Abstract:
:Purpose: To examine how conceptualizations of caregiver adaptation to traumatic brain injury have changed over time. The objectives were to identify research traditions, adaptive outcomes assessed in these traditions, and psychosocial variables associated with adaptive outcomes.Methods: A meta-narrative review was conducted on 29 identified articles published over a 25-year period (1990-2015).Results: Four traditions were identified with varying storylines. Burden/Strain (1990-1999) focused on adjustment as the absence of a negative state. Appraisal/Coping (2000-2005) recognized that caregiving experiences could be both positive and negative. In Quality of Life (2006-2011), there was increasing recognition that both personal and contextual factors influence adaptation. Resiliency (2012-2015) used the term "resiliency" as an organizing framework for a broad group of variables and assessed resilience, quality of life, community re-integration, and life/marital satisfaction.Conclusions: These storylines reflect an evolution from problem-based to strengths-based conceptualizations, from interest in crisis to considering adaptation as a process unfolding over time, from quantitative to qualitative methods, and towards more holistic views of adaptive outcomes. Variables significantly associated with outcomes across the traditions included social support, reframing and positive appraisal, and behavior strategies. Implications concern the need for longitudinal studies, measurement of environmental factors, and the development of best practices.IMPLICATIONS FOR REHABILITATIONResearch studies on the adaptation of caregivers for people with TBI have evolved from a focus on burden, to coping and quality of life, and most recently to resiliency.It is important to assist caregivers of people with TBI to obtain social support, find positive ways of viewing their experiences, and take part in respite and enjoyed activities.Service providers can help caregivers by adopting a strengths-based perspective to help them recognize available resources, supports, and opportunities.Since caregiver adaptation changes over time, service providers should pay attention to changes in family circumstances and the mental health of caregivers.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
King G,Nalder E,Stacey L,Hartman LRdoi
10.1080/09638288.2020.1725158subject
Has Abstractpub_date
2020-02-20 00:00:00pages
1-15eissn
0963-8288issn
1464-5165pub_type
杂志文章abstract::Aims: The aim of this study was to examine whether and how intended processes of behavioural change were reflected in participants' experiences after an inpatient occupational rehabilitation programme. The programme was transdiagnostic, lasted 3½ weeks and was based on the acceptance and commitment therapy model.Metho...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.1080/09638288.2018.1490824
更新日期:2019-12-01 00:00:00
abstract::This paper critically reviews medical approaches to the identification and treatment of disability. The medical model locates disability within individuals. By contrast, this paper argues that disability cannot be understood outside its social context. As such, some of the assumptions about normality and difference wh...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289709166831
更新日期:1997-03-01 00:00:00
abstract:PURPOSE:To synthesize qualitative studies on adjusting after stroke, from stroke survivors' and carers' perspectives, and to outline their potential contribution to an understanding of resilience. METHODS:A systematic review of qualitative studies in peer reviewed journals from 1990 to 2011 was undertaken. Findings fr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2013.814724
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:We report two cases of perioperative rehabilitation for abdominal cancer patients aged 75 years and older with severe chronic obstructive pulmonary disease (COPD). CASE DESCRIPTION:Case 1 was a 75-year-old man with COPD and 52-year history of smoking 30 cigarettes per day. The patient was diagnosed with gastri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.591890
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:Chronic inflammatory demyelinating polyneuropathy (CIDP) is a disorder affecting the peripheral nerves. The purpose of this study was to describe disability and health status in patients with CIDP in Sweden. METHODS:All 22 adult patients with CIDP at the Karolinska University Hospital, Huddinge were invited to...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802306497
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:The purpose of this study was to identify what acute care variables and/or perceived recovery factors could predict decreased participation in physical activities post-mild stroke. METHODS:Secondary analysis of persons with mild stroke. Participants were split into two groups based on the percentage of high-de...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.720635
更新日期:2013-07-01 00:00:00
abstract:PURPOSE:To evaluate discriminative validity, relative reliability and absolute reliability of four tablet-based tests for the evaluation of upper limb motor function in healthy persons and patients with neurological disorders. METHODS:Cross-sectional study in 54 participants: 29 patients with upper limb movement impai...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1800838
更新日期:2020-08-05 00:00:00
abstract:PURPOSE:There has been a recent development of the work physical therapy area in Brazil. The relationship between work physical therapy and rehabilitation ergonomics needs to be highlighted to avoid segregation and fragmentation of these complementary fields. For these reasons, the purpose of this article was to review...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600638182
更新日期:2006-12-30 00:00:00
abstract:PURPOSE:This randomized trial compared 6- and 12-month outcomes of a home-based psychoeducational program to mailed information provided to 159 survivors of stroke (SS) and their spousal caregivers (CG). METHODS:SS (age 50+) and CG were recruited as dyads post-discharge from inpatient rehabilitation. All dyads receive...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,随机对照试验
doi:10.3109/09638288.2013.777806
更新日期:2014-01-01 00:00:00
abstract::An innovative method to structure multidisciplinary team conferences in rehabilitation medicine was developed: Rehabilitation Activities Profile report system (RAP-TEAM). Experiences with introduction of RAP-TEAM and the study of its effects on the satisfaction of professionals are described. RAP-TEAM was introduced i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289609165898
更新日期:1996-07-01 00:00:00
abstract:PURPOSE:To review prevailing models of disability management and prevention with respect to communication, and to suggest alternative approaches. METHOD:Review of selected articles. RESULTS:Effective disability management and return to work strategies have been the focus of an increasing number of intervention progra...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280410001672517
更新日期:2004-06-03 00:00:00
abstract:PURPOSE:This retrospective case report describes a 22-year-old woman with McCune Albright Syndrome who was an archery Bronze Medalist at the 2008 USA Paralympic Games. METHODS:The subject completed the Medical Outcome Survey Short Form-36 (SF-36) and the Hip Dysfunction and Osteoarthritis Score (HOOS). RESULTS:SF-36 ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903186319
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:To date, there have been no longitudinal studies comparing walking at different levels of amputation. The objective of this study was to compare the self-selected walking velocity (SSWV) and selected physiologic variables during walking between a Syme and a later transtibial level of amputation for a single sub...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280310001608618
更新日期:2003-12-02 00:00:00
abstract:PURPOSE:To establish the feasibility and effectiveness of a community-based exercise programme for ambulatory patients with stroke discharged from rehabilitation. METHOD:Eighteen participants were recruited 3-12 months after onset of first stroke. Using a time series experimental design, the group completed a baseline...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903095916
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:To study the impact on health status as measured by SF-36 in groups of subjects having chronic musculoskeletal pain with different degree of generalization: No chronic pain (NCP), chronic regional pain (CRP), chronic widespread pain (CWP), CWP with a stricter 'Manchester' definition (CWP-M), and clinically defi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400009030
更新日期:2005-06-17 00:00:00
abstract:UNLABELLED:The purpose of this study was to understand how neighbourhoods - as physical and social environments - influence community mobility. Seeking an insider's perspective, the study employed an ethnographic research design. Immersed within the daily lives of 6 older adults over an 8-month period, auditory, textua...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.837970
更新日期:2014-01-01 00:00:00
abstract:OBJECTIVE:To study the effects of spasticity, sensory impairment, and type of walking aid on falls in community dwellers with chronic stroke. METHODS:Functional Independence Measure (FIM) Instrument, Joint Position Sense Evaluation (JPS), the Rivermead motor assessment scale (RMA), Ashworth Scale, Tinetti Assessment T...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280600925860
更新日期:2007-05-15 00:00:00
abstract::Purpose: To ascertain stakeholders' agreement and disagreement about inter-professional collaboration (IPC) when supporting the child with a developmental language disorder (DLD) in school.Materials and methods: Two rounds of an online Delphi survey were undertaken with a purposive sample of 26 participants (researche...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1725154
更新日期:2020-02-17 00:00:00
abstract:PURPOSE:Upper limb amputations cause severe functional disability and lower the patient's self body image, with severe psychological implications. Many parameters are involved in the successful rehabilitation of upper limb amputations. The aim of this study was to investigate whether there are any parameters that might...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001645094
更新日期:2004-01-07 00:00:00
abstract:PURPOSE:The best approach to delivering advanced gross motor skills interventions for children with cerebral palsy (CP) is unknown. This study's aim was to assess trial feasibility and compare effectiveness of sports skills movement training (Brain change after Fun, Athletic Sports skills Training [BeFAST]) to conventi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1851779
更新日期:2020-12-22 00:00:00
abstract:PURPOSE:The problem of complex healthcare to MS patients, together with the rising prevalence of MS and escalating costs, has caused healthcare policy makers to consider innovative approaches to controlling costs and improving the quality of care. An integrated care approach may provide a means for better coordination ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280600845555
更新日期:2007-04-15 00:00:00
abstract::Purpose: The aim was to explore personal experiences of pain in people with motor neuron disease.Materials and methods: Sixteen participants were individually interviewed on one occasion concerning their experiences of presentation, consequences, and management of pain. Qualitative content analysis with researcher tri...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1555615
更新日期:2020-07-01 00:00:00
abstract::Purpose: To identify current practices related to the assessment, monitoring and discussion of bodyweight, growth and obesity in neuromuscular clinics for children with Duchenne muscular dystrophy (DMD).Methods: A cross-sectional, online survey was distributed using snowball sampling to healthcare providers working wi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1725155
更新日期:2020-02-14 00:00:00
abstract:OBJECTIVE:To determine if positive emotion modifies the relationship between cognitive impairment and activities of daily living disability status over 10 years in Mexican American adults aged 75 years and older. METHODS:A retrospective cohort design using data from the Hispanic established populations for the epidemi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1432080
更新日期:2019-06-01 00:00:00
abstract:PURPOSE:To systematically review the evidence about the effectiveness of manual therapy (MT) on pain intensity, frequency and impact of headache in individuals with tension-type headache (TTH). METHODS:Medline, Embase, Scopus, Web of Science, CENTRAL, and PEDro were searched in June 2020. Randomized controlled trials ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1813817
更新日期:2020-09-12 00:00:00
abstract:PURPOSE:This article discusses the complex interrelation of elements of the physical, psychological, social, and environmental life context of women with physical disabilities and the association of these elements with significant disparities in rates of depression and access to mental health care for this population. ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280701532219
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:This paper discusses how vocational rehabilitation (VR) in Australia has been captured by economic concerns, leading to its failure to deliver promised outcomes. Both public and private sector VR in Australia have undergone significant changes over the last two decades. The demise of non-profit and socially-bas...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.1080/09638280600919731
更新日期:2007-05-30 00:00:00
abstract:PURPOSE:The use of DVD stories about people with developmental disabilities within inter-professional education (IPE) across healthcare disciplines was evaluated. METHODS:First year healthcare students (n = 241) from an IPE unit responded to an attitude scale before and after viewing and discussing a DVD portraying th...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.520802
更新日期:2011-01-01 00:00:00
abstract::Purpose: This study aims to explore the physical, psychological and social wellbeing of veterans who have experienced limb-loss and to ascertain the factors that contribute to the ability of veterans to maintain their independence at various stages in their lives.Methods: Sixty two life-story interviews were conducted...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1734875
更新日期:2020-03-03 00:00:00
abstract:PURPOSE:Conventional phase II cardiac rehabilitation (CR) programmes have not resulted in an improvement in returning coronary heart disease (CHD) patients to work in over 35 years. This 4 year field-initiated research, sponsored by the National Institute on Disability and Rehabilitation Research, compares conventional...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280050138287
更新日期:2000-09-10 00:00:00