The meaning of parenteral hydration to family caregivers and patients with advanced cancer receiving hospice care.

Abstract:

CONTEXT:In the U.S., patients with advanced cancer who are dehydrated or have decreased oral intake almost always receive parenteral hydration in acute care facilities but rarely in the hospice setting. OBJECTIVES:To describe the meaning of hydration for terminally ill cancer patients in home hospice care and for their primary caregivers. METHODS:Phenomenological interviews were conducted at two time points with 85 patients and 84 caregivers enrolled in a randomized, double-blind, controlled trial examining the efficacy of parenteral hydration in patients with advanced cancer receiving hospice care in the southern U.S. Transcripts were analyzed hermeneutically by the interdisciplinary research team until consensus on the theme labels was reached. RESULTS:Patients and their family caregivers saw hydration as meaning hope and comfort. Hope was the view that hydration might prolong a life of dignity and enhance quality of life by reducing symptoms such as fatigue and increasing patients' alertness. Patients and caregivers also described hydration as improving patients' comfort by reducing pain; enhancing the effectiveness of pain medication; and nourishing the body, mind, and spirit. CONCLUSION:These findings differ from traditional hospice beliefs that dehydration enhances patient comfort, given that patients and their families in the study viewed fluids as enhancing comfort, dignity, and quality of life. Discussion with patients and families about their preferences for hydration may help tailor care plans to meet specific patient needs.

journal_name

J Pain Symptom Manage

authors

Cohen MZ,Torres-Vigil I,Burbach BE,de la Rosa A,Bruera E

doi

10.1016/j.jpainsymman.2011.06.016

subject

Has Abstract

pub_date

2012-05-01 00:00:00

pages

855-65

issue

5

eissn

0885-3924

issn

1873-6513

pii

S0885-3924(11)00773-1

journal_volume

43

pub_type

杂志文章,随机对照试验
  • Professional judgments about advance care planning with community-dwelling consumers.

    abstract:CONTEXT:There is limited research on how community-based long-term care (CBLTC) providers' personal characteristics and attitudes affect their decisions to initiate advance care planning (ACP) conversations with consumers. OBJECTIVES:To examine judgments by CBLTC providers as to whether a consumer was in need of ACP a...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.jpainsymman.2011.03.023

    authors: Baughman KR,Ludwick RE,Merolla DM,Palmisano BR,Hazelett S,Winchell J,Hewit M

    更新日期:2012-01-01 00:00:00

  • HIV/AIDS symptom management in Southern Africa.

    abstract::We describe self-reported strategies used by persons living with HIV/AIDS in Botswana, Lesotho, South Africa, and Swaziland to manage common HIV-related symptoms. A questionnaire asked participants to list three to six symptoms they had recently experienced, the care strategies they had used to make them better, where...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2004.05.007

    authors: Sukati NA,Mndebele SC,Makoa ET,Ramukumba TS,Makoae LN,Seboni NM,Human S,Holzemer WL

    更新日期:2005-02-01 00:00:00

  • Stability of Symptom Clusters in Patients With Lung Cancer Receiving Chemotherapy.

    abstract:CONTEXT:Patients with lung cancer who undergo chemotherapy (CTX) experience multiple symptoms. Evaluation of how these symptoms cluster together and how these symptom clusters change over time are salient questions in symptom clusters research. OBJECTIVES:The purposes of this analysis, in a sample of patients with lun...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.02.002

    authors: Russell J,Wong ML,Mackin L,Paul SM,Cooper BA,Hammer M,Conley YP,Wright F,Levine JD,Miaskowski C

    更新日期:2019-05-01 00:00:00

  • Informal Caregiver Challenges for Advanced Cancer Patients During End-of-Life Care in Johannesburg, South Africa and Distinctions Based on Place of Death.

    abstract:CONTEXT:In sub-Saharan Africa, late diagnosis with cancer is common. Many dying patients rely on family members for care; little is known about the challenges African informal caregivers face. OBJECTIVES:To better understand the challenges of informal caregivers at the end of life in South Africa, both at home and in ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2018.03.017

    authors: O'Neil DS,Prigerson HG,Mmoledi K,Sobekwa M,Ratshikana-Moloko M,Tsitsi JM,Cubasch H,Wong ML,Omoshoro-Jones JAO,Sackstein PE,Blinderman CD,Jacobson JS,Joffe M,Ruff P,Neugut AI,Blanchard CL

    更新日期:2018-07-01 00:00:00

  • Pilot study of nasal morphine-chitosan for the relief of breakthrough pain in patients with cancer.

    abstract::Breakthrough pain in patients with cancer is common, often unpredictable, and can rapidly become severe. Treatment using the oral administration of opioids is not optimal due to the slow onset of pain relief. Nasal administration of analgesics potentially offers more rapid pain relief. This study investigates the tole...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0885-3924(02)00522-5

    authors: Pavis H,Wilcock A,Edgecombe J,Carr D,Manderson C,Church A,Fisher A

    更新日期:2002-12-01 00:00:00

  • Emergencies in patients with advanced cancer followed at home.

    abstract:CONTEXT:Patients with advanced cancer stay at home for most of their time, and acute problems may occur during home care. Caregivers may call medical services for an emergency, which can result in patients being admitted to the hospital. No data exist on emergencies in patients followed by a home care team. OBJECTIVES...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2011.07.016

    authors: Mercadante S,Porzio G,Valle A,Aielli F,Costanzo V,Adile C,Spedale V,Casuccio A,Home Care Italy Group (HOCAI).

    更新日期:2012-08-01 00:00:00

  • How COVID-19 Changed Advance Care Planning: Insights From the West Virginia Center for End-of-Life Care.

    abstract:CONTEXT:Coronavirus disease 2019 (COVID-19) led to increased attention nationally on advance care planning. OBJECTIVES:To describe the impact COVID-19 had on advance care planning based on changes in the calls to the West Virginia Center for End-of-Life Care (center) and in the volume and types of documents requested ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.09.021

    authors: Funk DC,Moss AH,Speis A

    更新日期:2020-12-01 00:00:00

  • How useful is docusate in patients at risk for constipation? A systematic review of the evidence in the chronically ill.

    abstract::The effectiveness of docusate for constipation has not been studied in the terminally ill. Controversy also exists concerning its effectiveness in the chronically ill. Because chronically ill patients and terminally ill patients have several risk factors for constipation in common, we undertook a systematic review of ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析

    doi:10.1016/s0885-3924(99)00157-8

    authors: Hurdon V,Viola R,Schroder C

    更新日期:2000-02-01 00:00:00

  • Relating to the Experience of Contingency in Patients With Advanced Cancer: An Interview Study in U.S. Patients.

    abstract:CONTEXT:Being diagnosed with incurable cancer can be a life-changing experience, evoking different spiritual questions and needs. Confronting a serious life-threatening event occurs not only often unexpected but also can disrupt a person's self-image and ideals of their personhood. This confrontation makes it difficult...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2017.11.007

    authors: Kruizinga R,Jafari N,Scherer-Rath M,Schilderman H,Bires J,Puchalski C,van Laarhoven H

    更新日期:2018-03-01 00:00:00

  • A comparison of pain and its treatment in advanced dementia and cognitively intact patients with hip fracture.

    abstract::Advanced dementia patients may be at substantial risk for undetected or undertreated pain. To examine the treatment of pain following hip fracture, a prospective cohort study was conducted in an academic teaching hospital. Fifty-nine cognitively intact elderly patients with hip fracture and 38 patients with hip fractu...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/s0885-3924(00)00113-5

    authors: Morrison RS,Siu AL

    更新日期:2000-04-01 00:00:00

  • Long-term safety of MorphiDex.

    abstract::More than 2200 subjects were enrolled in the MorphiDex (MS:DM) development program, with a 1:1 (weight:weight) ratio of morphine sulfate (MS) to dextromethorphan hydrobromide (DM). Of the 1400 subjects exposed to MorphiDex, more than 350 subjects were treated for at least 6 months, and over 200 subjects were treated f...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析

    doi:10.1016/s0885-3924(99)00131-1

    authors: Goldblum R

    更新日期:2000-01-01 00:00:00

  • Factors to inform clinicians about the end of life in severe chronic obstructive pulmonary disease.

    abstract:CONTEXT:Palliative services have historically been offered to terminal patients with cancer, but much less so in other chronic illnesses such as chronic obstructive pulmonary disease (COPD) because of difficulties in predicting the trajectory to death. OBJECTIVES:The goal of this study was to determine if the change o...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/j.jpainsymman.2012.10.283

    authors: Benzo R,Siemion W,Novotny P,Sternberg A,Kaplan RM,Ries A,Wise R,Martinez F,Utz J,Sciurba F,National Emphysema Treatment Trial Research Group.

    更新日期:2013-10-01 00:00:00

  • Efficacy and Safety of Opioids in Treating Cancer-Related Dyspnea: A Systematic Review and Meta-Analysis Based on Randomized Controlled Trials.

    abstract:BACKGROUND:Dyspnea is one of the most distressing symptoms encountered by advanced cancer patients. In this study, we aimed to evaluate the role of opioids in the management of cancer-related dyspnea. METHODS:A systematic review and meta-analysis based on Randomized Controlled Trials was conducted in the databases PUB...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.07.021

    authors: Luo N,Tan S,Li X,Singh S,Liu S,Chen C,Huang Z,Feng S,Lin Y,Lin Y,Cen H,Liang M,Chen M

    更新日期:2021-01-01 00:00:00

  • Influenza vaccination for terminally ill cancer patients receiving palliative care: a preliminary report.

    abstract:CONTEXT:Cancer patients have impaired humoral and cellular immunity, and are more susceptible to infections; their immunological response is expected to be less effective than that of healthy people. OBJECTIVES:To assess the immune response to influenza vaccine in terminally ill cancer patients in a home palliative ca...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2010.05.016

    authors: Sasson M,Mandelboim M,Shvartzman P

    更新日期:2011-02-01 00:00:00

  • Action research: developing a pediatric cancer pain program in jordan.

    abstract::Children's pain is undertreated worldwide. Using a model of pediatric cancer pain management in Amman, Jordan, the authors demonstrated that an action research approach to pain service development resulted in a sustainable program of pain control. Barriers to care were due more often to health professionals' misconcep...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2007.05.006

    authors: Finley GA,Forgeron P,Arnaout M

    更新日期:2008-04-01 00:00:00

  • Breakthrough Cancer Pain in Patients With Abdominal Visceral Cancer Pain.

    abstract:OBJECTIVE:The objective of this study was to assess the characteristics of breakthrough cancer pain (BTcP) in patients with abdominal cancer pain, and the eventual factors associated with its presentation. METHODS:Patients with abdominal visceral cancer presenting BTcP were included in the analysis. Pain intensity, cu...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2019.02.014

    authors: Mercadante S,Adile C,Masedu F,Valenti M,Aielli F

    更新日期:2019-05-01 00:00:00

  • Pain scores in infants: a modified infant pain scale versus visual analogue.

    abstract::This study describes an observational system (modified infant pain scale, MIPS) with elements from a previously published observational scale and from assessments of video-recorded infant facial expressions. It was designed to allow rapid and repeated assessments of pain in infants after brief training by an observer ...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:

    authors: Buchholz M,Karl HW,Pomietto M,Lynn A

    更新日期:1998-02-01 00:00:00

  • Lamotrigine in the treatment of chronic refractory neuropathic pain.

    abstract::Many patients suffer from chronic, intractable neuropathic pain. Despite similar diagnoses and presumed pathophysiologies, symptoms and response to treatment can differ. Monotherapy is only occasionally successful. In this prospective survey, 20 patients with chronic, neuropathic pain not responding to interventional ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(00)00131-7

    authors: Devulder J,De Laat M

    更新日期:2000-05-01 00:00:00

  • Palliative care research in Africa: consensus building for a prioritized agenda.

    abstract:CONTEXT:Palliative care research in Africa is in its relative infancy, with dedicated financial support extremely limited. Therefore, setting research priorities to optimize use of limited resources is imperative. OBJECTIVES:To develop a prioritized research agenda for palliative care in Africa. METHODS:We used a two...

    journal_title:Journal of pain and symptom management

    pub_type: 共识发展会议,杂志文章

    doi:10.1016/j.jpainsymman.2013.03.022

    authors: Powell RA,Harding R,Namisango E,Katabira E,Gwyther L,Radbruch L,Murray SA,El-Ansary M,Leng M,Ajayi IO,Blanchard C,Kariuki H,Kasirye I,Namukwaya E,Gafer N,Casarett D,Atieno M,Mwangi-Powell FN

    更新日期:2014-02-01 00:00:00

  • Screening for addiction in patients with chronic pain and "problematic" substance use: evaluation of a pilot assessment tool.

    abstract::Assessing for the presence of addiction in the chronic pain patient receiving chronic opioid analgesia is a challenging clinical task. This paper presents a recently developed screening tool for addictive disease in chronic pain patients, and pilot efficacy data describing its ability to do so. In a small sample of pa...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0885-3924(98)00110-9

    authors: Compton P,Darakjian J,Miotto K

    更新日期:1998-12-01 00:00:00

  • Living with the dying: an early AIDS experience.

    abstract::The HIV/AIDS epidemic in boys and men with hemophilia began in the early 1980s with the puzzling occurrence of systemic illness and fatal opportunistic infections in patients who had received plasma-derived clotting factor concentrates. This brief narrative describes one physician's experience in caring for patients w...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2013.02.017

    authors: Ballard JO

    更新日期:2013-07-01 00:00:00

  • Nebulized versus subcutaneous morphine for patients with cancer dyspnea: a preliminary study.

    abstract::This study compared the effects of nebulized versus subcutaneous morphine on the intensity of dyspnea in cancer patients. Patients with a resting dyspnea intensity > or =3 on a 0-10 scale (0=no dyspnea, 10=worst possible dyspnea) who received regular oral or parenteral opioids were included. On day 1, patients receive...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2004.08.016

    authors: Bruera E,Sala R,Spruyt O,Palmer JL,Zhang T,Willey J

    更新日期:2005-06-01 00:00:00

  • Cancer patient compliance in the self-administration of a pain assessment tool.

    abstract::Accurate pain assessment is considered essential for effective management of cancer pain. The aim of this study was to evaluate the compliance of hospitalized patients with chronic cancer pain, referred to an inpatient palliative care consultation service, with self-assessment of pain intensity by means of a daily pai...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/j.jpainsymman.2004.01.002

    authors: Caraceni A,Galbiati A,Brunelli C,Gorni G,Martini C,Zecca E,De Conno F

    更新日期:2004-05-01 00:00:00

  • Perceptions of symptom distress in lung cancer patients: I. Congruence between patients and primary family caregivers.

    abstract::Part I of this two-part paper employs a comparative design to compare primary family caregivers' assessments of lung cancer patients' symptom distress with patients' own perceptions of symptom distress in the home setting. Part II describes the results of the qualitative component of this research. A convenience sampl...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0885-3924(97)00022-5

    authors: Lobchuk MM,Kristjanson L,Degner L,Blood P,Sloan JA

    更新日期:1997-09-01 00:00:00

  • Spinal cord stimulation in complex regional pain syndrome and refractory neuropathic back and leg pain/failed back surgery syndrome: results of a systematic review and meta-analysis.

    abstract::The drive for good quality evidence has highlighted the importance of well-conducted systematic reviews and meta-analyses that critically evaluate and grade studies for new or existing therapies. A systematic review and meta-analysis was performed to review the efficacy, safety, and cost effectiveness of spinal cord s...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析,评审

    doi:10.1016/j.jpainsymman.2005.12.010

    authors: Taylor RS

    更新日期:2006-04-01 00:00:00

  • Prostate cancer in African Americans: relationship of patient and partner self-efficacy to quality of life.

    abstract::This study examined the relationship between patient and partner ratings of self-efficacy for symptom control and quality of life (QOL) among 40 African American prostate cancer survivors and their intimate partners. Data analyses revealed that cancer survivors who had rated their self-efficacy for symptom control hig...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2004.02.020

    authors: Campbell LC,Keefe FJ,McKee DC,Edwards CL,Herman SH,Johnson LE,Colvin OM,McBride CM,Donattuci CF

    更新日期:2004-11-01 00:00:00

  • Simultaneous care: a model approach to the perceived conflict between investigational therapy and palliative care.

    abstract::Clinical trials of investigational therapy in patients with advanced cancer may not pay sufficient attention to quality of life (QOL) and supportive care issues, resulting in an adverse impact on the quality of care (QOC). We hypothesized that the simultaneous delivery of investigational therapy and a structured progr...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/j.jpainsymman.2004.03.002

    authors: Meyers FJ,Linder J,Beckett L,Christensen S,Blais J,Gandara DR

    更新日期:2004-12-01 00:00:00

  • Trajectories of Symptom Occurrence and Severity From Before Through Five Months After Lung Cancer Surgery.

    abstract:CONTEXT:Limited information is available about lung cancer patients' symptoms in the pre- and postoperative periods. OBJECTIVES:Study purposes were to evaluate for changes in symptom occurrence and severity from the preoperative period to five months after surgery and to evaluate for predictors of the occurrence and t...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2014.11.297

    authors: Oksholm T,Rustoen T,Cooper B,Paul SM,Solberg S,Henriksen K,Kongerud JS,Miaskowski C

    更新日期:2015-06-01 00:00:00

  • Chronic pain management in older adults: special considerations.

    abstract::The rising prevalence of neuropathic pain and the multifaceted sequelae of pain particularly within older adults are part of the increasing challenges in providing good geriatric pain management. Aging can lead to a higher sensitivity to pain within older adults, whereas physiological changes modify the absorption, bi...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,评审

    doi:10.1016/j.jpainsymman.2009.05.002

    authors: Fine PG

    更新日期:2009-08-01 00:00:00

  • Physician cancer pain education: a report from the Wisconsin Cancer Pain Initiative.

    abstract::The Wisconsin Cancer Pain Initiative was established in 1986 to address the various public and professional barriers to cancer pain management. This report discusses the initiative's model for physician education, which includes increasing factual knowledge, legitimizing cancer pain as an important treatment priority,...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(91)90044-5

    authors: Weissman DE,Gutmann M,Dahl JL

    更新日期:1991-10-01 00:00:00