'So many women suffer in silence': a thematic analysis of women's written accounts of coping with endometriosis.

Abstract:

OBJECTIVE:To understand women's experiences of coping with endometriosis, and impact on their lives. DESIGN:Women accessed an online questionnaire through a U.K.-based endometriosis charity website. METHODS:Thirty-four women, aged 22-56 years, with self-reported medically-diagnosed endometriosis, 30 of whom were White, responded to open-ended questions, analysed using inductive thematic analysis. RESULTS:Participants spoke about their lives being a constant struggle, where they tried to maintain their personal and working lives whilst dealing with long-term pain. Women had to 'battle' for an accurate diagnosis, and had limited faith in health professionals. Coping strategies included avoidance of social events to conserve energy (self-pacing), and avoiding taking painkillers to retain alertness. Women did not feel able to be honest with family and friends about their symptoms, and felt socially isolated and misunderstood. CONCLUSIONS:Implications for health professionals are discussed, including the need for earlier diagnosis and taking women's symptoms more seriously at referral; understanding the need to conserve energy in the context of long-term pain; that not taking pain medication may be an active choice to retain alertness; and that avoiding being honest with friends and family and subsequent feelings of isolation may be common experiences relevant to designing treatment programmes.

journal_name

Psychol Health

journal_title

Psychology & health

authors

Grogan S,Turley E,Cole J

doi

10.1080/08870446.2018.1496252

subject

Has Abstract

pub_date

2018-11-01 00:00:00

pages

1364-1378

issue

11

eissn

0887-0446

issn

1476-8321

journal_volume

33

pub_type

杂志文章
  • The impact of assuming the primary caregiver role following traumatic spinal cord injury: An interpretative phenomenological analysis of the spouse's experience.

    abstract::This study aimed to explore the lived experience of assuming the primary caregiver role in a group of spouses of individuals living with a traumatic spinal cord injury (SCI) (injuries ranged from paraplegia to quadriplegia). Individual in-depth interviews were conducted with 11 participants who were both the spouse an...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870440903038949

    authors: Dickson A,O'Brien G,Ward R,Allan D,O'Carroll R

    更新日期:2010-11-01 00:00:00

  • You won't regret it (or love it) as much as you think: impact biases for everyday health behavior outcomes.

    abstract::When predicting the future, people tend to overestimate the intensity of their emotions, a phenomenon known as the impact bias. Design: In two studies, we examined the impact bias for health outcomes. In Study 1, participants were randomized to think about a negative health outcome in the future or one in the past. In...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2020.1795171

    authors: Dillard AJ,Dean KK,Gilbert H,Lipkus IM

    更新日期:2020-07-22 00:00:00

  • The coupling of short sleep duration and high sleep need predicts riskier decision making.

    abstract::Objective: To examine how risk-related decision making might be associated with habitual sleep variables, including sleep variability, sleep duration and perceived sleep need in young adults cross-sectionally and longitudinally. Design: 166 participants completed a 7-day protocol with sleep and risk-related decision-m...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2019.1594807

    authors: Lau EYY,Wong ML,Rusak B,Lam YC,Wing YK,Tseng CH,Lee TMC

    更新日期:2019-10-01 00:00:00

  • Who cares, who bears, who benefits? Female spouses vicariously carry the burden after cancer diagnosis.

    abstract:BACKGROUND AND AIM:Among couples coping with cancer diagnosis, the effects of gender, role (patient vs. spouse) and patient relationship status (single vs. partnered) on quality of life (QoL) have been investigated with inconsistent results. The present study examined the impact of gender, role and relationship status ...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870440903418877

    authors: Kuenzler A,Hodgkinson K,Zindel A,Bargetzi M,Znoj HJ

    更新日期:2011-03-01 00:00:00

  • Social-class indicators differentially predict engagement in prevention vs. detection behaviours.

    abstract:OBJECTIVE:Few systematic studies have examined the contexts in which social-class variables will predict engagement in health-relevant behaviours. The current research examined whether the impact of social-class on health behaviours depends upon how social-class is assessed and the category of health behaviour under co...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2015.1068313

    authors: Haught HM,Rose JP,Brown JA

    更新日期:2016-01-01 00:00:00

  • Physical activity promotion: precise matching of message frames and affect types.

    abstract:OBJECTIVE:Matching between affect orientations and message frames have been shown to enhance the persuasiveness of health messages. Based on a two-dimensional regulatory model (direction: approach/avoidance, valence: appetitive/aversive), this study examined whether a precise matching between affect and message frame w...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2020.1761973

    authors: Li KK,Lee CH

    更新日期:2021-01-01 00:00:00

  • The dimensional structure of benefit finding in multiple sclerosis and relations with positive and negative adjustment: A longitudinal study.

    abstract::Benefit finding is a meaning making construct that has been shown to be related to adjustment in people with MS and their carers. This study investigated the dimensions, stability and potency of benefit finding in predicting adjustment over a 12 month interval using a newly developed Benefit Finding in Multiple Sclero...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870440701832592

    authors: Pakenham KI,Cox S

    更新日期:2009-04-01 00:00:00

  • Amplified ambivalence: having a sibling with juvenile idiopathic arthritis.

    abstract::Despite increased awareness of family responses to chronic illness and disability, there is still a need to understand experiences of well siblings. We begin to address this issue by asking, 'What is it like to have a sibling with juvenile idiopathic arthritis?' (JIA). Eight families with an adolescent diagnosed with ...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/14768320701299906

    authors: Waite-Jones JM,Madill A

    更新日期:2008-01-01 00:00:00

  • Gender role conflict and emotional approach coping in men with cancer.

    abstract::The utility of emotional approach coping (EAC), or expressing and processing emotions, has been equivocal for men. Gender role conflict, or the negative cognitive, emotional and behavioural consequences associated with male gender role socialisation, likely shape coping responses and may negatively affect the efficacy...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870440802311330

    authors: Hoyt MA

    更新日期:2009-10-01 00:00:00

  • Why and how we should care about the General Data Protection Regulation.

    abstract::The General Data Protection Regulation (GDPR) is the new European Union-wide (EU) law on data protection, which is a great step towards more comprehensive and more far-reaching protection of individuals' personal data. In this editorial, we describe why and how we - as researchers within the field of health psychology...

    journal_title:Psychology & health

    pub_type: 社论

    doi:10.1080/08870446.2019.1606222

    authors: Crutzen R,Ygram Peters GJ,Mondschein C

    更新日期:2019-11-01 00:00:00

  • Is dispositional optimism or dispositional pessimism predictive of ideal cardiovascular health? The Young Finns Study.

    abstract:OBJECTIVE:We examined the independent association between dispositional optimism compared to dispositional pessimism and ideal cardiovascular health (defined by the American Heart Association). DESIGN:A prospective design with a study sample of 1113 participants aged 24-39 years from the longitudinal Young Finns Study...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2015.1041394

    authors: Serlachius A,Pulkki-Råback L,Elovainio M,Hintsanen M,Mikkilä V,Laitinen TT,Jokela M,Rosenström T,Josefsson K,Juonala M,Lehtimäki T,Raitakari O,Keltikangas-Järvinen L

    更新日期:2015-01-01 00:00:00

  • Change in subjective social status following HIV diagnosis and associated effects on mental and physical health among HIV-positive gay men in Australia.

    abstract:OBJECTIVE:This study investigates the impact of HIV diagnosis on subjective social status and if changes are linked to health outcomes. DESIGN:Two measures of subjective social status, socio-economic and standing in the community were examined in 342 Australian HIV-positive gay men in 2014. Participants recalled ratin...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2017.1307374

    authors: Heywood W,Lyons A

    更新日期:2017-07-01 00:00:00

  • Quitting smoking: The importance of non-smoker identity in predicting smoking behaviour and responses to a smoking ban.

    abstract:OBJECTIVE:We examined how 'smoker' and 'non-smoker' self- and group-identities and socio-economic status (SES) may predict smoking behaviour and responses to antismoking measures (i.e., the Dutch smoking ban in hospitality venues). We validated a measure of responses to the smoking ban. DESIGN:Longitudinal online surv...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2015.1049603

    authors: Meijer E,Gebhardt WA,Dijkstra A,Willemsen MC,Van Laar C

    更新日期:2015-01-01 00:00:00

  • A discursive psychology analysis of emotional support for men with colorectal cancer.

    abstract::Recent research into both masculinity and health, and the provision of social support for people with cancer has focused upon the variations that may underlie broad assumptions about masculine health behaviour. The research reported here pursues this interest in variation by addressing the discursive properties of tal...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2013.807928

    authors: Rennoldson M,Brennan J,Tolosa I,Ismail T

    更新日期:2013-11-01 00:00:00

  • Dissimilarity in mother and adolescent illness representations of type 1 diabetes and negative emotional adjustment.

    abstract::The study explored how two measures of mother-adolescent dissimilarity in illness representations relate to negative emotional adjustment in mothers and adolescents. Eighty-four adolescents with type 1 diabetes (age 11.5-17.5) and their mothers completed the Revised Illness Perceptions Questionnaire and measures of ne...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870440701437343

    authors: Olsen B,Berg CA,Wiebe DJ

    更新日期:2008-01-01 00:00:00

  • Goal disengagement and goal re-engagement among multiple sclerosis patients: relationship to well-being and illness representation.

    abstract::Research on adaptive human behaviour often emphasizes goal attainment, alongside optimism, self-efficacy, and persistence. Recently, it has been suggested that giving up personal goals when the latter are unattainable is equally important. The present study extends previous findings to a clinical population of multipl...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870440701668665

    authors: Neter E,Litvak A,Miller A

    更新日期:2009-02-01 00:00:00

  • Do vacations alter the connection between stress and cardiovascular activity? The effects of a planned vacation on the relationship between weekly stress and ambulatory heart rate.

    abstract::Objective: To examine how the association between psychological stress and ambulatory heart rate varies in the weeks before and after a planned vacation. We hypothesized that the impact of stress on heart rate would weaken in the weeks leading up to the vacation and return to normal levels in the weeks following the v...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2019.1687699

    authors: Hruska B,Pressman SD,Bendinskas K,Gump BB

    更新日期:2020-08-01 00:00:00

  • Using decision aids to support self-isolation during the COVID-19 pandemic.

    abstract:OBJECTIVE:Self-isolation is a vital element of efforts to contain COVID-19. We set out to test whether decision aids can support self-isolation. DESIGN:We conducted a pre-registered online experiment with a nationally representative sample (n = 500). Three stages tested: (i) whether decision trees help people to decid...

    journal_title:Psychology & health

    pub_type: 杂志文章,随机对照试验

    doi:10.1080/08870446.2020.1849701

    authors: Lunn PD,Timmons S,Julienne H,Belton CA,Barjaková M,Lavin C,McGowan FP

    更新日期:2021-02-01 00:00:00

  • The tasks of self-managing hepatitis C: the significance of disclosure.

    abstract::The narratives of those with hepatitis C were viewed through the lens of Corbin and Strauss' [Corbin, J., & Strauss, A. (1988). Unending work and care: Managing chronic illness at home. The Jossey-Bass health series and The Jossey-Bass social and behavioral science series. San Francisco, CA: Jossey-Bass.] self-managem...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2011.592982

    authors: Fry M,Bates G

    更新日期:2012-01-01 00:00:00

  • A systematic review of acculturation, obesity and health behaviours among migrants to high-income countries.

    abstract::Objective There is extensive evidence for weight gain among people migrating from low/middle-income to high-income countries, which may be due, in part, to acculturation factors. This review aimed to identify associations between acculturation and body weight among immigrants to high-income countries and identify if s...

    journal_title:Psychology & health

    pub_type:

    doi:10.1080/08870446.2017.1398327

    authors: Alidu L,Grunfeld EA

    更新日期:2018-06-01 00:00:00

  • Affect and between-meal snacking in daily life: the moderating role of gender and age.

    abstract:OBJECTIVE:Affect-related energy intake from snacks remains relatively unexplored in daily life. This study examines the associations between momentary positive affect (PA) and momentary negative affect (NA) and subsequent energy intake from snacks. In addition, the moderating role of BMI, gender, age and level of educa...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2017.1380813

    authors: Wouters S,Jacobs N,Duif M,Lechner L,Thewissen V

    更新日期:2018-04-01 00:00:00

  • The relative role of nicotine dependence and smoking-related cognitions in adolescents' process of smoking cessation.

    abstract::The present study evaluates the role of distinct components of nicotine dependence (craving, withdrawal, behavioural dependence) in comparison to smoking-related cognitions (attitudes, perceived social approval, self-efficacy) in adolescent smoking cessation. In the process towards smoking cessation, we distinguish be...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2010.520715

    authors: Schuck K,Otten R,Engels RC,Kleinjan M

    更新日期:2011-10-01 00:00:00

  • Reducing behavioural risk factors for cancer: An affect regulation perspective.

    abstract::Nearly half of all cancer deaths are attributable to preventable causes, primarily unhealthy behaviours such as tobacco use, alcohol use and overeating. In this review, we argue that people engage in these behaviours, at least in part, as a means of regulating their affective states. To better understand why people en...

    journal_title:Psychology & health

    pub_type: 杂志文章,评审

    doi:10.1080/08870446.2017.1314480

    authors: O'Leary D,Suri G,Gross JJ

    更新日期:2018-01-01 00:00:00

  • Disentangling the relation between intentions, planning, and behaviour: a moderated mediation analysis.

    abstract::Action planning is assumed to mediate between intentions and health behaviours. Moreover, intentions are assumed to moderate the planning-behaviour relation, because people with high intentions are more likely to enact their plans. The present studies extend these suppositions by integrating both assumptions to a nove...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870440801958214

    authors: Wiedemann AU,Schüz B,Sniehotta F,Scholz U,Schwarzer R

    更新日期:2009-01-01 00:00:00

  • Motivational and behavioural consequences of self-affirmation interventions: a study of sunscreen use among women.

    abstract::The reported study compared the efficacy of three self-affirmation manipulations in reducing defensive processing and instigating behaviour change in response to personally relevant information about the health risks of sunbathing. White female sunbathers (N = 162) were recruited on a beach in the south of England. Pa...

    journal_title:Psychology & health

    pub_type: 杂志文章,随机对照试验

    doi:10.1080/08870440801930320

    authors: Jessop DC,Simmonds LV,Sparks P

    更新日期:2009-06-01 00:00:00

  • Opioid use and misuse: health impact, prevalence, correlates and interventions.

    abstract::Objective: To provide a broad overview of the state of drug misuse research, particularly focusing on opioid drug use in the U.S.A. Design: An overview of published reviews of the literature. Results: Prescription opioid use has increased globally from 2008 to 2013, while use of opiates such as heroin and opium have r...

    journal_title:Psychology & health

    pub_type: 杂志文章,评审

    doi:10.1080/08870446.2019.1622013

    authors: Bolshakova M,Bluthenthal R,Sussman S

    更新日期:2019-09-01 00:00:00

  • Counsellor-delivered HIV risk reduction intervention addresses safer sex barriers of people living with HIV in KwaZulu-Natal, South Africa.

    abstract::This study developed an HIV risk reduction intervention for people living with HIV (PLWH) obtaining care at primary healthcare clinics in KwaZulu-Natal, South Africa by (1) conducting elicitation research to understand the dynamics of risk behaviour among PLWH, (2) modifying an existing HIV risk reduction intervention...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2011.552180

    authors: Cornman DH,Christie S,Shepherd LM,MacDonald S,Amico KR,Smith LR,Shuper PA,Adelaja A,Mahlase G,Fröhlich JA,Pillay S,Lalloo UG,Fisher WA,Fisher JD

    更新日期:2011-12-01 00:00:00

  • Beyond personal responsibility: effects of causal attributions for overweight and obesity on weight-related beliefs, stigma, and policy support.

    abstract:OBJECTIVE:The objective of this research was to compare the effects of different causal attributions for overweight and obesity, among individuals with overweight and obesity, on weight-related beliefs, stigmatising attitudes and policy support. DESIGN:In Study 1, an online sample of 95 US adults rated the extent to w...

    journal_title:Psychology & health

    pub_type: 杂志文章,随机对照试验

    doi:10.1080/08870446.2014.916807

    authors: Pearl RL,Lebowitz MS

    更新日期:2014-01-01 00:00:00

  • 'I think a little bit of a kick is sometimes what you need': Women's accounts of whole-body scanning and likely impact on health-related behaviours.

    abstract:OBJECTIVE:This study was designed to investigate whether whole-body scanning might promote healthy eating and physical activity in women, and to explore the effects of scanning on body image. DESIGN:Fourteen women aged 22-45 years without histories of eating disorders or whole-body scanning took part in semi-structure...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2017.1329933

    authors: Grogan S,Siddique MA,Gill S,Brownbridge K,Storey E,Armitage CJ

    更新日期:2017-09-01 00:00:00

  • Perceived overprotection, instrumental support and rehabilitation use in elders with vision loss: a longitudinal perspective.

    abstract:OBJECTIVES:This study's purpose was to investigate changes in perceived overprotection - a problematic aspect of close relationships - over time in relationship to instrumental support receipt and vision rehabilitation service use in a sample of older adults with vision impairment. METHODS:Participants were 584 older ...

    journal_title:Psychology & health

    pub_type: 杂志文章

    doi:10.1080/08870446.2012.729835

    authors: Cimarolli VR,Boerner K,Reinhardt JP,Horowitz A

    更新日期:2013-01-01 00:00:00