Abstract：
BACKGROUND:In general, there is extensive research on parents of young children with ID, particularly studies on stress and coping, social support as associated with quality of life. Unfortunately, there is scarce evidence -based knowledge on parental coping resources and well-being during the transition of their offspring from childhood to adulthood and thereafter. AIMS:This research responds to the scarce knowledge on the effect of the transition of children with ID into adulthood and particularly within adulthood on families. It examined the social, psychological, and financial differences among caregivers of offspring with ID in three age groups: (1) under the age of 21; (2) 21-30; (3) 31 and above. METHODS AND PROCEDURES:Three hundred and one caregivers completed an income and expenditure survey, including out-of-pocket expenditures, assets and liabilities index, services use survey, financial and other types of assistance from friends and family, a questionnaire regarding resources and stress levels, a social participation scale, and personal wellbeing index. RESULTS:A statistically significant differences have been detected in the three caregivers' groups regarding the number of hours spent outside the house, social support, negative feelings such as frustration, sadness, and concern, life satisfaction and well-being. No significant differences have been identified in financial outcomes among caregivers' groups. CONCLUSIONS AND IMPLICATIONS:Findings are discussed in respect to research and practice and highlight caregivers' concerns regarding the transition of their offspring from adolescence to adulthood and afterward and in parallel to their own aging process.
journal_name
Res Dev Disabiljournal_title
Research in developmental disabilitiesauthors
Gur A,Amsalem G,Rimmerman Adoi
10.1016/j.ridd.2020.103740subject
Has Abstractpub_date
2020-10-01 00:00:00pages
103740eissn
0891-4222issn
1873-3379pii
S0891-4222(20)30170-0journal_volume
105pub_type
杂志文章abstract：:Pragmatically related abilities were studied in three clinical groups of children from 5 to 11 years of age; children with cerebral palsy (CP; n=10), children with spina bifida and hydrocephalus (SBH; n=10) and children with pragmatic language impairment (PLI; n=10), in order to explore pragmatic abilities within each...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2009.01.008
更新日期：2009-09-01 00:00:00
abstract：:The aim of the present study was to compare the motor function of a clinical sample of children with specific language impairment (SLI) to a language-matched comparison group that had not been referred for SLI assessment. A typical language comparison group with similar nonverbal IQ was also included. There were appro...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2013.05.015
更新日期：2013-09-01 00:00:00
abstract：:The current study examined the relations among components of a physical activity program, Special Olympics (SO), and the self-concepts (i.e., perceived physical competence, social acceptance, and general self-worth) and adaptive behaviors of individuals with developmental disabilities. This research can assist in the ...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/s0891-4222(03)00043-x
更新日期：2003-07-01 00:00:00
abstract：:Cochlear implants (CIs) provide children with profound hearing loss access to sounds and speech. Research on the effects of CI on speech and language development in mainland China is scarce due to the lack of standardized tests. This study aims at developing a vocabulary measure, the Mandarin Expressive and Receptive ...
journal_title：Research in developmental disabilities
pub_type： 临床试验,杂志文章
doi：10.1016/j.ridd.2013.07.010
更新日期：2013-10-01 00:00:00
abstract：:Children with developmental delays (DD) are at heightened risk for developing clinically significant behavioral and emotional difficulties as compared to children with typical development (TD). However, nearly all studies comparing psychopathology in youth with DD employ TD control groups of the same chronological age...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.10.045
更新日期：2015-02-01 00:00:00
abstract：:A small community home model for severely and profoundly mentally retarded adults is defined in terms of its program orientation, program structure, and program procedures. The model is compared to institutional settings and larger community units by collection of two data sets. The small homes were found to produce b...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/0891-4222(92)90038-8
更新日期：1992-01-01 00:00:00
abstract：:Children with developmental language disorders (DLD) often experience difficulty in understanding and engaging in interactive behavior with other children, which may lead to reduced daily physical activity and fitness levels. The present study evaluated the physical activity and physical fitness levels of 8-11 year ol...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.08.022
更新日期：2014-12-01 00:00:00
abstract：:A preliminary form of a new version of the Home Observation for Measurement of the Environment (HOME) is presented. It is designed for use with families of children aged 10-15. The 80-item preliminary version of the Preadolescent HOME (PA-HOME) was field tested on 117 children with varying disabilities. The 80 items w...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/0891-4222(92)90009-u
更新日期：1992-01-01 00:00:00
abstract：BACKGROUND:Adults with intellectual disability (ID) have a higher risk for falls than the general population. AIM:The purpose of this study was to identify risk factors for falls in adults with ID using objective measurements. METHODS:Eighty adults with ID (men 36 women 44 age 43 ± 13 years) provided data on falls hi...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2020.103748
更新日期：2020-11-01 00:00:00
abstract：:It has been suggested that the parenteral opiate antagonist, naloxone, might ameliorate self-injurious behavior. However, clinical studies have had conflicting results. We have evaluated whether a potent oral opiate antagonist, naltrexone, is effective in the treatment of this condition. The study was conducted on two...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/0891-4222(87)90002-3
更新日期：1987-01-01 00:00:00
abstract：:Autism Spectrum Disorders are a class of conditions categorized by communication problems, ritualistic behaviors, and deficits in social behaviors. While evidence supporting a genetic component of Autism Spectrum Disorders (ASDs) is strong, no specific genetic marker has been identified. Thus, professionals have had t...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2009.04.001
更新日期：2009-11-01 00:00:00
abstract：:The purpose of this study was to investigate the effect of frequency of knowledge of results (KR) on the learning of dart in individuals with cerebral palsy type I. Twenty-four individuals with cerebral palsy (CP) between the ages of 5 and 17 were chosen for this study. They were put into 3 homogenous groups according...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2009.09.002
更新日期：2010-01-01 00:00:00
abstract：:The relationship between behavior problems and psychiatric disorders in individuals with intellectual disability is still unresolved. The present study compares the prevalence and pattern of psychiatric disorders in individuals with intellectual disability who were assessed on the ABC to have moderate and severe behav...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2007.06.002
更新日期：2008-07-01 00:00:00
abstract：BACKGROUND:Children with Intellectual and Developmental Disabilities (IDD) face considerable challenges in participating in dental services. These challenges include resource constraints and inadequate skills of health service providers to work with this population. AIM:The aim was to scope published studies that addr...
journal_title：Research in developmental disabilities
pub_type： 杂志文章,评审
doi：10.1016/j.ridd.2017.12.022
更新日期：2018-03-01 00:00:00
abstract：:Individuals with Down syndrome (DS) exhibit reduced aerobic capacity with reduced peak heart rate (HRpeak). This condition is often coexistent with higher level of obesity compared to individuals without DS. The purpose of this study is to investigate the effects of obesity and Down syndrome (DS) on peak heart rate (H...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.10.002
更新日期：2015-01-01 00:00:00
abstract：:Individuals with autism spectrum disorders (ASDs) can demonstrate hypersensitivity to sounds as well as a lack of awareness of them. Several functional imaging studies have suggested an abnormal response in the auditory cortex of such subjects, but it is not known whether these subjects have dysfunction in the auditor...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2011.10.016
更新日期：2012-03-01 00:00:00
abstract：:This study estimated medical expenditures attributable to cerebral palsy (CP) among children enrolled in Medicaid, stratified by the presence of co-occurring intellectual disability (ID), relative to children without CP or ID. The MarketScan(®) Medicaid Multi-State database was used to identify children with CP for 20...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2011.12.001
更新日期：2012-05-01 00:00:00
abstract：:Stereotypic behavior is one of the more common disturbed behaviors displayed by people who are developmentally disabled. This study evaluated the indirect effects on stereotypic frequency when the value of a concurrent fixed-interval reinforcement schedule for adaptive behavior was varied. Three profoundly mentally re...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/0891-4222(88)90033-9
更新日期：1988-01-01 00:00:00
abstract：:Children's developmental problems vary, with some easier to identify than others. The accuracy of caregivers' initial identification of children's developmental problems is important in the timely treatment of those problems by medical professionals. In this study, we investigated the degree to which caregivers' initi...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2011.02.026
更新日期：2011-09-01 00:00:00
abstract：:The aim was to examine the rates and types of parent reported neuropsychiatric problems in children and adolescents with mild mental retardation (MMR) (mild intellectual disability/UK) using the Five-To-Fifteen questionnaire (FTF). The target group comprised all pupils with clinically diagnosed MMR, aged between 7 and...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2011.05.026
更新日期：2011-11-01 00:00:00
abstract：BACKGROUND:Single-case research (SCR) has been a valuable methodology in special education research. Montrose Wolf (1978), an early pioneer in single-case methodology, coined the term "social validity" to refer to the social importance of the goals selected, the acceptability of procedures employed, and the effectivene...
journal_title：Research in developmental disabilities
pub_type： 杂志文章,评审
doi：10.1016/j.ridd.2018.01.007
更新日期：2018-03-01 00:00:00
abstract：:Difficulties with handwriting are reported as one of the main reasons for the referral of children with Developmental Coordination Disorder (DCD) to healthcare professionals. In a recent study we found that children with DCD produced less text than their typically developing (TD) peers and paused for 60% of a free-wri...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.07.033
更新日期：2014-11-01 00:00:00
abstract：:A survey of 424 children with neuromotor disorders served by a children's rehabilitation center was conducted to determine the number who were receiving muscle relaxant or anticonvulsant medication, and the average daily dosage. An increase in the number of antiepileptic prescriptions was found. The implications of th...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/0891-4222(90)90037-9
更新日期：1990-01-01 00:00:00
abstract：UNLABELLED:In the present study we investigated the nature and extent of clinical outcomes using various classifications and analyzed the relationship between brain magnetic resonance imaging (MRI) findings and the extent of clinical outcomes in children with cerebral palsy (CP) with deep gray matter injury. The deep g...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2016.04.010
更新日期：2016-08-01 00:00:00
abstract：BACKGROUND:Angelman syndrome (AS) is a neurogenetic disorder characterized by intellectual disability, epilepsy, and low threshold for laughter. AIMS:We investigated the occurrence and severity of epilepsy and laughter-induced loss of postural muscle tone determined by the different genetic subtypes. METHODS:This stu...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2016.06.002
更新日期：2016-09-01 00:00:00
abstract：:The literature on the association between behavioural and emotional problems and ageing in adults with Down syndrome (DS) without dementia is limited and has generally not reported on a wide range of behavioural and emotional problems. This research aimed to extend the field by examining the associations between age a...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.04.010
更新日期：2014-08-01 00:00:00
abstract：:Children with autism spectrum disorders (ASDs) are more likely to engage in inappropriate play (e.g., stereotypy, repetitive behavior) with their preferred items given as reinforcers. Considering the stereotyped behavior is a core characteristic of ASD aimed to reduce, it is necessary to identify alternative reinforce...
journal_title：Research in developmental disabilities
pub_type： 临床试验,杂志文章
doi：10.1016/j.ridd.2012.10.007
更新日期：2013-02-01 00:00:00
abstract：:Researchers suggest that people with an intellectual disability (ID) undertake less physical activity than the general population and many rely, to some extent, on others to help them to access activities. The Theory of Planned Behaviour (TPB) model was previously found to significantly predict the intention of care s...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2011.07.006
更新日期：2011-11-01 00:00:00
abstract：:The Test of Gross Motor Development-II (TGMD-II) is a frequently used assessment tool for measuring motor ability. The purpose of this study is to investigate the reliability and validity of TGMD-II's weighting scores (by comparing pre-weighted TGMD-II scores with post ones) as well as examine applicability of the TGM...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.01.019
更新日期：2014-04-01 00:00:00
abstract：:In this study meaningful social stimuli were used as probes in a task requiring the judgment of semantic appropriateness to investigate contextual integration ability to test the ability of people with Williams syndrome (WS) to integrate information, as opposed to the use of meaningless syllables in audiovisual studie...
journal_title：Research in developmental disabilities
pub_type： 杂志文章
doi：10.1016/j.ridd.2014.03.049
更新日期：2014-07-01 00:00:00
