Validation of the French versions of the Hirschsprung's disease and Anorectal malformations Quality of Life (HAQL) questionnaires for adolescents and adults.

abstract：BACKGROUND:Families play a critical role in supporting the health and well-being of children with chronic illnesses, who face a lifetime of responsibility for self-management of their condition. Our goal was to investigate whether the novel Patient-Reported Outcomes Measurement Information System® (PROMIS®) Pediatric F...

journal_title：Health and quality of life outcomes

authors： Flynn KE,Kliems H,Saoji N,Svenson J,Cox ED

更新日期：2018-10-19 00:00:00

abstract：BACKGROUND:The EORTC-QLQ-C30 is a widely used health related quality of life (HRQoL) questionnaire in lung cancer patients. Small HRQoL treatment effects are often reported as mean differences (MDs) between treatments, which are rarely justified or understood by patients and clinicians. An alternative approach using od...

journal_title：Health and quality of life outcomes

authors： Khan I,Bashir Z,Forster M

更新日期：2015-11-14 00:00:00

abstract：BACKGROUND:Previous studies have reported that socioeconomically disadvantaged Australians have poorer self-rated dental health (SRDH), are less likely to be insured for dental services and are less likely to have regular dental visits than their more advantaged counterparts. However, less is known about the associatio...

journal_title：Health and quality of life outcomes

authors： Teusner DN,Anikeeva O,Brennan DS

更新日期：2014-05-09 00:00:00

abstract：BACKGROUND:A linguistic validation of the Self-Assessment Goal Achievement (SAGA) questionnaire was conducted for 12 European languages, documenting that each translation adequately captures the concepts of the original English-language version of the questionnaire and is readily understood by subjects in the target po...

journal_title：Health and quality of life outcomes

authors： Piault E,Doshi S,Brandt BA,Angün Ç,Evans CJ,Bergqvist A,Trocio J

更新日期：2012-04-23 00:00:00

abstract：BACKGROUND:The last decade has evidenced a dramatic increase in the development and utilization of pediatric health-related quality of life (HRQOL) measures in an effort to improve pediatric patient health and well-being and determine the value of healthcare services. The emerging paradigm shift toward patient-reported...

journal_title：Health and quality of life outcomes

authors： Varni JW,Limbers CA,Burwinkle TM

更新日期：2007-01-03 00:00:00

abstract：BACKGROUND:This study evaluated pre-defined aspects of content validity of the 18-item NCCN FACT-Ovarian Symptom Index (NFOSI-18) and its Disease-Related Symptoms-Physical (DRS-P) subscale, as clinical trial outcome tools for patients with advanced ovarian cancer. METHODS:Twenty-one women (mean age 59.5 years) diagnos...

journal_title：Health and quality of life outcomes

authors： Shaunfield S,Jensen S,Fisher AP,Webster K,Shahabi S,Ganguli A,Cella D

更新日期：2019-12-19 00:00:00

abstract：BACKGROUND:Versions of the Health Assessment Questionnaire (HAQ) are commonly used to measure physical functioning across multiple rheumatic diseases but there has been no clear demonstration that any HAQ version is actually generic. This study aimed to show that the HAQ-II instrument is invariant across different rheu...

journal_title：Health and quality of life outcomes

authors： Taylor WJ,Parekh K

更新日期：2018-05-30 00:00:00

abstract：BACKGROUND:The aim of the present study was to identify the physical fitness (PF) tests of a multi-component battery more related to the perception of problems in each dimension of the health-related quality of life (HRQoL) assessed by the EuroQol 5 dimensions 3 level questionnaire (EQ-5D-3L) in community-dwelling midd...

journal_title：Health and quality of life outcomes

authors： Olivares PR,Gusi N,Prieto J,Hernandez-Mocholi MA

更新日期：2011-12-22 00:00:00

abstract：OBJECTIVE:Seasonal changes in mood and behavior are common in a general population, being of relevance to public health. We wanted to analyze whether the HRQoL is associated with the seasonal changes in mood and behavior. Because the shortage of exposure to daylight or artificial bright light has been linked to the occ...

journal_title：Health and quality of life outcomes

authors： Grimaldi S,Partonen T,Saarni SI,Aromaa A,Lönnqvist J

更新日期：2008-08-01 00:00:00

abstract：BACKGROUND:The purpose of this study is to describe Health-Related Quality of Life (HRQoL) of localized prostate cancer patients in an Active Surveillance (AS) program, and to compare them with those undergoing radical prostatectomy (RP), external-beam radiotherapy (XRT) and brachytherapy (BT). METHODS:Multi-instituti...

journal_title：Health and quality of life outcomes

authors： Sureda A,Fumadó L,Ferrer M,Garín O,Bonet X,Castells M,Mir MC,Abascal JM,Vigués F,Cecchini L,Suárez JF

更新日期：2019-01-14 00:00:00

abstract：BACKGROUND:Measuring quality of life (QOL) in a population is important for the predictions of health and social care needs. In Pakistan, health related quality of life data exist but there are no quality of life data of general population. In this study, quality of life was assessed among the Pakistani general populat...

journal_title：Health and quality of life outcomes

authors： Lodhi FS,Montazeri A,Nedjat S,Mahmoodi M,Farooq U,Yaseri M,Kasaeian A,Holakouie-Naieni K

更新日期：2019-01-14 00:00:00

abstract：BACKGROUND:Psoriatic arthritis (PsA) is a chronic immune-mediated inflammatory musculoskeletal disease, manifesting as peripheral arthritis, enthesitis, dactylitis, spondylitis, and skin and nail psoriasis. A core set of domains for measuring the impact of PsA has been developed, including pain, patient global assessme...

journal_title：Health and quality of life outcomes

authors： Coates LC,Orbai AM,Azevedo VF,Cappelleri JC,Steinberg K,Lippe R,Lim I,Eder L,Richette P,Weng MY,Queiro Silva R,Fallon L

更新日期：2020-06-08 00:00:00

abstract：BACKGROUND:The presence of multiple chronic conditions is associated with lower health related quality of life (HRQOL). Disease severity also influences HRQOL. To analyse the effects of all possible combinations of single diseases along with their severity on HRQOL seems cumbersome. Grouping diseases and their severity...

journal_title：Health and quality of life outcomes

authors： Fortin M,Dubois MF,Hudon C,Soubhi H,Almirall J

更新日期：2007-08-06 00:00:00

abstract：BACKGROUND:Psychosocial models including illness perception might explain individual differences in health-related quality of life (HRQoL) and daily functioning in chronically ill patients. The aim of this study was to assess the association of illness perception among rheumatoid arthritis (RA) patients with physical a...

journal_title：Health and quality of life outcomes

authors： Berner C,Erlacher L,Fenzl KH,Dorner TE

更新日期：2018-12-19 00:00:00

abstract：BACKGROUND:Past research has shown that Filipino cancer patients report lower levels of quality of life (QoL) than other ethnic groups. One possible explanation for this is that Filipinos do not define QoL in the same manner as others, resulting in bias in their assessments. Hence, Filipinos would not necessarily have ...

journal_title：Health and quality of life outcomes

authors： Pagano IS,Gotay CC

更新日期：2005-10-07 00:00:00

abstract：BACKGROUND:The Functional Assessment of Cancer Therapy (FACT) is one of the most commonly used self-report instruments for evaluation of health-related quality of life in oncology patients. However, cultural considerations necessitate testing of the subscales in different populations. We sought to qualitatively and qua...

journal_title：Health and quality of life outcomes

authors： Ding Y,Hu Y,Hallberg IR

更新日期：2012-10-03 00:00:00

abstract：BACKGROUND:Osteoarthritis (OA) is one of the most common causes of health and work impairment; however, this relationship, especially in Japan, is not well characterized. This study examined work impairment and OA in Japanese workers, specifically the relationship with health-related quality of life (HRQoL) and health ...

journal_title：Health and quality of life outcomes

authors： Nakata K,Tsuji T,Vietri J,Jaffe DH

更新日期：2018-04-17 00:00:00

abstract：BACKGROUND:Combining outcomes and the use of standardized effect measures such as effect size and standardized response mean across instruments allows more comprehensive meta-analyses and should avoid selection bias. However, such analysis ideally requires that the instruments correlate strongly and that the underlying...

journal_title：Health and quality of life outcomes

authors： Puhan MA,Soesilo I,Guyatt GH,Schünemann HJ

更新日期：2006-12-07 00:00:00

abstract：BACKGROUND:Previous pediatric studies have observed a cross-informant variance in patient self-reported health-related quality of life (HRQoL) versus parent proxy-reported HRQoL. This study assessed in older children and adolescents with a variety of chronic pain conditions: 1) the consistency and agreement between ped...

journal_title：Health and quality of life outcomes

authors： Vetter TR,Bridgewater CL,McGwin G Jr

更新日期：2012-07-23 00:00:00

abstract：BACKGROUND:The International Classification of Functioning, Disability and Health (ICF) was published by the World Health Organization (WHO) to standardize descriptions of health and disability. Little is known about the reliability and clinical relevance of measurements using the ICF and its qualifiers. This study exa...

journal_title：Health and quality of life outcomes

authors： Okochi J,Utsunomiya S,Takahashi T

更新日期：2005-07-29 00:00:00

abstract：BACKGROUND:Changes in Quality of Life (QOL) measures over time with treatment of obesity have not previously been described for youth. We describe the changes from baseline through two follow up visits in youth QOL (assessed by the Pediatric Quality Life Inventory, PedsQL4.0), teen depression (assessed by the Patient H...

journal_title：Health and quality of life outcomes

authors： Pratt KJ,Lazorick S,Lamson AL,Ivanescu A,Collier DN

更新日期：2013-07-10 00:00:00

abstract：PURPOSE:Systemic family interventions have shown to be effective in adolescents with substance use disorder and delinquent behavior. The interventions target interactions between the adolescent and involved systems (i.e. youth, family, peers, neighbors, school, work, and society). Next to effectiveness considerations, ...

journal_title：Health and quality of life outcomes

authors： Schawo S,Bouwmans C,van der Schee E,Hendriks V,Brouwer W,Hakkaart L

更新日期：2017-09-19 00:00:00

abstract：INTRODUCTION:Within an ongoing project of the EORTC Quality of Life Group, we are developing computerized adaptive test (CAT) measures for the QLQ-C30 scales. These new CAT measures are conceptualised to reflect the same constructs as the QLQ-C30 scales. Accordingly, the Fatigue-CAT is intended to capture physical and ...

journal_title：Health and quality of life outcomes

authors： Giesinger JM,Aa Petersen M,Groenvold M,Aaronson NK,Arraras JI,Conroy T,Gamper EM,Kemmler G,King MT,Oberguggenberger AS,Velikova G,Young T,Holzner B,European Organisation for Research and Treatment of Cancer Quality of Life Grou

更新日期：2011-03-29 00:00:00

abstract：BACKGROUND:Current evidence supports the use of pedometers as effective motivational tools to promote physical activity and improve health-related quality of life in the general population. The aims of this study are to examine whether a pedometer-driven walking programme can improve health-related quality of life, and...

journal_title：Health and quality of life outcomes

authors： Mansi S,Milosavljevic S,Tumilty S,Hendrick P,Baxter GD

更新日期：2013-11-01 00:00:00

abstract：BACKGROUND:NAFLD impacts patient reported outcomes (PROs). Our aim was to assess the impact of NAFLD on patients' HRQOL. METHODS:National Health and Nutrition Examination Survey (NHANES) 2001-2011 data were used to identify adult patients with NAFLD [Fatty Liver Index (FLI) > 60 in absence of other liver disease and e...

journal_title：Health and quality of life outcomes

authors： Golabi P,Otgonsuren M,Cable R,Felix S,Koenig A,Sayiner M,Younossi ZM

更新日期：2016-02-09 00:00:00

abstract：BACKGROUND:Though many people with multiple sclerosis (MS) have comorbidities, the use of generic and disease-specific health related quality of life (HRQOL) scales to discriminate the effects of comorbidity has not been established. The utility of these scales to discriminate differences between persons with varying l...

journal_title：Health and quality of life outcomes

authors： Fiest KM,Greenfield J,Metz LM,Patten SB,Jetté N,Marrie RA

更新日期：2017-12-21 00:00:00

abstract：:The increasing evidence for response shift phenomena in quality of life (QOL) assessment points to the necessity to reconsider both the measurement model and the application of psychometric analyses. The proposed psychometric model posits that the QOL true score is always contingent upon parameters of the appraisal pr...

journal_title：Health and quality of life outcomes

authors： Schwartz CE,Rapkin BD

更新日期：2004-03-23 00:00:00

abstract：INTRODUCTION:Health related quality of life is a multi-dimensional construct of particular interest in determining the consequences of illness and disease. This study aimed to determine the relationships between overweight/obesity, and associated obesogenic risk behaviours with health related quality of life and physic...

journal_title：Health and quality of life outcomes

authors： Hoare E,Crooks N,Hayward J,Allender S,Strugnell C

更新日期：2019-01-18 00:00:00

abstract：BACKGROUND:The modified polycystic ovary syndrome health-related quality-of-life questionnaire (MPCOSQ) is a 30-item instrument measuring quality-of-life in English-speaking patients with polycystic ovary syndrome (PCOS). We aimed to: 1) cross-culturally adapt the MPCOSQ into Chinese, and 2) assess the validity and rel...

journal_title：Health and quality of life outcomes

authors： Luo YY,Xu XL,Li XB

更新日期：2020-05-11 00:00:00

abstract：PURPOSE:Chronic kidney disease (CKD) induces frailty and worsens quality of life (QOL), even in the early stages of the disease and in young patients. However, there is a lack of knowledge about the relationship between frailty and QOL in CKD patients. Thus, we investigated this relationship in a sample of CKD patients...

journal_title：Health and quality of life outcomes

authors： Mansur HN,Colugnati FA,Grincenkov FR,Bastos MG

更新日期：2014-02-28 00:00:00