Living with the dying: an early AIDS experience.

Abstract:

:The HIV/AIDS epidemic in boys and men with hemophilia began in the early 1980s with the puzzling occurrence of systemic illness and fatal opportunistic infections in patients who had received plasma-derived clotting factor concentrates. This brief narrative describes one physician's experience in caring for patients with hemophilia and HIV infection early in the epidemic.

journal_name

J Pain Symptom Manage

authors

Ballard JO

doi

10.1016/j.jpainsymman.2013.02.017

subject

Has Abstract

pub_date

2013-07-01 00:00:00

pages

150-3

issue

1

eissn

0885-3924

issn

1873-6513

pii

S0885-3924(13)00234-0

journal_volume

46

pub_type

杂志文章
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    abstract:CONTEXT:The Edmonton Symptom Assessment System (ESAS) measures the severity of nine symptoms. Constipation and sleep disturbance are common in patients with cancer, but are not currently included in the ESAS. OBJECTIVES:To validate the numerical rating scale (NRS) versions of ESAS and its revised version (ESAS-r), wit...

    journal_title:Journal of pain and symptom management

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    doi:10.1016/j.jpainsymman.2014.10.013

    authors: Hannon B,Dyck M,Pope A,Swami N,Banerjee S,Mak E,Bryson J,Rodin G,Ridley J,Lo C,Le LW,Zimmermann C

    更新日期:2015-05-01 00:00:00

  • Fatigue syndrome due to localized radiation.

    abstract::For cancer patients, fatigue is a disturbing symptom caused by many factors. Since fatigue is the most common side effect of localized radiation to the breast, this treatment provides a unique opportunity to follow patients prospectively as they develop one type of fatigue. We evaluated the effect of radiation treatme...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(92)90106-r

    authors: Greenberg DB,Sawicka J,Eisenthal S,Ross D

    更新日期:1992-01-01 00:00:00

  • Development of a six-month prognostic index in patients with advanced chronic medical conditions: the PALIAR score.

    abstract:CONTEXT:Efforts in developing useful tools to properly identify the end-of-life trajectory of patients with advanced medical diseases have been made, but the calibration and/or discriminative power of these tools has not been optimal. OBJECTIVES:Our objective was to develop a new, reliable prognostic tool to identify ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2013.04.011

    authors: Bernabeu-Wittel M,Murcia-Zaragoza J,Hernández-Quiles C,Escolano-Fernández B,Jarava-Rol G,Oliver M,Díez-Manglano J,Ruiz-Cantero A,Ollero-Baturone M,PALIAR Researchers.

    更新日期:2014-03-01 00:00:00

  • Timing of Survey Administration After Hospice Patient Death: Stability of Bereaved Respondents.

    abstract:CONTEXT:The Centers for Medicare & Medicaid Services have elected to include a bereaved family member survey in public reporting of hospice quality data as mandated in the Affordable Care Act. However, it is not known what time point after death offers the most reliable responses. OBJECTIVES:To examine the stability o...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2015.01.006

    authors: DiBiasio EL,Clark MA,Gozalo PL,Spence C,Casarett DJ,Teno JM

    更新日期:2015-07-01 00:00:00

  • Evaluation of Emergency Department Management of Opioid-Tolerant Cancer Patients With Acute Pain.

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    journal_title:Journal of pain and symptom management

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    更新日期:2017-10-01 00:00:00

  • Efficacy and safety of transdermal buprenorphine: a randomized, placebo-controlled trial in 289 patients with severe cancer pain.

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    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究,随机对照试验

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    authors: Poulain P,Denier W,Douma J,Hoerauf K,Samija M,Sopata M,Wolfram G

    更新日期:2008-08-01 00:00:00

  • Critical pathways: a road to institutionalizing pain management.

    abstract::Effective strategies to increase the visibility of pain and the accountability of health-care professionals for the treatment of pain are needed to improve the quality of pain management. Critical pathways are tools used to plan and document care for patients within a system of case management. Case management models ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(95)00169-7

    authors: Gordon DB

    更新日期:1996-04-01 00:00:00

  • Restless legs syndrome as a cause of sleep disturbances in cancer patients receiving chemotherapy.

    abstract:CONTEXT:Sleep disturbances are frequent in cancer patients during chemotherapy; the contributory role of restless legs syndrome (RLS) in this setting has never been assessed. OBJECTIVES:This study investigated the role of RLS in causing sleep disturbances and altering the quality of life in cancer patients during chem...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

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    更新日期:2013-07-01 00:00:00

  • Both maintaining hope and preparing for death: effects of physicians' and nurses' behaviors from bereaved family members' perspectives.

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    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2012.05.014

    authors: Shirado A,Morita T,Akazawa T,Miyashita M,Sato K,Tsuneto S,Shima Y

    更新日期:2013-05-01 00:00:00

  • Audio-visual communication and its use in palliative care.

    abstract::The technology of telemedicine has been used for over 20 years, involving different areas of medicine, providing medical care for the geographically isolated patients, and uniting geographically isolated clinicians. Today audio-visual technology may be useful in palliative care for the patients lacking access to medic...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(01)00402-x

    authors: Coyle N,Khojainova N,Francavilla JM,Gonzales GR

    更新日期:2002-02-01 00:00:00

  • Professional judgments about advance care planning with community-dwelling consumers.

    abstract:CONTEXT:There is limited research on how community-based long-term care (CBLTC) providers' personal characteristics and attitudes affect their decisions to initiate advance care planning (ACP) conversations with consumers. OBJECTIVES:To examine judgments by CBLTC providers as to whether a consumer was in need of ACP a...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究,随机对照试验

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    更新日期:2012-01-01 00:00:00

  • What Is the Preparedness and Capacity of Palliative Care Services in Middle-Eastern and North African Countries to Respond to COVID-19? A Rapid Survey.

    abstract:CONTEXT:Evidence from prior public health emergencies demonstrates palliative care's importance to manage symptoms, make advance care plans, and improve end-of-life outcomes. OBJECTIVE:To evaluate the preparedness and capacity of palliative care services in the Middle-East and North Africa region to respond to the COV...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.10.025

    authors: Boufkhed S,Harding R,Kutluk T,Husseini A,Pourghazian N,Shamieh O

    更新日期:2021-02-01 00:00:00

  • Symptom management for cancer patients: a trial comparing two multimodal interventions.

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    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2006.11.018

    authors: Sikorskii A,Given CW,Given B,Jeon S,Decker V,Decker D,Champion V,McCorkle R

    更新日期:2007-09-01 00:00:00

  • The experiences of relatives with the practice of palliative sedation: a systematic review.

    abstract:CONTEXT:Guidelines about palliative sedation typically include recommendations to protect the well-being of relatives. OBJECTIVES:The aim of this study was to systematically review evidence on the experiences of relatives with the practice of palliative sedation. METHODS:PubMed, Embase, Web of Science, PsycINFO, and ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,meta分析,评审

    doi:10.1016/j.jpainsymman.2011.09.006

    authors: Bruinsma SM,Rietjens JA,Seymour JE,Anquinet L,van der Heide A

    更新日期:2012-09-01 00:00:00

  • When Patients Say They Know About Palliative Care, How Much Do They Really Understand?

    abstract:CONTEXT:Lack of knowledge or misconceptions about palliative care (PC) can serve as barriers to accessing PC for seriously ill patients. Although self-reported rates of PC knowledge have been increasing, little is known about how self-reports relate to actual PC knowledge. OBJECTIVE:To determine the prevalence of PC k...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.05.008

    authors: Zhu Y,Enguídanos S

    更新日期:2019-09-01 00:00:00

  • Impact of a Nurse-Led Advance Care Planning Intervention on Satisfaction, Health-Related Quality of Life, and Health Care Utilization Among Patients With Severe Respiratory Disease: A Randomized Patient-Preference Trial.

    abstract:CONTEXT:Previous work has found that facilitated advance care planning (ACP) interventions are effective in increasing ACP uptake among patients with severe respiratory disease. OBJECTIVES:The objective of this study was to investigate whether a nurse-led, facilitated ACP intervention among participants with severe re...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.11.018

    authors: Sinclair C,Auret KA,Evans SF,Jane F,Dormer S,Wilkinson A,Greeve K,Koay MA,Brims F

    更新日期:2020-04-01 00:00:00

  • Prevalence of pain in Italian hospitals: results of a regional cross-sectional survey.

    abstract::The aims of this study were to quantify the prevalence of pain among hospitalized Italian patients and to describe the potential determinants of pain in this population. All patients older than 18 years and hospitalized for at least 24 hours in one of the 30 public hospitals of the Liguria region (n = 4709) were eligi...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(01)00405-5

    authors: Costantini M,Viterbori P,Flego G

    更新日期:2002-03-01 00:00:00

  • A survey of practice in management of malignant ascites.

    abstract::The purpose of this study was to determine physicians' attitudes toward and preferences for palliative management of malignant ascites. A random sample of eighty physicians practicing in Canada was selected from the memberships of the Canadian Association of Medical Oncologists, the Canadian Association of Gastroenter...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/s0885-3924(98)00037-2

    authors: Lee CW,Bociek G,Faught W

    更新日期:1998-08-01 00:00:00

  • Pain intensity, quality of life, quality of palliative care, and satisfaction in outpatients with metastatic or recurrent cancer: a Japanese, nationwide, region-based, multicenter survey.

    abstract:CONTEXT:Increasing numbers of patients with advanced cancer are receiving anticancer and/or palliative treatment in outpatient settings, and palliative care for outpatients with advanced cancer is being recognized as one of the most important areas for comprehensive cancer treatment. OBJECTIVES:The aim of this study w...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2011.04.025

    authors: Yamagishi A,Morita T,Miyashita M,Igarashi A,Akiyama M,Akizuki N,Shirahige Y,Eguchi K

    更新日期:2012-03-01 00:00:00

  • Correlates and Predictors of Changes in Dyspnea Symptoms Over Time Among Community-Dwelling Palliative Home Care Clients.

    abstract:CONTEXT:Dyspnea is a frequently reported and highly distressing symptom for persons nearing end of life, affecting the quality of living and dying. OBJECTIVES:This study described health and clinical characteristics of persons experiencing dyspnea who receive palliative home care services and identified factors affect...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2015.06.016

    authors: Freeman S,Hirdes JP,Stolee P,Garcia J,Smith TF

    更新日期:2015-12-01 00:00:00

  • Underprescription of Step III Opioids in French Cancer Survivors With Chronic Pain: A Call for Integrated Early Palliative Care in Oncology.

    abstract:CONTEXT:Chronic pain (CP) is a major concern in cancer survivors. Often under-reported by patients, it is both underassessed and undertreated by care providers. OBJECTIVES:To assess CP prevalence and related treatment in cancer survivors five years after diagnosis and to identify factors associated with prescribing op...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2019.10.027

    authors: Janah A,Bouhnik AD,Touzani R,Bendiane MK,Peretti-Watel P

    更新日期:2020-04-01 00:00:00

  • Morphine and morphine-6-glucuronide plasma concentrations and effect in cancer pain.

    abstract::The relationships between plasma morphine and metabolite (M3G and M6G) concentrations and analgesic efficacy were investigated in an open study of 39 cancer pain patients receiving chronic oral morphine therapy with either morphine sulfate solution or controlled-release morphine tablets. There were no differences in m...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章

    doi:10.1016/0885-3924(95)00148-4

    authors: Faura CC,Moore RA,Horga JF,Hand CW,McQuay HJ

    更新日期:1996-02-01 00:00:00

  • COMPASS: A Pilot Trial of an Early Palliative Care Intervention for Patients With End-Stage Liver Disease.

    abstract:CONTEXT:Palliative care interventions have shown promise in improving quality of life and reducing health-care utilization among patients with chronic organ failure. OBJECTIVES:To evaluate the effect of a palliative care intervention for adults with end-stage liver disease. METHODS:A randomized controlled trial of pa...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2019.06.023

    authors: Shinall MC Jr,Karlekar M,Martin S,Gatto CL,Misra S,Chung CY,Porayko MK,Scanga AE,Schneider NJ,Ely EW,Pulley JM,Jerome RN,Dear ML,Conway D,Buie R,Liu D,Lindsell CJ,Bernard GR

    更新日期:2019-10-01 00:00:00

  • A pilot cluster-randomized trial of a 20-week Tai Chi program in elders with cognitive impairment and osteoarthritic knee: effects on pain and other health outcomes.

    abstract:CONTEXT:Because Tai Chi (TC) is beneficial to elders without cognitive impairment (CI), it also may benefit elders with CI. But elders with CI have generally been excluded from TC studies because many measurement tools require verbal reports that some elders with CI are unable to provide. OBJECTIVES:To test the effica...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.jpainsymman.2012.04.009

    authors: Tsai PF,Chang JY,Beck C,Kuo YF,Keefe FJ

    更新日期:2013-04-01 00:00:00

  • Methylnaltrexone treatment of opioid-induced constipation in patients with advanced illness.

    abstract::Methylnaltrexone, a peripherally acting mu-opioid receptor antagonist with restricted ability to cross the blood-brain barrier, reverses opioid-induced constipation (OIC) without affecting analgesia. A double-blind study in patients with advanced illness and OIC demonstrated that methylnaltrexone significantly induced...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.jpainsymman.2009.02.234

    authors: Chamberlain BH,Cross K,Winston JL,Thomas J,Wang W,Su C,Israel RJ

    更新日期:2009-11-01 00:00:00

  • A comparison of pain and its treatment in advanced dementia and cognitively intact patients with hip fracture.

    abstract::Advanced dementia patients may be at substantial risk for undetected or undertreated pain. To examine the treatment of pain following hip fracture, a prospective cohort study was conducted in an academic teaching hospital. Fifty-nine cognitively intact elderly patients with hip fracture and 38 patients with hip fractu...

    journal_title:Journal of pain and symptom management

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/s0885-3924(00)00113-5

    authors: Morrison RS,Siu AL

    更新日期:2000-04-01 00:00:00

  • Oxaliplatin-Induced Peripheral Neuropathy and Identification of Unique Severity Groups in Colorectal Cancer.

    abstract:CONTEXT:Oxaliplatin-induced peripheral neuropathy (OIPN) is a dose-limiting toxicity of oxaliplatin and affects most colorectal cancer patients. OIPN is commonly evaluated by patient symptom report, using scales to reflect impairment. They do not discriminate between unique grouping of symptoms and signs, which impedes...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.jpainsymman.2017.07.033

    authors: Griffith KA,Zhu S,Johantgen M,Kessler MD,Renn C,Beutler AS,Kanwar R,Ambulos N,Cavaletti G,Bruna J,Briani C,Argyriou AA,Kalofonos HP,Yerges-Armstrong LM,Dorsey SG

    更新日期:2017-11-01 00:00:00

  • Celiac plexus blockade in a 7-year-old child with neuroblastoma.

    abstract::Celiac plexus blockade with ethanol is a widely accepted modality of pain control for adults with cancer pain. The role of interventional strategies in children is less well established. A 7-year-old child with abdominal pain secondary to a Wilms tumor was treated with neurolytic celiac plexus blockade. This resulted ...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/0885-3924(95)00014-P

    authors: Staats PS,Kost-Byerly S

    更新日期:1995-05-01 00:00:00

  • A comparative review of palliative care development in six countries represented by the Middle East Cancer Consortium (MECC).

    abstract::Palliative care development and services were reviewed in the region represented by the six members of the Middle East Cancer Consortium: Cyprus, Egypt, Israel, Jordan, the Palestinian Authority, and Turkey. The multimethod review synthesized evidence from ethnographic field visits to inpatient units, home care hospic...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2008.02.014

    authors: Bingley A,Clark D

    更新日期:2009-03-01 00:00:00

  • Comparing Symptom Ratings by Staff and Family Carers in Residents Dying in Long-Term Care Facilities in Three European Countries, Results From a PACE Survey.

    abstract:CONTEXT:Symptom management is essential in the end-of-life care of long-term care facility residents. OBJECTIVES:To study discrepancies and possible associated factors in staff and family carers' symptom assessment scores for residents in the last week of life. METHODS:A postmortem survey in Belgium, The Netherlands,...

    journal_title:Journal of pain and symptom management

    pub_type: 杂志文章

    doi:10.1016/j.jpainsymman.2020.03.002

    authors: Tanghe M,Van Den Noortgate N,Deliens L,Smets T,Onwuteaka-Philipsen B,Finne-Soveri H,Van den Block L,Piers R,PACE.

    更新日期:2020-08-01 00:00:00