Personalized assent for pediatric biobanks.

abstract：BACKGROUND:Plagiarism is considered as serious research misconduct, together with data fabrication and falsification. However, little is known about biomedical researchers' views on plagiarism. Moreover, it has been argued - based on limited empirical evidence - that perceptions of plagiarism depend on cultural and oth...

journal_title：BMC medical ethics

authors： Yi N,Nemery B,Dierickx K

更新日期：2020-06-01 00:00:00

abstract：BACKGROUND:In most socialised health systems there are formal processes that manage resource scarcity and determine the allocation of funds to health services in accordance with their priority. In this analysis, part of a larger qualitative study examining the ethical issues entailed in doctors' participation as techni...

journal_title：BMC medical ethics

authors： Gallagher S,Little M,Hooker C

更新日期：2018-07-24 00:00:00

abstract：BACKGROUND:Community engagement (CE) models have provided much needed guidance for researchers to conceptualise and design engagement strategies for research projects. Most of the published strategies, however, still show very limited contribution of the community to the engagement process. One way of achieving this is...

journal_title：BMC medical ethics

authors： Musesengwa R,Chimbari MJ

更新日期：2017-12-13 00:00:00

abstract：BACKGROUND:Various forms of Clinical Ethics Support (CES) have been developed in health care organizations. Over the past years, increasing attention has been paid to the question of how to foster the quality of ethics support. In the Netherlands, a CES quality assessment project based on a responsive evaluation design...

journal_title：BMC medical ethics

authors： Van Baarle EM,Potma MC,van Hoek MEC,Hartman LA,Molewijk BAC,van Gurp JLP

更新日期：2019-11-01 00:00:00

abstract：BACKGROUND:Moral Case Deliberations (MCDs) are reflective dialogues with a group of participants on their own moral dilemmas. Although MCD is successful as clinical ethics support (CES), it also has limitations. 1. Lessons learned from individual MCDs are not shared in order to be used in other contexts 2. Moral learni...

journal_title：BMC medical ethics

authors： Hartman LA,Metselaar S,Molewijk AC,Edelbroek HM,Widdershoven GAM

更新日期：2018-12-22 00:00:00

abstract：BACKGROUND:Biomarker research is gaining increasing attention focusing on the preclinical stages of the disease. Such interest requires special attention for communication and disclosure in clinical contexts. Many countries give dementia a high health policy priority by developing national strategies and by improving g...

journal_title：BMC medical ethics

authors： Alpinar-Sencan Z,Schicktanz S

更新日期：2020-05-11 00:00:00

abstract：BACKGROUND:This paper explores ethical concerns arising in healthcare integration. We argue that integration is necessary imperative for meeting contemporary and future healthcare challenges, a far stronger evidence base for the conditions of its effectiveness is required. In particular, given the increasing emphasis a...

journal_title：BMC medical ethics

authors： McKeown A,Cliffe C,Arora A,Griffin A

更新日期：2019-07-03 00:00:00

abstract：BACKGROUND:The use of tissue collected at a forensic post-mortem for forensic genetics research purposes remains of ethical concern as the process involves obtaining informed consent from grieving family members. Two forensic genetics research studies using tissue collected from a forensic post-mortem were recently ini...

journal_title：BMC medical ethics

authors： Heathfield LJ,Maistry S,Martin LJ,Ramesar R,de Vries J

更新日期：2017-11-29 00:00:00

abstract：BACKGROUND:Animal models of human diseases are often used in biomedical research in place of human subjects. However, results obtained by animal models may fail to hold true for humans. One way of addressing this problem is to make animal models more similar to humans by placing human tissue into animal models, renderi...

journal_title：BMC medical ethics

authors： Porsdam Mann S,Sun R,Hermerén G

更新日期：2019-01-25 00:00:00

abstract：BACKGROUND:Institutional review boards (IRBs) distinguish health care quality improvement (QI) and health care quality improvement research (QIR) based primarily on the rigor of the methods used and the purported generalizability of the knowledge gained. Neither of these criteria holds up upon scrutiny. Rather, this ap...

journal_title：BMC medical ethics

authors： Fiscella K,Tobin JN,Carroll JK,He H,Ogedegbe G

更新日期：2015-09-17 00:00:00

abstract：BACKGROUND:Family members are often required to act as substitute decision-makers when health care or research participation decisions must be made for an incapacitated relative. Yet most families are unable to accurately predict older adult preferences regarding future health care and willingness to engage in research...

journal_title：BMC medical ethics

authors： Bravo G,Arcand M,Blanchette D,Boire-Lavigne AM,Dubois MF,Guay M,Hottin P,Lane J,Lauzon J,Bellemare S

更新日期：2012-01-05 00:00:00

abstract：BACKGROUND:HIV prevention research in resource-limited countries is associated with a variety of ethical dilemmas. Key amongst these is the question of what constitutes an appropriate standard of health care (SoC) for participants in HIV prevention trials. This paper describes a community-focused approach to develop a ...

journal_title：BMC medical ethics

authors： Vallely A,Shagi C,Lees S,Shapiro K,Masanja J,Nikolau L,Kazimoto J,Soteli S,Moffat C,Changalucha J,McCormack S,Hayes RJ

更新日期：2009-10-09 00:00:00

abstract：BACKGROUND:In studies publishing identifying personal information, obtaining consent is regarded as necessary, as it is impossible to ensure complete anonymity. However, current journal practices around specific points to consider when obtaining consent, the contents of consent forms and how consent forms are managed h...

journal_title：BMC medical ethics

authors： Yoshida A,Dowa Y,Murakami H,Kosugi S

更新日期：2013-11-25 00:00:00

abstract：BACKGROUND:Several charters of rights have been issued in Europe to solemnly proclaim the rights of children during their hospital stay. However, notwithstanding such general declarations, the actual implementation of hospitalized children's rights is unclear. The purpose of this study was to understand to which extent...

journal_title：BMC medical ethics

authors： Bisogni S,Aringhieri C,McGreevy K,Olivini N,Lopez JR,Ciofi D,Merlo AM,Mariotti P,Festini F

更新日期：2015-05-13 00:00:00

abstract：BACKGROUND:In most Anglophone nations, policy and law increasingly foster an autonomy-based model, raising issues for large numbers of people who fail to fit the paradigm, and indicating problems in translating practical and theoretical understandings of 'good death' to policy. Three exemplar populations are frail olde...

journal_title：BMC medical ethics

authors： Birchley G,Jones K,Huxtable R,Dixon J,Kitzinger J,Clare L

更新日期：2016-07-27 00:00:00

abstract：BACKGROUND:Respect for confidentiality is important to safeguard the well-being of patients and ensure the confidence of society in the doctor-patient relationship. The aim of our study is to examine real situations in which there has been a breach of confidentiality, by means of direct observation in clinical practice...

journal_title：BMC medical ethics

authors： Beltran-Aroca CM,Girela-Lopez E,Collazo-Chao E,Montero-Pérez-Barquero M,Muñoz-Villanueva MC

更新日期：2016-09-02 00:00:00

abstract：BACKGROUND:The individual informed consent model remains critical to the ethical conduct and regulation of research involving human beings. Parental informed consent process in a rural setting of northern Ghana was studied to describe comprehension and retention among parents as part of the evaluation of the existing i...

journal_title：BMC medical ethics

authors： Oduro AR,Aborigo RA,Amugsi D,Anto F,Anyorigiya T,Atuguba F,Hodgson A,Koram KA

更新日期：2008-06-19 00:00:00

abstract：BACKGROUND:Social media and Internet technologies present several emerging and ill-explored issues for a modern healthcare workforce. One issue is patient-targeted Googling (PTG), which involves a healthcare professional using a social networking site (SNS) or publicly available search engine to find patient informatio...

journal_title：BMC medical ethics

authors： Chester AN,Walthert SE,Gallagher SJ,Anderson LC,Stitely ML

更新日期：2017-12-04 00:00:00

abstract：BACKGROUND:Despite the growing recognition for the need to improve the health of prisoners in Canada and the need for health research, there has been little discussion of the ethical issues with regards to health research with prisoners in Canada. The purpose of this paper is to encourage a national conversation about ...

journal_title：BMC medical ethics

authors： Silva DS,Matheson FI,Lavery JV

更新日期：2017-04-27 00:00:00

abstract：BACKGROUND:Researchers are required to seek consent from Indigenous communities prior to conducting research but there is inadequate information about how Indigenous people understand and become fully engaged with this consent process. Few studies evaluate the preference or understanding of the consent process for rese...

journal_title：BMC medical ethics

authors： Fitzpatrick EFM,Macdonald G,Martiniuk ALC,D'Antoine H,Oscar J,Carter M,Lawford T,Elliott EJ

更新日期：2017-05-11 00:00:00

abstract：BACKGROUND:It is widely acknowledged that there is a global divide on health care and health research known as the 10/90 divide. METHODS:A retrospective survey of articles published in the BMJ, Lancet, NEJM, Annals of Internal Medicine & JAMA in a calendar year to examine the contribution of the developing world to me...

journal_title：BMC medical ethics

authors： Sumathipala A,Siribaddana S,Patel V

更新日期：2004-10-04 00:00:00

abstract：BACKGROUND:Ethics committees typically apply the common principles of autonomy, nonmaleficence, beneficence and justice to research proposals but with variable weighting and interpretation. This paper reports a comparison of ethical requirements in an international cross-cultural study and discusses their implications....

journal_title：BMC medical ethics

authors： Goodyear-Smith F,Lobb B,Davies G,Nachson I,Seelau SM

更新日期：2002-04-19 00:00:00

abstract：BACKGROUND:The progress of electronic health technologies and biobanks holds enormous promise for efficient research. Evidence shows that studies based on sharing and secondary use of data/samples have the potential to significantly advance medical knowledge. However, sharing of such resources for international collabo...

journal_title：BMC medical ethics

authors： Bernasconi L,Şen S,Angerame L,Balyegisawa AP,Hong Yew Hui D,Hotter M,Hsu CY,Ito T,Jörger F,Krassnitzer W,Phillips AT,Li R,Stockley L,Tay F,von Heijne Widlund C,Wan M,Wong C,Yau H,Hiemstra TF,Uresin Y,Senti G

更新日期：2020-01-21 00:00:00

abstract：BACKGROUND:Efforts to improve patients' understanding of their own medical treatments or research in which they are involved are progressing, especially with regard to informed consent procedures. We aimed to design a multisource informed consent procedure that is easily adaptable to both clinical and research applicat...

journal_title：BMC medical ethics

authors： Cervo S,Rovina J,Talamini R,Perin T,Canzonieri V,De Paoli P,Steffan A

更新日期：2013-07-30 00:00:00

abstract：BACKGROUND:Large-scale linkage of international clinical datasets could lead to unique insights into disease aetiology and facilitate treatment evaluation and drug development. Hereto, multi-stakeholder consortia are currently designing several disease-specific translational research platforms to enable international h...

journal_title：BMC medical ethics

authors： Kalkman S,Mostert M,Gerlinger C,van Delden JJM,van Thiel GJMW

更新日期：2019-03-28 00:00:00

abstract：BACKGROUND:Clinical Ethics Committees (CECs) are well established at healthcare institutions in resource-rich countries. However, there is limited information on established CECs in resource poor countries, especially in Africa. This study aimed to establish baseline data regarding existing formal CECs in Africa to rai...

journal_title：BMC medical ethics

authors： Moodley K,Kabanda SM,Soldaat L,Kleinsmidt A,Obasa AE,Kling S

更新日期：2020-11-18 00:00:00

abstract：BACKGROUND:Professional guidelines have addressed ethical dilemmas posed by a few types of nontraditional procreative arrangements (e.g., gamete donations between family members), but many questions arise regarding how providers view and make decisions about these and other such arrangements. METHODS:Thirty-seven ART ...

journal_title：BMC medical ethics

authors： Klitzman R

更新日期：2017-02-28 00:00:00

abstract：BACKGROUND:How should clinical ethics support services such as clinical ethics committees (CECs) be implemented and evaluated? We argue that both the CEC itself and the implementation of the CEC should be considered as 'complex interventions'. MAIN TEXT:We present a research project involving the implementation of CEC...

journal_title：BMC medical ethics

authors： Magelssen M,Karlsen H,Pedersen R,Thoresen L

更新日期：2020-09-01 00:00:00

abstract：BACKGROUND:When a new intervention or drug is developed, this has to pass through various phases of clinical testing before it achieves market approval, which can take many years. This raises an issue for drugs which could benefit terminally ill patients. These patients might set their hopes on the experimental drug bu...

journal_title：BMC medical ethics

authors： Raus K

更新日期：2016-10-18 00:00:00

abstract：BACKGROUND:The ethical principle of justice demands that resources be distributed equally and based on evidence. Guidelines regarding forgoing of CPR are unavailable and there is large variance in the reported rates of attempted CPR in in-hospital cardiac arrest. The main objective of this work was to study whether loc...

journal_title：BMC medical ethics

authors： Ozer J,Alon G,Leykin D,Varon J,Aharonson-Daniel L,Einav S

更新日期：2019-12-26 00:00:00