Abstract:
:Purpose: To identify current practices related to the assessment, monitoring and discussion of bodyweight, growth and obesity in neuromuscular clinics for children with Duchenne muscular dystrophy (DMD).Methods: A cross-sectional, online survey was distributed using snowball sampling to healthcare providers working with children with DMD across Canadian neuromuscular clinics. Summary and descriptive statistics were calculated. Content analysis was performed on open text responses.Results: Thirty-seven responses were received, representing a range of healthcare disciplines. Height and weight were routinely assessed by 32/37 (87%) respondents, although only 21/37 (57%) responses reported having a clinic standard for measuring height and 23/37 (62%) for weight. While 32/36 (89%) reported discussing weight during consultations, only 13/37 (35%) felt confident doing so. Dietitians were considered the most appropriate person to discuss and manage weight with children and families, although only 17/37 (46%) reported having a dietitian involved in their clinic.Conclusions: Neuromuscular clinics could benefit from implementing consistent and recommended growth assessment practices. The development of evidence-based tools, training and protocols tailored to Duchenne muscular dystrophy should be a priority.IMPLICATIONS FOR REHABILITATIONGrowth and weight monitoring approaches vary within and between neuromuscular clinics.Additional training on discussing and managing weight are warranted across disciplines.Advocacy is required to ensure access to dietetic expertise within neuromuscular clinics.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
McPherson AC,Amin R,McAdam L,Kalnins D,Lui Tdoi
10.1080/09638288.2020.1725155subject
Has Abstractpub_date
2020-02-14 00:00:00pages
1-6eissn
0963-8288issn
1464-5165pub_type
杂志文章abstract:PURPOSE:The purpose of this study is to assess the visual problems of people with intellectual disability in residential and community-based facilities. METHOD:A purposive sample of 146 male and female adults, aged 21 and older, living in residential facilities and community-based homes in the southern region of Israe...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280500052898
更新日期:2005-12-15 00:00:00
abstract:PURPOSE:To assess the utility of virtual reality (VR) in stroke rehabilitation. METHOD:The Medline, Proquest, AMED, CINAHL, EMBASE and PsychInfo databases were electronically searched from inception/1980 to February 2005, using the keywords: Virtual reality, rehabilitation, stroke, physiotherapy/physical therapy and h...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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journal_title:Disability and rehabilitation
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
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abstract::Objective: Pilot test GoWoman, a small-group weight management intervention for mobility impaired women that was a disability- and gender-responsive adaptation of the Diabetes Prevention Program delivered in the online virtual world of Second Life®. Objectives were to (1) examine pre-/post-intervention differences in ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2019-11-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2012-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1479455
更新日期:2019-11-01 00:00:00
abstract:PURPOSE:To cross-culturally translate the Multiple Sclerosis Spasticity Scale into Italian and to evaluate its psychometric properties in patients with multiple sclerosis. METHODS:The Italian version of Multiple Sclerosis Spasticity Scale was developed in accordance with international standards and subsequently admini...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1393699
更新日期:2019-02-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2017-10-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2013.769635
更新日期:2013-01-01 00:00:00
abstract:PURPOSE:Quality of Life (QoL) is an important outcome measure in health care and pharmacological trials. The trend towards multinational clinical trials may be problematic because it is unclear as to whether, or to what extent, QoL-measures are comparable across cultures. This study compared QoL between English and Ger...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110072913
更新日期:2001-12-15 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001645094
更新日期:2004-01-07 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1111434
更新日期:2016-10-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2013.770084
更新日期:2013-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1327991
更新日期:2018-09-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1863483
更新日期:2020-12-28 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289509166625
更新日期:1995-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1055374
更新日期:2016-01-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.720635
更新日期:2013-07-01 00:00:00
abstract:PURPOSE:The purpose of this study is to cross-culturally adapt the Knee Outcome Survey-Activities of Daily Living Scale into Arabic and to assess its psychometric properties (internal consistency, reliability, validity, and responsiveness) in patients with knee disorders. METHODS:The cross-cultural adaptation process ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1313319
更新日期:2018-07-01 00:00:00
abstract:PURPOSE:The Arm propelled three wheeled chair (APTWC) is in common use in the economically poor countries for outdoor ambulation, the propulsion force of which is exerted by arm cranking in asynchronous fashion. The purpose of the study was to assess the ambulatory performance of the users of the device using heart rat...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280050045947
更新日期:2000-07-10 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2017-07-01 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
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更新日期:2020-02-20 00:00:00
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journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1503735
更新日期:2020-02-01 00:00:00