Abstract:
OBJECTIVES:To evaluate the acceptability of the Integrated Parkinson's disease Care Network (IPCN) from the perspectives of persons with Parkinson's disease (PD), their care partners and healthcare providers, including identification of important components and areas for improvement. METHODS:We used a descriptive qualitative approach with interviews (n = 15) and focus groups (n = 31) with persons with PD who were newly diagnosed and those with advanced PD, care partners and healthcare providers. Questions were designed to gather feedback on each component of the IPCN. RESULTS:Four overarching categories emerged: CCI support, New knowledge, Goal identification and achievement, and Readiness for self-management. These represent important aspects of participants' experiences of the IPCN. CONCLUSION:Most participants experienced the IPCN as helpful for managing living with PD and accessing resources. The relationship with the CCI was a critical component; the CCI was perceived to be knowledgeable, accessible, and responsive. PRACTICE IMPLICATIONS:The IPCN is a model to promote coordinated care and self-management. This study supports the key components of the IPCN as important for supporting patients in managing their lives with PD. Incorporation of other strategies to support self-management may enhance the model. Availability of and access to community resources was identified as an ongoing challenge.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Kessler D,Hatch S,Alexander L,Grimes D,Côté D,Liddy C,Mestre Tdoi
10.1016/j.pec.2020.07.002subject
Has Abstractpub_date
2021-01-01 00:00:00pages
136-142issue
1eissn
0738-3991issn
1873-5134pii
S0738-3991(20)30353-0journal_volume
104pub_type
杂志文章abstract:OBJECTIVE:While most existing health literacy (HL) measures focus primarily on reading comprehension, the functional, communicative and critical HL scales from Ishikawa et al. [19] aim to measure a broader HL spectrum. The objective of this study was to evaluate the validity of the Dutch translation of this instrument....
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.07.014
更新日期:2012-10-01 00:00:00
abstract::This prospective study evaluated the effect of an individualized, comprehensive, home-based cardiac rehabilitation program combining exercise training with risk factor modification and psychosocial counseling on risk factors, psychological well-being, functional capacity, and work resumption in 99 post-percutaneous co...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(00)00164-6
更新日期:2001-06-01 00:00:00
abstract::Health professionals play an important role in meeting the information and support needs of individuals following a diagnosis of cancer. The aim of this study was to evaluate the acceptability and impact of a hospital-based cancer support nurse (CSN) service. A total of 98 patients completed a structured telephone int...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(01)00174-4
更新日期:2002-05-01 00:00:00
abstract:OBJECTIVE:This study evaluated a psychosocial screening intervention that offers cancer patients counselling. The assumption underlying the intervention was that barriers are often present that hamper patients' awareness of and active request for psychosocial care. An active yet unobtrusive approach was hypothesized to...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章
doi:10.1016/j.pec.2007.09.010
更新日期:2008-01-01 00:00:00
abstract:UNLABELLED:Social characteristics (e.g. race, gender, age, education) are associated with health care disparities. We introduce social concordance, a composite measure of shared social characteristics between patients and physicians. OBJECTIVE:To determine whether social concordance predicts differences in medical vis...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.07.015
更新日期:2011-12-01 00:00:00
abstract:OBJECTIVE:Clinicians worldwide seek to educate and support heart failure patients to engage in self-care. We aimed to describe self-care behaviors of patients from 15 countries across three continents. METHODS:Data on self-care were pooled from 5964 heart failure patients from the United States, Europe, Australasia an...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.02.017
更新日期:2013-07-01 00:00:00
abstract:OBJECTIVE:To determine which patient factors contribute to improvements in the ABCs of diabetes following a multi-faceted diabetes care intervention. METHODS:A multi-level, cluster design, randomized controlled trial examined the effectiveness of a Chronic Care Model (CCM) intervention in an underserved community (n=1...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2010.04.005
更新日期:2011-02-01 00:00:00
abstract::Despite intensive efforts, most smoking prevention interventions have had disappointing results. In the present paper, the assumption underlying these efforts that smoking initiation is the result of a rational decision or plan, is questioned. The process of adolescent smoking initiation is described, based on a recen...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2003.04.004
更新日期:2004-12-01 00:00:00
abstract:OBJECTIVE:To study how comprehension of cardiovascular disease (CVD) risk is influenced by: (1) infographics about qualitative risk information, with/without risk numbers; (2) which qualitative risk dimension is emphasized; (3) heart age vs. traditional risk format. METHODS:For aim 1, a 2 (infographics versus text) x ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.03.015
更新日期:2018-08-01 00:00:00
abstract:OBJECTIVE:To experimentally test whether presenting logically equivalent, but differently valenced effectiveness information (i.e. attribute framing) affects perceived effectiveness of the human papillomavirus (HPV) vaccine, vaccine-related intentions and policy opinions. METHODS:A survey-based experiment (N=334) was ...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2010.08.014
更新日期:2010-12-01 00:00:00
abstract:OBJECTIVE:To assess the concordance between patients' preferred role in clinical decision-making and the role they usually experience in their psychiatric consultations and to analyze the influence of socio-demographic, clinical and personality characteristics on patients' preferences. METHODS:677 consecutive psychiat...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.05.009
更新日期:2014-08-01 00:00:00
abstract::The main goals of this study were to examine aspects of the delivery and reception of advice and questions in interaction between nurses and patients and to describe linguistic features that constructed nurse-centered and empowermental health counseling. The research data, 38 health counseling sessions, were videotape...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(01)00140-9
更新日期:2001-10-01 00:00:00
abstract:OBJECTIVE:First-degree relatives (FDRs) of people diagnosed with colorectal cancer (CRC) have a two- to threefold increased risk of developing the same disease. Tailored print interventions based on behavior change theories have demonstrated considerable promise in facilitating health-promoting behaviors. This study co...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2008.01.013
更新日期:2008-05-01 00:00:00
abstract:OBJECTIVE:A challenging but main task for clinicians is to identify patients' concerns related to their medical conditions. The study aim was to validate a new coding scheme for identifying patients' cues and concerns. METHODS:12 videotaped consultations between nurses and pain patients were coded according to the Ver...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.04.036
更新日期:2011-02-01 00:00:00
abstract:OBJECTIVE:This study investigated whether doctors' attire influences the perception of empathy in the patient-doctor relationship during a therapeutic encounter. METHODS:A total number of 143 patients were divided into four groups when they were consulting a Traditional Korean Medicine doctor. Depending on the group, ...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2012.02.017
更新日期:2012-12-01 00:00:00
abstract:OBJECTIVE:To review research on emotional communication in medical interviews regarding predictors, physiological correlates and effects of clinicians' responses to patients' cues and concerns and individual differences among patients. METHODS:A selective review of research literature on emotional communication in med...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2012.06.022
更新日期:2012-09-01 00:00:00
abstract:OBJECTIVES:To evaluate if the contents of pain management websites include the current best practice self-management support strategies for people with persistent pain, are cultural tailored and to determine the website quality. METHODS:Websites were searched from three major search engines (Google, Bing, and Yahoo). ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2019.04.009
更新日期:2019-09-01 00:00:00
abstract::Self-instruction is one means of providing patient education, allowing the health professional to teach a larger number of persons than with one-to-one or group instruction and at a lower cost. The purpose of this study was to examine the effects of self-instruction on learning, satisfaction with the teaching approach...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/0738-3991(86)90003-0
更新日期:1986-09-01 00:00:00
abstract:OBJECTIVE:Patient engagement has been credited with contributing to improved outcomes and experiences of care. Patient engagement has become a widely used term, but remains a poorly understood concept in healthcare. Citations for the term have increased throughout the healthcare-related disciplines without a common def...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2016.09.002
更新日期:2017-01-01 00:00:00
abstract:OBJECTIVE:Preferences of women who had completed adjuvant chemotherapy for early breast cancer were compared with those of their partners by determining the smallest benefits they judged sufficient to make adjuvant chemotherapy worthwhile. METHODS:Forty-six women and their partners were interviewed separately, 3-34 mo...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2008.02.021
更新日期:2008-08-01 00:00:00
abstract::This reflective piece tells the story of an impactful patient interaction that shaped the practice of a medical student. The essay focuses on the power of shared time and the development of meaningful relationships as a form of adjunctive therapy for patients, regardless of diagnosis or prognosis. Fostering an appreci...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.08.035
更新日期:2019-01-01 00:00:00
abstract::In this study, the relationship between (a) doctor's and patients' communication and (b) doctors' patient-centredness during the oncological consultation and patients' quality of life and satisfaction was examined. Consultations of 96 consecutive cancer patients were recorded and content analysed by means of the Roter...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(99)00108-1
更新日期:2000-09-01 00:00:00
abstract:OBJECTIVES:to examine the relationship between literacy and asthma management with a focus on the oral exchange. METHODS:study participants, all of whom reported asthma, were drawn from the New England Family Study (NEFS), an examination of links between education and health. NEFS data included reading, oral (speaking...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.02.023
更新日期:2011-01-01 00:00:00
abstract::This paper reports on an evaluation of the reactions of participants in a computer-controlled telephone conversation system (telephone-linked care, TLC) designed to offer nutrition and exercise counseling. After 6 months in the study, subjects were asked a series of questions about their opinions of the TLC system, in...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(02)00076-9
更新日期:2003-02-01 00:00:00
abstract:UNLABELLED:Lifestyle modification programs tailored to experience, culture, psychosocial characteristics, and world-view can improve knowledge, self-care behaviors, and glucose control among Latinos with diabetes. Few data exist, however, on improving diabetes self-management among Latinos. In addition, views and pract...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2006.12.003
更新日期:2007-05-01 00:00:00
abstract::In the Netherlands considerable attention has been given to dementia, but hardly any is paid to normal forgetfulness. Two information meetings about the differences between normal forgetfulness and dementia were organized in order to meet current information needs. Evaluation of those meetings gave more insight into t...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(94)90004-3
更新日期:1994-10-01 00:00:00
abstract:OBJECTIVE:Investigate the effects of disease management program (DMP) implementation on physical activity, smoking, and physical quality of life among chronically ill patients. METHODS:This study used a mixed-methods approach involving qualitative (35 interviews with project managers) and quantitative (survey of patie...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2013.12.017
更新日期:2014-04-01 00:00:00
abstract:OBJECTIVE:We assessed information provision and information needs about illness course, treatments, palliative care and euthanasia in cancer patients. METHODS:Cancer patients consulting a university hospital (N=620) filled out a questionnaire. Their cancer related data were collected through the treating oncologist. T...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.06.034
更新日期:2018-01-01 00:00:00
abstract:OBJECTIVE:Despite numerous benefits of consuming a healthy diet and receiving regular physical activity, engagement in these behaviors is suboptimal. Since primary care visits are influential in promoting healthy behaviors, we sought to describe whether and how diet and physical activity are discussed during older adul...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.03.020
更新日期:2014-06-01 00:00:00
abstract:OBJECTIVE:Explore the impact of existential vulnerability for nursing home doctors' experiences with dying patients and their families. METHODS:We conducted a qualitative study based on three focus group interviews with purposive samples of 17 nursing home doctors. The interviews were audio-recorded, transcribed, and ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2016.07.016
更新日期:2016-12-01 00:00:00