Abstract:
:Chronic illness in childhood affects family functioning, and professional support is required when the child is being cared for at home. The focus of concern for this study is the nursing contribution to the support of the family. A longitudinal ethnographic study of the experience of four families caring for a child with cystic fibrosis provided data. Analysis of the four case studies provides insight to the effect of cystic fibrosis on family interaction. The genetic aspects and the life-threatening nature of the illness are seen to have a profound effect on the parents' lives. The experience of crisis and the chronic burden of care are described. The context of long-term care requires the nurse to share the illness trajectory with the families and to help family members to travel it together. This is seen to require a high level of interpersonal skill and considerable emotional investment. The issues for nursing are examined. The research arose from practice, and it contributes to theoretical explanation of nursing interaction, and the relationship of systems thinking to understanding of the nursing situation. The case for the development of family nursing practice to meet contemporary health care needs is argued.
journal_name
J Adv Nursjournal_title
Journal of advanced nursingauthors
Whyte DAdoi
10.1111/j.1365-2648.1992.tb01910.xkeywords:
subject
Has Abstractpub_date
1992-03-01 00:00:00pages
317-27issue
3eissn
0309-2402issn
1365-2648journal_volume
17pub_type
杂志文章abstract:AIM:This paper is a discussion of practical wisdom (phronesis) and spirituality in holistic caring and strategies to facilitate their application in nurse education. BACKGROUND:Phronesis, with its inherent spiritual qualities, is an established aspect of the persona of excellent clinical leaders. There is a strong cas...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2008.04949.x
更新日期:2009-06-01 00:00:00
abstract:AIMS:This article presents a proposal for the Clinical Nurse Research Consultant, a new nursing role. BACKGROUND:Although healthcare delivery continues to evolve, nursing has lacked highly specialized clinical and research leadership that, as a primary responsibility, drives evidence-based practice change in collabora...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2011.05687.x
更新日期:2011-10-01 00:00:00
abstract:AIMS:To examine the effects of health literacy, activities of daily living, frailty and self-care on rehospitalization for older adults with chronic heart failure using a structural equation model. DESIGN:This was a cross-sectional study. METHODS:Two hundred and seventy-one older patients with chronic heart failure w...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.14327
更新日期:2020-06-01 00:00:00
abstract::The use of touch and space by nursing staff is critical in all aspects of patient care. How patients and nurses perceive the use and possible abuse of these encounters is the subject of this research. Data were collected through participant observation and semi-structured interviews with staff and patients. Interpreta...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1998x.00706.x
更新日期:1998-10-01 00:00:00
abstract:AIM:This paper is a report of a study to examine the construction of the stereotype of male nurses as gay, and to describe how this discourse impacts on a group of New Zealand male nurses. BACKGROUND:A discourse stereotyping male nurses as gay is accompanied by one which privileges hegemonic masculinity and marginaliz...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2007.04447.x
更新日期:2007-12-01 00:00:00
abstract::German nursing students' knowledge of and attitudes to HIV and AIDS: two decades after the first AIDS case This study describes German nursing students' (n=180) knowledge and attitudes relating to HIV/AIDS, their homophobia level, willingness to care for people with AIDS, and their approach to possible sexual risk beh...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.2000.01326.x
更新日期:2000-03-01 00:00:00
abstract:AIMS:To understand the relationships among certain key factors such as organizational climate, self-efficacy and outcome expectation on registered nurses, with regard to the development of registered nurses' cross-cultural competence. The focus is specifically on the use of a social cognitive framework for nurses for p...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,多中心研究
doi:10.1111/jan.12901
更新日期:2016-05-01 00:00:00
abstract:BACKGROUND:The United Kingdom National Health Service aims to provide a holistic 'cradle to grave' service. In order to achieve this, systems are in place for effective communication between providers of services for babies and children. However, when children leave school, communication between the school health servi...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.2003.02877.x
更新日期:2004-01-01 00:00:00
abstract::The purpose of this paper is to review the research literature on the patient's experience of stroke. Four qualitative studies on how patients experience stroke were identified. The findings of these studies show that the stroke patient often has clear goals for himself in relation to functional abilities, against whi...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,评审
doi:10.1046/j.1365-2648.1997.t01-19-00999.x
更新日期:1997-09-01 00:00:00
abstract:AIMS:To examine the impact of errors or adverse events on emotional distress and professional quality of life in healthcare providers in the neonatal intensive care unit, and the moderating role of coworker support. BACKGROUND:Errors or adverse events can result in negative outcomes for healthcare providers. However, ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.13403
更新日期:2018-01-01 00:00:00
abstract:AIMS:To evaluate the effectiveness of an Avatar application for educating people with acute coronary syndrome (heart attack). BACKGROUND:A lack of understanding of Acute Coronary Syndrome symptoms and appropriate responses often contribute to delay in seeking medical treatment. DESIGN:A single-centre, non-blinded, pr...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,随机对照试验
doi:10.1111/jan.14210
更新日期:2020-01-01 00:00:00
abstract:AIM:To examine the effect of a self-help psychoeducation program for people with coronary heart disease in Singapore. BACKGROUND:Cardiac rehabilitation has shown benefits for mitigating many cardiac risk factors and can lead to improvement in health-related quality of life and psychological well-being in people with h...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,随机对照试验
doi:10.1111/jan.13793
更新日期:2018-10-01 00:00:00
abstract::This paper presents a hypothetical model of the compliance with self-care of young diabetics, its features, its meaning to them and the preconditions for compliance with self-care. The aim of this research was to develop a model to clarify and expand existing knowledge concerning compliance with self-care among young ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.1995.21040729.x
更新日期:1995-04-01 00:00:00
abstract::A user-centred study employing focus group methodology was conducted in the United Kingdom in order to establish the key information concerns of spouses of women with breast cancer from both patients' and spouses' perspectives. Four unstructured focus group discussions were convened, three with women with breast cance...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.1998.00833.x
更新日期:1998-12-01 00:00:00
abstract::Approximately 60%-80% of all multiple sclerosis (MS) patients are heat sensitive. The aim of this study was to gain information on the effects of an assistive device, the cooling-suit, on MS-patients' self-care ability and also practical implications. A single-case approach was adopted in a quasi- experimental before-...
journal_title:Journal of advanced nursing
pub_type: 临床试验,杂志文章
doi:10.1046/j.1365-2648.1999.01032.x
更新日期:1999-06-01 00:00:00
abstract:AIMS:To report an analysis of the concept of rest; to determine the conceptual maturity (consistent use and meaning) of rest in the current scientific literature and to present a theoretical definition of rest, providing a strong basis for research and practice. BACKGROUND:Rest is a physical, mental and spiritual huma...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,评审
doi:10.1111/jan.12910
更新日期:2016-05-01 00:00:00
abstract:AIM:To report an analysis of the concept of perinatal bereavement. BACKGROUND:The concept of perinatal bereavement emerged in the scientific literature during the 1970s. Perinatal bereavement is a practice-based concept, although it is not well-defined in the scientific literature and is often intermingled with the co...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,评审
doi:10.1111/jan.12119
更新日期:2013-11-01 00:00:00
abstract:AIM:This article is a report of a study conducted to determine if a nursing-implemented protocol of daily interruption of sedative infusions vs. sedation as directed by the intensive care unit team would decrease duration of mechanical ventilation. BACKGROUND:Continuous rather than intermittent infusion of sedative an...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,随机对照试验
doi:10.1111/j.1365-2648.2009.04967.x
更新日期:2009-05-01 00:00:00
abstract:AIM:This paper is a report of a study to investigate the effect of three positioning protocols on back pain, heart rate, blood pressure and vascular complications after cardiac catheterization. BACKGROUND:After cardiac catheterization, bed rest is prescribed in order to minimize vascular complications, but this often ...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,随机对照试验
doi:10.1111/j.1365-2648.2008.04889.x
更新日期:2009-02-01 00:00:00
abstract::Recent advances in the prenatal diagnosis of birth defects including amniocentesis, ultrasound and fetoscopy are discussed. Indications, technical considerations and limitations are presented. Parental reactions to the stresses encountered during the process of prenatal diagnosis are related. Implications are identifi...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1979.tb00882.x
更新日期:1979-09-01 00:00:00
abstract::This paper summarizes a research study inquiring into the attitudes of qualified nursing staff towards the use of individualized nursing care plans as a teaching tool. The survey was conducted in medical and surgical wards used for nurse training, in two hospitals. In common with many hospitals, the introduction of th...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.1988.tb01400.x
更新日期:1988-01-01 00:00:00
abstract:AIMS:To develop a theoretically and psychometrically sound instrument to measure the 'dose' of person-centred care practice in long-term care. BACKGROUND:Although person-centred care has been adopted for long-term care across the world, there is a lack of theory-based instruments to measure its impact. Two questionnai...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/jan.14392
更新日期:2020-07-01 00:00:00
abstract:AIM:The aim of this paper is to discuss six issues influencing the introduction of advanced practice nursing (APN) roles: confusion about APN terminology, failure to define clearly the roles and goals, role emphasis on physician replacement/support, underutilization of all APN role domains, failure to address environme...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2004.03234.x
更新日期:2004-12-01 00:00:00
abstract:AIMS:This paper is a report of a descriptive study of Chinese abdominal surgical patients' and nurses' perceptions of discharge information needs. BACKGROUND:Discharge from hospital poses a potential threat to surgical patients' lives because they have to cope in daily life with the consequences of the illness and sur...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1111/j.1365-2648.2010.05528.x
更新日期:2011-05-01 00:00:00
abstract::Although codes of practice for those concerned with the health care of others have always been inherent in the structure of societies, they have been institutionalized within the nursing discipline since the end of the last century. Up until the early 1970s they promulgated subservience to the medical discipline. As a...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,评审
doi:10.1111/j.1365-2648.1996.tb03131.x
更新日期:1996-01-01 00:00:00
abstract::Health and well-being are basic concepts to nursing science and also important to practical nursing care: to provide effective nursing we need to have a good understanding of both health and well-being. Experienced health has been studied quite extensively at the individual level, but the family's point of view has be...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.1996.21810.x
更新日期:1996-09-01 00:00:00
abstract:AIM:To describe the proposed Culturally Competent Community Care (CCCC) model, and the process of development and testing of the model. BACKGROUND:Community health nurses are challenged to provide culturally competent care in all types of communities. However, existing models have not provided community nurses with sp...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.2001.01929.x
更新日期:2001-09-01 00:00:00
abstract:AIMS:To provide a comprehensive collection of evidence on the effectiveness of exercise interventions to prevent falls and support clinical decision-making. DESIGN:A systematic literature review and meta-analysis of randomized controlled trails were performed by combining trials from published systematic reviews and m...
journal_title:Journal of advanced nursing
pub_type: 杂志文章,meta分析
doi:10.1111/jan.14238
更新日期:2020-01-01 00:00:00
abstract::There is a dearth of studies on the job satisfaction of community nurses, especially those working with people with a mental handicap, in the United Kingdom. This paper reports on some of the data gathered as part of a survey of community nurses (mental handicap) (CNMH) in Northern Ireland in 1992. A 25-item questionn...
journal_title:Journal of advanced nursing
pub_type: 杂志文章
doi:10.1046/j.1365-2648.1994.20061046.x
更新日期:1994-12-01 00:00:00
abstract::The natural sciences have an influential effect on society, contemporary world-views, and other scientific disciplines. A brief history of the major advances in the natural sciences and the associated philosophies provides a platform for scholarly discourse regarding the subsequent influence on nursing epistemology. T...
journal_title:Journal of advanced nursing
pub_type: 历史文章,杂志文章
doi:10.1046/j.1365-2648.1999.01206.x
更新日期:1999-11-01 00:00:00