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Perceived unmet needs of informal caregivers of people with dementia in Singapore.

Abstract：

BACKGROUND:This study aimed to explore the experiences and challenges of informal caregivers in Singapore with the intent of identifying the multi-dimensional unmet needs from their perspective and generating caregivers' needs checklist based on the findings. METHODS:Informal caregivers were relatives of people with dementia and were responsible for organizing care and providing regular physical and/or financial support. Using a qualitative research design, informal caregivers' experiences were explored. A total of ten focus group discussions and 12 semi-structured interviews were conducted with adult caregivers. Caregivers' perceived unmet needs were identified using thematic analysis. Findings from the qualitative study were combined with inputs from professionals to create a checklist of caregivers' needs for dementia. RESULTS:The average age of the participants was 52.9 years; the majority of the participants were of Chinese ethnicity (50%), followed by Indian (23%), Malay (22%), and other (3%) ethnic groups. Informal caregivers perceived four categories of unmet needs: (i) emotional and social support, (ii) information, (iii) financial support, and (iv) accessible and appropriate facilities. Caregivers strongly expressed the need for emotional support to overcome the psychological and physical burden of care. Challenges with obtaining adequate information, access to services, and financial barriers were discussed. Based on these findings and expert panel discussions, a checklist of 26 items representing their unmet needs was designed. CONCLUSIONS:Informal caregivers face several challenges while caring for their relative with dementia and hence there is a clear demand to address their unmet needs for information, services, respite, and emotional and financial support.

journal_name

Int Psychogeriatr

journal_title

International psychogeriatrics

authors

Vaingankar JA,Subramaniam M,Picco L,Eng GK,Shafie S,Sambasivam R,Zhang YJ,Sagayadevan V,Chong SA

doi

10.1017/S1041610213001051

subject

Has Abstract

pub_date

2013-10-01 00:00:00

pages

1605-19

issue

eissn

1041-6102

issn

1741-203X

pii

S1041610213001051

journal_volume

pub_type

杂志文章

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Perceived unmet needs of informal caregivers of people with dementia in Singapore.