Optimizing Surgical Treatment of Internationally Adopted Children With Cleft Lip and/or Palate: Understanding the Family Experience.

Abstract:

OBJECTIVE:To understand the experience of families with children undergoing cleft surgery following adoption from a country outside the United States. To identify factors, including the timing of surgery, that influence family function throughout the surgical experience. DESIGN:Semistructured qualitative interviews were conducted with parents of internationally adopted children postrepair of cleft lip and/or cleft palate and coded by a multidisciplinary study team. Mixed methods were used to contextualize themes derived from the parent interviews. RESULTS:Twenty parent interviews were conducted, and four core themes were identified: (1) parental anxieties prior to surgery, (2) considerations for the timing of surgery, (3) impact of the surgical experience on the child and family, and (4) modifiable sociocontextual factors. Parents considered a strong child bond with at least one parent and the ability of the child to communicate basic needs to be important before undergoing surgery. In retrospect, parents generally felt that the surgical experience did not have a negative impact on their child or their families and that the surgical experience may have even facilitated bonding and attachment with their child. Acceleration of family bonding was expressed more often by parents of children who were adopted at older than 2 years. CONCLUSIONS:In our study, parents reported that cleft surgery soon after international adoption did not appear to impair child bonding or adjustment. Specific family and provider factors that could optimize the experience for families were identified.

authors

Shipe ME,Edwards TC,Evans KN,Schook CC,Leavitt D,Peter A,Saltzman BS,Davies JK,Tse R

doi

10.1597/14-260

subject

Has Abstract

pub_date

2016-07-01 00:00:00

pages

444-52

issue

4

eissn

1055-6656

issn

1545-1569

journal_volume

53

pub_type

杂志文章
  • Adherence to Orthodontic Treatment in Youth With Craniofacial Conditions: A Survey of US Orthodontists.

    abstract:OBJECTIVE:(1) To explore orthodontists' perceptions of nonadherence and related factors in their patients with craniofacial conditions; (2) to examine differences in adherence perceptions by provider characteristics; (3) to evaluate current adherence interventions. DESIGN:Cross-sectional. SETTING:United States-based ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665619853132

    authors: Crerand CE,Kapa HM,Litteral J,Da Silveira AC,Markey MK

    更新日期:2019-11-01 00:00:00

  • Le Fort III rigid external distraction complicated by intracranial movement of halo fixation pins.

    abstract::Midface hypoplasia in a 5-year-old boy with Crouzon syndrome was treated using a rigid external distraction device. Seven months prior to this surgery, a bone allograft was used during frontal-orbital bar advancement. Three weeks after the Le Fort III distraction a depression fracture was diagnosed, associated with an...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/07-021.1

    authors: Breugem CC,Bush K,Fitzpatrick DF

    更新日期:2008-05-01 00:00:00

  • Maxillary growth following atelocollagen implantation on mucoperiosteal denudation of the palatal process in young rabbits: implications for clinical cleft palate repair.

    abstract:OBJECTIVE:The implantation of atelocollagen matrix on the denuded surface of palatal bone following cleft palate repair has been used because it enhances wound healing. This study was performed to determine whether the beneficial effect of atelocollagen matrix implantation on the prevention of scar tissue contraction a...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1997_034_0297_mgfaio_2.3.co_2

    authors: Fujioka M,Fujii T

    更新日期:1997-07-01 00:00:00

  • Assessment of Bioabsorbable Hydroxyapatite for Secondary Bone Grafting in Unilateral Alveolar Clefts.

    abstract:PURPOSE:To evaluate the utility and efficacy of bioabsorbable hydroxyapatite and collagen complex (HA/Col) for secondary bone grafting in unilateral alveolar clefts. PATIENTS AND METHODS:Between 2015 and 2016, 21 patients with unilateral cleft lips and alveolar clefts were enrolled. In group I, a cancellous iliac bone...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665619866372

    authors: Sakamoto Y,Sakamoto T,Ishii T,Kishi K

    更新日期:2020-01-01 00:00:00

  • Microbial Profile and Dental Caries in Cleft Lip and Palate Babies Between 0 and 3 Years Old.

    abstract:OBJECTIVE:The aim of this study was to examine the microbiological changes in newborn babies with cleft lip palate from birth up to age 3 and to correlate them with their caries levels and mothers' microbiological data and to compare with normal infants. BASIC RESEARCH DESIGN:Prospective. SETTINGS:Marmara University,...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665618776428

    authors: Durhan MA,Topcuoglu N,Kulekci G,Ozgentas E,Tanboga I

    更新日期:2019-03-01 00:00:00

  • Magnetic resonance angioplasty for prepharyngoplasty assessment in velocardiofacial syndrome.

    abstract:OBJECTIVE:The assessment of the posterior pharyngeal vasculature in velocardiofacial syndrome has been traditionally based on endoscopic visualization of pulsations or conventional angiography. This case report describes the utility of presurgical imaging with magnetic resonance angiography (MRA) prior to performing ph...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1997_034_0266_mrafpa_2.3.co_2

    authors: Krugman ME,Brant-Zawadski M

    更新日期:1997-05-01 00:00:00

  • Nasalance-Based Preclassification of Oral-Nasal Balance Disorders Results in Higher Agreement of Expert Listeners' Auditory-Perceptual Assessments: Results of a Retrospective Listening Study.

    abstract:OBJECTIVE:Reliable perceptual and instrumental assessment of oral-nasal balance disorders is a persistent problem in speech-language pathology. The goal of the study was to evaluate whether nasalance-based preclassification of oral-nasal balance disorders improves listener agreement. DESIGN:Retrospective listening stu...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665619873506

    authors: de Boer G,Marino VCC,Dutka JCR,Pegoraro-Krook MI,Bressmann T

    更新日期:2020-04-01 00:00:00

  • A case of ring chromosome 18 syndrome treated with a combined orthodontic-prosthodontic approach.

    abstract:OBJECTIVE:The aim of this study was to report the case of a Japanese subject with ring chromosome 18 syndrome. A cephalometric analysis was performed, and the treatment procedure is described. DESIGN:Lateral and posteroanterior cephalograms were compared with Japanese norms. Dental anomalies were evaluated by a model ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/08-262_1

    authors: Ono T,Okuma M,Hamada T,Motohashi N,Moriyama K

    更新日期:2010-03-01 00:00:00

  • Blepharo-cheilo-dontic (BCD) syndrome: case report.

    abstract:OBJECTIVE:To report a case of blepharo-cheilo-dontic (BCD) syndrome, to compare with the previous cases, and to discuss the possible treatment. PATIENT:The patient was a 14-day-old boy born uneventfully on August 7, 2002. His scalp hair was sparse and curly. A tumor on the top of his head, which was thought to be a de...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/04-200.1

    authors: Iida A,Narai S,Takagi R,Ono K,Ikeda N

    更新日期:2006-03-01 00:00:00

  • The Buccinator Mucomuscular Flap: An In-Depth Analysis and Evaluation of Its Role in the Management of Velopharyngeal Dysfunction.

    abstract:BACKGROUND:A significant proportion of patients with cleft palate experience persisting velopharyngeal dysfunction (VPD) after primary surgery. Pharyngoplasty is the most common procedure to correct inadequate velopharyngeal closure. Although it is often effective, it poses a risk for postoperative airway obstruction. ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/14-283

    authors: Ahl R,Harding-Bell A,Wharton L,Jordan A,Hall P

    更新日期:2016-09-01 00:00:00

  • Craniofacial anthropometry in a Turkish population.

    abstract:OBJECTIVE:To present norms and demonstrate the anthropometric variations in fronto-occipital circumference, inner and outer canthal distances, near and distant [far] anatomical interpupillary distance, canthal index, and circumference-interorbital index across age and sex in urban Turkish subjects. PARTICIPANTS:Three ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_2002_039_0208_caiatp_2.0.co_2

    authors: Evereklioglu C,Doganay S,Er H,Gunduz A,Tercan M,Balat A,Cumurcu T

    更新日期:2002-03-01 00:00:00

  • Maxillary dental arch affected by different sleep positions in unilateral complete cleft lip and palate infants.

    abstract::The development of the dental arch is well designed for adaptive and compensatory growth. In this study, the relationship between the sleep position and dental arch development was investigated. A group of 42 infants with unilateral complete cleft lip and palate with either prone (16) or supine (26) sleep position wer...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1994_031_0179_mdaabd_2.3.co_2

    authors: Huang CS,Cheng HC,Chen YR,Noordhoff MS

    更新日期:1994-05-01 00:00:00

  • The Tessier number 5 facial cleft: surgical strategies and outcomes in six patients.

    abstract::The Tessier no. 5 facial cleft is an extremely rare congenital malformation. Only 26 cases have been described in the English-language literature. The cleft begins in the upper lip just medial to the oral commissure, extending across the cheek as a groove ending at the junction of the middle and lateral thirds of the ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/07-192.1

    authors: da Silva Freitas R,Alonso N,Shin JH,Busato L,Dall'Oglio Tolazzi AR,de Oliveria e Cruz GA

    更新日期:2009-03-01 00:00:00

  • Family-based association study of the MTHFR polymorphism C677T in patients with nonsyndromic cleft lip and palate from central Europe.

    abstract:OBJECTIVE:The 677C-->T allele in the 5,10-methylenetetrahydrofolate reductase (MTHFR) gene has been implicated in the etiology of nonsyndromic cleft lip and palate (CL/P). This study involved a family-based association study of the MTHFR polymorphism. PATIENTS/PARTICIPANTS:We examined 181 patients with CL/P of central...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/06-174

    authors: Reutter H,Birnbaum S,Lacava AD,Mende M,Henschke H,Bergé S,Braumann B,Lauster C,Schiefke F,Wenghoefer M,Saffar M,Reich R,Scheer M,Kramer FJ,Knapp M,Mangold E

    更新日期:2008-05-01 00:00:00

  • Frontonasal malformation and the oculoauriculovertebral spectrum: the oculoauriculofrontonasal syndrome.

    abstract::Frontonasal malformation (FNM) is a developmental field defect representing abnormal morphogenesis of the frontonasal eminence. The oculoauriculovertebral spectrum (OAVS) has been used to describe a broader range of first and second branchial-arch defects including hemifacial microsomia and Goldenhar's syndrome. A com...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/1545-1569_1996_033_0519_fmatos_2.3.co_2

    authors: Casey HD,Braddock SR,Haskins RC,Carey JC,Morales L Jr

    更新日期:1996-11-01 00:00:00

  • Frequency of Le Fort I osteotomy after repaired cleft lip and palate or cleft palate.

    abstract:OBJECTIVE:Diminished maxillary growth is a consequence of labiopalatal repair, and many patients with cleft lip and palate require Le Fort I advancement. The goal of this study was to determine the frequency of maxillary hypoplasia as measured by need for Le Fort I. SUBJECTS:Retrospective cohort study of males born be...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/06-075.1

    authors: Good PM,Mulliken JB,Padwa BL

    更新日期:2007-07-01 00:00:00

  • Unilateral coronal synostosis: a histomorphometric study.

    abstract:OBJECTIVE:This histomorphometric study compared the open and prematurely fused side of the coronal suture in subjects with unilateral coronal synostosis (UCS). METHODS:Sutures and parasutural bone were obtained from seven subjects with nonsyndromic UCS during operative correction at 3 to 24 months of age. Histological...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/03-012.1

    authors: Vastardis H,Mulliken JB,Glowacki J

    更新日期:2004-07-01 00:00:00

  • Three-Dimensional Computer-Assisted Single-Splint 2-Jaw Cleft Orthognathic Surgery: Toward Patient-Centered Surgical Rationale.

    abstract::Skeletally mature patients with cleft lip and palate commonly present with skeletofacial deformities characterized by varying degrees of intrinsic and acquired dentoskeletal and soft tissue abnormalities. These abnormalities are associated with scarring from previous surgeries and the asymmetric midline and facial con...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665620949113

    authors: Denadai R,Chen YR,Lo LJ

    更新日期:2020-12-01 00:00:00

  • Management of alveolar cleft bone grafting--state of the art.

    abstract::Bone grafting of the alveolus is an essential step in the reconstruction of the orofacial cleft deformity. Secondary grafting with iliac marrow consistently produces trabecular bone to unify the maxilla and provide odontogenic support. It requires preoperative maxillary alignment, well designed mucoperiosteal flaps, a...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/1545-1569_2000_037_0229_moacbg_2.3.co_2

    authors: Eppley BL,Sadove AM

    更新日期:2000-05-01 00:00:00

  • Contraction-induced injury to single permeabilized muscle fibers from normal and congenitally-clefted goat palates.

    abstract:OBJECTIVE:Levator veli palatini muscles from normal palates of adult humans and goats are predominantly slow oxidative (type 1) fibers. However, 85% of levator veli palatini fibers from cleft palates of adult goats are physiologically fast (type 2). This fiber composition difference between cleft and normal palates may...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/06-036.1

    authors: Rader EP,Cederna PS,Weinzweig J,Panter KE,Yu D,Buchman SR,Larkin LM,Faulkner JA

    更新日期:2007-03-01 00:00:00

  • Three-dimensional analysis of facial morphology in normal Japanese children as control data for cleft surgery.

    abstract:OBJECTIVE:This study presents an analysis of three-dimensional facial forms of normal Japanese children. DESIGN AND SETTING:Cross-sectional data (n = 247) were available from the Ikeda Public Health Center. PATIENTS AND PARTICIPANTS:Three groups of children (ninety-seven 4-month-old infants, fifty-four 1.5-year-old c...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_2002_039_0517_tdaofm_2.0.co_2

    authors: Yamada T,Mori Y,Minami K,Mishima K,Tsukamoto Y

    更新日期:2002-09-01 00:00:00

  • The genetic basis of the Pierre Robin Sequence.

    abstract:OBJECTIVE:The Pierre Robin Sequence (PRS) is subgroup of the cleft palate population. As with the etiology of cleft lip or palate, the etiology of PRS is generally unknown. Some factors are suggestive of a genetic basis for PRS. The purpose of this study was to compare genetic information on PRS available in the litera...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/05-008.1

    authors: Jakobsen LP,Knudsen MA,Lespinasse J,García Ayuso C,Ramos C,Fryns JP,Bugge M,Tommerup N

    更新日期:2006-03-01 00:00:00

  • Syndrome delineation involving orofacial clefting.

    abstract::A table comparing the number of syndromes with orofacial clefting for the years 1971, 1978, and 1990 is presented and discussed. Over 300 such disorders are known today. A second table is presented showing the frequency of associated anomalies with orofacial clefting. The wide range of frequencies found in various stu...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/1545-1569_1991_028_0119_sdioc_2.3.co_2

    authors: Cohen MM Jr,Bankier A

    更新日期:1991-01-01 00:00:00

  • Starting a Family: The Experience of Parents With Cleft Lip and/or Palate.

    abstract:BACKGROUND:One of the key challenges facing young adults with cleft lip and/or palate is making decisions about starting a family, because there is an increased likelihood of their own child being diagnosed with cleft lip and/or palate. Should this occur, a second key challenge is how to deal with their child's diagnos...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/13-314

    authors: Stock NM,Rumsey N

    更新日期:2015-07-01 00:00:00

  • Oculoauriculofrontonasal Dysplasia Syndrome With Additional Clinical Features.

    abstract::Oculo-auriculo-vertebral spectrum and frontonasal dysplasia are two well-known examples of dysmorphology syndromes. Oculoauriculofrontonasal syndrome (OAFNS) is a clinical entity involving the characteristics of both OAVS and FND and is thought to be a result of the abnormal development of structures in the first and ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/15-078

    authors: Tunc T,Polat A,Altan B,Yapici AK,Saldir M,Sari S,Sari E,Bayram Y,Eski M

    更新日期:2017-11-01 00:00:00

  • Secondary Dentition Characteristics in Children With Nonsyndromic Unilateral Cleft Lip and Palate: A Retrospective Study.

    abstract:OBJECTIVE:Children with cleft lip and palate are reported to be commonly associated with higher prevalence of dental anomalies such as hypodontia, supernumeraries, and abnormalities in tooth size, shape, and position. This study investigated the prevalence of dental anomalies in a longitudinal cohort of children with u...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665617750489

    authors: Tan ELY,Kuek MC,Wong HC,Ong SAK,Yow M

    更新日期:2018-04-01 00:00:00

  • Simultaneous premaxillary repositioning and cheiloplasty in adult patients with unrepaired bilateral cleft lip and palate.

    abstract::Primary cheiloplasty in adult patients with unrepaired complete bilateral cleft lip and palate is quite challenging due to severe premaxillary anterior projection. To get the best repair results, the author carried out repositioning of the premaxilla and repair of the lip deformity in a single stage. Positive results ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/09-225

    authors: Lee UL,Cho JB,Choung PH

    更新日期:2013-03-01 00:00:00

  • Shprintzen-Goldberg syndrome: case report.

    abstract:OBJECTIVE:The Shprintzen-Goldberg syndrome is an extremely rare syndrome with a characteristic face. This is one of a group of disorders characterized by craniosynostosis and marfanoid features. The aim of this study was to present a new sporadic case of the syndrome and describe in detail the findings at the maxillofa...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_2003_040_0433_sscr_2.0.co_2

    authors: Topouzelis N,Markovitsi E,Antoniades K

    更新日期:2003-07-01 00:00:00

  • Congenital heart disease in a patient with microform cleft lip.

    abstract:OBJECTIVE:Microform cleft lip (MCL), also known as congenital healed cleft lip, is a rare anomaly that is thought to be a spontaneously healed variant of the more common clefting of lip and palate. Although conventional clefting is known to be associated with congenital heart disease (CHD), MCL has not been similarly a...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_2000_037_0596_chdiap_2.0.co_2

    authors: Grech V,Lia A,Mifsud A

    更新日期:2000-11-01 00:00:00

  • Management of Velopharyngeal Insufficiency in Cleft Patients With and Without Multidisciplinary Team Care.

    abstract:OBJECTIVE:To evaluate the effect of an American Cleft Palate-Craniofacial Association (ACPA)-approved multidisciplinary team on velopharyngeal insufficiency (VPI) diagnosis and treatment. DESIGN:Retrospective cohort setting; tertiary children's hospital patients; children with cleft palate repair identified through pr...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665620954063

    authors: Torrecillas V,Pollard SH,McCrary H,Taylor HM,Palmer A,Meier J,Muntz H,Skirko JR

    更新日期:2020-10-05 00:00:00