Abstract：
AIM:To explore bereaved parents' interactions with healthcare providers when a child dies in a paediatric intensive care unit. BACKGROUND:Although most children admitted to a paediatric intensive care unit will survive, 2-5% will die during their stay. The parents of these children interact and form relationships with numerous healthcare staff during their child's illness and death. Although previous studies have explored the parental experience of child death in intensive care generally, the nature of their relationships with healthcare providers during this time remains unknown. DESIGN:This study used a constructivist grounded theory approach. METHODS:Data were collected via semi-structured, audio-recorded interviews with 26 bereaved parents from four paediatric intensive care units over 18 months in 2015-2016. Constant comparative analysis and theoretical memos were used to analyse the data. FINDINGS:The theory "Transitional togetherness" demonstrates the changing nature of the parent-healthcare provider relationship across three key phases of the parents' journey. Phase one, "Welcoming expertise," focuses on the child's medical needs, with the healthcare provider dominant in the relationship. Phase two, "Becoming a team," centres around the parents' need to recreate a parental role and work collaboratively with healthcare providers. Finally, "Gradually disengaging" describes the parents' desire for the relationship to continue after the child's death as a source of support until no longer needed. CONCLUSIONS:Findings from this study offer valuable insights into the changing nature of the parent-healthcare provider relationship and highlight the key foci of the relationship at each stage of the parental journey.
journal_name
J Adv Nursjournal_title
Journal of advanced nursingauthors
Butler AE,Hall H,Copnell Bdoi
10.1111/jan.13401subject
Has Abstractpub_date
2018-01-01 00:00:00pages
89-99issue
1eissn
0309-2402issn
1365-2648journal_volume
74pub_type
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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doi：10.1046/j.1365-2648.1999.01058.x
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1994.tb02381.x
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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journal_title：Journal of advanced nursing
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更新日期：2012-01-01 00:00:00
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更新日期：2017-06-01 00:00:00
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journal_title：Journal of advanced nursing
pub_type： 杂志文章
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更新日期：2018-05-01 00:00:00
