Reconsidering the psychometrics of quality of life assessment in light of response shift and appraisal.

abstract：BACKGROUND:This article describes the development and validation of a self-reported questionnaire, the KQoL-26, that is based on the views of patients with a suspected ligamentous or meniscal injury of the knee that assesses the impact of their knee problem on the quality of their lives. METHODS:Patient interviews and...

journal_title：Health and quality of life outcomes

authors： Garratt AM,Brealey S,Robling M,Atwell C,Russell I,Gillespie W,King D,DAMASK Trial Team.

更新日期：2008-07-10 00:00:00

abstract：BACKGROUND:This study aims to validate the Chinese version of the Reynolds' Suicidal Ideation Questionnaire (SIQ) in a Chinese society and explore a convenient short version. METHODS:A sample of 711 cases was derived from two territory-wide surveys of Hong Kong adolescents aged between 15 and 19 years old. RESULTS:Th...

journal_title：Health and quality of life outcomes

authors： Zhang Y,Yip PS,Fu KW

更新日期：2014-03-10 00:00:00

abstract：BACKGROUND:Assessing Health-related Quality of life (HRQoL) is necessary to evaluate care and treatments provided to patients with major depressive disorder (MDD), in addition to the traditional assessment of clinical outcomes. However, HRQoL remains under-utilized to assess the effectiveness of repetitive transcranial...

journal_title：Health and quality of life outcomes

authors： Dumas R,Richieri R,Guedj E,Auquier P,Lancon C,Boyer L

更新日期：2012-07-28 00:00:00

abstract：BACKGROUND:The Minimal Clinically Important Difference (MCID) assesses what change on a measurement tool can be considered minimal clinically relevant. Although the recall period can influence questionnaire scores, it is unclear if it influences the MCID. This study is the first to examine longitudinally the impact of ...

journal_title：Health and quality of life outcomes

authors： Alma HJ,de Jong C,Jelusic D,Wittmann M,Schuler M,Kollen BJ,Sanderman R,Schultz K,Kocks JWH,Van der Molen T

更新日期：2018-06-26 00:00:00

abstract：BACKGROUND:The purpose of the study was to determine whether the Persian version of the KIDSCREEN-27 has the optimal number of response category to measure health-related quality of life (HRQoL) in children and adolescents. Moreover, we aimed to determine if all the items contributed adequately to their own domain. FI...

journal_title：Health and quality of life outcomes

authors： Jafari P,Bagheri Z,Safe M

更新日期：2012-10-18 00:00:00

abstract：BACKGROUND:Patients prescribed supplemental oxygen (O2) therapy face challenges as they adjust to being constantly "tethered" to an oxygen delivery device. Informal caregivers (ICs) of patients with pulmonary fibrosis (PF) face their own, often overlooked hardships when O2 is brought into their home and added to their ...

journal_title：Health and quality of life outcomes

authors： Graney BA,Wamboldt FS,Baird S,Churney T,Fier K,Korn M,McCormick M,Vierzba T,Swigris JJ

更新日期：2017-07-01 00:00:00

abstract：BACKGROUND:A linguistic validation of the Self-Assessment Goal Achievement (SAGA) questionnaire was conducted for 12 European languages, documenting that each translation adequately captures the concepts of the original English-language version of the questionnaire and is readily understood by subjects in the target po...

journal_title：Health and quality of life outcomes

authors： Piault E,Doshi S,Brandt BA,Angün Ç,Evans CJ,Bergqvist A,Trocio J

更新日期：2012-04-23 00:00:00

abstract：BACKGROUND:Past research has shown that Filipino cancer patients report lower levels of quality of life (QoL) than other ethnic groups. One possible explanation for this is that Filipinos do not define QoL in the same manner as others, resulting in bias in their assessments. Hence, Filipinos would not necessarily have ...

journal_title：Health and quality of life outcomes

authors： Pagano IS,Gotay CC

更新日期：2005-10-07 00:00:00

abstract：BACKGROUND:A systematic review was conducted to analyse journal articles that describe or measure the impact of leg ulceration on patients' quality of life (QoL) in order to improve the content of an educational programme that aims to enhance self-care agency in leg ulcer patients. METHOD:Original articles published i...

journal_title：Health and quality of life outcomes

authors： Herber OR,Schnepp W,Rieger MA

更新日期：2007-07-25 00:00:00

abstract：BACKGROUND:Studies that compare health-related quality of life (HRQOL) and other patient-reported outcomes in different populations rest on the assumption that the measure has equivalent psychometric properties across groups. This study examined the measurement equivalence (ME) of the 36-item Medical Outcomes Study Sho...

journal_title：Health and quality of life outcomes

authors： Lix LM,Acan Osman B,Adachi JD,Towheed T,Hopman W,Davison KS,Leslie WD

更新日期：2012-03-13 00:00:00

abstract：BACKGROUND:In eating disorders (EDs) treatment, outcome measurement has traditionally focused on symptom reduction rather than functioning or quality of life (QoL). Generic QoL measures lack sensitivity for some diagnoses and many not be responsive in eating disorder patients. This article describes the development and...

journal_title：Health and quality of life outcomes

authors： Adair CE,Marcoux GC,Cram BS,Ewashen CJ,Chafe J,Cassin SE,Pinzon J,Gusella JL,Geller J,Scattolon Y,Fergusson P,Styles L,Brown KE

更新日期：2007-04-30 00:00:00

abstract：BACKGROUND:Health-related quality of life (HRQOL) is an important outcome indicator for chronic disease, and particularly in the absence of biological markers for illness, such as with irritable bowel syndrome (IBS). The aims of this study were to develop and evaluate a new IBS-specific HRQOL instrument (IBS-HR-QOL). ...

journal_title：Health and quality of life outcomes

authors： Lee EH,Kwon O,Hahm KB,Kim W,Kim JI,Cheung DY,Kim YJ,Kim JH,Park JJ,Joo MK

更新日期：2016-02-17 00:00:00

abstract：BACKGROUND:Novel oral anticoagulants (NOAC) such as dabigatran, when compared to warfarin, have been shown to potentially reduce the risk of stroke in patients with non-valvular atrial fibrillation (NVAF) together with lower healthcare resource utilization (HCRU) and similar total costs. This study expands on previous ...

journal_title：Health and quality of life outcomes

authors： Reynolds SL,Ghate SR,Sheer R,Gandhi PK,Moretz C,Wang C,Sander S,Costantino ME,Annavarapu S,Andrews G

更新日期：2017-06-21 00:00:00

abstract：BACKGROUND:Previous work using Mokken scaling analysis with the SF-36 has found subscales appearing to show excellent Mokken scaling properties. However, the values of scalability of the subscales are very large, raising the possibility that these are artificially high and this may result from violations of local stoch...

journal_title：Health and quality of life outcomes

authors： Watson R,Wang W,Thompson DR

更新日期：2014-10-29 00:00:00

abstract：BACKGROUND:Assessment of health-related quality of life (HRQoL) are often measured as an important patient-reported outcome (PRO) in clinical studies. Pulmonary arterial hypertension (PAH) is a common complication of atrial septal defect (ASD). This study aimed to compare the HRQoL of PAH related uncorrected secundum A...

journal_title：Health and quality of life outcomes

authors： Hidayati F,Gharini PPR,Hartopo AB,Anggrahini DW,Dinarti LK

更新日期：2020-08-14 00:00:00

abstract：BACKGROUND:To generate high-quality evidence, contextually relevant outcome measurement instruments are required. Quality of life evaluation among polio survivors typically involves the use of generic instruments, which are developed and validated among a different groups of people. There is no clear evidence whether t...

journal_title：Health and quality of life outcomes

authors： Sulaiman SK,Aldersey HM,DePaul VG,Kaka B

更新日期：2020-09-21 00:00:00

abstract：BACKGROUND:Psychometric evidence is necessary to establish scientific integrity and clinical usefulness of translations and cultural adaptations of the Stroke-Specific Quality of Life (SS-QoL) scale. However, the limited evidence on psychometrics of Yoruba version of SS-QoL 2.0 (SS-QoL(Y)) is a significant shortcoming....

journal_title：Health and quality of life outcomes

authors： Odetunde MO,Akinpelu AO,Odole AC

更新日期：2017-10-19 00:00:00

abstract：INTRODUCTION:China is a country facing the "double burden" of both obesity and underweight. The objective of this study was to explore the relationship between body mass index (BMI) and health-related quality of life (HRQOL) in adults from Shaanxi Province. METHODS:The data were derived from the fifth Health Service S...

journal_title：Health and quality of life outcomes

authors： Xu Y,Zhou Z,Li Y,Yang J,Guo X,Gao J,Yan J,Chen G

更新日期：2015-09-23 00:00:00

abstract：BACKGROUND:Studies have been rarely conducted to provide a comprehensive perspective of pregnant women with the intention to investigate the relationships between periodontal conditions and oral health-related quality of life (OHRQoL). As such, this study aimed to describe the OHRQoL of pregnant women in Shanghai, Chin...

journal_title：Health and quality of life outcomes

authors： Lu HX,Xu W,Wong MC,Wei TY,Feng XP

更新日期：2015-05-28 00:00:00

abstract：BACKGROUND:The PedsQL Measurement Model was designed to measure health-related quality of life (HRQOL) in children and adolescents. The PedsQL 4.0 Generic Core Scales were developed to be integrated with the PedsQL Disease-Specific Modules. The newly developed PedsQL Family Impact Module was designed to measure the imp...

journal_title：Health and quality of life outcomes

authors： Varni JW,Sherman SA,Burwinkle TM,Dickinson PE,Dixon P

更新日期：2004-09-27 00:00:00

abstract：BACKGROUND:Psoriatic arthritis (PsA) is a chronic immune-mediated inflammatory musculoskeletal disease, manifesting as peripheral arthritis, enthesitis, dactylitis, spondylitis, and skin and nail psoriasis. A core set of domains for measuring the impact of PsA has been developed, including pain, patient global assessme...

journal_title：Health and quality of life outcomes

authors： Coates LC,Orbai AM,Azevedo VF,Cappelleri JC,Steinberg K,Lippe R,Lim I,Eder L,Richette P,Weng MY,Queiro Silva R,Fallon L

更新日期：2020-06-08 00:00:00

abstract：BACKGROUND:There are very few studies about general quality of life parameters, standards for the description of health status and comparison with general population data on patients with Hereditary hemorrhagic telangiectasia (HHT), a rare disease in which epistaxis is a cardinal symptom. PURPOSE:To assess the quality...

journal_title：Health and quality of life outcomes

authors： Zarrabeitia R,Fariñas-Álvarez C,Santibáñez M,Señaris B,Fontalba A,Botella LM,Parra JA

更新日期：2017-01-23 00:00:00

abstract：BACKGROUND:Current evidence supports the use of pedometers as effective motivational tools to promote physical activity and improve health-related quality of life in the general population. The aims of this study are to examine whether a pedometer-driven walking programme can improve health-related quality of life, and...

journal_title：Health and quality of life outcomes

authors： Mansi S,Milosavljevic S,Tumilty S,Hendrick P,Baxter GD

更新日期：2013-11-01 00:00:00

abstract：BACKGROUND:The Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS) are patient-reported outcome measures developed to evaluate efficacy in clinical trials and clinical practice. The ESD is a daily electronic diary assessing symptom severity; the EIS is a weekly electronic diary assessing symptom impa...

journal_title：Health and quality of life outcomes

authors： Kitchen H,Seitz C,Trigg A,Aldhouse N,Willgoss T,Schmitz H,Gater A,Gerlinger C,Haberland C

更新日期：2021-01-06 00:00:00

abstract：BACKGROUND:The European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30 is a core questionnaire designed to evaluate health-related quality of life (HRQoL) of cancer patients participating in international clinical trials. It is available in several languages including Danish. The EORTC QLQ-TC26 is a ...

journal_title：Health and quality of life outcomes

authors： Bager L,Elsbernd A,Nissen A,Daugaard G,Pappot H

更新日期：2018-06-18 00:00:00

abstract：BACKGROUND:Dental disease and treatment experience can negatively affect the oral health related quality of life (OHRQL) of preschool aged children and their caregivers. Currently no valid and reliable instrument is available to measure these negative influences in very young children. The objective of this research wa...

journal_title：Health and quality of life outcomes

authors： Pahel BT,Rozier RG,Slade GD

更新日期：2007-01-30 00:00:00

abstract：BACKGROUND:The Japanese Osteoporosis Quality of Life (JOQOL) questionnaire measures quality of life in Japanese patients with osteoporosis. However, several important aspects of the psychometric properties of individual domains, including responsiveness, have not been addressed to enable valid clinical application. Thi...

journal_title：Health and quality of life outcomes

authors： Urushihara H,Yoh K,Hamaya E,Taketsuna M,Tanaka K

更新日期：2014-12-12 00:00:00

abstract：BACKGROUND:Symptoms of heartburn has an impact on health-related quality of life (HRQL). When a questionnaire is translated into a new language, a linguistic validation is necessary but not sufficient unless the psychometric characteristics have been verified. The aim is to document the psychometric characteristics of ...

journal_title：Health and quality of life outcomes

authors： Kulich KR,Malfertheiner P,Madisch A,Labenz J,Bayerdörffer E,Miehlke S,Carlsson J,Wiklund IK

更新日期：2003-10-28 00:00:00

abstract：BACKGROUND:The presence of multiple chronic conditions is associated with lower health related quality of life (HRQOL). Disease severity also influences HRQOL. To analyse the effects of all possible combinations of single diseases along with their severity on HRQOL seems cumbersome. Grouping diseases and their severity...

journal_title：Health and quality of life outcomes

authors： Fortin M,Dubois MF,Hudon C,Soubhi H,Almirall J

更新日期：2007-08-06 00:00:00

abstract：BACKGROUND:Pulmonary arterial hypertension (PAH) remains a life-threatening condition, despite modern therapies. We prospectively investigated the therapeutic health-related quality of life (HRQOL) effects of goal-oriented sequential combination therapy based on exercise capacity in patients newly diagnosed with PAH. ...

journal_title：Health and quality of life outcomes

authors： Hirashiki A,Adachi S,Okumura N,Nakano Y,Shimokata S,Shimizu A,Arai H,Toba K,Murohara T,Kondo T

更新日期：2019-06-14 00:00:00