Psychometric properties of the German version of the MacNew heart disease health-related quality of life questionnaire.

abstract：BACKGROUND:Providers and patients have called for improved understanding of the health care requirements of adults with sickle cell disease (SCD) and have identified the need for a systematic, reliable and valid method to document the patient-reported outcomes (PRO) of adult SCD care. To address this need, the Adult Si...

journal_title：Health and quality of life outcomes

authors： Keller SD,Yang M,Treadwell MJ,Werner EM,Hassell KL

更新日期：2014-08-22 00:00:00

abstract：BACKGROUND:This Study Examined The Measurement Properties Of The Japanese Version Of The European Organisation for Research and Treatment of Cancer (EORTC) Hepatocellular Carcinoma-Specific Quality of Life Questionnaire (QLQ-HCC18). METHODS:EORTC quality of life (QOL) translation guidelines were followed to create a J...

journal_title：Health and quality of life outcomes

authors： Mikoshiba N,Tateishi R,Tanaka M,Sakai T,Blazeby JM,Kokudo N,Koike K,Kazuma K

更新日期：2012-05-31 00:00:00

abstract：BACKGROUND:People suffering different types of stroke have differing demographic characteristics and survival. However, current estimates of disease burden are based on the same underlying assumptions irrespective of stroke type. We hypothesized that average Quality Adjusted Life Years (QALYs) lost from stroke would be...

journal_title：Health and quality of life outcomes

authors： Cadilhac DA,Dewey HM,Vos T,Carter R,Thrift AG

更新日期：2010-05-14 00:00:00

abstract：BACKGROUND:Breast cancer is one of the oncological diseases in which health-related quality of life (HRQL) has been most studied. This is mainly due to its high incidence and survival. This paper seeks to: review published research into HRQL among women with breast cancer in Spain; analyse the characteristics of these ...

journal_title：Health and quality of life outcomes

authors： Delgado-Sanz MC,García-Mendizábal MJ,Pollán M,Forjaz MJ,López-Abente G,Aragonés N,Pérez-Gómez B

更新日期：2011-01-14 00:00:00

abstract：BACKGROUND:Patient reported outcome measurements (PROMs) are emerging as an important component of patient management in the cancer setting, providing broad perspectives on patients' quality of life and experience. The use of PROMs is, however, generally limited to the context of randomised control trials, as healthcar...

journal_title：Health and quality of life outcomes

authors： Moss MCL,Aggarwal A,Qureshi A,Taylor B,Guerrero-Urbano T,Van Hemelrijck M

更新日期：2021-01-15 00:00:00

abstract：INTRODUCTION:Health related quality of life is a multi-dimensional construct of particular interest in determining the consequences of illness and disease. This study aimed to determine the relationships between overweight/obesity, and associated obesogenic risk behaviours with health related quality of life and physic...

journal_title：Health and quality of life outcomes

authors： Hoare E,Crooks N,Hayward J,Allender S,Strugnell C

更新日期：2019-01-18 00:00:00

abstract：BACKGROUND:Post-traumatic stress disorder (PTSD) occurs in 1-7% of women following childbirth. While having a caesarean section (C-section) is known to be a significant risk factor for postpartum PTSD, it is currently unknown whether coexisting anaesthesia-related factors are also associated to the disorder. The aim of...

journal_title：Health and quality of life outcomes

authors： Lopez U,Meyer M,Loures V,Iselin-Chaves I,Epiney M,Kern C,Haller G

更新日期：2017-06-02 00:00:00

abstract：BACKGROUND:Assessment of health-related quality of life (HRQoL) are often measured as an important patient-reported outcome (PRO) in clinical studies. Pulmonary arterial hypertension (PAH) is a common complication of atrial septal defect (ASD). This study aimed to compare the HRQoL of PAH related uncorrected secundum A...

journal_title：Health and quality of life outcomes

authors： Hidayati F,Gharini PPR,Hartopo AB,Anggrahini DW,Dinarti LK

更新日期：2020-08-14 00:00:00

abstract：BACKGROUND:Patient-reported outcome measures have become a well-recognised part of outcome assessment in orthopaedic surgery. These questionnaires claim to measure joint-specific dimensions like pain, function in activities of daily living, joint awareness or stiffness. Interference of the patient's psychological statu...

journal_title：Health and quality of life outcomes

authors： Giesinger JM,Kuster MS,Behrend H,Giesinger K

更新日期：2013-04-19 00:00:00

abstract：BACKGROUND:Limited data define what constitutes a minimal clinically important difference (MCID) on the EuroQol 5-Dimension (EQ-5D) health status index in persons with multiple sclerosis (PwMS). We sought to estimate the MCID for the EQ-5D health index in North American PwMS. METHODS:PwMS completing the Patient Determ...

journal_title：Health and quality of life outcomes

authors： Kohn CG,Sidovar MF,Kaur K,Zhu Y,Coleman CI

更新日期：2014-05-05 00:00:00

abstract：BACKGROUND:The World Health Organization Disability Assessment Schedule (WHODAS-2.0) has been adapted and validated in several cultures, but data on performance in the African context are lacking. The aim of the study was to evaluate the validity and psychometric properties of the WHODAS-2.0 among people with severe me...

journal_title：Health and quality of life outcomes

authors： Habtamu K,Alem A,Medhin G,Fekadu A,Dewey M,Prince M,Hanlon C

更新日期：2017-04-05 00:00:00

abstract：BACKGROUND:To assess QOL of patients with stroke in comparison to other groups (caregivers and CHF patients), to identify which items of QOL are more affected on each group and what is the functional profile of patients with stroke. METHODS:Consecutive stroke or congestive heart failure (CHF) patients were evaluated a...

journal_title：Health and quality of life outcomes

authors： Pinto EB,Maso I,Pereira JL,Fukuda TG,Seixas JC,Menezes DF,Cincura C,Neville IS,Jesus PA,Oliveira-Filho J

更新日期：2011-08-10 00:00:00

abstract：BACKGROUND:Chronic fatigue syndrome (CFS) is a debilitating condition of unknown etiology and no definitive pharmacotherapy. Patients are usually prescribed symptomatic treatment or self-medicate. We evaluated prescription and non-prescription drug use among persons with CFS in Georgia and compared it to that in non-fa...

journal_title：Health and quality of life outcomes

authors： Boneva RS,Lin JM,Maloney EM,Jones JF,Reeves WC

更新日期：2009-07-20 00:00:00

abstract：BACKGROUND:Dental disease and treatment experience can negatively affect the oral health related quality of life (OHRQL) of preschool aged children and their caregivers. Currently no valid and reliable instrument is available to measure these negative influences in very young children. The objective of this research wa...

journal_title：Health and quality of life outcomes

authors： Pahel BT,Rozier RG,Slade GD

更新日期：2007-01-30 00:00:00

abstract：BACKGROUND:Frailty remains an elusive concept despite many efforts to define and measure it. The difficulty in translating the clinical profile of frail elderly people into a quantifiable assessment tool is due to the complex and heterogeneous nature of their health problems. Viewing frailty as a 'latent vulnerability'...

journal_title：Health and quality of life outcomes

authors： Kamaruzzaman S,Ploubidis GB,Fletcher A,Ebrahim S

更新日期：2010-10-28 00:00:00

abstract：BACKGROUND:Mobile devices are increasingly being used for data collection in research. However, many researchers do not have experience in collecting data electronically. Hence, the purpose of this short report was to identify issues that emerged in a study that incorporated electronic capture of patient-reported outco...

journal_title：Health and quality of life outcomes

authors： Schick-Makaroff K,Molzahn A

更新日期：2015-01-22 00:00:00

abstract：BACKGROUND:The aim of this study is to investigate the reliability, validity, and responsiveness of JOACMEQ for CSM patients in mainland China. METHODS:A retrospective review was performed on 91 patients with CSM in our hospital from March 2015 to June 2015. Patients completed the JOACMEQ, the mJOA and the SF-36 quest...

journal_title：Health and quality of life outcomes

authors： Zhou F,Li S,Zhang Y,Zhao Y,Ju KL,Zhang F,Pan S,Sun Y

更新日期：2020-10-22 00:00:00

abstract：BACKGROUND:Combining outcomes and the use of standardized effect measures such as effect size and standardized response mean across instruments allows more comprehensive meta-analyses and should avoid selection bias. However, such analysis ideally requires that the instruments correlate strongly and that the underlying...

journal_title：Health and quality of life outcomes

authors： Puhan MA,Soesilo I,Guyatt GH,Schünemann HJ

更新日期：2006-12-07 00:00:00

abstract：:A response to Marci et al. 'Procreative sex in infertile couples: the decay of pleasure?'This is a reply to http://www.hqlo.com/content/pdf/1477-7525-11-52.pdf. ...

journal_title：Health and quality of life outcomes

authors： Gadarowski A

更新日期：2013-04-11 00:00:00

abstract：BACKGROUND:Patient self reported measures for Health Related Quality of Life (HRQOL) and mental distress are frequently used to evaluate outcome of therapeutic strategies in cardiac patients.Our study aims to describe changes in HRQOL and mental distress after percutaneous coronary intervention (PCI) focusing on tempor...

journal_title：Health and quality of life outcomes

authors： Sipötz J,Friedrich O,Höfer S,Benzer W,Chatsakos T,Gaul G,PRODES-Austria Investigators.

更新日期：2013-08-27 00:00:00

abstract：BACKGROUND:We previously developed the preliminary version of the Patient-Reported Apnea Questionnaire (PRAQ), a questionnaire measuring health-related quality of life in patients with (suspected) obstructive sleep apnea (OSA). This questionnaire was developed for clinical practice, where it can potentially serve two g...

journal_title：Health and quality of life outcomes

authors： Abma IL,Rovers M,IJff M,Hol B,Westert GP,van der Wees PJ

更新日期：2018-08-03 00:00:00

abstract：BACKGROUND:The objective of this study was to determine the applicability of the term bother, as used in Patient Reported Outcomes (PRO) instruments that will be translated into foreign languages from English for the United States. Bother is versatile in English for the U.S., in that it can describe negative mental sta...

journal_title：Health and quality of life outcomes

authors： Gawlicki MC,McKown SM,Talbert MJ,Brandt BA

更新日期：2014-02-13 00:00:00

abstract：BACKGROUND:Several instruments are available to assess children's health-related quality of life (HRQoL) based on self reports as well as proxy reports from parents. Previous studies have found only low-to-moderate agreement between self and proxy reports, but few studies have explicitly compared the psychometric quali...

journal_title：Health and quality of life outcomes

authors： Erhart M,Ellert U,Kurth BM,Ravens-Sieberer U

更新日期：2009-08-26 00:00:00

abstract：BACKGROUND:The EQ-5D-5 L and the SF-12 are the most commonly used generic measures of health-related quality of life among people with arthritis. However, there is little evidence on the extent to which the individual dimensions and domains of these instruments perform among this population. The objective was to examin...

journal_title：Health and quality of life outcomes

authors： Tawiah AK,Al Sayah F,Ohinmaa A,Johnson JA

更新日期：2019-04-17 00:00:00

abstract：BACKGROUND:Dental caries, traumatic dental injury (TDI) and malocclusion are common oral health conditions among preschool children and can have both physical and psychosocial consequences. Thus, it is important to measure the impact these on the oral health-related quality of life (OHRQoL) of children. The aim of the ...

journal_title：Health and quality of life outcomes

authors： Gomes MC,Pinto-Sarmento TC,Costa EM,Martins CC,Granville-Garcia AF,Paiva SM

更新日期：2014-04-18 00:00:00

abstract：BACKGROUND:Hereditary Angioedema (HAE), a rare genetic disease, manifests as intermittent, painful attacks of angioedema. Attacks vary in frequency and severity and include skin, abdominal and life-threatening laryngeal swellings. This study aimed to develop a patient reported outcome (PRO) tool for the assessment of H...

journal_title：Health and quality of life outcomes

authors： Bonner N,Abetz-Webb L,Renault L,Caballero T,Longhurst H,Maurer M,Christiansen S,Zuraw B,Icatibant Outcome Survey (IOS) International Executive Committee and the Hereditary Angioedema Association (HAEA) Medical Advisory Board.

更新日期：2015-07-01 00:00:00

abstract：BACKGROUND:This article describes the development and validation of a self-reported questionnaire, the KQoL-26, that is based on the views of patients with a suspected ligamentous or meniscal injury of the knee that assesses the impact of their knee problem on the quality of their lives. METHODS:Patient interviews and...

journal_title：Health and quality of life outcomes

authors： Garratt AM,Brealey S,Robling M,Atwell C,Russell I,Gillespie W,King D,DAMASK Trial Team.

更新日期：2008-07-10 00:00:00

abstract：BACKGROUND:The Japanese Osteoporosis Quality of Life (JOQOL) questionnaire measures quality of life in Japanese patients with osteoporosis. However, several important aspects of the psychometric properties of individual domains, including responsiveness, have not been addressed to enable valid clinical application. Thi...

journal_title：Health and quality of life outcomes

authors： Urushihara H,Yoh K,Hamaya E,Taketsuna M,Tanaka K

更新日期：2014-12-12 00:00:00

abstract：BACKGROUND:Quality of life (QoL) and health-related quality of life (HRQoL) measurement in low and middle-income countries of people with cerebral palsy (CP), the major cause of childhood physical disability, is essential to assess the impact of interventions and inform policies that best improve people's lives. The pu...

journal_title：Health and quality of life outcomes

authors： Power R,Akhter R,Muhit M,Wadud S,Heanoy E,Karim T,Badawi N,Khandaker G

更新日期：2019-08-02 00:00:00

abstract：BACKGROUND:Health-related quality of life (HRQoL) assessment is important for patients with functional dyspepsia. However, no studies have assessed factors associated with HRQoL reduction in such patients in an Asian population. This study aimed to determine the contribution of clinical, psychosocial, and demographic f...

journal_title：Health and quality of life outcomes

authors： Hantoro IF,Syam AF,Mudjaddid E,Setiati S,Abdullah M

更新日期：2018-05-02 00:00:00