Abstract：
OBJECTIVE:A pilot study to determine whether prenatal and neonatal sickle cell tests conform to the guidelines established by the American Congress of Obstetricians and Gynecologists and the American Academy of Pediatrics. METHODS:The project was initially structured as a pair of in-person interviews of postpartum women at the University of Chicago, the first collecting medical information and the second surveying the ethical, social, and legal implications (ELSI) of sickle cell trait (SCT). Due to inadequate enrollment, we elected to focus only on the second survey. Descriptive statistics and bivariate analyses were performed. RESULTS:A convenience sample was established from 205 women who had completed surveys of whom 12 (6%) received no prenatal care. Of the 60 women who completed both surveys, 15 (25%) were unsure of their hemoglobinopathy status. Of the 50 results we could verify, 2 women (4%) incorrectly recalled their hemoglobinopathy status. Of the 193 women who received prenatal care and completed the ELSI survey, 47 knew their hemoglobinopathy status from a previous pregnancy and 1 had sickle cell disease. Of the remaining 145 women, 53 (37%) recalled hemoglobinopathy testing during this pregnancy and 44 (30%) were unsure. Only 56 (39%) recalled being told they could refuse testing. Of the 115 women whose infants had newborn screening done prior to the interview, only 51 (44%) recalled discussions with a pediatric provider. CONCLUSION:Despite professional guidelines that stress the importance of education, counseling, and consent for prenatal and neonatal testing, postpartum women do not recall these conversations.
journal_name
J Natl Med Assocjournal_title
Journal of the National Medical Associationauthors
Kusyk D,Acharya K,Garvey K,Ross LFdoi
10.1016/s0027-9684(15)30089-4subject
Has Abstractpub_date
2013-04-01 00:00:00pages
85-91issue
1eissn
0027-9684issn
1943-4693pii
S0027-9684(15)30089-4journal_volume
105pub_type
杂志文章,多中心研究abstract：:Patient navigation has been widely implemented by cancer care programs across the United States. While activities of navigators have been described elsewhere, little has been documented regarding specific strategies used or challenges experienced by navigators from their own perspectives. We describe the experience of...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：10.1016/s0027-9684(15)30412-0
更新日期：2011-08-01 00:00:00
abstract：:THIS RESEARCH EXAMINES THE KINDS OF PROBLEMS THESE YOUNG FATHERS ARE LIKELY TO SEEK HELP FOR AND ADDRESSES ITSELF TO THE QUESTION: Is there a difference in the help-seeking behavior of unwed adolescent fathers who reside in different cities? Despite the complexity and diversity of their difficulties, it was clear from...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1981-09-01 00:00:00
abstract：:The task of developing a body of knowledge about specific problems, both intrapsychic and psychosocial, which influence a black executive's maturation, must be initiated. There is currently a definite interest, among black executives, in obtaining access to appropriate psychotherapeutic intervention. A psychobiographi...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1982-03-01 00:00:00
abstract：BACKGROUND:Self-monitoring of blood glucose (SMBG) is considered to be 1 of the cornerstones of diabetes self-management. It is unclear whether inadequate health literacy affects SMBG. OBJECTIVE:The objective of this study was to examine the relationship between health literacy and SMBG. METHODS:This was a cross-sect...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：10.1016/s0027-9684(15)30469-7
更新日期：2010-01-01 00:00:00
abstract：:The authors present a case report of a sickle cell patient with end-stage renal disease treated with peritoneal dialysis who presented with abdominal pain. Although the pain was not unlike that typically associated with his crises, the absence of characteristic joint and chest pain made the diagnosis of "crisis" unlik...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章,评审
doi：
更新日期：1989-10-01 00:00:00
abstract：:The purpose of this study is to examine intercategory agreement among the symptom clusters associated with diagnoses of affective disorder, schizoaffective disorder, and schizophrenia in 156 African-American patients. It is hypothesized that there will be greater agreement between diagnosed schizoaffective disorder an...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：2002-05-01 00:00:00
abstract：PURPOSE:Prostate cancer provides the most dramatic evidence of cancer disparities based on race and ethnicity among U.S. men. African-American men still hold a commanding lead in both prostate cancer incidence and mortality, particularly among those of low socioeconomic status (SES) and the medically underserved. There...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：2004-10-01 00:00:00
abstract：:This is a 2-year follow-up to a previously reported baseline paper. We focused on a predominantly low-income African-American population from a community health center and investigated the relationships among perceptions of perceived risks for colorectal cancer (CRC), concerns about getting CRC, screening intentions, ...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：2000-10-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1981-09-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章,评审
doi：10.1016/s0027-9684(15)31030-0
更新日期：2009-09-01 00:00:00
abstract：:Increasing attention has been given to the investigation of cardiovascular disease in women, although African-American women have received little attention. This study compares characteristics and outcomes in women admitted to coronary care units for suspected acute myocardial infarction (MI). Between January 1988 and...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1995-05-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：10.1016/s0027-9684(15)30774-4
更新日期：2010-12-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1995-12-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1987-11-01 00:00:00
abstract：:All patients presenting with ocular trauma to the emergency room of a large inner-city hospital during a 2-month period were prospectively examined and interviewed. Of 3,627 trauma visits, ocular trauma accounted for 126 (3%). There were 514 trauma admissions; 26 (5%) of these were for ocular trauma. Bilateral injurie...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1991-08-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：10.1016/s0027-9684(15)31294-3
更新日期：2008-05-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章,评审
doi：
更新日期：1999-08-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1982-08-01 00:00:00
abstract：:Major trauma is a preventable entity. Illustrations are used to discuss the differences between major trauma centers. Requirements for a trauma center are enumerated and the impact of residency training programs is discussed relative to trauma care. The development of trauma centers is examined and reference is made t...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1981-01-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1984-04-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1988-07-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1990-02-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：10.1016/j.jnma.2017.06.017
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章,评审
doi：
更新日期：2006-12-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1978-04-01 00:00:00
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journal_title：Journal of the National Medical Association
pub_type： 杂志文章,评审
doi：
更新日期：1996-09-01 00:00:00
abstract：:Despite pernicious racism, most black health professionals achieve professional success and most have stable marriages. A 19-item questionnaire was designed to assess this hypothesis following a lecture on the strengths and weaknesses of black health professional families to physicians, dentists, and their spouses (n ...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1992-01-01 00:00:00
abstract：:The provision of quality out-patient psychiatric care to a predominately black inner-city population, in a University setting such as ours, is a complex and challenging task. This paper addresses service and teaching issues related to the provision of that care in the Adult Unit of the Howard University Hospital Menta...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：
更新日期：1978-04-01 00:00:00
abstract：OBJECTIVE:Breast cancer mortality has declined, yet disease outcomes have not improved equally across populations. Disparities may initiate early in the continuum of care, in health behavior patterns, and screening practices. We examined variations in mammography, exercise, fruit and vegetable intake, alcohol consumpti...
journal_title：Journal of the National Medical Association
pub_type： 杂志文章
doi：10.1016/s0027-9684(15)30937-8
更新日期：2009-06-01 00:00:00
abstract：BACKGROUND:Many Native American tribes use acanthosis nigricans to screen for type 2 diabetes risk. We hypothesized that acanthosis nigricans misses many children at risk for type 2 diabetes. METHODS:We evaluated 5- to 18-year-old Native American children and youth to assess the sensitivity and specificity of acanthos...
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pub_type： 杂志文章
doi：10.1016/s0027-9684(15)30714-8
更新日期：2010-10-01 00:00:00
