Abstract:
PURPOSE:Our aim was to identify demographic, clinical and socioeconomic predictors of self-management in multiple sclerosis (MS). METHODS:The study was performed on a group of 283 patients with multiple sclerosis who completed Multiple Sclerosis Self-Management Scale - Revised (MSSM-R), Multiple Sclerosis Impact Scale (MSIS-29), Actually Received Support Scale (part of Berlin Social Support Scale), Expanded Disability Status Scale (EDSS) and Socioeconomic resources scale. Patients were recruited through cooperation with Multiple Sclerosis Rehabilitation Centre in Borne Sulinowo and Polish Society of Multiple Sclerosis. Demographic and illness-related problems were determined with self-report survey. RESULTS:The group consisted of 185 women and 98 men, with a mean age of 48 years. The level of disability and disease severity varied, mean time elapsed since MS diagnosis was 13 years. The final predictive model of self-management in MS was based on two main predictors: received support and available socioeconomic resources. Patients with MS who received adequate support from the closest relatives (R(2 )= 0.07, F(1, 279) = 21.84, p ≤ 0.01) and had larger available socioeconomic resources (R(2) = 0.11, F(2, 278) = 17.06, p ≤ 0.01), turned out to be the most effective in self-management. Moreover, a relationship between self-management in MS and gender as well as monthly income attributable to one family member was documented. CONCLUSION:We identified a group of MS patients who are at an increased risk of poor self-management and therefore require more attention from medical staff. This group includes patients with low level of received support, low socioeconomic resources and to a lesser degree men, and also persons receiving low monthly income. Implications for Rehabilitation Self-management of chronic illness is a key component of active participation in rehabilitation process. Low self-management in multiple sclerosis (MS) is considered to be one of the most important factors contributing to low rehabilitation efficacy, more severe long-term complications and increase in healthcare costs. Knowledge on predictors of self-management should be used in clinical practice when providing treatment, support, education and rehabilitation for patients with MS. Increasing support and improving social conditions are potentially important targets for interventions aimed at optimization of self-management, and thereby reduction of health care costs and improvement of health.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Wilski M,Tasiemski T,Kocur Pdoi
10.3109/09638288.2014.993435subject
Has Abstractpub_date
2015-01-01 00:00:00pages
1970-5issue
21eissn
0963-8288issn
1464-5165journal_volume
37pub_type
杂志文章abstract:PURPOSE:To identify what types of social rules are involved in group interventions led by physiotherapists (PTs), and how these rules influence individual recovery. METHODS:Eight patients; six women and two men, which had recently undergone elective hip or knee replacement surgery, were recruited as informants from an...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1236296
更新日期:2017-12-01 00:00:00
abstract:PURPOSE:To assess construct (convergent and divergent) validity of the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) in a sample of children with complex medical conditions. METHOD:Demographics, clinical information, PEDI-CAT normative score, and the Post-Acute Acuity Rating for Childr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1226406
更新日期:2017-11-01 00:00:00
abstract::Purpose: The study aim was to analyze whether ambulatory therapy of chronic stroke patients contains elements that specifically address "Activity and participation", and to what extent participation as a major goal in rehabilitation is realized in ambulatory care.Method: Qualitative and quantitative content analysis o...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1503732
更新日期:2020-02-01 00:00:00
abstract::Purpose: To systematically review and synthesise the qualitative literature on experiences that challenge self-identity following traumatic brain injury (TBI).Method: Four electronic databases were searched systematically for qualitative research published between 1965 and August 2017, investigating subjective experie...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1743773
更新日期:2020-03-28 00:00:00
abstract::Objective: Pilot test GoWoman, a small-group weight management intervention for mobility impaired women that was a disability- and gender-responsive adaptation of the Diabetes Prevention Program delivered in the online virtual world of Second Life®. Objectives were to (1) examine pre-/post-intervention differences in ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1473511
更新日期:2019-11-01 00:00:00
abstract:PURPOSE:To examine the relevance of physical disabilities for self-worth and perceived competence in children with cerebral palsy (CP), and to examine associations between behaviour problems and self-worth and perceived competence. METHODS:The Harter scales for self-worth and perceived competence and a new scale for p...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600554652
更新日期:2006-10-30 00:00:00
abstract:PURPOSE:In rehabilitation studies, it is critical to understand the constituents of interventions. First, to enable replication of the work and second, to identify what treatments work best. The development of a tool to describe and quantify therapy interventions in the context of focal spasticity management is present...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1258435
更新日期:2018-02-01 00:00:00
abstract:BACKGROUND:The built, social and economic environments are associated with disability, but knowledge of how these environmental characteristics simultaneously influence older adults' ability to shop independently is limited. OBJECTIVE:We investigated cross-sectional associations between the outdoor home, local neighbo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1398785
更新日期:2019-01-01 00:00:00
abstract:UNLABELLED:The purpose of this study was to understand how neighbourhoods - as physical and social environments - influence community mobility. Seeking an insider's perspective, the study employed an ethnographic research design. Immersed within the daily lives of 6 older adults over an 8-month period, auditory, textua...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.837970
更新日期:2014-01-01 00:00:00
abstract::The burden of chronic disease worldwide is substantial. Unfortunately, risk factor control for most chronic diseases remains poor even after diagnoses. This is a major concern because poor risk factor control often leads to secondary consequences of the disease and the development of co-existing diseases. Stroke is a ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.797513
更新日期:2014-01-01 00:00:00
abstract:UNLABELLED:Abstract Purpose: Group singing could be a promising component of neurorehabilitative care. This article aims to conceptualize how group singing may enable people with Parkinson's disease (PD) to synchronize their movement patterns to musical rhythm and enhance quality of life. METHOD:Spanning the medical a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.793749
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:The study had two aims: (2) To explore whether knowledge about HIV and AIDS was similar among adolescents with disabilities compared with their non-disabled peers; and (2) To determine factors which may increase vulnerability of disabled adolescents to HIV infection and/or inappropriate access to HIV-related se...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500164297
更新日期:2005-11-30 00:00:00
abstract:PURPOSE:To assess the current status of computerized gait analysis techniques in the management of children with cerebral palsy or spina bifida who have significant walking disorders. METHOD:Synthesis of available data from a review of the literature, drawing on MEDLINE, EMBASE, PRE-MEDLINE, HealthStar and PsychInfo. ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/096382800296737
更新日期:2000-04-15 00:00:00
abstract:PURPOSE:To describe activity level, operationalized as ADL capacity and performance of occupations, and occupational balance, operationalized as time use and satisfaction with occupations, in women with limited systemic sclerosis, and to investigate the relationship between these occupational factors and disease charac...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701190083
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:National strategic plans (NSPs) provide a framework for a comprehensive response to human immunodeficiency virus (HIV) including strategies such as prevention, treatment, care and support for all affected. Research indicates limited recognition of the interrelationship between disability and HIV in the Eastern ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.573055
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:This paper explores the perception of quality of life (QOL) of four men following traumatic brain injury (TBI) and the effects of their injury on family, social and working life. METHOD:It also highlights their on-going difficulties 6, 8, 10 and 11 years post injury and that long term support is not available ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828021000058503
更新日期:2003-07-08 00:00:00
abstract::Purpose: To develop a tablet-based participation measure and to evaluate its reliability and acceptability to an older Chinese population in rehabilitation settings.Method: A multidimensional, self-reported participation measure, the Participation Measure-3 Domains, 4 Dimensions (PM-3D4D), was programed into mobile ap...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1592245
更新日期:2020-11-01 00:00:00
abstract::Aim: Primary aims of this systematic review were to: (1) identify the range of subjective memory measures used in the stroke and stroke-related aphasia literature and (2) critically appraise their psychometric properties as well as (3) the methodological qualities of studies that included them, (4) investigate whether...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1668485
更新日期:2019-09-27 00:00:00
abstract:PURPOSE:The study aimed to explore the views of health professionals on (i) physical activity in people who have rheumatoid arthritis (RA) and (ii) the design of an intervention to promote physical activity in this population. METHOD:We used a qualitative methodology and conducted 14 interviews (rheumatologists n = 7,...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1180548
更新日期:2017-06-01 00:00:00
abstract:PURPOSE:To explore the conceptions of patients with persistent low back pain (LBP) of undergoing physiotherapy delivered in Finnish primary healthcare by physiotherapists who had participated in brief training in Cognitive Functional Therapy (CFT). METHODS:As part of a feasibility implementation study exploring CFT in...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1861116
更新日期:2020-12-22 00:00:00
abstract::Purpose: To explore medical doctors' views on what are barriers in providing rehabilitation services for persons with SCI in Mongolia.Methods: A qualitative study with semi-structured interviews was conducted with 12 medical doctors. Participants were purposely sampled. The World Health Organization (WHO)'s report Int...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1696415
更新日期:2019-11-30 00:00:00
abstract:OBJECTIVE:The National Service Framework (NSF) for Long-Term Neurological Conditions (LTNC) highlights the need for vocational rehabilitation (VR) services in quality requirement 6. As a part of a review of this requirement, an extensive literature review was undertaken to identify, review and report on all relevant re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2012.669019
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To study the impact on health status as measured by SF-36 in groups of subjects having chronic musculoskeletal pain with different degree of generalization: No chronic pain (NCP), chronic regional pain (CRP), chronic widespread pain (CWP), CWP with a stricter 'Manchester' definition (CWP-M), and clinically defi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400009030
更新日期:2005-06-17 00:00:00
abstract:PURPOSE:This paper focuses on what takes place during the rehabilitation of spinal cord injured (SCI) adults. It analyses the cardinal rehabilitation task of transforming the compromised, limited and injured corporeal style of newly injured adults (best described phenomenologically as an 'I cannot do' or 'I no longer c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701336306
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:The purpose of this study was to describe the development of the Motivation for Change Questionnaire (MCQ) and to test its intra-patient reliability on musculoskeletal pain patients in interdisciplinary rehabilitation as a basis for use in rehabilitation planning. METHOD:The MCQ questionnaire was developed fro...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章
doi:10.1080/09638280500052682
更新日期:2005-09-02 00:00:00
abstract::The aim of the study was to investigate the effect of perceptual assessment and treatment provided on a stroke unit by comparison with that provided on health care of the elderly and general medical wards. Stroke patients admitted to hospital were randomly allocated to a stroke unit or conventional wards. Perceptual i...
journal_title:Disability and rehabilitation
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.3109/09638289709166532
更新日期:1997-06-01 00:00:00
abstract:PURPOSE:To assess the utility of virtual reality (VR) in stroke rehabilitation. METHOD:The Medline, Proquest, AMED, CINAHL, EMBASE and PsychInfo databases were electronically searched from inception/1980 to February 2005, using the keywords: Virtual reality, rehabilitation, stroke, physiotherapy/physical therapy and h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280600960909
更新日期:2007-07-30 00:00:00
abstract:PURPOSE:his study evaluated the effectiveness of a recently developed, low-cost 'over-the-counter' style hearing aid with elderly people, who had mild to moderate mixed or sensorineural hearing losses. Two aspects were focused upon, objective change in the participants' aided hearing measures and the self-reported perf...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400019682
更新日期:2005-06-03 00:00:00
abstract::Purpose: The purpose of this study was to explore rehabilitation clinicians' understanding of how sex and gender facilitate or hinder care provided to patients with traumatic brain injury (TBI).Materials and methods: Sixteen clinicians from various specialities, attending to patients with TBI from a large rehabilitati...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1774670
更新日期:2020-06-23 00:00:00
abstract::As in other developing countries, community-based rehabilitation (CBR) in China is very important. However, because of differences in the social system, economy, and cultural level, it is impossible to implement a uniform model of CBR. This paper introduces material to show how CBR in China tends to be spontaneous. Ex...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289209167080
更新日期:1992-04-01 00:00:00