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Do parents and children agree on rating a child's HRQOL? A systematic review and Meta-analysis of comparisons between children with attention deficit hyperactivity disorder and children with typical development using the PedsQLTM.

Abstract：

PURPOSE:This meta-analysis was conducted to assess differences in a child's health-related quality of life (HRQOL) as reported by the child and their parents using the Pediatric Quality of Life InventoryTM, and the effects in both children with attention deficit hyperactivity disorder (ADHD) and those with typical development. METHODS:Eight studies encompassing 16 independent groups met the inclusion criteria and were combined and compared in this meta-analysis. Fixed effect analysis was applied in the subgroup analysis to compare differences between children with ADHD and those with typical development. RESULTS:Small to moderate magnitudes of parent-child discrepancies were found in the ratings of the children's HRQOL both in those with ADHD (g = -0.23 [-0.33, -0.13], p < 0.001, physical HRQOL; g = -0.60 [-0.71, -0.48], p < 0.001, psychosocial HRQOL) and in those with typical development (g = -0.27 [-0.31, -0.23], p < 0.001, physical HRQOL; g = -0.29 [-0.33, -0.25], p < 0.001, psychosocial HRQOL) except for emotional HRQOL in children with typical development (g = 0.003 [-0.04, 0.04], p = 0.90). The parent-child discrepancy in rating the child's psychosocial HRQOL was significantly larger in the children with ADHD than in those with typical development. CONCLUSIONS AND IMPLICATIONS:This meta-analysis suggests that a child's HRQOL may be assessed in children and adolescents with ADHD both by parent proxy- and child self-reports. Parent-child discrepancies, especially in psychosocial HRQOL, and sources of discrepancy need to be addressed when assessing the child's HRQOL and planning interventions in children with ADHD. Implications for Rehabilitation Parents reported a significantly worse health-related quality of life of their children than both the children with attention deficit hyperactivity disorder and those with typical development. A child's health-related quality of life needs to be assessed both by parent proxy and self-reports of the children. Children with attention deficit hyperactivity disorder and those with typical development differed significantly in parent-child discrepancy in child's psychosocial health-related quality of life, but not in physical health-related quality of life. Parent-child discrepancies, especially in psychosocial health-related quality of life, and sources of discrepancy (e.g., child, parent or family characteristics) need to be addressed when assessing the child's health-related quality of life and planning interventions in children with attention deficit hyperactivity disorder.

journal_name

Disabil Rehabil

journal_title

Disability and rehabilitation

authors

Lee YC,Yang HJ,Lee WT,Teng MJ

doi

10.1080/09638288.2017.1391338

subject

Has Abstract

pub_date

2019-02-01 00:00:00

pages

265-275

issue

eissn

0963-8288

issn

1464-5165

journal_volume

pub_type

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Do parents and children agree on rating a child's HRQOL? A systematic review and Meta-analysis of comparisons between children with attention deficit hyperactivity disorder and children with typical development using the PedsQLTM.