Abstract:
BACKGROUND:Patient at Risk (PAR) is an online database using an emergency information form (EIF) that parents of children with special health care needs (CSHCN) complete to store their child's medical information. Emergency medical service (EMS) providers can then access PAR during medical emergencies or for pre-planning. PAR was active for over 10 years but use by patients and EMS was limited. OBJECTIVE:To determine EMS perspectives on why PAR was not used to its full potential and how to improve PAR for EMS. METHODS:Seven questions regarding PAR were developed and presented in focus groups at 32 fire/ambulance houses in southeast and central Wisconsin from June to August 2017. Responses were transcribed and reviewed for themes. RESULTS:146 EMS providers participated and 11% were aware of PAR. Many did not use PAR because of a lack of follow up or barriers such as limited internet access, inconvenience, other urgent responsibilities, and not knowing when to use PAR. Solutions to these issues include developing or purchasing new technology, involving the dispatch operator in PAR, and returning to a paper-based EIF. The EIF layout and content received very positive reviews with few changes suggested. Most providers felt PAR was important because it would help them provide better care and feel more comfortable treating CSHCN. CONCLUSION:Despite technological and logistical barriers, EMS providers want online EIF databases for pre-planning and utilization during ambulance runs so they can practice more informed and focused care, especially for vulnerable and medically challenging CSHCN.
journal_name
Disabil Health Jjournal_title
Disability and health journalauthors
Piibe Q,Kane E,Melzer-Lange M,Beckmann Kdoi
10.1016/j.dhjo.2019.100852subject
Has Abstractpub_date
2020-04-01 00:00:00pages
100852issue
2eissn
1936-6574issn
1876-7583pii
S1936-6574(19)30164-5journal_volume
13pub_type
杂志文章abstract:BACKGROUND:Between 250,000 and 400,000 individuals in the United States are diagnosed with Down syndrome (DS). Nearly all adults with DS will develop Alzheimer's disease pathology starting in their thirties. Recent studies suggest that increased physical activity (PA) may be important for maintaining components of cogn...
journal_title:Disability and health journal
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.dhjo.2018.02.003
更新日期:2018-07-01 00:00:00
abstract:BACKGROUND:Youth with disabilities experience greater levels of peer victimization and psychosocial distress than non-disabled youth. However, the extent to which exposure to peer victimization mediates the relationship between disability status and psychosocial distress is unknown. OBJECTIVE:To determine whether the ...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2014.09.006
更新日期:2015-04-01 00:00:00
abstract:BACKGROUND:50% of patients with Chiari Malformation (CM) report a history of depression; however, rates of other psychological symptoms are unknown. Further, it is unclear whether surgical correction impacts pain, disability, and psychological symptoms. OBJECTIVE:/Hypothesis: We examined rates of symptoms in a nationw...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2019.05.004
更新日期:2019-10-01 00:00:00
abstract:BACKGROUND:Studies suggest that women with disabilities experience health and health care disparities before, during, and after pregnancy. However, existing perinatal health and health care frameworks do not address the needs and barriers faced by women with physical disabilities around the time of pregnancy. A new fra...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2015.05.007
更新日期:2015-10-01 00:00:00
abstract:BACKGROUND:the purpose of this study was to describe the distribution and relationship of 16 secondary medical problems, impairments, and participation limitations among adults with disabilities to demographic characteristics, self-reported health, satisfaction with life, and social participation. METHODS:data were an...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2007.11.006
更新日期:2008-01-01 00:00:00
abstract:BACKGROUND:Female sterilization accounts for 50% of all contraceptive use in the U.S. The extent to which U.S. women with physical and/or sensory disabilities have undergone female sterilization is unknown. OBJECTIVE:Our primary objective was to determine the prevalence of sterilization for women with physical/sensory...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2016.12.020
更新日期:2017-07-01 00:00:00
abstract:BACKGROUND:Emerging research demonstrates that light-intensity physical activity is favorably associated with numerous health outcomes among the general population, even independent of high-intensity physical activity. OBJECTIVE:To examine the association between accelerometer-assessed light-intensity physical activit...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2017.08.007
更新日期:2018-04-01 00:00:00
abstract:BACKGROUND:Achieving and maintaining health are no less important to people with a disability than they are to anyone else; it is just typically more challenging. This report explores sport as a mechanism of health for people with a disability. The International Classification of Functioning, Disability and Health (ICF...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2009.01.002
更新日期:2009-07-01 00:00:00
abstract:BACKGROUND:Adults who are deaf or hard of hearing (D/HoH) have lower levels of health literacy compared to their counterparts who can hear. It is unclear, however, whether or not this inequality manifests in adolescence. OBJECTIVE OR HYPOTHESIS:This study aims to determine levels of health literacy among D/HoH adolesc...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2020.100929
更新日期:2020-10-01 00:00:00
abstract:BACKGROUND:Disability is not just a health problem. It is a wider phenomenon that reflects the gap between a person's capacities and their ability to fully perform the role demanded by society. Both personal and environmental factors are major contributors to disability. OBJECTIVE:We aimed to estimate the prevalence o...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2020.101043
更新日期:2020-11-19 00:00:00
abstract:BACKGROUND:Advances in medical care have increased the long-term survival of patients with spina bifida. Despite this growing population, limited knowledge is available on age-related illnesses in adults with spina bifida, particularly prostate cancer for which there is no published data. OBJECTIVE:Our aim was to desc...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2019.100866
更新日期:2020-04-01 00:00:00
abstract:BACKGROUND:There is a need to examine health care utilization of individuals with the rare conditions muscular dystrophies, spina bifida, and fragile X syndrome. These individuals have a greater need for health care services, particularly inpatient admissions. Prior studies have not yet assessed 30-day all-cause readmi...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2018.08.009
更新日期:2019-04-01 00:00:00
abstract:BACKGROUND:Adults with multiple sclerosis (MS) have many health problems that can interfere with healthy nutritional behaviors. Self-management activities (e.g., strategies used to manage emotions and functional limitations) may help facilitate engagement in healthy nutritional behaviors. However, few studies have docu...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2012.05.007
更新日期:2012-10-01 00:00:00
abstract:BACKGROUND:Middle-aged and older African American women experience disproportionate rates of functional limitations and disability from osteoarthritis (OA) compared to other racial ethnic groups; however, little is known about what factors contribute to this disparity within African American women. OBJECTIVE:To examin...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2016.02.004
更新日期:2016-07-01 00:00:00
abstract::The purpose of this paper is to provide a background to chronic conditions and disability and introduce manuscripts that were part of a recent forum examining this issue. The paper begins with an overview of definitions of disability and chronic conditions. It then presents several reasons why disentangling chronic co...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2013.10.001
更新日期:2014-01-01 00:00:00
abstract:BACKGROUND:Perceived social support has been found to be associated with depression, subjective well-being and psychological health in cross-sectional studies in people with physical disabilities. No longitudinal studies have been conducted to examine these associations over time using a comprehensive measure of social...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2018.09.005
更新日期:2019-04-01 00:00:00
abstract:BACKGROUND:Adolescents with disabilities (AWD) often report higher loneliness levels than adolescents without disabilities, as they frequently encounter barriers to social participation. A negative relationship between physical activity (PA) and loneliness has been established outside of AWD populations, while few stud...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2021.101060
更新日期:2021-01-09 00:00:00
abstract:BACKGROUND:Florida has the third largest population in the U.S. of persons living with disabilities, making optimizing health outcomes for this population paramount. Though the state has a long-standing and robust program to reduce tobacco use, prevention efforts do not specifically target persons with disabilities. O...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2013.01.008
更新日期:2013-07-01 00:00:00
abstract:BACKGROUND:Hip osteoarthritis, a common age-associated condition, produces considerable disability that may be influenced by a variety of factors other than age. This study examines the magnitude and impact of the presence of comorbid and/or concurrent depression and anxiety symptoms on the disability experienced befor...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2008.10.001
更新日期:2009-01-01 00:00:00
abstract:BACKGROUND:Limited study has been done on proxy responses for non-respondents with subjective cognitive decline (SCD) on the Behavioral Risk Factor Surveillance System (BRFSS). OBJECTIVE:To directly compare results for survey respondents with SCD with those for proxies provided for non-respondents with SCD. METHODS:P...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2016.09.004
更新日期:2017-01-01 00:00:00
abstract:BACKGROUND:Health care improvements have led to increased survival among stroke patients; however, the disability level remains high. These patients require assistance from caregivers, particularly in the first year after stroke. Longitudinal studies of quality of life (QoL) and the factors associated with QoL for both...
journal_title:Disability and health journal
pub_type: 杂志文章,多中心研究
doi:10.1016/j.dhjo.2015.10.007
更新日期:2016-04-01 00:00:00
abstract:BACKGROUND:Most studies that investigate the impact of pain on function have focused on a particular pain site and use unidimensional measures of disability, making it difficult to know how pain impacts on different areas of functioning and whether different pain characteristics impact differently on function. AIM:To ...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2013.04.007
更新日期:2013-10-01 00:00:00
abstract:BACKGROUND:In low-income countries, like Malawi, approaches aimed at improving access to household sanitation for persons with disabilities have been limited, and often do not include post-intervention process evaluations. 6% of Malawi's population reports defecating outside rather than in a sanitation facility, and 4%...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2019.05.007
更新日期:2019-10-01 00:00:00
abstract:BACKGROUND:Adolescents with intellectual and developmental disabilities (IDD) have high rates of obesity. However, little research has been conducted demonstrating effective strategies and barriers for weight loss or weight management in adolescents with IDD. Furthermore, parents play a large role in terms of weight ma...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2015.07.003
更新日期:2016-01-01 00:00:00
abstract::The concept of disability has medical, functional, and social components. We review the frameworks for the definition of disability and endorse a multidimensional approach that is parsimonious and has utility for epidemiology. We need to be able to count people with disabilities to quantify service and support needs, ...
journal_title:Disability and health journal
pub_type: 杂志文章,评审
doi:10.1016/j.dhjo.2010.06.002
更新日期:2011-01-01 00:00:00
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journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2018.05.004
更新日期:2018-10-01 00:00:00
abstract:BACKGROUND:Young adults with cerebral palsy (CP) are reported to be less active than their typically developing peers, have higher rates of sedentary behaviors, engage in slower tempo activities, and overall participate in a smaller variety of physical activities (PA). Functional motor level and environmental barriers ...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2019.02.008
更新日期:2019-07-01 00:00:00
abstract:BACKGROUND:Deaf American Sign Language (ASL) users comprise a linguistic minority population with poor health care access due to communication barriers and low health literacy. Potentially, these health care barriers could increase Emergency Department (ED) use. OBJECTIVE:To compare ED use between deaf and non-deaf pa...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2015.05.004
更新日期:2015-10-01 00:00:00
abstract:BACKGROUND:There is substantial evidence that pain intensity and sleep are related, with findings generally suggesting more support for the influence of sleep on pain intensity than vice versa. However, the strength and direction of the relationship has been found to vary among different populations, with few studies i...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2020.100908
更新日期:2020-07-01 00:00:00
abstract:BACKGROUND:Caregiving roles of children <18 years of age living with parents with health conditions or disability have been studied extensively abroad, but little U.S. research has examined the caregiving activities and perceptions of children with parents with significant physical disability. OBJECTIVE:To examine chi...
journal_title:Disability and health journal
pub_type: 杂志文章
doi:10.1016/j.dhjo.2015.10.009
更新日期:2016-04-01 00:00:00