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Factors influencing work retention for people with multiple sclerosis: cross-sectional studies using qualitative and quantitative methods.

Abstract：

OBJECTIVE:To identify factors that impact on the ability of patients with multiple sclerosis (MS) to remain in work in order to make recommendations for future clinical management. METHODS:Cross-sectional studies using qualitative (phase one) and quantitative (phase two) methods. In phase one, 62 patients were interviewed and completed an exploratory questionnaire regarding the impact of MS on employment. In phase two, 100 patients attending an MS outpatient clinic completed an impact on work questionnaire, the self-report Barthel index, and the General Health Questionnaire (GHQ-28). RESULTS:In phase one, 17 areas were identified as impacting on MS patients' ability to remain in work, either relating to MS or environment. In phase two, both MS related factors and environmental factors were reported to have a major impact on ability to work. Only 20% of patients had received any advice about work retention. Unemployed patients (N = 64) had greater disability than employed patients on the Barthel index (difference 5.1; p < 0.001), but similar psychological wellbeing on the GHQ-28. CONCLUSION:The issues that prevent people with MS from working tend to be disease-related, as well as work-related. Many patients are isolated, as they are unaware of sources of help. Effective management by healthcare professionals has a potentially important role in helping people with multiple sclerosis to remain employed.

journal_name

J Neurol

journal_title

Journal of neurology

authors

O'Connor RJ,Cano SJ,Ramió i Torrentà L,Thompson AJ,Playford ED

doi

10.1007/s00415-005-0765-4

keywords:

subject

Has Abstract

pub_date

2005-08-01 00:00:00

pages

892-6

issue

8

eissn

0340-5354

issn

1432-1459

journal_volume

252

pub_type

杂志文章

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