Screening infants for neuroblastoma: the parents' perspective in false-positive cases.

Abstract:

:The objective of this study was to ascertain the reactions and experiences of parents whose children were defined as false-positive cases in a research program of screening 6-month-old babies for neuroblastoma. Parents of seven of the eight infants falling into this category participated in the study. Parents of five children described themselves as worried/very worried at the positive result, some contemplating the treatment involved and the possibility that their child could die. Parents waited a maximum of 3 days before the clinical investigations took place. The mother of one child was dissatisfied with the handling of the investigations, reporting a lack of information and little opportunity to discuss questions; she was subsequently more anxious about her child. Parents of two children reported lasting "concerns" that they attributed to neuroblastoma screening.

journal_name

Pediatr Hematol Oncol

authors

Bell S,Parker L,Cole M,Craft AW

doi

10.3109/08880019409141651

subject

Has Abstract

pub_date

1994-03-01 00:00:00

pages

157-63

issue

2

eissn

0888-0018

issn

1521-0669

journal_volume

11

pub_type

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