Abstract：
AIM:To examine and compare the personal concerns of family members providing care for people with Huntington disease in the United Kingdom and the United States. BACKGROUND:Family carers of people with Huntington disease may feel burdened by caregiving responsibilities and concerned about illness risk for relatives. METHOD:A mailed personal concerns survey was completed by 108 United Kingdom and 119 United States adult family carers of people with Huntington disease in 2006 and 2007. Survey responses included frequency and intensity of concerns, and narrative comments. Data were analysed using descriptive statistics of the products of frequency and intensity of reaction scores to identify a personal concerns index for items with the twelve highest combined scores. Factor analysis identified three factors, which were compared between respondents by factor and items within factors using t tests mean frequency by intensity scores. Narrative comments were thematically analysed. RESULTS:Three main factors were labelled impact of role change, sense of isolation and concerns for children. Within the role change factor, United States family caregivers had significantly higher concerns about family finances and United Kingdom carers expressed significantly greater personal sadness. Both groups expressed concern about isolation from family. Although family carers in both countries expressed concern about their children, those of United States caregivers were significantly higher. CONCLUSION:Further studies are required to identify benefits of support services that are specific to carer concerns and consistent with national healthcare systems.
journal_name
J Adv Nursjournal_title
Journal of advanced nursingauthors
Williams JK,Skirton H,Barnette JJ,Paulsen JSdoi
10.1111/j.1365-2648.2011.05727.xsubject
Has Abstractpub_date
2012-01-01 00:00:00pages
137-46issue
1eissn
0309-2402issn
1365-2648journal_volume
68pub_type
杂志文章abstract：AIMS:The aims of this study were to develop an understanding of the lived experience of the Post Anaesthetic Unit Recovery Nurse facilitating Advanced Directives and implications for patient-centred care. DESIGN:Interpretive phenomenological analysis. METHODS:Homogenized purposive sampling of six Registered Nurses us...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.14357
更新日期：2020-07-01 00:00:00
abstract：:A prospective study designed for 336 hospitalized patients with stroke and their families, who were followed from the discharge day to the third month after being discharged, was carried out in order to compare the costs and effectiveness of home care with the community-based nursing homes for stroke patients with dif...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1997.00410.x
更新日期：1997-11-01 00:00:00
abstract：AIM:This paper is a report of a study to evaluate the impact on office hours capacity, patient satisfaction, quality of life and costs of including a nurse practitioner in a multidisciplinary consultation team for patients with hand problems caused by rheumatoid arthritis. BACKGROUND:Over 90% of patients with rheumato...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2008.04916.x
更新日期：2009-03-01 00:00:00
abstract：AIMS:To analyse the changes in senior students' opinions about the nursing profession over a 10-year period. DESIGN:A descriptive and comparative study. METHOD:Data were collected using a questionnaire form, which was completed by 400 senior high school students in Çankiri city center during 2007-2008 (Group 1) and 2...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.14403
更新日期：2020-04-30 00:00:00
abstract：:Research on cancer prevention among Hispanics and non-Hispanic whites (Anglos) has focused on identifying differential barriers they encounter. Although the information has been helpful in adapting traditional interventions for Hispanic clients, changes have not generally been theory-based. This research explores the ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1994.20050809.x
更新日期：1994-11-01 00:00:00
abstract：AIM:The aim of this study was to test hypotheses associated with a model which explains individuals' readiness in early stages of a change. BACKGROUND:In an effort to improve the quality of nursing care, hospitals in the United States of America seek to obtain Magnet recognition. While it is commonly known that Magnet...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2009.05012.x
更新日期：2009-07-01 00:00:00
abstract：AIM:This article is a report of a study comparing healthcare professionals' and mothers' perceptions of factors that influence the decision to breastfeed or formula feed an infant. BACKGROUND:The World Health Organisation recommends that mothers should breastfeed exclusively for the first 6 months of age and then cont...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2011.05647.x
更新日期：2011-09-01 00:00:00
abstract：:This descriptive study was undertaken to investigate patients' perceptions of the seven content areas commonly included in cardiac teaching in terms of how important and how realistic they were for being learned following the experience of an acute myocardial infarction (MI). Lazarus's stress-coping theory was used as...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1990.tb01705.x
更新日期：1990-10-01 00:00:00
abstract：:Although fatigue has been identified as a major problem for individuals with chronic obstructive pulmonary disease and with asthma, no research was found in which the symptom was directly studied in persons with these conditions. From studies carried out on various patient populations, it appears that fatigue has some...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1999.01102.x
更新日期：1999-08-01 00:00:00
abstract：:Seldom is the work of philosophers invoked by health professionals when examining aspects of care from a philosophical perspective. Instead, students of health care, especially nurses, have been introduced to 'philosophies' which are often superficially examined and poorly understood. This practice fails to develop in...
journal_title：Journal of advanced nursing
pub_type： 传,历史文章,杂志文章
doi：10.1046/j.1365-2648.1998.00637.x
更新日期：1998-08-01 00:00:00
abstract：BACKGROUND:Clinical Nurse Specialists (CNS) play a major role in the delivery of specialist palliative care services to patients with advanced cancer, in hospital, hospice and community settings across the United Kingdom. A major component of their work focuses on the delivery of emotional care and support to patients ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1046/j.1365-2648.2003.02749.x
更新日期：2003-09-01 00:00:00
abstract：AIM:To identify evidence related to association between the nurse work environment and severe maternal morbidity in high-income countries. DESIGN:Quantitative Systematic review. DATA SOURCES:Cumulative Index of Nursing and Allied Health Literature, Cochrane Database of Systematic Reviews, PubMed/Medline, and Scopus w...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/jan.14672
更新日期：2020-11-27 00:00:00
abstract：:Psychomotor skill-learning is a basic aspect of nursing education. Students are expected to perform skills in relation to patient care. How can nursing instructors optimize skill learning and how can they analyse where a student is going wrong? The critical components of the psychomotor-skill learning process are iden...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1980.tb03356.x
更新日期：1980-05-01 00:00:00
abstract：AIM:To report the development and psychometric testing of the Supportive Needs of Adolescents Breastfeeding Scale. BACKGROUND:Nurses worldwide can influence adolescent mothers' decisions to initiate and continue breastfeeding through understanding their social support needs in the early postpartum. Review of the liter...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2012.06119.x
更新日期：2013-03-01 00:00:00
abstract：AIM:This paper is a report of psychometric testing of the Swedish version of the Child Drawing: Hospital Manual. BACKGROUND:Drawings have shown to be useful in assessing emotional status and anxiety in children because they generally speak to us more clearly and openly through their drawings than they are willing or a...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2010.05550.x
更新日期：2011-05-01 00:00:00
abstract：AIM:The aim of this study was to explore the effects of a self-management intervention for middle-aged adults with knee osteoarthritis. BACKGROUND:Knee osteoarthritis is a common cause of lower limb disability in middle-aged and older adults. Use of self-management interventions that apply the self-regulation theory h...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.12956
更新日期：2016-08-01 00:00:00
abstract：:In response to recent national changes in United Kingdom (UK) nurse education (e.g. devolution of assessment, moves to higher education, revision of the aims) and to local concerns (e.g. fairness to students, validity and reliability of written assessments, helping staff with less experience of assessment, student lea...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1998.00690.x
更新日期：1998-08-01 00:00:00
abstract：AIMS:A discussion of partnership in the context of family-centred care in the acute paediatric setting, through a critical analysis of partnership models. BACKGROUND:Paediatric healthcare practitioners understand the importance of family-centred care, but struggle with how to translate the core tenets into action and ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/jan.13178
更新日期：2017-02-01 00:00:00
abstract：:There has been extensive speculation about the lack of research utilization in nursing but little attempt to quantify this phenomenon outside of North America. The current demands for evidence-based practice necessitate research utilization as one element of the process. As part of a larger project, this study aimed t...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.2000.01416.x
更新日期：2000-07-01 00:00:00
abstract：AIM:This paper is a report of a study to evaluate the construct validity of the four-dimensional Caring Nurse-Patient Interaction-Short Scale using confirmatory factor analysis. BACKGROUND:Validating theoretical structures of caring is an ongoing challenge in the discipline of nursing. Our previous work has contribute...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2007.04566.x
更新日期：2008-03-01 00:00:00
abstract：:The purpose of this paper is to increase the awareness of gerontological nurse researchers about methodological, theoretical and ethical issues that are unique and critical to the study of frail elderly people. Discussion focuses on: (a) sampling, recruitment, informed consent and retention of subjects; (b) selection ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1993.18060873.x
更新日期：1993-06-01 00:00:00
abstract：AIM:To evaluate the short-term efficacy of a psychotherapeutic intervention in nursing on Portuguese adult psychiatric outpatients with the nursing diagnosis "anxiety." BACKGROUND:Several efficacious forms of treatment for anxiety are available, including different forms of psychotherapy and pharmacotherapy. However, ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,随机对照试验
doi：10.1111/jan.13520
更新日期：2018-05-01 00:00:00
abstract：:In clinical settings, nurses have observed a conflict within women who are expected to focus on caring for themselves, while their value lies in attending to the needs of others at the sacrifice of self. In this concept analysis of altruism, the term is defined and the critical attributes are identified. Model, border...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1046/j.1365-2648.1995.22040785.x
更新日期：1995-10-01 00:00:00
abstract：AIMS:To provide an overview of the literature focusing on the influence of self-efficacy and self-efficacy enhancing interventions on mobility, activities of daily living, depression and quality of life of patients with stroke. BACKGROUND:There is growing evidence for the importance of self-efficacy in the care of peo...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/j.1365-2648.2011.05659.x
更新日期：2011-09-01 00:00:00
abstract：:Caring as a central concept within nursing has led to the development of several caring theories, the most well known being Madeleine Leininger's Theory of Culture Care and Jean Watson's Theory of Human Caring, both of which were formulated in the 1970s. This paper explores a total of four caring theories: the two est...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1046/j.1365-2648.1999.01214.x
更新日期：1999-12-01 00:00:00
abstract：:The provision of skillful psychosocial care to patients suffering from chronic illnesses starts with an appreciation of what it is like to live with a chronic condition. Definitions of self-esteem may be realigned when patients encounter a prolonged problem, and reliance upon professional help. Getting inside the expe...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1996.02047.x
更新日期：1996-08-01 00:00:00
abstract：AIM:To identify, critically appraise and summarize the measurement properties of instruments to assess self-care in healthy children. BACKGROUND:Assessing self-care is a proper consideration for nursing practice and nursing research. No systematic review summarizes instruments of measurement validated in healthy child...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/jan.13360
更新日期：2017-12-01 00:00:00
abstract：AIMS:To integrate existing theoretical perspectives on change management, subjective fit and occupational stress to better understand the effects of change on employee adjustment. BACKGROUND:Although subjective fit with organizational goals and objectives has been shown to have positive effects on employee adjustment,...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.12198
更新日期：2013-12-01 00:00:00
abstract：:In this paper, the author attempts to describe, through human ecology, the theoretical origins of healthy lifestyles in people of all societies followed by an exploration of how such lifestyles can be replaced by unhealthy ones. He has identified physical and mental injury, disease or illness, as the causes of these u...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1991.tb01658.x
更新日期：1991-03-01 00:00:00
abstract：:Staff nurse involvement in clinical nursing research is dependent on the attitudes nurses hold toward research. An exploration of these attitudes was undertaken in a 464-bed midwestern teaching hospital as it developed its nursing research procedures. A questionnaire was developed which incorporated the Boothe Attitud...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1989.tb01480.x
更新日期：1989-11-01 00:00:00
