The Quality of Dying and Death Questionnaire (QODD): empirical domains and theoretical perspectives.

Abstract:

:We used exploratory factor analysis within the confirmatory analysis framework, and data provided by family members and friends of 205 decedents in Missoula, Montana, to construct a model of latent-variable domains underlying the Quality of Dying and Death questionnaire (QODD). We then used data from 182 surrogate respondents, who were survivors of Seattle decedents, to verify the latent-variable structure. Results from the two samples suggested that survivors' retrospective ratings of 13 specific aspects of decedents' end-of-life experience served as indicators of four correlated, but distinct, latent-variable domains: Symptom Control, Preparation, Connectedness, and Transcendence. A model testing a unidimensional domain structure exhibited unsatisfactory fit to the data, implying that a single global quality measure of dying and death may provide insufficient evidence for guiding clinical practice, evaluating interventions to improve quality of care or assessing the status or trajectory of individual patients. In anticipation of possible future research tying the quality of dying and death to theoretical constructs, we linked the inferred domains to concepts from identity theory and existential psychology. We conclude that research based on the current version of the QODD might benefit from the use of composite measures representing the four identified domains, but that future expansion and modification of the questionnaire are in order.

journal_name

J Pain Symptom Manage

authors

Downey L,Curtis JR,Lafferty WE,Herting JR,Engelberg RA

doi

10.1016/j.jpainsymman.2009.05.012

subject

Has Abstract

pub_date

2010-01-01 00:00:00

pages

9-22

issue

1

eissn

0885-3924

issn

1873-6513

pii

S0885-3924(09)00737-4

journal_volume

39

pub_type

杂志文章
  • "Burst" ketamine for refractory cancer pain: an open-label audit of 39 patients.

    abstract::The results of a novel approach to the use of ketamine in refractory cancer pain are reported. In this prospective, multicenter, unblinded, open-label audit, 39 patients (with a total of 43 pains) received a short duration (3 to 5 days) ketamine infusion. The initial dose of 100 mg/24 hr was escalated if required to 3...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/s0885-3924(01)00340-2

    authors: Jackson K,Ashby M,Martin P,Pisasale M,Brumley D,Hayes B

    更新日期:2001-10-01 00:00:00

  • Prevalence of symptoms among patients with advanced cancer: an international collaborative study. Symptom Prevalence Group.

    abstract::The aims of this study were (a) to estimate the prevalence of pain and eight other common symptoms in a large population of patients with advanced cancer from different palliative care centers, and (b) to assess the differences in prevalence of the symptoms by primary site. In 1990-1991, the prevalence of eight major ...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,多中心研究

    doi:10.1016/0885-3924(96)00042-5

    authors: Vainio A,Auvinen A

    更新日期:1996-07-01 00:00:00

  • Fast, systematic, and continuous delirium assessment in hospitalized patients: the nursing delirium screening scale.

    abstract::Because no rigorously validated, simple yet accurate continuous delirium assessment instrument exists, we developed the Nursing Delirium Screening Scale (Nu-DESC). The Nu-DESC is an observational five-item scale that can be completed quickly. To test the validity of the Nu-DESC, 146 consecutive hospitalized patients f...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/j.jpainsymman.2004.07.009

    authors: Gaudreau JD,Gagnon P,Harel F,Tremblay A,Roy MA

    更新日期:2005-04-01 00:00:00

  • Impact of experimentally-induced expectancy on the analgesic efficacy of tramadol in chronic pain patients: a 2 x 2 factorial, randomized, placebo-controlled, double-blind trial.

    abstract::Variations in treatment effects between drug trials are usually attributed to different patient characteristics, variations in outcome assessment, and random error. We have previously hypothesized that part of the variation in treatment effects between drug trials might be caused by differences in nonspecific factors....

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/s0885-3924(01)00265-2

    authors: de Craen AJ,Lampe-Schoenmaeckers AJ,Kraal JW,Tijssen JG,Kleijnen J

    更新日期:2001-03-01 00:00:00

  • Symptom management for cancer patients: a trial comparing two multimodal interventions.

    abstract::The results of a randomized controlled trial that tested the effects of eight-week, six-contact multidimensional interactive interventions for symptom management are presented. Four hundred and thirty-five cancer patients with solid tumors undergoing chemotherapy were randomized to receive either nurse-assisted sympto...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2006.11.018

    authors: Sikorskii A,Given CW,Given B,Jeon S,Decker V,Decker D,Champion V,McCorkle R

    更新日期:2007-09-01 00:00:00

  • Multicenter study of pain and its management in patients with advanced cancer in Korea.

    abstract::The aim of this study was to evaluate the prevalence, severity, and management of pain in Korean patients with advanced cancer, and to identify the predictors of inadequate management of cancer pain in Korea. From 8 university hospitals, 655 patients with advanced cancer were surveyed. Information concerning analgesic...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/s0885-3924(03)00103-9

    authors: Yun YH,Heo DS,Lee IG,Jeong HS,Kim HJ,Kim SY,Kim YH,Ro YJ,Yoon SS,Lee KH,Huh BY

    更新日期:2003-05-01 00:00:00

  • Opioid Concentrations in Oral Fluid and Plasma in Cancer Patients With Pain.

    abstract:CONTEXT:Measuring opioid concentrations in pain treatment is warranted in situations where optimal opioid analgesia is difficult to reach. OBJECTIVES:To assess the usefulness of oral fluid (OFL) as an alternative to plasma in opioid concentration monitoring in cancer patients on chronic opioid therapy. METHODS:We col...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2014.09.004

    authors: Heiskanen T,Langel K,Gunnar T,Lillsunde P,Kalso EA

    更新日期:2015-10-01 00:00:00

  • Transnasal butorphanol for the treatment of opioid-induced pruritus unresponsive to antihistamines.

    abstract::Pruritus is a common opioid side effect and can be so severe that opioid therapy must be modified or abandoned. Antihistamines, opioid antagonists, and propofol have been proposed as treatment options, but none is universally effective. The use of intranasal butorphanol, an opioid agonist-antagonist, for pruritus has ...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/0885-3924(96)00154-6

    authors: Dunteman E,Karanikolas M,Filos KS

    更新日期:1996-10-01 00:00:00

  • Validation of the Family Inpatient Communication Survey.

    abstract:CONTEXT:Although many family members who make surrogate decisions report problems with communication, there is no validated instrument to accurately measure surrogate/clinician communication for older adults in the acute hospital setting. OBJECTIVES:The objective of this study was to validate a survey of surrogate-rat...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2016.08.010

    authors: Torke AM,Monahan P,Callahan CM,Helft PR,Sachs GA,Wocial LD,Slaven JE,Montz K,Inger L,Burke ES

    更新日期:2017-01-01 00:00:00

  • Psychometric properties of the brief fatigue inventory in Greek patients with advanced cancer.

    abstract::To validate the Greek version of the Brief Fatigue Inventory (BFI-Gr) in a sample of cancer patients, the scale was translated with the "forward-backward" procedure to Greek. It was administered twice, at a three-day interval, to 102 eligible patients with cancer. Together with the BFI-Gr scale, the patients also comp...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2007.10.021

    authors: Mystakidou K,Tsilika E,Parpa E,Mendoza TR,Pistevou-Gombaki K,Vlahos L,Cleeland CS

    更新日期:2008-10-01 00:00:00

  • Narrative Interventions in the Palliative Care Setting: A Scoping Review.

    abstract:CONTEXT:This scoping review maps the existing literature on narrative interventions within a palliative care and end-of-life context. OBJECTIVES:A scoping review was performed to address the following research question: What observational or randomized controlled trials have been performed to evaluate narrative interv...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/j.jpainsymman.2019.06.009

    authors: Laskow T,Small L,Wu DS

    更新日期:2019-10-01 00:00:00

  • Radiotherapeutic management of spinal metastases.

    abstract::Radiotherapy remains the primary treatment of malignant epidural spinal cord compression. Therapeutic success depends on diagnosis before the development of neurological compromise and the prompt initiation of radiotherapy. Radiotherapy alone is effective in over 85% of cases of spinal cord compression that occur in h...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/0885-3924(95)00137-9

    authors: Janjan NA

    更新日期:1996-01-01 00:00:00

  • Differences in Symptom Burden Among Patients With Moderate, Severe, or Very Severe Chronic Obstructive Pulmonary Disease.

    abstract:CONTEXT:The symptom experience of patients with chronic obstructive pulmonary disease (COPD) is extremely complex. It is characterized by multiple co-occurring symptoms. However, very few studies have described this experience in COPD patients. OBJECTIVES:The aims of this study were to evaluate for differences in symp...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2015.12.324

    authors: Christensen VL,Holm AM,Cooper B,Paul SM,Miaskowski C,Rustøen T

    更新日期:2016-05-01 00:00:00

  • Systematic review of the primary research on minority ethnic groups and end-of-life care from the United Kingdom.

    abstract:CONTEXT:Patients from minority ethnic groups experience lower rates of referrals to end-of-life (EoL) care services, higher levels of dissatisfaction with services, and perceive some services as culturally inappropriate. OBJECTIVES:To systematically review original studies of minority ethnic groups and EoL care in the...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/j.jpainsymman.2011.04.012

    authors: Evans N,Meñaca A,Andrew EV,Koffman J,Harding R,Higginson IJ,Pool R,Gysels M,PRISMA.

    更新日期:2012-02-01 00:00:00

  • Chronic pain management in older adults: special considerations.

    abstract::The rising prevalence of neuropathic pain and the multifaceted sequelae of pain particularly within older adults are part of the increasing challenges in providing good geriatric pain management. Aging can lead to a higher sensitivity to pain within older adults, whereas physiological changes modify the absorption, bi...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/j.jpainsymman.2009.05.002

    authors: Fine PG

    更新日期:2009-08-01 00:00:00

  • Understanding the causes of problematic pain management in sickle cell disease: evidence that pseudoaddiction plays a more important role than genuine analgesic dependence.

    abstract::Treatment of painful episodes in sickle cell disease (SCD) is sometimes complicated by disputes between patients and staff and patient behaviors that raise concerns about analgesic misuse. Those concern-raising behaviors could indicate either drug seeking caused by analgesic dependence or pseudoaddiction caused by und...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2003.12.001

    authors: Elander J,Lusher J,Bevan D,Telfer P,Burton B

    更新日期:2004-02-01 00:00:00

  • Changing acute pain management to improve patient outcomes: an educational approach.

    abstract::The United States Agency for Health Care Policy and Research (AHCPR) Acute Pain Management Guidelines were written to provide a scientific basis for practice. Educational programs designed to promote use of the guidelines may change practice in community hospitals. This article describes the development and implementa...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(98)00142-0

    authors: Dalton JA,Blau W,Lindley C,Carlson J,Youngblood R,Greer SM

    更新日期:1999-04-01 00:00:00

  • Relating to the Experience of Contingency in Patients With Advanced Cancer: An Interview Study in U.S. Patients.

    abstract:CONTEXT:Being diagnosed with incurable cancer can be a life-changing experience, evoking different spiritual questions and needs. Confronting a serious life-threatening event occurs not only often unexpected but also can disrupt a person's self-image and ideals of their personhood. This confrontation makes it difficult...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2017.11.007

    authors: Kruizinga R,Jafari N,Scherer-Rath M,Schilderman H,Bires J,Puchalski C,van Laarhoven H

    更新日期:2018-03-01 00:00:00

  • Nebulized versus subcutaneous morphine for patients with cancer dyspnea: a preliminary study.

    abstract::This study compared the effects of nebulized versus subcutaneous morphine on the intensity of dyspnea in cancer patients. Patients with a resting dyspnea intensity > or =3 on a 0-10 scale (0=no dyspnea, 10=worst possible dyspnea) who received regular oral or parenteral opioids were included. On day 1, patients receive...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2004.08.016

    authors: Bruera E,Sala R,Spruyt O,Palmer JL,Zhang T,Willey J

    更新日期:2005-06-01 00:00:00

  • Life Beyond Heart Failure-What Are the Long-Term Challenges, Supportive Care Needs, and Views Toward Supportive Care of Multiethnic Asian Patients With Left Ventricular Assist Device and Their Caregivers?

    abstract:CONTEXT:Challenges experienced by patients with the left ventricular assist device (LVAD) and their caregivers during the early period after LVAD implantation are well documented. However, little is known about long-term challenges, supportive care needs, and views toward supportive care of Asian LVAD patients and care...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.03.022

    authors: Neo SH,Ku JSM,Wong GCS,Tan BC,Tan EYW,Tan JYT,Kerk KL,Sim DKL,Sivathasan C,Yoon S

    更新日期:2020-09-01 00:00:00

  • A comparison of the pharmacokinetics, clinical efficacy, and tolerability of once-daily tramadol tablets with normal release tramadol capsules.

    abstract::This report describes a pharmacokinetic study and a clinical study of three different formulations of oral tramadol: once-daily tramadol tablets 150 and 200 mg, and normal release tramadol capsules 50 mg 8-hourly. The randomized, open-label, crossover pharmacokinetic study included 22 subjects. The three treatments sh...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/s0885-3924(02)00642-5

    authors: Bodalia B,McDonald CJ,Smith KJ,O'Brien C,Cousens L

    更新日期:2003-02-01 00:00:00

  • Important aspects of end-of-life care among veterans: implications for measurement and quality improvement.

    abstract::To identify aspects of end-of-life care in the U.S. Department of Veterans Affairs (VA) health care system that are not assessed by existing survey instruments and to identify issues that may be unique to veterans, telephone interviews using open-ended questions were conducted with family members of veterans who had r...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2007.03.008

    authors: Casarett D,Pickard A,Amos Bailey F,Ritchie C,Furman C,Rosenfeld K,Shreve S,Shea JA

    更新日期:2008-02-01 00:00:00

  • Dextroamphetamine or methylphenidate as adjuvants to opioid analgesia for adolescents with cancer.

    abstract::The doses of opioid analgesics required to control pain in patients with cancer may result in somnolence and reduced interaction with family members. Psychostimulants such as dextroamphetamine (DA, Dexedrine) or methylphenidate (MP, Ritalin) have been used in adults to counteract the sedation of opioid analgesia. We r...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(94)90165-1

    authors: Yee JD,Berde CB

    更新日期:1994-02-01 00:00:00

  • Oral ketamine as an adjuvant to oral morphine for neuropathic pain in cancer patients.

    abstract::To evaluate the role of oral ketamine as an adjuvant to oral morphine in cancer patients experiencing neuropathic pain, 9 cancer patients (5 men, 4 women) taking maximally tolerated doses of either morphine, amitriptyline, sodium valproate, or a combination of these drugs for intractable neuropathic pain, and reportin...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0885-3924(01)00373-6

    authors: Kannan TR,Saxena A,Bhatnagar S,Barry A

    更新日期:2002-01-01 00:00:00

  • Optimizing opioid treatment of postoperative pain.

    abstract::The problem of undertreatment of acute postoperative pain has been documented in many studies. This article reviews this evidence and defines the problem of undertreatment as a group of attitudes about pain treatment that originate with deficiencies in knowledge and skills and lead to the development of inappropriate ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:

    authors: Edwards WT

    更新日期:1990-02-01 00:00:00

  • Meaninglessness in terminally ill cancer patients: a randomized controlled study.

    abstract::Although recent empirical studies reveal that fostering patients' perception of meaning in their lives is an essential task for palliative care clinicians, few studies have reported the effects of training programs for nurses specifically aimed at improving these skills. The primary aim of this randomized controlled t...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2008.04.017

    authors: Morita T,Murata H,Kishi E,Miyashita M,Yamaguchi T,Uchitomi Y,Japanese Spiritual Care Task Force.

    更新日期:2009-04-01 00:00:00

  • Changes in Nurses' Knowledge, Difficulties, and Self-reported Practices Toward Palliative Care for Cancer Patients in Japan: An Analysis of Two Nationwide Representative Surveys in 2008 and 2015.

    abstract:CONTEXT:The Cancer Control Act was passed in Japan in 2007, and various additional programs on palliative care have been implemented to improve quality of life and relieve pain and suffering in patients with cancer. However, how clinical settings have changed remains unclear. OBJECTIVES:The primary aim of the present ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2017.08.034

    authors: Nakazawa Y,Kato M,Miyashita M,Morita T,Kizawa Y

    更新日期:2018-02-01 00:00:00

  • Clinical observations on controlled-release morphine in cancer pain.

    abstract::The authors report the data from two studies on the use of controlled-release morphine sulphate tablets for cancer pain relief. This preparation allows just two administrations per day, in comparison with immediate release oral aqueous morphine solution. The first study, a randomized trial carried out on 70 patients s...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/0885-3924(89)90005-5

    authors: Ventafridda V,Saita L,Barletta L,Sbanotto A,De Conno F

    更新日期:1989-09-01 00:00:00

  • Postoperative analgesics for children and adolescents: prescription and administration.

    abstract::Pain was measured and analgesic treatment examined in 131 children and adolescents, 8-17 years of age, for 5 days after surgery. Analgesic data were converted to 10 mg intramuscular morphine-equivalent doses (IMMSEQ) and were designated appropriate or inappropriate for body weight. Analgesic onset, peak, and duration ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(94)90161-9

    authors: Tesler MD,Wilkie DJ,Holzemer WL,Savedra MC

    更新日期:1994-02-01 00:00:00

  • Intravenous amitriptyline in pediatrics.

    abstract::Oral amitriptyline has been used as an analgesic in a wide range of pain settings. Despite long-term availability of a parenteral form, the few reports about this formulation have been limited to pharmacokinetic studies in normal volunteers, trials in depressed patients, and analyses of electroencephalogram (EEG) acti...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(95)00062-4

    authors: Collins JJ,Kerner J,Sentivany S,Berde CB

    更新日期:1995-08-01 00:00:00