The CONSORT Patient-Reported Outcome (PRO) extension: implications for clinical trials and practice.

abstract：BACKGROUND:Current evidence supports the use of pedometers as effective motivational tools to promote physical activity and improve health-related quality of life in the general population. The aims of this study are to examine whether a pedometer-driven walking programme can improve health-related quality of life, and...

journal_title：Health and quality of life outcomes

authors： Mansi S,Milosavljevic S,Tumilty S,Hendrick P,Baxter GD

更新日期：2013-11-01 00:00:00

abstract：BACKGROUND:Previous studies in quality of life (QOL) in individuals with disorders/differences of sex development (DSD) have been restricted to subpopulations of the condition. We describe QOL in adult persons with DSD compared to country specific references and assess the impact of diagnosis. METHODS:The multicentre ...

journal_title：Health and quality of life outcomes

authors： Rapp M,Mueller-Godeffroy E,Lee P,Roehle R,Kreukels BPC,Köhler B,Nordenström A,Bouvattier C,Thyen U,dsd-LIFE group.

更新日期：2018-04-03 00:00:00

abstract：BACKGROUND:Studies examining the impact of injury on health-related quality of life (HRQL) over time are necessary to understand the short- and long-term consequences of injury for population health. The aim of this systematic review was to provide an evidence update on studies that have measured HRQL over time in gene...

journal_title：Health and quality of life outcomes

authors： Geraerds AJLM,Richardson A,Haagsma J,Derrett S,Polinder S

更新日期：2020-05-29 00:00:00

abstract：BACKGROUND:Information on the impact of oral health on quality of life of children younger than 8 years is mostly based on parental reports, as methodological and conceptual challenges have hindered the development of relevant validated self-reported measures. This study aimed to develop and assess the reliability and ...

journal_title：Health and quality of life outcomes

authors： Tsakos G,Blair YI,Yusuf H,Wright W,Watt RG,Macpherson LM

更新日期：2012-06-07 00:00:00

abstract：BACKGROUND:Poststroke fatigue is a persistent and distressing symptom among stroke survivors. In this study, we investigated the reliability and validity of a vertical numerical rating scale supplemented with a faces rating scale (NRS-FRS) in measuring poststroke fatigue. METHODS:The fatigue intensity of 106 individua...

journal_title：Health and quality of life outcomes

authors： Chuang LL,Lin KC,Hsu AL,Wu CY,Chang KC,Li YC,Chen YL

更新日期：2015-06-30 00:00:00

abstract：BACKGROUND:The European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30 is a core questionnaire designed to evaluate health-related quality of life (HRQoL) of cancer patients participating in international clinical trials. It is available in several languages including Danish. The EORTC QLQ-TC26 is a ...

journal_title：Health and quality of life outcomes

authors： Bager L,Elsbernd A,Nissen A,Daugaard G,Pappot H

更新日期：2018-06-18 00:00:00

abstract：BACKGROUND:The purpose of this study is to describe Health-Related Quality of Life (HRQoL) of localized prostate cancer patients in an Active Surveillance (AS) program, and to compare them with those undergoing radical prostatectomy (RP), external-beam radiotherapy (XRT) and brachytherapy (BT). METHODS:Multi-instituti...

journal_title：Health and quality of life outcomes

authors： Sureda A,Fumadó L,Ferrer M,Garín O,Bonet X,Castells M,Mir MC,Abascal JM,Vigués F,Cecchini L,Suárez JF

更新日期：2019-01-14 00:00:00

abstract：BACKGROUND:Patient self reported measures for Health Related Quality of Life (HRQOL) and mental distress are frequently used to evaluate outcome of therapeutic strategies in cardiac patients.Our study aims to describe changes in HRQOL and mental distress after percutaneous coronary intervention (PCI) focusing on tempor...

journal_title：Health and quality of life outcomes

authors： Sipötz J,Friedrich O,Höfer S,Benzer W,Chatsakos T,Gaul G,PRODES-Austria Investigators.

更新日期：2013-08-27 00:00:00

abstract：BACKGROUND:Patient-reported measures can be used to examine whether drug differences other than clinical efficacy have an impact on outcomes that may be important to patients. Although exenatide and insulin glargine appear to have similar efficacy for treatment of type 2 diabetes, there are several differences between ...

journal_title：Health and quality of life outcomes

authors： Secnik Boye K,Matza LS,Oglesby A,Malley K,Kim S,Hayes RP,Brodows R

更新日期：2006-10-11 00:00:00

abstract：BACKGROUND:To examine demographic and behavioral associations with self-reported health-related quality of life (HRQOL) among persons with HIV infection or AIDS. METHODS:Analysis of interviews with persons > or = 18 years of age reported through routine disease surveillance with HIV infection or AIDS to nine state and...

journal_title：Health and quality of life outcomes

authors： Campsmith ML,Nakashima AK,Davidson AJ

更新日期：2003-04-24 00:00:00

abstract：BACKGROUND:Previous studies have reported that socioeconomically disadvantaged Australians have poorer self-rated dental health (SRDH), are less likely to be insured for dental services and are less likely to have regular dental visits than their more advantaged counterparts. However, less is known about the associatio...

journal_title：Health and quality of life outcomes

authors： Teusner DN,Anikeeva O,Brennan DS

更新日期：2014-05-09 00:00:00

abstract：BACKGROUND:The Multidimensional Scale of Perceived Social Support (MSPSS) is a short instrument, developed to assess perceived social support. The original English version has been widely used. The original scale has demonstrated satisfactory psychometric properties in different settings, but no validated Swedish versi...

journal_title：Health and quality of life outcomes

authors： Ekbäck M,Benzein E,Lindberg M,Arestedt K

更新日期：2013-10-10 00:00:00

abstract：BACKGROUND:Mobile devices are increasingly being used for data collection in research. However, many researchers do not have experience in collecting data electronically. Hence, the purpose of this short report was to identify issues that emerged in a study that incorporated electronic capture of patient-reported outco...

journal_title：Health and quality of life outcomes

authors： Schick-Makaroff K,Molzahn A

更新日期：2015-01-22 00:00:00

abstract：BACKGROUND:The evolution of technology in healthcare has increased the health care's costs and, the universal healthcare systems, in developed countries, need to ensure proper allocation of resources. Thus, the major issue is assessing the effectiveness of new medical technologies. The evaluation of quality of life in ...

journal_title：Health and quality of life outcomes

authors： Ragusa R,Bertino G,Bruno A,Frazzetto E,Cicciu F,Giorgianni G,Lupo L

更新日期：2018-01-17 00:00:00

abstract：BACKGROUND:Perceived dental health has shown to have a significant predictive effect on overall health perception and life satisfaction. Thus, it seems plausible that Health Related Quality of Life (HRQOL) measures are associated with Oral Health Related Quality of Life (OHRQOL) dimensions in Nepalese context as well. ...

journal_title：Health and quality of life outcomes

authors： Sagtani RA,Thapa S,Sagtani A

更新日期：2020-07-31 00:00:00

abstract：BACKGROUND:The long-term fate of severely injured patients in terms of their quality of life is not well known. Our aim was to assess the quality of life of patients who have suffered moderate to severe trauma and to identify primary factors of long-term quality of life impairment. METHODS:A prospective monocentric st...

journal_title：Health and quality of life outcomes

authors： Vardon-Bounes F,Gracia R,Abaziou T,Crognier L,Seguin T,Labaste F,Geeraerts T,Georges B,Conil JM,Minville V

更新日期：2021-01-08 00:00:00

abstract：BACKGROUND:Self-reported limitations in physical function often have only weak associations with measured performance on physical tests, suggesting that factors other than performance commonly influence self-reports. We tested if personal or health characteristics influenced self-reported limitations in three tasks, co...

journal_title：Health and quality of life outcomes

authors： Louie GH,Ward MM

更新日期：2010-08-13 00:00:00

abstract：PURPOSE:To develop an algorithm for mapping the Functional Assessment of Cancer Therapy-Breast (FACT-B) to the 5-level EuroQoL Group's 5-dimension questionnaire (EQ-5D-5L) utility index. METHODS:A survey of 238 breast cancer patients in Singapore was conducted. Models using various regression methods with or without r...

journal_title：Health and quality of life outcomes

authors： Cheung YB,Luo N,Ng R,Lee CF

更新日期：2014-12-12 00:00:00

abstract：BACKGROUND:There is a lack of German-language, disease-specific health related quality of life instruments applicable in cardiac rehabilitation. The purpose of this project was to investigate the psychometric properties of the German version of the MacNew Heart Disease Health-related Quality of Life Questionnaire (MacN...

journal_title：Health and quality of life outcomes

authors： Gramm L,Farin E,Jaeckel WH

更新日期：2012-07-20 00:00:00

abstract：BACKGROUND:There are very few reliable and valid measures in Japan assessing health-related quality of life (HRQOL) in children with cancer. The present study aimed to develop a Japanese version of the Minneapolis-Manchester Quality of Life Survey of Health Adolescent Form (MMQL-AF), which is a measure for assessing th...

journal_title：Health and quality of life outcomes

authors： Koike M,Hori H,Rikiishi T,Hayakawa A,Tsuji N,Yonemoto T,Uryu H,Matsushima E

更新日期：2014-08-15 00:00:00

abstract：BACKGROUND:Osteoarthritis (OA) is one of the most common causes of health and work impairment; however, this relationship, especially in Japan, is not well characterized. This study examined work impairment and OA in Japanese workers, specifically the relationship with health-related quality of life (HRQoL) and health ...

journal_title：Health and quality of life outcomes

authors： Nakata K,Tsuji T,Vietri J,Jaffe DH

更新日期：2018-04-17 00:00:00

abstract：BACKGROUND:Previous pediatric studies have observed a cross-informant variance in patient self-reported health-related quality of life (HRQoL) versus parent proxy-reported HRQoL. This study assessed in older children and adolescents with a variety of chronic pain conditions: 1) the consistency and agreement between ped...

journal_title：Health and quality of life outcomes

authors： Vetter TR,Bridgewater CL,McGwin G Jr

更新日期：2012-07-23 00:00:00

abstract：BACKGROUND:Mass screening could identify those with unrecognized celiac disease (CD), but the experience of being detected through screening and living with screening-detected CD should be explored before considering this as acceptable intervention. For this study we invited screening-detected adolescents to describe t...

journal_title：Health and quality of life outcomes

authors： Nordyke K,Rosén A,Emmelin M,Ivarsson A

更新日期：2014-06-11 00:00:00

abstract：BACKGROUND:Primary care physicians are caring for increasing numbers of persons with comorbid chronic illness. Longitudinal information on health outcomes associated with specific chronic conditions may be particularly relevant in caring for these populations. Our objective was to assess the effect of certain comorbid ...

journal_title：Health and quality of life outcomes

authors： Bayliss EA,Bayliss MS,Ware JE Jr,Steiner JF

更新日期：2004-09-07 00:00:00

abstract：BACKGROUND:Cavotricuspid isthmus (CTI) ablation is the treatment of choice in preventing recurrences of typical atrial flutter (AFl). However, little is known about long-term quality of life (QoL) after CTI ablation. METHODS AND RESULTS:From 01/2003 to 05/2005, 94 patients who consecutively underwent typical AFl ablat...

journal_title：Health and quality of life outcomes

authors： Cabanas-Grandío P,García-Seara J,Gude F,Martínez-Sande JL,Fernández-López XA,González-Juanatey JR

更新日期：2014-04-07 00:00:00

abstract：BACKGROUND:Porphyria cutanea tarda (PCT) is a rare, photosensitive disease characterized by skin fragility and blistering on sun-exposed areas. There is little previous research on how this condition affects health-related quality of life (HRQoL) and to the best of our knowledge this is the largest sample of PCT patien...

journal_title：Health and quality of life outcomes

authors： Andersen J,Thomsen J,Enes ÅR,Sandberg S,Aarsand AK

更新日期：2020-03-30 00:00:00

abstract：BACKGROUND:Residential youth care (RYC) institutions aim to provide care and stability for vulnerable adolescents with several previous and present challenges, such as disrupted attachments, wide-ranging adverse childhood experiences, mental health problems, and poor quality of life (QoL). To the best of our knowledge,...

journal_title：Health and quality of life outcomes

authors： Singstad MT,Wallander JL,Greger HK,Lydersen S,Kayed NS

更新日期：2021-01-22 00:00:00

abstract：BACKGROUND:Substantial challenges have been reported in China in terms of the large number of adult patients with strabismus and their poor quality of life. Quality of life is a cultural concept that varies according to personal feelings and perceptions, and it is influenced by physical, psychological and social factor...

journal_title：Health and quality of life outcomes

authors： Wang Z,Zhou J,Xu Y,Yin H,She X,Bian W,Wang X

更新日期：2018-09-03 00:00:00

abstract：BACKGROUND:Families play a critical role in supporting the health and well-being of children with chronic illnesses, who face a lifetime of responsibility for self-management of their condition. Our goal was to investigate whether the novel Patient-Reported Outcomes Measurement Information System® (PROMIS®) Pediatric F...

journal_title：Health and quality of life outcomes

authors： Flynn KE,Kliems H,Saoji N,Svenson J,Cox ED

更新日期：2018-10-19 00:00:00

abstract：BACKGROUND:Studies that compare health-related quality of life (HRQOL) and other patient-reported outcomes in different populations rest on the assumption that the measure has equivalent psychometric properties across groups. This study examined the measurement equivalence (ME) of the 36-item Medical Outcomes Study Sho...

journal_title：Health and quality of life outcomes

authors： Lix LM,Acan Osman B,Adachi JD,Towheed T,Hopman W,Davison KS,Leslie WD

更新日期：2012-03-13 00:00:00