[Ambulatory follow-up of patients with myelomeningocele in a pediatric hospital].

Abstract:

:Myelomeningocele is the most common congenital malformation of the nervous system and despite its complexity and involvement of multiple organs is compatible with long survival. The peculiar characteristics of this malformation expose myelomeningocele patients to acute and chronic care problems with effects in quality of survival. In order to evaluate the quality of the follow-up of spina bifida patients in a pediatric hospital, the authors examined 54 patients attending the neurosurgical outpatient unity of a pediatric hospital. The lack of a multidisciplinary spina bifida clinic in Rio de Janeiro forced the patients to pursuit for complimentary medical and paramedical care outside the hospital with significant effects in the quality of survival. In consequence, only 25% of the patients were able to walk and community ambulation was nearly absent. Only 66.6% had a regular rehabilitation program and nearly 50% had routine orthopedics consultations. Almost half of the patients had no urological referral at all and 75% were incontinent, with recurrent urinary infections ranging 72.2%. The rates of neurosurgical complications were similar to those observed in the literature. We concluded that the quality of survival of patients with neural tube defects is strongly influenced by the adverse socio-economical conditions and the lack of a spina bifida multidisciplinary clinic.

journal_name

Arq Neuropsiquiatr

authors

Salomão JF,Leibinger RD,Carvalho JG,Pinheiro JA,Lucchesi GL,Bomfim V

subject

Has Abstract

pub_date

1995-09-01 00:00:00

pages

444-50

issue

3-A

eissn

0004-282X

issn

1678-4227

journal_volume

53

pub_type

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    journal_title:Arquivos de neuro-psiquiatria

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    journal_title:Arquivos de neuro-psiquiatria

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    authors: de Tella OI Jr,Herculano MA,Prandini MN,Stavale JN,Aguiar PH

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    journal_title:Arquivos de neuro-psiquiatria

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    doi:10.1590/s0004-282x2009000400011

    authors: Py MO,Maciel L,Pedrosa RC,Nascimento JH,Medei E

    更新日期:2009-09-01 00:00:00

  • [Edematous form of neurocysticercosis: report of 4 cases].

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    journal_title:Arquivos de neuro-psiquiatria

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    doi:10.1590/s0004-282x1981000400009

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    更新日期:1981-12-01 00:00:00

  • [Psychosurgery in behavior disorders].

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    journal_title:Arquivos de neuro-psiquiatria

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    doi:10.1590/s0004-282x1977000300004

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    更新日期:1977-09-01 00:00:00

  • [Neurocysticercosis in childhood. I. Clinical and laboratory diagnosis].

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    pub_type: 杂志文章,评审

    doi:10.1590/s0004-282x1991000100006

    authors: Bruck I,Antoniuk SA,Wittig E,Accorsi A

    更新日期:1991-03-01 00:00:00

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    更新日期:1976-09-01 00:00:00

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    journal_title:Arquivos de neuro-psiquiatria

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    authors: Aragão Mde F,Otaduy MC,Melo RV,Azevedo Filho HR,Victor EG,Silva JL,Araújo N,Leite Cda C,Valença MM

    更新日期:2007-06-01 00:00:00

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    更新日期:1980-12-01 00:00:00

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    journal_title:Arquivos de neuro-psiquiatria

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    更新日期:1992-03-01 00:00:00

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