Abstract:
BACKGROUND:This paper is an introduction to four papers that present the findings of the 2007 "State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living" symposium. The overall goal of this symposium was to increase our understanding and improve the health, psychosocial well-being, and community participation of adults with intellectual and developmental disabilities over their life course. METHODS:The symposium consisted of four main tracks: (1) neurodevelopmental conditions; (2) health care services, health promotion needs, and health literacy; (3) family support and intergenerational caregiving; and (4) environmental barriers and supports to community living. RESULTS/CONCLUSIONS:Recommendations offer a research agenda that would increase our knowledge on the life span trajectory for individuals with intellectual and developmental disabilities and on methods for developing and assessing effectiveness of practices and policies on individuals with intellectual and developmental disabilities, their families, and their other service providers.
journal_name
Disabil Health Jjournal_title
Disability and health journalauthors
Heller Tdoi
10.1016/j.dhjo.2008.04.001subject
Has Abstractpub_date
2008-07-01 00:00:00pages
127-30issue
3eissn
1936-6574issn
1876-7583pii
S1936-6574(08)00048-4journal_volume
1pub_type
杂志文章,评审abstract:BACKGROUND:Most studies that investigate the impact of pain on function have focused on a particular pain site and use unidimensional measures of disability, making it difficult to know how pain impacts on different areas of functioning and whether different pain characteristics impact differently on function. AIM:To ...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2013.04.007
更新日期:2013-10-01 00:00:00
abstract:BACKGROUND:Little is known about the availability and technical quality of online information related to the medical care of people with disability, despite the potential of this information to alter clinical interactions and treatment decisions. OBJECTIVES:This review examines the utility of internet search engines f...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2019.100877
更新日期:2020-04-01 00:00:00
abstract:BACKGROUND:Caregiving roles of children <18 years of age living with parents with health conditions or disability have been studied extensively abroad, but little U.S. research has examined the caregiving activities and perceptions of children with parents with significant physical disability. OBJECTIVE:To examine chi...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2015.10.009
更新日期:2016-04-01 00:00:00
abstract:BACKGROUND:Youth with disabilities experience greater levels of peer victimization and psychosocial distress than non-disabled youth. However, the extent to which exposure to peer victimization mediates the relationship between disability status and psychosocial distress is unknown. OBJECTIVE:To determine whether the ...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2014.09.006
更新日期:2015-04-01 00:00:00
abstract:BACKGROUND:Achieving and maintaining health are no less important to people with a disability than they are to anyone else; it is just typically more challenging. This report explores sport as a mechanism of health for people with a disability. The International Classification of Functioning, Disability and Health (ICF...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2009.01.002
更新日期:2009-07-01 00:00:00
abstract:BACKGROUND:Women with disabilities experience significant health disparities. A barrier to progress in addressing these disparities is the lack of population-based data on their health outcomes, which are needed to plan health care delivery systems. Administrative health data are increasingly being used to measure the ...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2020.100909
更新日期:2020-07-01 00:00:00
abstract:BACKGROUND:Adults who are deaf or hard of hearing (D/HoH) have lower levels of health literacy compared to their counterparts who can hear. It is unclear, however, whether or not this inequality manifests in adolescence. OBJECTIVE OR HYPOTHESIS:This study aims to determine levels of health literacy among D/HoH adolesc...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2020.100929
更新日期:2020-10-01 00:00:00
abstract:BACKGROUND:Young children with developmental disabilities (DDs) often experience motor skill deficits. Although parents play an important role in developing their children's motor skills, the association between parents of young children with DDs and those children's motor skills has not been widely studied. OBJECTIVE...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2020.100910
更新日期:2020-07-01 00:00:00
abstract:BACKGROUND:Limited study has been done on proxy responses for non-respondents with subjective cognitive decline (SCD) on the Behavioral Risk Factor Surveillance System (BRFSS). OBJECTIVE:To directly compare results for survey respondents with SCD with those for proxies provided for non-respondents with SCD. METHODS:P...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2016.09.004
更新日期:2017-01-01 00:00:00
abstract:BACKGROUND:While obesity can be an antecedent of disability and the prevalence of disabilities in increased in individuals with obesity, it has been highly debated whether obesity itself should be considered a disability. The European Court of justice has set a precedent in 2014, ruling that severe forms of obesity qua...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2016.06.007
更新日期:2017-01-01 00:00:00
abstract:BACKGROUND:Studies suggest that women with disabilities experience health and health care disparities before, during, and after pregnancy. However, existing perinatal health and health care frameworks do not address the needs and barriers faced by women with physical disabilities around the time of pregnancy. A new fra...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2015.05.007
更新日期:2015-10-01 00:00:00
abstract:BACKGROUND:The transition to adulthood, the gradual change in roles and responsibilities, is identified as a challenging time for adolescents and young adults with physical disabilities, including those with cerebral palsy. Health care, education, employment, independent living, and community engagement have been ident...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2016.09.008
更新日期:2017-01-01 00:00:00
abstract:BACKGROUND:Prescription opioid use among people with disabilities has not been well characterized. OBJECTIVE:To examine prescription opioid use, misuse, and use disorder, reason and source for last prescription opioid misuse, and receipt of prescription opioid treatment among people with and without disabilities. MET...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2018.12.001
更新日期:2019-07-01 00:00:00
abstract:BACKGROUND:Learning disabilities and attention disorders (LD/AD) are highly prevalent neurodevelopmental conditions that influence developmental trajectories and whose impacts exist throughout the life course. Self-advocacy skills are critical for college students with LD/AD, which are underpinned by understanding of s...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2019.100827
更新日期:2020-01-01 00:00:00
abstract:BACKGROUND:The accessibility of public facilities for all is an issue increasingly gaining focus in policy debates, especially regarding the ageing population. OBJECTIVE:This paper describes a psychometric approach to the development of a new instrument for assessing the accessibility of public entrances. METHODS:Ite...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2019.02.007
更新日期:2019-07-01 00:00:00
abstract:BACKGROUND:Individuals with spinal cord injury (SCI) consume more dietary supplements than the general population. However, there is limited information regarding the clinical effectiveness of dietary supplements in SCI population. OBJECTIVE:To systematically review the effectiveness of dietary supplements for the pre...
journal_title:Disability and health journal
pub_type: 杂志文章,评审
doi:10.1016/j.dhjo.2016.12.002
更新日期:2017-04-01 00:00:00
abstract:BACKGROUND:Numerous studies have reported people with disabilities are more likely to be obese and engaged in unhealthy lifestyles. Few studies explored the mechanism of health-related lifestyles and obesity among people with disabilities. OBJECTIVE:We aimed to investigate health-related lifestyles and obesity in rela...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2018.08.007
更新日期:2019-01-01 00:00:00
abstract:BACKGROUND:Patient at Risk (PAR) is an online database using an emergency information form (EIF) that parents of children with special health care needs (CSHCN) complete to store their child's medical information. Emergency medical service (EMS) providers can then access PAR during medical emergencies or for pre-planni...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2019.100852
更新日期:2020-04-01 00:00:00
abstract:BACKGROUND:Middle-aged and older African American women experience disproportionate rates of functional limitations and disability from osteoarthritis (OA) compared to other racial ethnic groups; however, little is known about what factors contribute to this disparity within African American women. OBJECTIVE:To examin...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2016.02.004
更新日期:2016-07-01 00:00:00
abstract:BACKGROUND:Florida has the third largest population in the U.S. of persons living with disabilities, making optimizing health outcomes for this population paramount. Though the state has a long-standing and robust program to reduce tobacco use, prevention efforts do not specifically target persons with disabilities. O...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2013.01.008
更新日期:2013-07-01 00:00:00
abstract:BACKGROUND:Health and recreation practitioners play an important role in promoting and supporting leisure time physical activity (LTPA) among persons with physical disabilities (PWPD), yet many practitioners lack training and education to provide the basic knowledge, skills, and resources necessary.1 Little is known ab...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2019.06.007
更新日期:2019-10-01 00:00:00
abstract:BACKGROUND:Female sterilization accounts for 50% of all contraceptive use in the U.S. The extent to which U.S. women with physical and/or sensory disabilities have undergone female sterilization is unknown. OBJECTIVE:Our primary objective was to determine the prevalence of sterilization for women with physical/sensory...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2016.12.020
更新日期:2017-07-01 00:00:00
abstract:BACKGROUND:A substantial and increasing population of US women of childbearing age live with disability. Disability-based disparities in access to family planning services have been previously documented, but few studies have used population-based data sources or evidence-based measures of disability. OBJECTIVE:To det...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2017.03.014
更新日期:2017-07-01 00:00:00
abstract:BACKGROUND:Universal access and equity are salient principles of the World Health Organization global action plan 'Towards Universal Eye Health'. However, collection of disability-disaggregated data to measure access to eye hospitals in low- and middle income countries, including referral to rehabilitative services, ar...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2018.07.005
更新日期:2018-10-01 00:00:00
abstract:BACKGROUND:Parents caring for a child with a rare disease report unmet needs, the origins of which are varied and complex. Few studies have systematically attempted to identify the supportive care needs of parents with a child with a rare disease comprehensively. We have used the widely accepted Supportive Care Needs F...
journal_title:Disability and health journal
pub_type: 杂志文章,评审
doi:10.1016/j.dhjo.2015.03.009
更新日期:2015-10-01 00:00:00
abstract:BACKGROUND:Stroke reduces active life expectancy, both years lived and their proportion without disability. However, active life expectancy studies have provided limited information about strokes in the United States, those occurring throughout older life, or those affecting African Americans. OBJECTIVE:To measure ass...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2014.06.005
更新日期:2014-10-01 00:00:00
abstract:BACKGROUND:To implement appropriate programs for promoting physical activity (PA) in people who are Deaf, it is important to have valid instruments for assessing PA in this population. OBJECTIVE:The main purpose of this study was to examine the criterion validity of the short form of the International Physical Activit...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2016.06.005
更新日期:2017-01-01 00:00:00
abstract:BACKGROUND:There is substantial evidence that pain intensity and sleep are related, with findings generally suggesting more support for the influence of sleep on pain intensity than vice versa. However, the strength and direction of the relationship has been found to vary among different populations, with few studies i...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2020.100908
更新日期:2020-07-01 00:00:00
abstract::The concept of disability has medical, functional, and social components. We review the frameworks for the definition of disability and endorse a multidimensional approach that is parsimonious and has utility for epidemiology. We need to be able to count people with disabilities to quantify service and support needs, ...
journal_title:Disability and health journal
pub_type: 杂志文章,评审
doi:10.1016/j.dhjo.2010.06.002
更新日期:2011-01-01 00:00:00
abstract::This article reviews much of the history of the Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities and its implications 5 years after publication. This article also reviews historical trends related to disability legislation such as the Social Security Act, the Civil Right...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2010.07.004
更新日期:2010-10-01 00:00:00