Development of a questionnaire to evaluate the information needs of cancer patients: the EORTC questionnaire.


:Information disclosure is one of the key areas of support that patients may receive. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group has a group working on the development of a questionnaire that evaluates information received by cancer patients at different stages of their disease--EORTC QLQ-INFO30. This instrument is being developed by professionals from most European regions. The questionnaire aims to evaluate the information received by cancer patients on different areas of the disease, diagnosis, treatment and care. Besides, the instrument also assesses qualitative aspects of the information they have received. The present paper presents the first two phases of the module development process that include literature review, interviews with patients and professionals, and formulation of the items. All these steps have been carried out in different countries and have been approved by the EORTC QLG.


Patient Educ Couns


Arraras JI,Wright S,Greimel E,Holzner B,Kuljanic-Vlasic K,Velikova G,Eisemann M,Visser A,EORTC Quality of Life Group.




Has Abstract


2004-08-01 00:00:00














  • Public perceptions and preferences for CT colonography or colonoscopy in colorectal cancer screening.

    abstract:OBJECTIVES:To examine public perceptions of and preferences for colonoscopy vs. CT colonography (CTC) as technologies for colorectal cancer (CRC) screening. METHODS:Six discussion groups were carried out with 30 adults aged 49-60 years (60% female). Information about different aspects of the tests (e.g. sensitivity, p...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Ghanouni A,Smith SG,Halligan S,Plumb A,Boone D,Magee MS,Wardle J,von Wagner C

    更新日期:2012-10-01 00:00:00

  • Patient perceptions of a decision support tool to assist with young women's contraceptive choice.

    abstract:OBJECTIVE:Contraceptive decision support tools (DSTs) have been suggested as a way to provide patient-centered contraceptive care, but little is known about the role they play in women's decision-making. The aim of this study is to understand patients' perceptions of the value of a contraceptive DST. METHODS:We conduc...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Marshall C,Nuru-Jeter A,Guendelman S,Mauldon J,Raine-Bennett T

    更新日期:2017-02-01 00:00:00

  • The quality of informed consent in Croatia-a cross-sectional study and instrument development.

    abstract:OBJECTIVE:To examine the informed consent process implementation and quality in Croatia using a specially developed instrument. METHODS:A cross-sectional questionnaire study was conducted in 300 patients (response rate 73%) from six hospitals in Croatia, along with psychometric evaluation of the questionnaire. RESULT...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Vučemilo L,Milošević M,Dodig D,Grabušić B,Đapić B,Borovečki A

    更新日期:2016-03-01 00:00:00

  • Self-efficacy and health-related quality of life in chronic obstructive pulmonary disease: A meta-analysis.

    abstract:OBJECTIVE:To determine the association between self-efficacy and health-related quality of life (HRQoL) in people with Chronic Obstructive Pulmonary Disease (COPD) and the moderating effect of self-efficacy type (exercise task, exercise barrier, COPD symptom, general) and HRQoL type (generic, COPD specific). METHODS:D...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审


    authors: Selzler AM,Habash R,Robson L,Lenton E,Goldstein R,Brooks D

    更新日期:2020-04-01 00:00:00

  • Missing the forest for the trees.

    abstract::Despite my efforts and those of quite a few experienced colleagues we failed to diagnose our friend's wife illness and prevent her demise. But a sad and frustrating experience also stimulates reflection and dwelling on potential errors we made and hope to identify the next time. ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Schattner A

    更新日期:2018-11-01 00:00:00

  • Probabilities of benefit and harms of preoperative radiotherapy for rectal cancer: What do radiation oncologists tell and what do patients understand?

    abstract:OBJECTIVE:Probabilities of benefits and harms of treatment may help patients when making a treatment decision. This study aimed to examine (1) whether and how radiation oncologists convey probabilities to rectal cancer patients, and (2) patients' estimates of probabilities of major outcomes of rectal cancer treatment. ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Kunneman M,Stiggelbout AM,Marijnen CA,Pieterse AH

    更新日期:2015-09-01 00:00:00

  • Psychological adjustment to familial genetic risk assessment: differences in two longitudinal samples.

    abstract::Heritable cancer risk assessment is an increasingly common method of deriving valuable information relevant to deciding on appropriate screening regimens and preventive treatments. Assessments of heritable risk typically include familial-genetic evaluation, where analyses relate family pedigree to cancer risk, and DNA...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Ritvo P,Robinson G,Irvine J,Brown L,Matthew A,Murphy KJ,Stewart DS,Styra R,Wang C,Mullen M,Cole D,Rosen B

    更新日期:2000-05-01 00:00:00

  • How patients want their doctor to communicate. A literature review on primary care patients' perspective.

    abstract:OBJECTIVE:To review the literature on the communicative behaviours primary care patients want from a "good" physician. METHODS:An electronic search used the key words doctor-patient relation AND patient desires OR patient expectations OR patient preferences (from now on referred to as expectations). The qualitative an...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审


    authors: Deledda G,Moretti F,Rimondini M,Zimmermann C

    更新日期:2013-03-01 00:00:00

  • Provider communication effects medication adherence in hypertensive African Americans.

    abstract:OBJECTIVE:To evaluate the effect of patients' perceptions of providers' communication on medication adherence in hypertensive African Americans. METHODS:Cross-sectional study of 439 patients with poorly controlled hypertension followed in community-based healthcare practices in the New York metropolitan area. Patients...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Schoenthaler A,Chaplin WF,Allegrante JP,Fernandez S,Diaz-Gloster M,Tobin JN,Ogedegbe G

    更新日期:2009-05-01 00:00:00

  • Once a week not enough, twice a week not feasible? A randomised controlled exercise trial in long-term care facilities [ISRCTN87177281].

    abstract:OBJECTIVE:To evaluate the effectiveness of three different training protocols on physical function of older adults living in long-term care facilities. Emphasis was placed on feasibility in real-life situations. METHODS:Subjects (N=224) were randomised to 6 months of twice weekly (1) resistance training; (2) all-round...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究,随机对照试验


    authors: Chin A Paw MJ,van Poppel MN,Twisk JW,van Mechelen W

    更新日期:2006-10-01 00:00:00

  • Are socioeconomic disparities in health behavior mediated by differential media use? Test of the communication inequality theory.

    abstract:OBJECTIVE:Communication inequality has been offered as one potential mechanism through which social determinants influence multiple health behaviors. The purpose of this study was to examine the underlying mechanisms between communication inequality and health behaviors. METHODS:Data from a nationally representative c...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Ishikawa Y,Kondo N,Kawachi I,Viswanath K

    更新日期:2016-11-01 00:00:00

  • Family physician-patient relationship and frequent attendance of primary and specialist health care: Results from a German population-based cohort study.

    abstract:OBJECTIVE:To investigate the association between the quality of the family physician-patient relationship and frequent attendance of primary and specialist health care. METHODS:Cross-sectional survey of a representative German population sample (N=2.266). Family physician-patient relationship was assessed with the Pat...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Dinkel A,Schneider A,Schmutzer G,Brähler E,Häuser W

    更新日期:2016-07-01 00:00:00

  • Using fundamental frequency of cancer survivors' speech to investigate emotional distress in out-patient visits.

    abstract:OBJECTIVE:Emotions, are in part conveyed by varying levels of fundamental frequency of voice pitch (f0). This study tests the hypothesis that patients display heightened levels of emotional arousal (f0) during Verona Coding Definitions of Emotional Sequences (VR-CoDES) cues and concerns versus during neutral statements...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Kandsberger J,Rogers SN,Zhou Y,Humphris G

    更新日期:2016-12-01 00:00:00

  • Determinants of compliance with medication in patients with rheumatoid arthritis: the importance of self-efficacy expectations.

    abstract:UNLABELLED:In this study we examine which factors are related to compliance with medication in patients suffering from rheumatoid arthritis (RA). PATIENTS:persons suffering recently developed, active RA, who cooperated in a randomized study on the effect of patient education. We analyzed the relation between adherence...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,随机对照试验


    authors: Brus H,van de Laar M,Taal E,Rasker J,Wiegman O

    更新日期:1999-01-01 00:00:00

  • Impact of decision aids in a sustained implementation at a breast care center.

    abstract:OBJECTIVE:We examined the reach and impact of five decision aids (DAs) routinely distributed to breast cancer patients as part of a shared decision making demonstration project. METHODS:From 2005 to 2008, we surveyed patients' change in knowledge and decisional conflict (DC) before and after their review of DAs. Using...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Belkora JK,Volz S,Teng AE,Moore DH,Loth MK,Sepucha KR

    更新日期:2012-02-01 00:00:00

  • Patient-centred communication: videotaped consultations.

    abstract::The aim of this study is to analyse the way in which orthopaedic physicians manage consultations, and to identify those factors associated with patient-experienced satisfaction/dissatisfaction. This was explored both using a descriptive method and by analysing comments from patients. Consultations were videotaped; 18 ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Fossum B,Arborelius E

    更新日期:2004-08-01 00:00:00

  • A randomised controlled trial of lay-led self-management for people with multiple sclerosis.

    abstract:OBJECTIVE:To determine the impact of the Chronic Disease Self-Management Course (CDSMC) on people with multiple sclerosis (MS). METHODS:2-group, randomised, controlled trial with Intervention Group (IG) and Waiting-List Control Group (WLCG). Additional data were collected from a Comparison Group (CG) who chose not to ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究,随机对照试验


    authors: Barlow J,Turner A,Edwards R,Gilchrist M

    更新日期:2009-10-01 00:00:00

  • A community-based randomised controlled trial of three different educational resources for men about prostate cancer screening.

    abstract::Randomised evaluations of resources to facilitate informed decisions about prostate cancer screening are rarely conducted. In this study, 421 men recruited from the community were randomly allocated to receive a leaflet (n = 140) or one of two resources meeting criteria for a decision-aid: a video (n = 141) or an evid...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,随机对照试验


    authors: Gattellari M,Ward JE

    更新日期:2005-05-01 00:00:00

  • The discordance of information needs between cancer patients and their families in China.

    abstract:OBJECTIVE:We aimed at studying information needs of patients and their families, and their attitude towards the counterparts' information needs. Factors influencing psychological status of patients were investigated. METHODS:Self-designed questionnaires for information needs and attitude were delivered to participants...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Yi TW,Deng YT,Chen HP,Zhang J,Liu J,Huang BY,Wang YQ,Jiang Y

    更新日期:2016-05-01 00:00:00

  • Predictors of patient adherence to COPD self-management exacerbation action plans.

    abstract:OBJECTIVE:Identifying patient characteristics predicting categories of patient adherence to Chronic Obstructive Pulmonary Disease (COPD) exacerbation action plans. METHODS:Data were obtained from self-treatment intervention groups of two COPD self-management trials. Patients with ≥1 exacerbation and/or ≥1 self-initiat...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Schrijver J,Effing TW,Brusse-Keizer M,van der Palen J,van der Valk P,Lenferink A

    更新日期:2021-01-01 00:00:00

  • Dealing with patients in healthcare: A self-assessment tool.

    abstract:OBJECTIVE:This study aimed to investigate how healthcare personnel self-evaluate their ability to relate to patients in day-to-day practice from a patient-centered perspective, and to test the psychometric properties of a questionnaire developed to assess it. METHODS:A sample of 600 healthcare personnel, recruited amo...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Gremigni P,Casu G,Sommaruga M

    更新日期:2016-06-01 00:00:00

  • Conceptualising health literacy from the patient perspective.

    abstract:OBJECTIVE:A person's health literacy, i.e., their ability to seek, understand and use health information, is a critical determinant of whether they are able to actively participate in their healthcare. The objective of this study was to conceptualise health literacy from the patient perspective. METHODS:Using comprehe...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Jordan JE,Buchbinder R,Osborne RH

    更新日期:2010-04-01 00:00:00

  • The reliability of a modified Kalamazoo Consensus Statement Checklist for assessing the communication skills of multidisciplinary clinicians in the simulated environment.

    abstract:OBJECTIVE:With increased recognition of the importance of sound communication skills and communication skills education, reliable assessment tools are essential. This study reports on the psychometric properties of an assessment tool based on the Kalamazoo Consensus Statement Essential Elements Communication Checklist....

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Peterson EB,Calhoun AW,Rider EA

    更新日期:2014-09-01 00:00:00

  • Promoting glycemic control through diabetes self-management: evaluating a patient activation intervention.

    abstract::This study compared an activation intervention to passive education in a randomized attention-control trial of 232 patients with type 2 diabetes. The activation intervention was based on Expanding Patient Involvement in Care (EPIC) trials, and was compared to time-matched passive education viewing of ADA video-tapes. ...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章,随机对照试验


    authors: Williams GC,McGregor H,Zeldman A,Freedman ZR,Deci EL,Elder D

    更新日期:2005-01-01 00:00:00

  • Teaching patients to speak up: past and future trends.

    abstract::The patient role as discussed in popular and professional literature is in a transitional period, but actual patient behaviors remain predominantly traditional. This article summarizes advice to the public concerning patient-physician communication from the past 25 years of popular periodicals and recent self-help lit...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审


    authors: Sharf BF

    更新日期:1988-04-01 00:00:00

  • The practice of prescribing: discovering differences in what we tell patients about prescription medications.

    abstract:OBJECTIVE:This study explored patient recall of clinician presentation of information about prescription medication, looking specifically for communication patterns and differences by patient individual characteristics and by medication availability type. METHODS:A cross sectional survey collected information about 21...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Ledford CJ,Childress MA,Ledford CC,Mundy HD

    更新日期:2014-02-01 00:00:00

  • Problem solving anchored instruction about sick days for adolescents with diabetes.

    abstract::This study's hypotheses were that both shortly after instruction and after an 8-month follow-up, diabetic children taught via anchored instruction (AI), a format for problem solving, would outperform controls. Subjects were 81 9-15-year-old campers with insulin dependent diabetes who were randomly assigned to AI or co...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验


    authors: Pichert JW,Snyder GM,Kinzer CK,Boswell EJ

    更新日期:1994-06-01 00:00:00

  • Beyond content analysis and non-verbal behaviour - what about atmosphere? A phenomenological approach.

    abstract:OBJECTIVE:Basic research and careful observation of clinical practice have yielded a vast amount of empirical data on communication in health care. This research has been guided by the assumption that good communication will be better understood and easier to teach when its single constituents are identified. This pape...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审


    authors: Langewitz W

    更新日期:2007-08-01 00:00:00

  • Constructions of chronic pain in doctor-patient relationships: bridging the communication chasm.

    abstract::This study examined interactions between doctors and their chronic pain patients in the context of investigations for medically unexplained pain. Doctor-patient interactions were explored through the analysis of the accounts of the communication process in the chronic pain consultation of 20 chronic pain patients with...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Kenny DT

    更新日期:2004-03-01 00:00:00

  • A reversal theory approach to the causes and treatment of stress in professional life.

    abstract::An interactive model, which takes into account both situation and individual, is likely to be most useful in understanding the occurrence of stress in professional life. Reversal theory, when applied in the way detailed in the present paper, yields just such a model. It also, in the way discussed, provides a number of...

    journal_title:Patient education and counseling

    pub_type: 杂志文章


    authors: Fontana D,Valente L

    更新日期:1993-12-01 00:00:00