Abstract:
PURPOSE:(1) Describe the challenges facing relatives of persons with stroke in accomplishing their daily activities and social roles (participation). (2) Reflect on the role of rehabilitation for relatives and ethical issues that may emerge following the adoption of a family-centred approach. METHOD:Review of the scientific literature in Medline (1996 to July 2009), Embase (1996 to July 2009) databases using keywords: stroke AND participation AND family OR spouse OR caregivers AND ethics AND burden. Selection criteria were as follows: study must examine the participation of relatives post-stroke (or equivalent concept such as burden), rehabilitation interventions for relatives post-stroke or ethical issues related to being a relative of a person with stroke. Articles not written in English or French were excluded. RESULTS:The sample comprised 17 scientific articles. According to five studies, social participation of relatives is characterised by increased responsibilities and a reduction in interpersonal relationships and leisure. In rehabilitation, there is no consensus regarding what should be done for relatives; guidelines exist but are not applied in practice. Little has been formally reported regarding ethical issues likely to emerge for relatives. CONCLUSIONS:The main impact of stroke is on social roles of relatives such as responsibilities, interpersonal relationships and leisure. The role of rehabilitation and related ethical issues needs further examination.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Pellerin C,Rochette A,Racine Edoi
10.3109/09638288.2010.524272subject
Has Abstractpub_date
2011-01-01 00:00:00pages
1055-64issue
13-14eissn
0963-8288issn
1464-5165journal_volume
33pub_type
杂志文章,评审abstract:PURPOSE:To evaluate the psychometric properties of the Italian version of Functional Outcome Questionnaire - Aphasia. METHODS:Two hundred and five persons with stroke-related aphasia and right hemiparesis who received ongoing assistance from a family caregiver were assessed using the Functional Outcome Questionnaire -...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1362042
更新日期:2018-12-01 00:00:00
abstract:PURPOSE:Kinesiophobia and catastrophizing are frequent among people with chronic fatigue syndrome (CFS). This study was aimed at examining (1) whether kinesiophobia, anticipated symptoms and fatigue catastrophizing are related to stair climbing performance in people with CFS; and (2) whether kinesiophobia and fatigue c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641661
更新日期:2012-01-01 00:00:00
abstract::Purpose The content of and methods for collecting health information often vary across settings and challenge the comparability of health information across time, individuals or populations. The International Classification of Functioning, Disability and Health (ICF) contains an exhaustive set of categories of informa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2016.1145258
更新日期:2019-03-01 00:00:00
abstract:PURPOSE:In this case study, we investigated the use of repetition in an individual with a neurogenic communication disorder. METHOD:We present an analysis of interaction in natural conversations between a woman with advanced Huntington's disease (HD), whose speech had been described as sometimes characterised by echol...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.514971
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:To investigate the effects of a special seating device: Thoracic-lumbar-sacral orthosis with non-rigid SIDO frame (TLSO-SIDO) in non-ambulant children with cerebral palsy. METHOD:A prospective study with matched pairs (the same subject pre- and post-intervention) was carried out. A comparison of the lateral vi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280601055691
更新日期:2007-09-30 00:00:00
abstract:PURPOSE:The presence of an individual with disability in a family affects the whole family. Families of individuals with cerebral palsy (CP) experience increased psychological anxiety and financial problems; specifically, parents tend to feel time pressure and struggle to maintain their social and cultural activities. ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1432705
更新日期:2019-06-01 00:00:00
abstract:PURPOSE:To identify facilitators and barriers frequently experienced by families of children with cerebral palsy (CP) and associated with being at the pre-intention, intention and action stages for physical activity. METHOD:Qualitative study involving in-depth focus group interviews with 33 ambulatory children and ado...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.748844
更新日期:2013-09-01 00:00:00
abstract:PURPOSE:To describe the development and feasibility of a self-management intervention called the Help to Overcome Problems Effectively (HOPE: MS), aimed at improving the physical and psychological wellbeing of people living with Multiple Sclerosis (MS). METHOD:HOPE: MS is an innovative, 6-week group-based, manualised ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1181211
更新日期:2017-06-01 00:00:00
abstract:BACKGROUND:Community ambulation is an important element of a rehabilitation training programme and its achievement is a goal shared by rehabilitation professionals and clients. The factors that influence a physiotherapist's or health professionals decision making around the preparation of a client for community ambulat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701623158
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:The purpose of this study was to describe the factors influencing healthy aging from the perspective of the older person with multiple sclerosis (MS) in order to build curricula for MS self-management programs. METHOD:We sourced participants, older than 55 years with MS for more than 20 years, from a database ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.585212
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:To systematically review research investigating measurement properties of the Personal Care Participation Assessment and Resource Tool (PC-PART), formerly the Handicap Assessment and Resource Tool (HART). DATA SOURCES:Seven databases were searched using (i) HART or PC-PART terms and (ii) known authors. Referen...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2012.690819
更新日期:2013-02-01 00:00:00
abstract:UNLABELLED:The purpose of this study was to understand how neighbourhoods - as physical and social environments - influence community mobility. Seeking an insider's perspective, the study employed an ethnographic research design. Immersed within the daily lives of 6 older adults over an 8-month period, auditory, textua...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.837970
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:To describe shared meanings of success, happiness, and health of adults with cerebral palsy and physiotherapists. MATERIALS AND METHODS:Ethnography employed open ended/semi-structured interviews and structured questionnaires (Satisfaction with Life Scale, Beck Depression Inventory-II®, Oxford Happiness Questio...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1425488
更新日期:2019-06-01 00:00:00
abstract:PURPOSE:The objective of this study was to generate expert consensus on best evaluative practices for community-based rehabilitation (CBR). This consensus includes key features of the evaluation process and methods, and discussion of whether a shared framework should be used to report findings and, if so, which framewo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1044030
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:To review prevailing models of disability management and prevention with respect to communication, and to suggest alternative approaches. METHOD:Review of selected articles. RESULTS:Effective disability management and return to work strategies have been the focus of an increasing number of intervention progra...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280410001672517
更新日期:2004-06-03 00:00:00
abstract:PURPOSE:To review the current international rehabilitation and healthcare climate and describe a new model of service delivery aimed at enhancing the continuity of care for people with spinal cord injury (SCI). METHOD:An extensive literature review was undertaken and a new model of service delivery conceptualized and ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/0963828031000122285
更新日期:2003-09-02 00:00:00
abstract:OBJECTIVE:To investigate a new style of resistance exercise using elastic bands and explore its therapeutic effect on the lower-extremity function of female patients with osteoarthritis (OA) of the knee. DESIGN:A randomized, controlled clinical trial. SETTING:University-affiliated medical center. PARTICIPANTS:Forty-...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2012.660598
更新日期:2012-01-01 00:00:00
abstract::Purpose: To evaluate the implementation of an integrated multidisciplinary Movement Disorder Clinic using a model of knowledge translation.Methods: A mixed methods design was used to evaluate implementation outcomes. After recognising poor referral rates to allied health, Movement Disorder Clinic team-members identifi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1691666
更新日期:2019-11-19 00:00:00
abstract:PURPOSE:Studies of occupational low back pain (OLBP) have shown that return to work after injury is influenced by workers' concerns and expectations; however, these theoretical constructs have not been explored. The specific aim of this study was to identify themes related to self-efficacy and outcome expectancy for re...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500076269
更新日期:2005-11-15 00:00:00
abstract:BACKGROUND:The International Classification of Functioning, Disability and Health is the international standard for describing and monitoring functioning. While the categories, the units of the classification, were not designed with measurement in mind, the hierarchical structure of the classification lends itself to t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1381186
更新日期:2019-03-01 00:00:00
abstract::Purpose: Peer support can be helpful in rehabilitation from breast cancer, but participation in peer support groups is low. Groups that provide support opportunities in physical activity contexts are an attractive alternative for some survivors. This study examined survivors' reasons for joining and maintaining partic...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1449259
更新日期:2019-07-01 00:00:00
abstract:BACKGROUND:Aged-related loss of ankle dorsiflexion range of motion (ROM) and toe plantarflexor strength play an important role in gait performance. Further, conventional strength, balance and gait training can significantly improve the lower extremity muscle power and functional abilities of older individuals. It remai...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638280902927010
更新日期:2009-01-01 00:00:00
abstract:AIM:Completion of high-intensity interval training (HIIT) increases maximal oxygen uptake and health status, yet its feasibility in persons with spinal cord injury is unknown. PURPOSE:To compare changes in cardiorespiratory and metabolic variables between two interval training regimes and moderate intensity exercise. ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1260648
更新日期:2018-02-01 00:00:00
abstract::Purpose: The aim was to explore personal experiences of pain in people with motor neuron disease.Materials and methods: Sixteen participants were individually interviewed on one occasion concerning their experiences of presentation, consequences, and management of pain. Qualitative content analysis with researcher tri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1555615
更新日期:2020-07-01 00:00:00
abstract::Purpose: Patients with Parkinson's and Huntington's Disease (PD and HD) present impairments in cognitively challenging everyday activities. This study contrasts these two basal ganglia disorders on the ability to perform daily life- like tasks and their level of awareness regarding the disease impact on function.Metho...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1783001
更新日期:2020-07-03 00:00:00
abstract:PURPOSE:This study was designed to explore the cultural meaning and dimensions of quality of life from the perspective of Brazilian burn patients. METHOD:A qualitative research approach was used. Nineteen burn patients and their close relatives participated in this ethnographic study. Data were collected by means of d...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802306257
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:This survey was carried out to study the views of multidisciplinary health professionals about discussing sexual issues with patients. METHODS:A questionnaire was sent to professionals (nurses, doctors, physiotherapists and occupational therapists) to return by post. A duplicate questionnaire was sent 4 weeks ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828021000031188
更新日期:2003-03-18 00:00:00
abstract:PURPOSE:The worldwide COVID-19 pandemic has changed almost all aspects of our lives, and the field of childhood disability is no exception. METHODS:This article is based on an invited lecture by the first author at a conference-the eHealth Summit ("Pediatric Rehabilitation in a Digital Space")-organized by the other a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1862925
更新日期:2020-12-23 00:00:00
abstract:BACKGROUND AND PURPOSE:Little is known about the potential role of environmental factors in the handicap creation process following a stroke. The objective of this study was to explore the presence of a relationship between environmental factors and the occurrence of handicap following a stroke, taking into considerati...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280010022540
更新日期:2001-09-10 00:00:00
abstract:PURPOSE:Evidence-based assessments for children with cerebral palsy are not widely used by healthcare professionals in day-to-day practice. This study aimed to examine allied health practitioner experiences, perceptions, and use of assessments for children with cerebral palsy. METHOD:A mixed methods study was conducte...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1373376
更新日期:2019-01-01 00:00:00