Quality of life: concepts and definition.

Abstract:

:After years of second-class status, supportive care is increasingly being recognized for its importance. Included in this recognition is a concern for making more explicit the long-held conviction within medicine that no goal can logically be more important than optimal patient functioning and well-being. This effort to make more explicit the timeless value of medical care has evolved over the past two decades, and come to be labeled "quality of life" research. At its most fundamental level, quality of life is understood to be both subjective and multidimensional. Because it is subjective, it is best measured from the patient's perspective. Because it is multidimensional, its measurement requires the investigator to inquire about a range of areas of the patient's life, including physical well-being, functional ability, emotional well-being, and social well-being. The usual concern for symptom control, familiar to the palliative-care physician, can conceptually be expanded into a consideration of costs and benefits of various treatment options relative to their subjective perception of personal function and well-being. As our interest turns to the aggressive alleviation of specific ("target") symptoms, we must critically evaluate the complex relationships among symptom intensity, symptom duration, and overall quality of life.

journal_name

J Pain Symptom Manage

authors

Cella DF

doi

10.1016/0885-3924(94)90129-5

subject

Has Abstract

pub_date

1994-04-01 00:00:00

pages

186-92

issue

3

eissn

0885-3924

issn

1873-6513

pii

0885-3924(94)90129-5

journal_volume

9

pub_type

杂志文章
  • Psychometric properties of the multidimensional fatigue inventory in Brazilian Hodgkin's lymphoma survivors.

    abstract:CONTEXT:Fatigue is the most common symptom among Hodgkin's lymphoma survivors. OBJECTIVES:To evaluate the psychometric properties of the Brazilian version of the Multidimensional Fatigue Inventory (MFI). METHODS:The MFI was translated into Brazilian Portuguese using established forward-backward translation procedures...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2011.12.275

    authors: Baptista RL,Biasoli I,Scheliga A,Soares A,Brabo E,Morais JC,Werneck GL,Spector N

    更新日期:2012-12-01 00:00:00

  • Psychometric properties of instruments used to measure fatigue in children and adolescents with cancer: a systematic review.

    abstract:CONTEXT:Despite the recognized distressing symptom of fatigue in children with cancer, little information is available to assist in the selection of an instrument to be used to measure fatigue. OBJECTIVES:The objectives of this study were to 1) describe the instruments that have been used to measure cancer-related fat...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/j.jpainsymman.2012.02.010

    authors: Tomlinson D,Hinds PS,Ethier MC,Ness KK,Zupanec S,Sung L

    更新日期:2013-01-01 00:00:00

  • Fatigue and quality of life in breast cancer patients undergoing autologous stem cell transplantation: a longitudinal comparative study.

    abstract::As more individuals are being treated for cancer with high-dose therapy and autologous stem cell rescue (ASCR), there is growing interest in treatment side effects and their impact on quality of life. The primary aim of this study was to determine if the severity of fatigue and its impact on quality of life is signifi...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(99)00007-x

    authors: Hann DM,Garovoy N,Finkelstein B,Jacobsen PB,Azzarello LM,Fields KK

    更新日期:1999-05-01 00:00:00

  • Dronabinol as a treatment for anorexia associated with weight loss in patients with AIDS.

    abstract::The effects of dronabinol on appetite and weight were evaluated in 139 patients with AIDS-related anorexia and > or = 2.3 kg weight loss in a multi-institutional study. Patients were randomized to receive 2.5 mg dronabinol twice daily or placebo. Patients rated appetite, mood, and nausea by using a 100-mm visual analo...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,多中心研究,随机对照试验

    doi:10.1016/0885-3924(94)00117-4

    authors: Beal JE,Olson R,Laubenstein L,Morales JO,Bellman P,Yangco B,Lefkowitz L,Plasse TF,Shepard KV

    更新日期:1995-02-01 00:00:00

  • Assessing fatigue in persons with cancer: further validation of the Wu Cancer Fatigue Scale.

    abstract::Cancer-related fatigue (CRF) is a significant clinical symptom. Effective assessment of CRF attributes from the patients' perspective is essential. This study tested the psychometric properties of the Wu Cancer Fatigue Scale (WCFS). A total of 172 outpatients with breast cancer, who were at various stages and on vario...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2006.06.001

    authors: Wu HS,Wyrwich KW,McSweeney M

    更新日期:2006-09-01 00:00:00

  • Development of a six-month prognostic index in patients with advanced chronic medical conditions: the PALIAR score.

    abstract:CONTEXT:Efforts in developing useful tools to properly identify the end-of-life trajectory of patients with advanced medical diseases have been made, but the calibration and/or discriminative power of these tools has not been optimal. OBJECTIVES:Our objective was to develop a new, reliable prognostic tool to identify ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2013.04.011

    authors: Bernabeu-Wittel M,Murcia-Zaragoza J,Hernández-Quiles C,Escolano-Fernández B,Jarava-Rol G,Oliver M,Díez-Manglano J,Ruiz-Cantero A,Ollero-Baturone M,PALIAR Researchers.

    更新日期:2014-03-01 00:00:00

  • Factors correlated with fatigue in terminally ill cancer patients: a longitudinal study.

    abstract::Fatigue is among the most distressing symptoms experienced by terminally ill cancer patients. It is necessary to clarify factors correlated with fatigue to develop effective management strategies. A consecutive sample of cancer patients newly registered in the Palliative Care Unit (PCU) was assessed on three occasions...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2007.06.014

    authors: Okuyama T,Akechi T,Shima Y,Sugahara Y,Okamura H,Hosaka T,Furukawa TA,Uchitomi Y

    更新日期:2008-05-01 00:00:00

  • Empirical review supporting the application of the "pain assessment as a social transaction" model in pediatrics.

    abstract::Despite decades of research, national mandates, and widespread implementation of guidelines, recent reports suggest that the quality of pain assessment and management in hospitalized children remains suboptimal. The mismatch between what is advocated and what is done in practice has led experts to argue for a conceptu...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/j.jpainsymman.2011.09.005

    authors: Voepel-Lewis T,Piscotty RJ Jr,Annis A,Kalisch B

    更新日期:2012-09-01 00:00:00

  • A survey of practice in management of malignant ascites.

    abstract::The purpose of this study was to determine physicians' attitudes toward and preferences for palliative management of malignant ascites. A random sample of eighty physicians practicing in Canada was selected from the memberships of the Canadian Association of Medical Oncologists, the Canadian Association of Gastroenter...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(98)00037-2

    authors: Lee CW,Bociek G,Faught W

    更新日期:1998-08-01 00:00:00

  • Palliative Care in Moldova.

    abstract::The article describes the important steps of palliative care development in Moldova, the current status, main achievements and challenges to be addressed in the future. It covers background information, policy development, medicines access and availability, education, and training, as well as services' provision. Pall...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2017.05.013

    authors: Gherman L,Pogonet V,Soltan V,Isac V

    更新日期:2018-02-01 00:00:00

  • Online Module Builds Skills for Internal Medicine Interns in Responding to Emotions During Complex Serious Illness Conversations.

    abstract:CONTEXT:Responding to emotion cues is an essential skill for communicating with patients and families, but many health care trainees have difficulty applying this skill within the context of a complex conversation. OBJECTIVES:We created an original online module to facilitate deliberate practice of a three-skill frame...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.02.002

    authors: Gibbon LM,Hurd CJ,Merel SE

    更新日期:2020-06-01 00:00:00

  • Factors influencing agreement in symptom ratings by lung cancer patients and their significant others.

    abstract::Comparisons of symptom ratings and health-related quality of life between significant others and patients have been the focus of numerous studies during the past decades. Additional studies are needed to assess the discrepancies identified in this work. In the present cross-sectional exploratory study, focus has been ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2006.07.019

    authors: Wennman-Larsen A,Tishelman C,Wengström Y,Gustavsson P

    更新日期:2007-02-01 00:00:00

  • Improving cancer pain management in communities: main results from a randomized controlled trial.

    abstract::The purpose of this randomized controlled community trial is to evaluate the effects of a community intervention utilizing opinion leaders and educational strategies on the cancer pain management knowledge, attitudes, and the practices of physicians and nurses, and cancer pain reported by patients. Six Minnesota commu...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/s0885-3924(96)00275-8

    authors: Elliott TE,Murray DM,Oken MM,Johnson KM,Braun BL,Elliott BA,Post-White J

    更新日期:1997-04-01 00:00:00

  • Risk factors for common mental disorder in caregiving and bereavement.

    abstract:CONTEXT:Longitudinal studies that have described the trajectory of familial caregiving and bereavement outcomes have often failed to include a comprehensive range of carer and caregiving variables or any patient assessments, and only a few have used a recognized structured interview for psychiatric disorders. OBJECTIV...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2010.03.014

    authors: Kapari M,Addington-Hall J,Hotopf M

    更新日期:2010-12-01 00:00:00

  • Skin problems in advanced and terminal cancer patients.

    abstract::Disturbances caused by skin problems may compromise the quality of life of cancer patients. The main complications affecting the skin comprise the dermatologic toxicity of anticancer therapy, bedsores, malignant ulcers, sores due to nonmetastatic cancer, pruritus, and infections. Most of the information available abou...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/0885-3924(91)90015-v

    authors: De Conno F,Ventafridda V,Saita L

    更新日期:1991-05-01 00:00:00

  • Consensus recommendations from the strategic planning summit for pain and palliative care pharmacy practice.

    abstract::Pain and symptoms related to palliative care (pain and palliative care [PPC]) are often undertreated. This is largely owing to the complexity in the provision of care and the potential discrepancy in education among the various health care professionals required to deliver care. Pharmacists are frequently involved in ...

    journal_title:Journal of pain and symptom management

    pub_type: 共识发展会议,杂志文章

    doi:10.1016/j.jpainsymman.2011.05.021

    authors: Herndon CM,Strassels SA,Strickland JM,Kral LA,Craig DS,Nesbit SA,Finley RS,McPherson ML

    更新日期:2012-05-01 00:00:00

  • Rethinking hopelessness and the role of spiritual care when cure is no longer an option.

    abstract::Increasingly in the U.S., health care clinicians fail to recognize and accept when curative goals are no longer realistic. At this point, futile efforts at cure can fuel false hopes in patients and their loved ones. The clinician's need to be "doing something" may result in treatment that violates the dignity and well...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2012.07.010

    authors: Taylor C

    更新日期:2012-10-01 00:00:00

  • To Intubate or Not to Intubate: Emergency Medicine Physicians' Perspective on Intubating Critically Ill, Terminal Cancer Patients.

    abstract:CONTEXT:Emergency physicians (EPs) often need to make a decision whether or not to intubate a terminal cancer patient. OBJECTIVE:The objective of this study was to explore EPs' attitudes about intubating critically ill, terminal cancer patients. METHODS:Fifty EPs at three emergency departments (one university based, ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2017.07.038

    authors: Kim K,Chakravarthy B,Anderson C,Liao S

    更新日期:2017-11-01 00:00:00

  • Neuropathic pain in cancer patients: mechanisms, syndromes, and clinical controversies.

    abstract::The identification of a neuropathic pain syndrome in a cancer patient requires a focused clinical evaluation based on knowledge of common neuropathic pain syndromes. If a tumor is directly involved in the etiology of the pain, oncologic treatment is an initial consideration and may include surgery, radiation, or chemo...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/s0885-3924(97)00009-2

    authors: Martin LA,Hagen NA

    更新日期:1997-08-01 00:00:00

  • Oral glycopyrrolate alleviates drooling in a patient with tongue cancer.

    abstract::Although sialorrhea and drooling are uncommon symptoms in cancer patients, they can cause considerable discomfort, inconvenience and social embarrassment. In this article we describe a patient with tongue cancer who was successfully treated with oral glycopyrrolate 0.4 mg 3 times daily. Glycopyrrolate is a quaternary ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(99)00080-9

    authors: Olsen AK,Sjøgren P

    更新日期:1999-10-01 00:00:00

  • Timing of Survey Administration After Hospice Patient Death: Stability of Bereaved Respondents.

    abstract:CONTEXT:The Centers for Medicare & Medicaid Services have elected to include a bereaved family member survey in public reporting of hospice quality data as mandated in the Affordable Care Act. However, it is not known what time point after death offers the most reliable responses. OBJECTIVES:To examine the stability o...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2015.01.006

    authors: DiBiasio EL,Clark MA,Gozalo PL,Spence C,Casarett DJ,Teno JM

    更新日期:2015-07-01 00:00:00

  • Trajectories of Symptom Occurrence and Severity From Before Through Five Months After Lung Cancer Surgery.

    abstract:CONTEXT:Limited information is available about lung cancer patients' symptoms in the pre- and postoperative periods. OBJECTIVES:Study purposes were to evaluate for changes in symptom occurrence and severity from the preoperative period to five months after surgery and to evaluate for predictors of the occurrence and t...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2014.11.297

    authors: Oksholm T,Rustoen T,Cooper B,Paul SM,Solberg S,Henriksen K,Kongerud JS,Miaskowski C

    更新日期:2015-06-01 00:00:00

  • The Quality of Dying and Death Questionnaire (QODD): empirical domains and theoretical perspectives.

    abstract::We used exploratory factor analysis within the confirmatory analysis framework, and data provided by family members and friends of 205 decedents in Missoula, Montana, to construct a model of latent-variable domains underlying the Quality of Dying and Death questionnaire (QODD). We then used data from 182 surrogate res...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2009.05.012

    authors: Downey L,Curtis JR,Lafferty WE,Herting JR,Engelberg RA

    更新日期:2010-01-01 00:00:00

  • Improving availability of and access to opioids in Colombia: description and preliminary results of an action plan for the country.

    abstract::Latin America consumes less than 2.7% of the morphine in the world, as reported by the governments to the International Narcotics Control Board. Methods to improve access to opioids for the treatment of pain have been developed by the Pain & Policy Studies Group (PPSG), a World Health Organization Collaborating Center...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2009.03.007

    authors: Leon MX,De Lima L,Florez S,Torres M,Daza M,Mendoza L,Agudelo N,Guerra L,Ryan K

    更新日期:2009-11-01 00:00:00

  • An exploratory study to clarify the cluster of symptoms predictive of chemotherapy-related nausea using random forest modeling.

    abstract:CONTEXT:Chemotherapy-related nausea is experienced by most cancer patients receiving chemotherapy. Although vomiting is managed well with current antiemetics, nausea is difficult to manage and little is understood about its development. OBJECTIVES:The aim was to determine whether nausea exists as part of a symptom clu...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2011.11.003

    authors: Molassiotis A,Farrell C,Bourne K,Brearley SG,Pilling M

    更新日期:2012-11-01 00:00:00

  • The use of intravenous opioids to provide analgesia in critically ill, premature neonates: a research critique.

    abstract::The intravenous (i.v.) administration of opioids to neonates is a common method of providing analgesia in the intensive care setting. This paper reviews and critiques the studies that have investigated this intervention. The studies are grouped into four major areas: pharmacokinetic studies; i.v. opioids for anesthesi...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/S0885-3924(97)00272-8

    authors: Franck LS,Miaskowski C

    更新日期:1998-01-01 00:00:00

  • ASCPRO recommendations for the assessment of fatigue as an outcome in clinical trials.

    abstract:CONTEXT:Development of pharmacological and behavioral interventions for cancer-related fatigue (CRF) requires adequate measures of this symptom. A guidance document from the Food and Drug Administration offers criteria for the formulation and evaluation of patient-reported outcome measures used in clinical trials to su...

    journal_title:Journal of pain and symptom management

    pub_type: 指南,杂志文章,评审

    doi:10.1016/j.jpainsymman.2010.02.006

    authors: Barsevick AM,Cleeland CS,Manning DC,O'Mara AM,Reeve BB,Scott JA,Sloan JA,ASCPRO (Assessing Symptoms of Cancer Using Patient-Reported Outcomes).

    更新日期:2010-06-01 00:00:00

  • Patient autonomy problems in palliative care: systematic development and evaluation of a questionnaire.

    abstract::No instrument to assess autonomy problems in palliative care is currently available. The purpose of this study was to develop a comprehensive and concise questionnaire to measure autonomy problems in palliative cancer patients and to study its validity and reliability. We systematically developed a questionnaire throu...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2005.03.010

    authors: Vernooij-Dassen MJ,Osse BH,Schadé E,Grol RP

    更新日期:2005-09-01 00:00:00

  • Palliative care in a national cancer center: results in 1987 vs. 1993 vs. 2000.

    abstract::In the last few years, palliative care for advanced and terminal cancer patients has undergone considerable evolution. We determined the characteristics of patients admitted to the 4-bed Palliative Care Unit (PCU) of the National Cancer Institute (NCI) of Milan in 1987, 1993 and 2000 to evaluate how our diagnostic and...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(03)00069-1

    authors: De Conno F,Panzeri C,Brunelli C,Saita L,Ripamonti C

    更新日期:2003-06-01 00:00:00

  • Palliative Care for Idiopathic Pulmonary Fibrosis Patients: Pulmonary Physicians' View.

    abstract:CONTEXT:Although idiopathic pulmonary fibrosis (IPF) has worse outcomes compared with most malignancies, patients with IPF receive poor access to optimal palliative care. OBJECTIVES:This study aimed to characterize the practice of pulmonologists regarding palliative care and end-of-life communication for patients with...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.06.012

    authors: Akiyama N,Fujisawa T,Morita T,Mori K,Yasui H,Hozumi H,Suzuki Y,Karayama M,Furuhashi K,Enomoto N,Nakamura Y,Inui N,Suda T

    更新日期:2020-11-01 00:00:00