Symbiotic empirical ethics: a practical methodology.

Abstract:

:Like any discipline, bioethics is a developing field of academic inquiry; and recent trends in scholarship have been towards more engagement with empirical research. This 'empirical turn' has provoked extensive debate over how such 'descriptive' research carried out in the social sciences contributes to the distinctively normative aspect of bioethics. This paper will address this issue by developing a practical research methodology for the inclusion of data from social science studies into ethical deliberation. This methodology will be based on a naturalistic conception of ethical theory that sees practice as informing theory just as theory informs practice - the two are symbiotically related. From this engagement with practice, the ways that such theories need to be extended and developed can be determined. This is a practical methodology for integrating theory and practice that can be used in empirical studies, one that uses ethical theory both to explore the data and to draw normative conclusions.

journal_name

Bioethics

journal_title

Bioethics

authors

Frith L

doi

10.1111/j.1467-8519.2010.01843.x

subject

Has Abstract

pub_date

2012-05-01 00:00:00

pages

198-206

issue

4

eissn

0269-9702

issn

1467-8519

journal_volume

26

pub_type

杂志文章
  • Privacy and disclosure in medical genetics examined in an ethics of care.

    abstract::The progress of genetic knowledge magnifies existing ethical problems in medical genetics. Among the most troubling types of problems -- for medicine, patients, and the larger society -- are those of privacy and disclosure. Examples of the range of problems involving privacy and disclosure are: 1) disclosure of fals...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.1991.tb00161.x

    authors: Wertz DC,Fletcher JC

    更新日期:1991-07-01 00:00:00

  • Autonomy and social influence in predictive genetic testing decision-making: A qualitative interview study.

    abstract::Beauchamp and Childress' definition of autonomous decision-making includes the conditions of intentionality, understanding, and non-control. In genetics, however, a relational conception of autonomy has been increasingly recognized. This article aims to empirically assess aspects of social influence in genetic testing...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12816

    authors: Zimmermann BM,Koné I,Shaw D,Elger B

    更新日期:2021-02-01 00:00:00

  • Altruism and reward: motivational compatibility in deceased organ donation.

    abstract::Acts of helping others are often based on mixed motivations. Based on this claim, it has been argued that the use of a financial reward to incentivize organ donation is compatible with promoting altruism in organ donation. In its report Human Bodies: Donation for Medicine and Research, the Nuffield Council on Bioethic...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12078

    authors: Voo TC

    更新日期:2015-03-01 00:00:00

  • 'Aching to be a boy': A preliminary analysis of gender assignment of intersex persons in India in a culture of son preference.

    abstract::Intersexuality, particularly in the global South, remains an under-researched field of study. In my in-progress doctoral research project, I explore the cultural, social, and medical discourses that influence how key stakeholders such as healthcare providers make decisions about the sex and gender assignment of the in...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12750

    authors: Das A

    更新日期:2020-07-01 00:00:00

  • Hit but not down. The substance view in light of the criticism of Lovering and Simkulet.

    abstract::In his article 'The substance view: A critique', Rob Lovering argues that the substance view -according to which a human person comes into existence at the moment of conception - leads to such implausible implications that this view should be abandoned. I responded to his reductio arguments in 'A critique of Rob Lover...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12450

    authors: Friberg-Fernros H

    更新日期:2018-07-01 00:00:00

  • Beneficence, determinism and justice: an engagement with the argument for the genetic selection of intelligence.

    abstract::In 2001, Julian Savulescu wrote an article entitled 'Procreative Beneficence: Why We Should Select the Best Children', in which he argued for the genetic selection of intelligence in children. That article contributes to a debate on whether genetic research on intelligence should be undertaken at all and, if so, shoul...

    journal_title:Bioethics

    pub_type: 评论,杂志文章

    doi:10.1111/j.1467-8519.2005.00422.x

    authors: Birch K

    更新日期:2005-02-01 00:00:00

  • Moral qualms, future persons, and embryo research.

    abstract::Many people have moral qualms about embryo research, feeling that embryos must deserve some kind of protection, if not so much as is afforded to persons. This paper will show that these qualms serve to camouflage motives that are really prudential, at the cost of also obscuring the real ethical issues at play in the d...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2008.00639.x

    authors: Shaw DM

    更新日期:2008-05-01 00:00:00

  • Genetic therapy, identity and the person-regarding reasons.

    abstract::It has been argued that there can be no person-regarding reasons for practising genetic therapy, since it affects identity and causes to exist an individual who would not otherwise have existed. And there can be no such reasons for causing somebody to exist because existing cannot be better for an individual than neve...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.1995.tb00298.x

    authors: Persson I

    更新日期:1995-01-01 00:00:00

  • Does human genome editing reinforce or violate human dignity?

    abstract::Germline genome editing is often disapproved of at the international policy level because of its possible threats to human dignity. However, from a critical perspective the relationship between this emerging technology and human dignity is relatively understudied. We explore the main principles that are referred to wh...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12607

    authors: Segers S,Mertes H

    更新日期:2020-01-01 00:00:00

  • Finding A Seat at the Table Together: Recommendations for Improving Collaboration between Social Work and Bioethics.

    abstract::Social work and bioethics are fields deeply committed to cross-disciplinary collaboration to do their respective work. While scholars and practitioners from both fields share a commitment to social justice and to respecting the dignity, integrity and the worth of all persons, the overlap between the fields, including ...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12106

    authors: Brazg T,Dotolo D,Blacksher E

    更新日期:2015-06-01 00:00:00

  • Who gets the gametes? An argument for a points system for fertility patients.

    abstract::This paper argues that the convention of allocating donated gametes on a 'first come, first served' basis should be replaced with an allocation system that takes into account more morally relevant criteria than waiting time. This conclusion was developed using an empirical bioethics methodology, which involved a study...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12411

    authors: Jenkins S,Ives J,Avery S,Draper H

    更新日期:2018-01-01 00:00:00

  • Even if the fetus is not a person, abortion is immoral: The impairment argument.

    abstract::Much of the debate about the ethics of abortion has centered on whether the fetus is a person. In an attempt to sidestep this complex issue, I argue that, even if the fetus is not a person, abortion is immoral. To arrive at this conclusion, I argue that giving a fetus fetal alcohol syndrome is immoral, and that if thi...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12533

    authors: Hendricks P

    更新日期:2019-02-01 00:00:00

  • Looking backwards, looking forward: hopes for bioethics' next twenty-five years.

    abstract::I reflect on the past, present, and future of the field of bioethics. In so doing, I offer a very situated overview of where bioethics has been, where it now is, where it seems to be going, where I think we could do better, and where I dearly hope the field will be heading. I also propose three ways of re-orienting ou...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2010.01866.x

    authors: Sherwin S

    更新日期:2011-02-01 00:00:00

  • Is it time for bioethics to go empirical?

    abstract::Observers who note the increasing popularity of bioethics discussions often complain that the social sciences are poorly represented in discussions about things like abortion and stem-cell research. Critics say that bioethicists should be incorporating the methods and findings of social scientists, and should move tow...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2007.00621.x

    authors: Herrera C

    更新日期:2008-03-01 00:00:00

  • When speed truly matters, openness is the answer.

    abstract::In this paper I analyse the ethical implications of the two main competing methodologies in genomic research. I do not aim to provide another contribution from the mainstream legal and public policy perspective; rather I offer a novel approach in which I analyse and describe the patent-and-publish regime (the propriet...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2009.01723.x

    authors: Marturano A

    更新日期:2009-09-01 00:00:00

  • Going to the roots of the stem cell controversy.

    abstract::The purpose of this paper is to describe the scientific background to the current ethical and legislative debates about the generation and use of human stem cells, and to give an overview of the ethical issues underlying these debates. The ethical issues discussed are 1) stem cells and the status of the embryo, 2) wom...

    journal_title:Bioethics

    pub_type: 杂志文章,评审

    doi:10.1111/1467-8519.00307

    authors: Holm S

    更新日期:2002-11-01 00:00:00

  • Narrative ARTifice and women's agency.

    abstract::The choice to pursue fertility treatments is a complex one. In this paper I explore the issues of choice, agency, and gender as they relate to assisted reproductive technologies (ARTs). I argue that narrative approaches to bioethics such as those by Arthur Frank and Hilde Lindemann Nelson clarify judgments about auton...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2005.00428.x

    authors: Kalbian AH

    更新日期:2005-04-01 00:00:00

  • Addiction, Heroin-Assisted Treatment and the Idea of Abstinence: A reply to Henden.

    abstract::In our previous article on the question whether heroin addicts are able to give informed consent voluntarily to research on heroin-assisted treatment, we criticized the ongoing bioethical discussion of a flawed conceptualization of heroin addicts' options. As a participant in this discussion, Edmund Henden defends the...

    journal_title:Bioethics

    pub_type: 评论,杂志文章

    doi:10.1111/bioe.12276

    authors: Uusitalo S,Broers B

    更新日期:2016-11-01 00:00:00

  • Judging the social value of controlled human infection studies.

    abstract::In controlled human infection (CHI) studies, investigators deliberately infect healthy individuals with pathogens in order to study mechanisms of disease or obtain preliminary efficacy data on investigational vaccines and medicines. CHI studies offer a fast and cost-effective way of generating new scientific insights,...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12794

    authors: Rid A,Roestenberg M

    更新日期:2020-10-01 00:00:00

  • Gestation as mothering.

    abstract::Some commentators maintain that gestational surrogates are not 'mothers' in a way capable of grounding a claim to motherhood. These commentators find that the practices that constitute motherhood do not extend to gestational surrogates. We argue that gestational surrogates should be construed as mothers of the childre...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12808

    authors: Murphy TF,Parks JA

    更新日期:2020-11-01 00:00:00

  • Ought we to enhance our cognitive capacities?

    abstract::Ought we to improve our cognitive capacities beyond the normal human range? It might be a good idea to level out differences between peoples cognitive capacities; and some people's reaching beyond normal capacities may have some good side-effects on society at large (but also bad side-effects, of course). But is there...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/j.1467-8519.2008.00721.x

    authors: Tännsjö T

    更新日期:2009-09-01 00:00:00

  • Positioning uterus transplantation as a 'more ethical' alternative to surrogacy: Exploring symmetries between uterus transplantation and surrogacy through analysis of a Swedish government white paper.

    abstract::Within the ethics and science literature surrounding uterus transplantation (UTx), emphasis is often placed on the extent to which UTx might improve upon, or offer additional benefits when compared to, existing 'treatment options' for women with absolute uterine factor infertility, such as adoption and gestational sur...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12469

    authors: Guntram L,Williams NJ

    更新日期:2018-10-01 00:00:00

  • The vulnerable and the susceptible.

    abstract::Human beings are essentially vulnerable in the view that their existence qua humans is not given but constructed. This vulnerability received basic protection from the State, expressed in the form of the universal rights all citizens are meant to enjoy. In addition, many individuals fall prey to destitution and depriv...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/1467-8519.00361

    authors: Kottow MH

    更新日期:2003-10-01 00:00:00

  • Moral philosophers are moral experts! A reply to David Archard.

    abstract::In his article 'Why Moral Philosophers Are Not and Should Not Be Moral Experts' David Archard attempts to show that his argument from common-sense morality is more convincing than other competing arguments in the debate. I examine his main line of argumentation and eventually refute his main argument in my reply. ...

    journal_title:Bioethics

    pub_type: 评论,杂志文章

    doi:10.1111/j.1467-8519.2012.02004.x

    authors: Gordon JS

    更新日期:2014-05-01 00:00:00

  • Suffering at the end of life.

    abstract::In the end-of-life context, alleviation of the suffering of a distressed patient is usually seen as a, if not the, central goal for the medical personnel treating her. Yet it has also been argued that suffering should be seen as a part of good dying. More precisely, it has been maintained that alleviating a dying pati...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12513

    authors: Varelius J

    更新日期:2019-01-01 00:00:00

  • A pain in the fetus: toward ending confusion about fetal pain.

    abstract::Are fetuses, at any stage of their development, capable of feeling pain? In his paper, "Locating the Beginnings of Pain," Stuart Derbyshire argues that they are not. We argue that he reaches this conclusion by way of conceptual confusion, a misreading of the available scientific data and the inclusion of irrelevant da...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/1467-8519.00212

    authors: Benatar D,Benatar M

    更新日期:2001-02-01 00:00:00

  • Why a right to life rules out infanticide: A final reply to Räsänen.

    abstract::Joona Räsänen has argued that pro-life arguments against the permissibility of infanticide are not persuasive, and fail to show it to be immoral. We responded to Räsänen's arguments, concluding that his critique of pro-life arguments was misplaced. Räsänen has recently replied in 'Why pro-life arguments still are not ...

    journal_title:Bioethics

    pub_type: 评论,杂志文章

    doi:10.1111/bioe.12646

    authors: Blackshaw BP,Rodger D

    更新日期:2019-10-01 00:00:00

  • A critical approach to the current understanding of Islamic scholars on using cadaver organs without prior permission.

    abstract::Chronic organ diseases and the increasing demand for organ transplantation have become an important health care problem within the last few decades. Campaigns and regulations to encourage people to donate organs after death have not met with much success. This article discusses the subject from an Islamic perspective....

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/1467-8519.00254

    authors: Aksoy S

    更新日期:2001-10-01 00:00:00

  • Against anonymity.

    abstract::In 'New Threats to Academic Freedom' Francesca Minerva argues that anonymity for the authors of controversial articles is a prerequisite for academic freedom in the Internet age. This argument draws its intellectual and emotional power from the author's account of the reaction to the on-line publication of ' After-bir...

    journal_title:Bioethics

    pub_type: 评论,杂志文章

    doi:10.1111/bioe.12093

    authors: Baker R

    更新日期:2014-05-01 00:00:00

  • Rethinking parenthood within assisted reproductive technology: The need for regulation in Nigeria.

    abstract::In Nigeria, reproduction is highly valued, with many people desiring to produce a child 'in their own image and likeness'. Previously, aspiring parents often resorted to adoption. Today, the availability of assisted reproductive technologies (ARTs) has provided options other than adoption for those desiring to procrea...

    journal_title:Bioethics

    pub_type: 杂志文章

    doi:10.1111/bioe.12759

    authors: Egbokhare OO,Akintola SO

    更新日期:2020-07-01 00:00:00