Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference populations (dsd-LIFE).

abstract：BACKGROUND:While there are many published studies on HIV and functional limitations, there are few in the context of early abuse and its impact on functionality and Quality of Life (QoL) in HIV. METHODS:The present study focused on HIV in the context of childhood trauma and its impact on functionality and Quality of L...

journal_title：Health and quality of life outcomes

authors： Troeman ZC,Spies G,Cherner M,Archibald SL,Fennema-Notestine C,Theilmann RJ,Spottiswoode B,Stein DJ,Seedat S

更新日期：2011-09-30 00:00:00

abstract：BACKGROUND:Psoriatic arthritis (PsA) is a chronic immune-mediated inflammatory musculoskeletal disease, manifesting as peripheral arthritis, enthesitis, dactylitis, spondylitis, and skin and nail psoriasis. A core set of domains for measuring the impact of PsA has been developed, including pain, patient global assessme...

journal_title：Health and quality of life outcomes

authors： Coates LC,Orbai AM,Azevedo VF,Cappelleri JC,Steinberg K,Lippe R,Lim I,Eder L,Richette P,Weng MY,Queiro Silva R,Fallon L

更新日期：2020-06-08 00:00:00

abstract：BACKGROUND AND OBJECTIVE:A limited number of studies have evaluated the effects of oral contraceptives (OCs) on the quality of life (QOL) of polycystic ovary syndrome (PCOS) patients. This study aimed to compare the effects of using OCs containing levonorgestrel (LNG) and those containing desogestrel (DSG), cyproterone...

journal_title：Health and quality of life outcomes

authors： Amiri M,Nahidi F,Yarandi RB,Khalili D,Tohidi M,Tehrani FR

更新日期：2020-08-31 00:00:00

abstract：:The original article [1] contains errors in the presentation of Table 5 & Table 6 whereby values are displayed in an incorrect format leading to potential misinterpretation. ...

journal_title：Health and quality of life outcomes

authors： Lin S,Huang Y

更新日期：2019-10-24 00:00:00

abstract：BACKGROUND:Oral health-related quality of life (OHRQoL) has important implications for the clinical practice of dentistry and dental research and should contribute to professional judgment about restorative treatments and prosthetic replacement in patients who had reduced dentitions. The aim was to compare the OHRQoL a...

journal_title：Health and quality of life outcomes

authors： Ferreira RC,Kawachi I,Souza JGS,Campos FL,Chalub LLFH,Antunes JLF

更新日期：2019-05-03 00:00:00

abstract：BACKGROUND:The Japanese Osteoporosis Quality of Life (JOQOL) questionnaire measures quality of life in Japanese patients with osteoporosis. However, several important aspects of the psychometric properties of individual domains, including responsiveness, have not been addressed to enable valid clinical application. Thi...

journal_title：Health and quality of life outcomes

authors： Urushihara H,Yoh K,Hamaya E,Taketsuna M,Tanaka K

更新日期：2014-12-12 00:00:00

abstract：BACKGROUND:This study evaluated pre-defined aspects of content validity of the 18-item NCCN FACT-Ovarian Symptom Index (NFOSI-18) and its Disease-Related Symptoms-Physical (DRS-P) subscale, as clinical trial outcome tools for patients with advanced ovarian cancer. METHODS:Twenty-one women (mean age 59.5 years) diagnos...

journal_title：Health and quality of life outcomes

authors： Shaunfield S,Jensen S,Fisher AP,Webster K,Shahabi S,Ganguli A,Cella D

更新日期：2019-12-19 00:00:00

abstract：BACKGROUND:The proportion of people living to a very old age is continuously increasing. One of the possibilities explored in policies and services to meet this health and societal challenge is to encourage the very old to continue living at home. This initiative is in line with the wishes of most elderly people. Howev...

journal_title：Health and quality of life outcomes

authors： Jalenques I,Rondepierre F,Rachez C,Lauron S,Guiguet-Auclair C

更新日期：2020-05-07 00:00:00

abstract：BACKGROUND:Precise assessment of health-related quality of life (HRQOL) with a reliable and valid measure is a prerequisite to the enhancement of HRQOL. This study examined the psychometric properties of the Korean version of the Medical Outcomes Study HIV Health Survey (K-MOS-HIV). METHODS:The reliability and validit...

journal_title：Health and quality of life outcomes

authors： Shim EJ,Ha H,Lee SH,Kim NJ,Kim ES,Bang JH,Song KH,Sohn BK,Park HY,Son KL,Hwang H,Lee KM,Hahm BJ

更新日期：2018-05-15 00:00:00

abstract：BACKGROUND:Incorporating family-centered care principles into childhood obesity interventions is integral for improved clinical decision making, better follow-through, and more effective communication that leads to better outcomes and greater satisfaction with services. The purpose of this study is to evaluate the psyc...

journal_title：Health and quality of life outcomes

authors： Simione M,Sharifi M,Gerber MW,Marshall R,Avalon E,Fiechtner L,Horan C,Orav EJ,Skelton J,Taveras EM

更新日期：2020-06-11 00:00:00

abstract：BACKGROUND:This study aims to validate the Chinese version of the Reynolds' Suicidal Ideation Questionnaire (SIQ) in a Chinese society and explore a convenient short version. METHODS:A sample of 711 cases was derived from two territory-wide surveys of Hong Kong adolescents aged between 15 and 19 years old. RESULTS:Th...

journal_title：Health and quality of life outcomes

authors： Zhang Y,Yip PS,Fu KW

更新日期：2014-03-10 00:00:00

abstract：BACKGROUND:The Hirschsprung's disease Anorectal malformation QoL questionnaire (HAQL) is a disease-specific quality of life (QoL) questionnaire for patients with Hirschsprung's disease (HD) or anorectal malformations (ARM). It was originally proposed in Dutch and is currently being translated into other languages to ob...

journal_title：Health and quality of life outcomes

authors： Baayen C,Feuillet F,Clermidi P,Crétolle C,Sarnacki S,Podevin G,Hardouin JB

更新日期：2017-01-28 00:00:00

abstract：BACKGROUND:There is little robust evidence relating to changes in health related quality of life (HRQL) in morbidly obese patients following a multidisciplinary non-surgical weight loss program or laparoscopic Roux-en-Y Gastric Bypass (RYGB). The aim of the present study was to describe and compare changes in five dime...

journal_title：Health and quality of life outcomes

authors： Karlsen TI,Lund RS,Røislien J,Tonstad S,Natvig GK,Sandbu R,Hjelmesæth J

更新日期：2013-02-13 00:00:00

abstract：BACKGROUND:The aim of a rapid response system (RRS) is to improve the timely recognition and treatment of ward patients with deteriorating vital signs The system is based on a set of clinical criteria that are used to assess patient's vital signs on a general ward. Once a patient is evaluated as critical, a medical eme...

journal_title：Health and quality of life outcomes

authors： Simmes F,Schoonhoven L,Mintjes J,Fikkers BG,van der Hoeven JG

更新日期：2013-05-01 00:00:00

abstract：BACKGROUND:Patient self reported measures for Health Related Quality of Life (HRQOL) and mental distress are frequently used to evaluate outcome of therapeutic strategies in cardiac patients.Our study aims to describe changes in HRQOL and mental distress after percutaneous coronary intervention (PCI) focusing on tempor...

journal_title：Health and quality of life outcomes

authors： Sipötz J,Friedrich O,Höfer S,Benzer W,Chatsakos T,Gaul G,PRODES-Austria Investigators.

更新日期：2013-08-27 00:00:00

abstract：BACKGROUND:Poststroke fatigue is a persistent and distressing symptom among stroke survivors. In this study, we investigated the reliability and validity of a vertical numerical rating scale supplemented with a faces rating scale (NRS-FRS) in measuring poststroke fatigue. METHODS:The fatigue intensity of 106 individua...

journal_title：Health and quality of life outcomes

authors： Chuang LL,Lin KC,Hsu AL,Wu CY,Chang KC,Li YC,Chen YL

更新日期：2015-06-30 00:00:00

abstract：BACKGROUND:There is variation in the number of response alternatives used within health-related questionnaires. This study compared a four-and a five-point scale version of the Norwegian Function Assessment Scale (NFAS) by evaluating data quality, internal consistency and validity. METHODS:All inhabitants in seven bir...

journal_title：Health and quality of life outcomes

authors： Østerås N,Gulbrandsen P,Garratt A,Benth JS,Dahl FA,Natvig B,Brage S

更新日期：2008-02-15 00:00:00

abstract：BACKGROUND:The Hip disability and Osteoarthritis Outcome Score (HOOS) is a frequently used patient-reported outcome measure (PROM) for assessment of hip disorders and treatment effects following hip surgery. The objective of the study was to translate and adapt the Hip disability and Osteoarthritis Outcome Score (HOOS)...

journal_title：Health and quality of life outcomes

authors： Gojło MK,Paradowski PT

更新日期：2020-05-12 00:00:00

abstract：BACKGROUND:Given that bariatric surgery (BS) and lifestyle intervention (LI) represent two vastly different approaches to treating severe obesity, there is growing interest in whether individuals who seek BS versus LI also differ on weight-related behaviors. In the present study, we compared BS- and LI-seekers on physi...

journal_title：Health and quality of life outcomes

authors： Bond DS,Unick JL,Jakicic JM,Vithiananthan S,Trautvetter J,O'Leary KC,Wing RR

更新日期：2012-07-28 00:00:00

abstract：BACKGROUND:The Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS) are patient-reported outcome measures developed to evaluate efficacy in clinical trials and clinical practice. The ESD is a daily electronic diary assessing symptom severity; the EIS is a weekly electronic diary assessing symptom impa...

journal_title：Health and quality of life outcomes

authors： Kitchen H,Seitz C,Trigg A,Aldhouse N,Willgoss T,Schmitz H,Gater A,Gerlinger C,Haberland C

更新日期：2021-01-06 00:00:00

abstract：INTRODUCTION:The primary objective of this sub analysis of the CONOCES study was to analyse outcomes in terms of mortality rates, quality of life and degree of autonomy over the first year in patients admitted to stroke units in Spain. The secondary objective was to identify the factors determining good prognosis. MET...

journal_title：Health and quality of life outcomes

authors： Mar J,Masjuan J,Oliva-Moreno J,Gonzalez-Rojas N,Becerra V,Casado MÁ,Torres C,Yebenes M,Quintana M,Alvarez-Sabín J,CONOCES Investigators Group.

更新日期：2015-03-17 00:00:00

abstract：BACKGROUND:Studies have been rarely conducted to provide a comprehensive perspective of pregnant women with the intention to investigate the relationships between periodontal conditions and oral health-related quality of life (OHRQoL). As such, this study aimed to describe the OHRQoL of pregnant women in Shanghai, Chin...

journal_title：Health and quality of life outcomes

authors： Lu HX,Xu W,Wong MC,Wei TY,Feng XP

更新日期：2015-05-28 00:00:00

abstract：BACKGROUND:Patients with head and neck cancer (HNC) who are receiving radiotherapy commonly face detrimental complications, including oral issues. However, oral symptoms are not well understood given the lack of available specific assessment instruments. The Vanderbilt Head and Neck Symptom Survey version (VHNSS) 2.0 i...

journal_title：Health and quality of life outcomes

authors： Jin M,Sun L,Meng R,Wang W,Sun R,Huang J,Qin Y,Wu B,Ding Q,Peng G,Zhang T,Yang K

更新日期：2021-01-21 00:00:00

abstract：BACKGROUND:Mobile devices are increasingly being used for data collection in research. However, many researchers do not have experience in collecting data electronically. Hence, the purpose of this short report was to identify issues that emerged in a study that incorporated electronic capture of patient-reported outco...

journal_title：Health and quality of life outcomes

authors： Schick-Makaroff K,Molzahn A

更新日期：2015-01-22 00:00:00

abstract：BACKGROUND:Along with rapid economic development, the aging process in China is gradually accelerating. The living conditions of empty-nest rural elderly are worrisome. As a more vulnerable group, empty-nest elderly are facing more urgent health problems. This study explores the health-related quality of life (HRQOL) o...

journal_title：Health and quality of life outcomes

authors： Liang Y,Wu W

更新日期：2014-04-25 00:00:00

abstract：BACKGROUND:Adverse childhood experiences (ACE) have been previously linked to quality of life, health conditions, and life expectancy in adulthood. Less is known about the potential mechanisms which mediate these associations. This study examined how ACE influences adult health-related quality of life (HRQoL) in a low-...

journal_title：Health and quality of life outcomes

authors： Salinas-Miranda AA,Salemi JL,King LM,Baldwin JA,Berry EL,Austin DA,Scarborough K,Spooner KK,Zoorob RJ,Salihu HM

更新日期：2015-08-11 00:00:00

abstract：BACKGROUND:Frailty remains an elusive concept despite many efforts to define and measure it. The difficulty in translating the clinical profile of frail elderly people into a quantifiable assessment tool is due to the complex and heterogeneous nature of their health problems. Viewing frailty as a 'latent vulnerability'...

journal_title：Health and quality of life outcomes

authors： Kamaruzzaman S,Ploubidis GB,Fletcher A,Ebrahim S

更新日期：2010-10-28 00:00:00

abstract：BACKGROUND:Researchers have studied for decades workplace stress and burnout to identify their relationship to health and wellness. This research has focused on stress levels in people, as well as on environmental and personal factors that contribute to experiencing stress or burnout. In addition to the burnout measure...

journal_title：Health and quality of life outcomes

authors： Gascón S,Masluk B,Montero-Marin J,Leiter MP,Herrera P,Albesa A

更新日期：2019-07-30 00:00:00

abstract：BACKGROUND:Previous pediatric studies have observed a cross-informant variance in patient self-reported health-related quality of life (HRQoL) versus parent proxy-reported HRQoL. This study assessed in older children and adolescents with a variety of chronic pain conditions: 1) the consistency and agreement between ped...

journal_title：Health and quality of life outcomes

authors： Vetter TR,Bridgewater CL,McGwin G Jr

更新日期：2012-07-23 00:00:00

abstract：BACKGROUND:Symptoms of heartburn has an impact on health-related quality of life (HRQL). When a questionnaire is translated into a new language, a linguistic validation is necessary but not sufficient unless the psychometric characteristics have been verified. The aim is to document the psychometric characteristics of ...

journal_title：Health and quality of life outcomes

authors： Kulich KR,Malfertheiner P,Madisch A,Labenz J,Bayerdörffer E,Miehlke S,Carlsson J,Wiklund IK

更新日期：2003-10-28 00:00:00