format. METHODS:For aim 1, a 2 (infographics versus text) x ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.03.015
更新日期：2018-08-01 00:00:00
abstract：OBJECTIVE:To evaluate the effects of the Diabetes Education and Self-Management for Ongoing and Newly Diagnosed (DESMOND) program on patient activation in adults living with type 2 diabetes (T2D). METHODS:233 individuals attended a DESMOND program in 26 locations across regional Western Australia. Individuals complete...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2019.10.013
更新日期：2020-04-01 00:00:00
abstract：OBJECTIVE:Poor oral contraceptive (OC) knowledge may contribute to premature OC discontinuation and unintended pregnancy. Yet, to understand relationships between OC knowledge and contraceptive behavior, knowledge must be adequately measured. This review evaluates the findings and methodological limitations of research...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/j.pec.2010.10.016
更新日期：2010-12-01 00:00:00
abstract：OBJECTIVE:To determine which patient factors contribute to improvements in the ABCs of diabetes following a multi-faceted diabetes care intervention. METHODS:A multi-level, cluster design, randomized controlled trial examined the effectiveness of a Chronic Care Model (CCM) intervention in an underserved community (n=1...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2010.04.005
更新日期：2011-02-01 00:00:00
abstract：OBJECTIVE:To investigate parents' experiences and views of clinician communication during primary care consultations for respiratory tract infections (RTIs) in children under 12. METHODS:Semi-structured interviews with 30 parents who had recently consulted for RTI in their child. Purposive sampling was used to intervi...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2014.01.010
更新日期：2014-05-01 00:00:00
abstract：:A randomised controlled trial, involving 112 adolescents with asthma, and a 2-year follow-up was conducted to assess the impact of an intervention programme aimed at enhancing adherence to asthma medication. This programme had a duration of 1 year and consisted of an experimental group which received usual care from a...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章,多中心研究,随机对照试验
doi：10.1016/s0738-3991(00)00195-6
更新日期：2001-09-01 00:00:00
abstract：OBJECTIVE:To evaluate whether a consultation skills training (CST) program with oncologists and trainees would improve skills in detecting and responding to patient distress, thereby improving their patients' emotional functioning and reducing psychological distress. METHODS:Randomized-controlled trial with 29 medical...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2009.09.018
更新日期：2009-12-01 00:00:00
abstract：OBJECTIVE:To assess the effectiveness of including a social support intervention ('buddy system') in a group treatment programme to aid smoking cessation. METHODS:Five hundred and sixty-three smokers attended groups at a smokers' clinic. These groups were randomized either to be (a) groups in which smokers were paired...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2006.02.008
更新日期：2006-12-01 00:00:00
abstract：OBJECTIVES:To examine the provision of information by health care providers (HCPs) to fertility patients about accessing psychological resources. METHODS:This study utilized data from a cross-sectional survey of 659 male and female patients seeking fertility treatment at clinics in Toronto and Montreal. Regression ana...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.06.013
更新日期：2018-10-01 00:00:00
abstract：:A palliative social worker describes a day in the hospital during which three patients come off their ventilators and families gather to say goodbye while a blizzard looms over the city. ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2017.04.003
更新日期：2017-12-01 00:00:00
abstract：OBJECTIVE:To explore the association between different types of knowledge related to donation and transplantation and the expression of donation intentions via one's driver's license, a donor card, or sharing one's wishes with family. METHODS:Cross-sectional data were gathered via self-administered questionnaire from ...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2007.09.017
更新日期：2008-02-01 00:00:00
abstract：OBJECTIVES:The ecological validity of video-vignettes design investigating patient-provider communication hinges on the engagement of analogue patients (APs) with the vignette. The present study aimed to compare engagement in two commonly utilized groups of APs, patients and disease-naïve individuals. Engagement was as...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.04.012
更新日期：2016-10-01 00:00:00
abstract：OBJECTIVE:To develop a feasibility study of a theory-driven telephone counseling program to enhance psychosocial and physical well-being for cancer survivors after treatment. METHODS:Participants (n=66) were recruited from two Colorado hospitals with self-administered questionnaires at baseline and two weeks post-inte...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2013.04.002
更新日期：2013-08-01 00:00:00
abstract：OBJECTIVE:To evaluate developments in health status (HS) and overall quality of life (QOL), and the impact of self-efficacy on HS and QOL in relation to COPD pulmonary rehabilitation (PR). METHODS:A longitudinal study of 100 COPD patients before and up to 3 months after COPD PR. Self-efficacy was measured by the COPD ...
journal_title：Patient education and counseling
pub_type： 临床试验,杂志文章
doi：10.1016/j.pec.2009.11.019
更新日期：2010-10-01 00:00:00
abstract：OBJECTIVE:Adherence to self-care behaviors improves heart failure (HF) morbidity and life quality. We examined short-term impact of video education (VE) in addition to standard education (SE) on HF healthcare utilization and self-care behavior adherence. METHODS:One hundred and twelve hospitalized patients were random...
journal_title：Patient education and counseling
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.pec.2007.08.007
更新日期：2007-12-01 00:00:00
abstract：OBJECTIVE:To investigate the effectiveness of a TTM-based motivational counselling approach by trained practice nurses to promote physical activity of low back pain patients in a German primary care setting. METHODS:Data were collected in a cluster-randomized controlled trial with three study arms via questionnaires a...
journal_title：Patient education and counseling
pub_type： 杂志文章,多中心研究,随机对照试验
doi：10.1016/j.pec.2007.09.018
更新日期：2008-01-01 00:00:00
abstract：:The Self-Care Behavior (SCB) Inventory was developed as part of a long-term study of self-care practices of persons who have multiple sclerosis (MS) in Denmark. The universe of behaviors regarding the physical, social, emotional, environmental, and spiritual aspects of coping with the illness was ascertained by inform...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/0738-3991(85)90036-9
更新日期：1985-09-01 00:00:00
abstract：OBJECTIVE:Our aim was to gather community stakeholder input to inform the development of a digital system linking depression screening to decision support. METHODS:Views and feature requirements were identified through (1) focus groups with patients and consumers with depression, and interviews with primary care clini...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.10.002
更新日期：2019-03-01 00:00:00
abstract：OBJECTIVE:Provider communication that supports patient autonomy has been associated with numerous positive patient outcomes. However, to date, no research has examined the relationship between perceived provider communication style and patient-assessed decision quality in breast cancer. METHODS:Using a population-base...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2016.06.025
更新日期：2016-12-01 00:00:00
abstract：:The goal of this paper is to examine emerging issues in consumer-provider communication and patient adherence to cancer prevention, screening, diagnosis, treatment, and coping with survivorship. Many factors that have been shown to affect adherence can be supported or hindered by provider-patient communication, includ...
journal_title：Patient education and counseling
pub_type： 杂志文章,评审
doi：10.1016/s0738-3991(03)00075-2
更新日期：2003-05-01 00:00:00
abstract：OBJECTIVE:To document cases of adverse or near adverse events in communication skills training (CST) and to identify risk factors and strategies to reduce the likelihood of their occurrence. METHODS:Six physician CST cases meeting criteria for an adverse or near adverse collected from experienced facilitators are anal...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2009.12.009
更新日期：2010-10-01 00:00:00
abstract：OBJECTIVE:The 12-item "observing patient involvement" (OPTION(12))-instrument is commonly used to assess the extent to which healthcare providers involve patients in health-related decision-making. The five-item version (OPTION(5)) claims to be a more efficient measure. In this study we compared the Dutch versions of t...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2015.12.019
更新日期：2016-06-01 00:00:00
abstract：OBJECTIVES:To examine how medical students notice issues in a vignette and construct their meaning, and how this construction influences their plan to communicate with the patient. METHODS:Following a breaking bad news course for 112 senior medical students, we qualitatively analyzed the participants' written descript...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2018.04.004
更新日期：2018-09-01 00:00:00
abstract：:The overall aim was to gain insight into and understand how physicians and nurses view the implementation of empowerment group education (EGE) in diabetes. Prior to the study the physicians and nurses attended a 2-day empowerment workshop. Further, they had implemented the empowerment approach in two groups of patient...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/j.pec.2003.07.009
更新日期：2004-06-01 00:00:00
abstract：:In this qualitative study stroke patients rehabilitating in nursing homes experienced an increase in their autonomy (particularly in self-determination, independence and self-care) in the last weeks before discharge. The change in autonomy was found to be related to regained abilities and self-confidence, and to patie...
journal_title：Patient education and counseling
pub_type： 杂志文章
doi：10.1016/s0738-3991(99)00113-5
更新日期：2000-10-01 00:00:00
