Rethinking hopelessness and the role of spiritual care when cure is no longer an option.

Abstract:

:Increasingly in the U.S., health care clinicians fail to recognize and accept when curative goals are no longer realistic. At this point, futile efforts at cure can fuel false hopes in patients and their loved ones. The clinician's need to be "doing something" may result in treatment that violates the dignity and well-being of the patient and this can lead to the patient's ultimate hopelessness and despair. This article uses a personal narrative to explore the hopelessness of a patient diagnosed with nonresectable pancreatic cancer and the challenge it raised for the author, who was a friend and a nurse to the patient. Hope is described as a virtue that takes as its object "a future good, difficult but possible to obtain," and that sits squarely between false hopes and despair. Spiritual care that addresses three universal spiritual needs (meaning and purpose, love and relatedness, and forgiveness) is recommended as a valuable intervention to address hopelessness.

journal_name

J Pain Symptom Manage

authors

Taylor C

doi

10.1016/j.jpainsymman.2012.07.010

subject

Has Abstract

pub_date

2012-10-01 00:00:00

pages

626-30

issue

4

eissn

0885-3924

issn

1873-6513

pii

S0885-3924(12)00378-8

journal_volume

44

pub_type

杂志文章
  • Association of Persistent Intense Thirst With Delirium Among Critically Ill Patients: A Cross-sectional Study.

    abstract:CONTEXT:Thirst is a prevalent distressing symptom often reported by patients in the intensive care unit (ICU). Little is known about the association of thirst with delirium. OBJECTIVE:We aimed to investigate the relationship between thirst and delirium. METHODS:This retrospective cross-sectional study enrolled 401 pa...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.02.022

    authors: Sato K,Okajima M,Taniguchi T

    更新日期:2019-06-01 00:00:00

  • Spirituality in Aotearoa, New Zealand: Personal Reflections From a Spirituality in Health Care Researcher.

    abstract::Spirituality is about what is of utmost value; it is a values lens that asks "what really matters most to me, my family, our community, our country, and our world." This personal reflection comes from a New Zealand academic who works in the spirituality and health care research field. Although largely biographical, th...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2018.12.331

    authors: Egan R

    更新日期:2019-05-01 00:00:00

  • "Burst" ketamine for refractory cancer pain: an open-label audit of 39 patients.

    abstract::The results of a novel approach to the use of ketamine in refractory cancer pain are reported. In this prospective, multicenter, unblinded, open-label audit, 39 patients (with a total of 43 pains) received a short duration (3 to 5 days) ketamine infusion. The initial dose of 100 mg/24 hr was escalated if required to 3...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/s0885-3924(01)00340-2

    authors: Jackson K,Ashby M,Martin P,Pisasale M,Brumley D,Hayes B

    更新日期:2001-10-01 00:00:00

  • Extent and Determinants of Terminally Ill Cancer Patients' Concordance Between Preferred and Received Life-Sustaining Treatment States: An Advance Care Planning Randomized Trial in Taiwan.

    abstract:CONTEXT:Promoting patient value-concordant end-of-life care is a priority in health care systems but has rarely been examined in randomized clinical trials. OBJECTIVES:To examine the effectiveness of an advance care planning intervention in facilitating concordance between cancer patients' preferred and received life-...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2019.04.010

    authors: Wen FH,Chen JS,Chou WC,Chang WC,Hsieh CH,Tang ST

    更新日期:2019-07-01 00:00:00

  • Oral methadone for managing chronic nonmalignant pain.

    abstract::Five patients with chronic nonmalignant pain were transferred from other analgesics to oral methadone. The method of transferring to oral methadone is described and issues of cost effectiveness, convenience, improved analgesia, and adverse effects are discussed. Oral methadone may provide a cost-effective alternative ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(95)00191-3

    authors: Gardner-Nix JS

    更新日期:1996-05-01 00:00:00

  • Differences in Symptom Burden Among Patients With Moderate, Severe, or Very Severe Chronic Obstructive Pulmonary Disease.

    abstract:CONTEXT:The symptom experience of patients with chronic obstructive pulmonary disease (COPD) is extremely complex. It is characterized by multiple co-occurring symptoms. However, very few studies have described this experience in COPD patients. OBJECTIVES:The aims of this study were to evaluate for differences in symp...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2015.12.324

    authors: Christensen VL,Holm AM,Cooper B,Paul SM,Miaskowski C,Rustøen T

    更新日期:2016-05-01 00:00:00

  • Chronic Opioid Therapy in Cancer Survivors at a Specialty Oncology Pain Clinic: Opioid Dosing, Efficacy, and Safety During Five Years of Pain Management.

    abstract::There are limited data regarding long-term safety and efficacy in cancer survivors receiving chronic opioid therapy. With conflicting recommendations on opioid-prescribing practices and lack of available outcome data, this study aimed to provide a longitudinal perspective on opioid prescribing in cancer survivors. A r...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.11.002

    authors: LeVoir A,Lee M,Fitzgibbon D,Hsu M,Posner K

    更新日期:2020-11-10 00:00:00

  • For every numerator, you need a denominator: a simple statement but key to measuring the quality of care of the "dying".

    abstract::A mathematical rate is composed of a numerator, denominator, and time period of observation. Deciding who is in the denominator is a key, yet difficult task given the blurred boundaries of chronic illness, in examining the quality of care for dying patients. We propose two potential solutions. First, one could prospec...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/s0885-3924(98)00132-8

    authors: Teno JM,Coppola KM

    更新日期:1999-02-01 00:00:00

  • Prevalence and pattern of symptoms in patients with cancer pain: a prospective evaluation of 1635 cancer patients referred to a pain clinic.

    abstract::In a prospective study, the prevalence of 15 physical symptoms and symptom groups was evaluated in 1635 cancer patients referred to a pain clinic. In addition to pain, patients suffered an average of 3.3 symptoms: insomnia (59%), anorexia (48%), constipation (33%), sweating (28%), nausea (27%), dyspnea (24%), dysphagi...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(94)90174-0

    authors: Grond S,Zech D,Diefenbach C,Bischoff A

    更新日期:1994-08-01 00:00:00

  • Prevalence of Neuropathic Pain in Cancer Patients: Pooled Estimates From a Systematic Review of Published Literature and Results From a Survey Conducted in 50 Italian Palliative Care Centers.

    abstract:CONTEXT:Because of the increasing body of literature on neuropathic cancer pain (NCP), an accurate estimate of its prevalence requires recurring updates. OBJECTIVES:To provide this estimate using information from a systematic review and a survey. METHODS:Using MEDLINE, Embase, and a previous review, we searched for s...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析,多中心研究,评审

    doi:10.1016/j.jpainsymman.2015.12.336

    authors: Roberto A,Deandrea S,Greco MT,Corli O,Negri E,Pizzuto M,Ruggeri F

    更新日期:2016-06-01 00:00:00

  • Information Framing Reduces Initial Negative Attitudes in Cancer Patients' Decisions About Hospice Care.

    abstract:BACKGROUND:Negative attitudes toward hospice care might prevent patients with cancer from discussing and choosing hospice as they approach end of life. When making a decision, people often naturally focus on either expected benefits or the avoidance of harm. Behavioral research has demonstrated that framing information...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2018.02.010

    authors: Fridman I,Glare PA,Stabler SM,Epstein AS,Wiesenthal A,Leblanc TW,Higgins ET

    更新日期:2018-06-01 00:00:00

  • Prioritizing Chinese Medicine Clinical Research Questions in Cancer Palliative Care: International Delphi Survey.

    abstract:CONTEXT:Chinese medicine modalities, including acupuncture and Chinese herbal medicine (CHM), have been used as palliative interventions among cancer patients. More research should be conducted to confirm their effectiveness. OBJECTIVES:The objective of this study was to prioritize Chinese medicine clinical research q...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.08.002

    authors: Wong CHL,Wu IXY,Balneaves LG,Lo RSK,Witt CM,Wu JCY,Leung TH,Chung VCH

    更新日期:2019-12-01 00:00:00

  • Identification of Symptom Clusters and Their Influencing Factors in Subgroups of Chinese Patients With Acute Exacerbation of Chronic Obstructive Pulmonary Disease.

    abstract:CONTEXT:Limited studies have identified symptom clusters (SCs) and their risk factors and the relationships with inflammatory biomarkers in patients with acute exacerbation of chronic obstructive pulmonary disease (AECOPD). OBJECTIVES:In this study, we aimed to investigate SCs in patients with AECOPD and explore their...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.03.037

    authors: Yang Z,Cui M,Zhang X,Bai J,Tang L,Tan G,Jiang Y

    更新日期:2020-09-01 00:00:00

  • Differences in Symptom Burden Among Cancer Patients With Different Stages of Cachexia.

    abstract:CONTEXT:Cancer patients with cachexia may suffer from significant burden of symptoms and it can severely impair patients' quality of life. However, only few studies have targeted the symptom burden in cancer cachexia patients, and whether the symptom burden differed in different cachexia stages is still unclear. OBJEC...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2016.12.325

    authors: Zhou T,Yang K,Thapa S,Liu H,Wang B,Yu S

    更新日期:2017-05-01 00:00:00

  • Amitriptyline in the treatment of chemotherapy-induced neuropathic symptoms.

    abstract::Neuropathy is common in patients receiving vinca alkaloids, platinum derivatives, or taxanes. This double-blind, randomized, placebo-controlled study assessed the efficacy of low-dose amitriptyline to relieve chemotherapy-induced symptoms in 44 patients (age 20-65 years) who had neuropathic symptoms (numbness, tinglin...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2007.02.043

    authors: Kautio AL,Haanpää M,Saarto T,Kalso E

    更新日期:2008-01-01 00:00:00

  • Measuring outcomes in randomized prospective trials in palliative care.

    abstract::Palliative care aims to improve the quality of life of patients and their families and reduce suffering from life-threatening illness. In assessing palliative care efficacy, researchers must consider a broad range of potential outcomes, including those experienced by the patient's family/caregivers, clinicians, and th...

    journal_title:Journal of pain and symptom management

    pub_type: 共识发展会议,杂志文章

    doi:10.1016/j.jpainsymman.2007.04.004

    authors: Mularski RA,Rosenfeld K,Coons SJ,Dueck A,Cella D,Feuer DJ,Lipscomb J,Karpeh MS Jr,Mosich T,Sloan JA,Krouse RS

    更新日期:2007-07-01 00:00:00

  • Why people accept opioids: role of general attitudes toward drugs, experience as a bereaved family, information from medical professionals, and personal beliefs regarding a good death.

    abstract:CONTEXT:Many surveys have evaluated patient-related barriers to pain management. OBJECTIVES:To explore associations between a preference for opioids and general attitudes toward drugs, the experience and information received as a bereaved family, and beliefs regarding a good death. METHODS:A cross-sectional survey, p...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2014.04.015

    authors: Shinjo T,Morita T,Hirai K,Miyashita M,Shimizu M,Tsuneto S,Shima Y

    更新日期:2015-01-01 00:00:00

  • Modified Edmonton Symptom Assessment System including constipation and sleep: validation in outpatients with cancer.

    abstract:CONTEXT:The Edmonton Symptom Assessment System (ESAS) measures the severity of nine symptoms. Constipation and sleep disturbance are common in patients with cancer, but are not currently included in the ESAS. OBJECTIVES:To validate the numerical rating scale (NRS) versions of ESAS and its revised version (ESAS-r), wit...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2014.10.013

    authors: Hannon B,Dyck M,Pope A,Swami N,Banerjee S,Mak E,Bryson J,Rodin G,Ridley J,Lo C,Le LW,Zimmermann C

    更新日期:2015-05-01 00:00:00

  • A volunteer model for the comparison of laxatives in opioid-related constipation.

    abstract::Loperamide was used to provide a source of opioid-induced constipation in healthy volunteers. Each volunteer took a sequence of three dose levels of loperamide. One of three laxatives was used to counterbalance the effect of loperamide and restore bowel function to what the individual considered normal at each stage b...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/0885-3924(96)00011-5

    authors: Sykes NP

    更新日期:1996-06-01 00:00:00

  • Multicenter study of pain and its management in patients with advanced cancer in Korea.

    abstract::The aim of this study was to evaluate the prevalence, severity, and management of pain in Korean patients with advanced cancer, and to identify the predictors of inadequate management of cancer pain in Korea. From 8 university hospitals, 655 patients with advanced cancer were surveyed. Information concerning analgesic...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/s0885-3924(03)00103-9

    authors: Yun YH,Heo DS,Lee IG,Jeong HS,Kim HJ,Kim SY,Kim YH,Ro YJ,Yoon SS,Lee KH,Huh BY

    更新日期:2003-05-01 00:00:00

  • Fatigue During and After Breast Cancer Therapy-A Prospective Study.

    abstract:CONTEXT:Chronic fatigue (CF) in breast cancer (BC) survivors is multifactorial and may be caused by immune activation triggered by BC or its treatment. In the Neoadjuvant Avastin in Breast Cancer study, BC patients received neoadjuvant chemotherapy (FEC100→taxane) ± bevacizumab, a monoclonal antibody with fatigue as a ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.jpainsymman.2016.09.011

    authors: Reinertsen KV,Engebraaten O,Loge JH,Cvancarova M,Naume B,Wist E,Edvardsen H,Wille E,Bjøro T,Kiserud CE

    更新日期:2017-03-01 00:00:00

  • Discordance of Patient-Reported and Clinician-Ordered Resuscitation Status in Patients Hospitalized With Acute Decompensated Heart Failure.

    abstract:CONTEXT:Accurate documentation of preferences for cardiopulmonary resuscitation at hospital admission is critical to ensure that patients receive resuscitation or not in accordance with their wishes. OBJECTIVES:We sought to identify and characterize inconsistencies in patient-reported and clinician-ordered resuscitati...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2016.11.010

    authors: Young KA,Wordingham SE,Strand JJ,Roger VL,Dunlay SM

    更新日期:2017-04-01 00:00:00

  • Radiotherapeutic management of spinal metastases.

    abstract::Radiotherapy remains the primary treatment of malignant epidural spinal cord compression. Therapeutic success depends on diagnosis before the development of neurological compromise and the prompt initiation of radiotherapy. Radiotherapy alone is effective in over 85% of cases of spinal cord compression that occur in h...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/0885-3924(95)00137-9

    authors: Janjan NA

    更新日期:1996-01-01 00:00:00

  • Palliative Sedation in Patients Hospitalized in Internal Medicine Departments.

    abstract:CONTEXT:Palliative sedation is used to relieve end-of-life refractory symptoms. OBJECTIVE:The objective of this study was to describe the use of palliative sedation in patients who die in internal medicine departments. METHODS:An observational, cross-sectional, retrospective, and multicenter clinical audit study was ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.10.013

    authors: Díez-Manglano J,Isasi de Isasmendi Pérez S,García Fenoll R,Sánchez LÁ,Formiga F,Giner Galvañ V,Dueñas C,Roca B,Estrada Díaz C,Casariego Vales E,UDMIVI study researchers.

    更新日期:2020-02-01 00:00:00

  • Timing of Survey Administration After Hospice Patient Death: Stability of Bereaved Respondents.

    abstract:CONTEXT:The Centers for Medicare & Medicaid Services have elected to include a bereaved family member survey in public reporting of hospice quality data as mandated in the Affordable Care Act. However, it is not known what time point after death offers the most reliable responses. OBJECTIVES:To examine the stability o...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2015.01.006

    authors: DiBiasio EL,Clark MA,Gozalo PL,Spence C,Casarett DJ,Teno JM

    更新日期:2015-07-01 00:00:00

  • Insight into advance care planning for patients on dialysis.

    abstract:CONTEXT:Advance care planning is not included in regular clinical care for patients on dialysis. Insight into life-sustaining treatment preferences and communication about end-of-life care is necessary to develop interventions to improve advance care planning for patients on dialysis. OBJECTIVES:This cross-sectional o...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2012.01.010

    authors: Janssen DJ,Spruit MA,Schols JM,van der Sande FM,Frenken LA,Wouters EF

    更新日期:2013-01-01 00:00:00

  • Multidimensional problems among advanced cancer patients in Cuba: awareness of diagnosis is associated with better patient status.

    abstract::Cancer is one of the major causes of death in Cuba, and in current practice, patients are not usually informed of their diagnosis. Palliative care is an emerging discipline in this country. Cuban cancer patients with advanced disease completed the Palliative Outcome Scale (POS), and the researcher elicited patients' k...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2008.02.015

    authors: Justo Roll I,Simms V,Harding R

    更新日期:2009-03-01 00:00:00

  • "It depends": viewpoints of patients, physicians, and nurses on patient-practitioner prayer in the setting of advanced cancer.

    abstract:CONTEXT:Although prayer potentially serves as an important practice in offering religious/spiritual support, its role in the clinical setting remains disputed. Few data exist to guide the role of patient-practitioner prayer in the setting of advanced illness. OBJECTIVES:To inform the role of prayer in the setting of l...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2010.07.008

    authors: Balboni MJ,Babar A,Dillinger J,Phelps AC,George E,Block SD,Kachnic L,Hunt J,Peteet J,Prigerson HG,VanderWeele TJ,Balboni TA

    更新日期:2011-05-01 00:00:00

  • Episodic breathlessness in patients with advanced disease: a systematic review.

    abstract:CONTEXT:Although episodic breathlessness (EB) is reported to be highly prevalent in advanced disease, our understanding about it is limited. OBJECTIVES:The aim of this study was to systematically review and synthesize the evidence on EB regarding definition, characteristics, and patients' experiences. METHODS:Systema...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析,评审

    doi:10.1016/j.jpainsymman.2012.02.022

    authors: Simon ST,Bausewein C,Schildmann E,Higginson IJ,Magnussen H,Scheve C,Ramsenthaler C

    更新日期:2013-03-01 00:00:00

  • The Relationship Between Fatigue and Depression in Adults With End-Stage Renal Disease on Chronic In-Hospital Hemodialysis: A Scoping Review.

    abstract:CONTEXT:Fatigue and depression are two prominent concerns in patients on in-hospital hemodialysis (IHHD) that have recently been identified as research priorities in the nephrology community. Although they are often reported to co-exist, no synthesis of the literature examining their relationship is available. OBJECTI...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/j.jpainsymman.2016.10.365

    authors: Farragher JF,Polatajko HJ,Jassal SV

    更新日期:2017-04-01 00:00:00