Amplified ambivalence: having a sibling with juvenile idiopathic arthritis.

Abstract:

:Despite increased awareness of family responses to chronic illness and disability, there is still a need to understand experiences of well siblings. We begin to address this issue by asking, 'What is it like to have a sibling with juvenile idiopathic arthritis?' (JIA). Eight families with an adolescent diagnosed with JIA participated. Four members of each family, including one healthy sibling, were interviewed and transcripts analyzed using grounded theory. Analysis suggests healthy siblings see their family as different to 'normal' families, forfeit time with peers, share vicariously adverse experiences of their ill sibling, and feel inadequately informed. Such experiences amplify the ambivalent nature of sibling relationships and are possibly felt most strongly during late childhood and early adolescence. Support from extended family can reduce these negative experiences and facilitate social and emotional adjustment which also occurs over time as the children mature. These findings have implications for healthcare professionals and voluntary organizations.

journal_name

Psychol Health

journal_title

Psychology & health

authors

Waite-Jones JM,Madill A

doi

10.1080/14768320701299906

subject

Has Abstract

pub_date

2008-01-01 00:00:00

pages

477-92

issue

4

eissn

0887-0446

issn

1476-8321

journal_volume

23

pub_type

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