Reducing Barriers to Patient-Reported Outcome Measures for People With Cognitive Impairments.

Abstract:

:The field of rehabilitation has increasingly called for the use of patient-reported outcome measures (PROMs) in research and practice. Given that many rehabilitation patients present with conditions associated with cognitive impairments, it is imperative to reduce barriers to PROM use for this population. The purpose of this article is to develop a comprehensive understanding of cognitive accessibility that can prospectively inform the design of PROMs. We put forth the following definition of cognitive accessibility for PROMs: cognitive accessibility is present when assessment design anticipates respondent variability in cognitive abilities and, to the greatest extent possible, reduces cognitive demands and/or supports cognitive processes to enable respondents with a range of cognitive abilities to interpret and respond to assessment items as intended. Our operationalization of cognitive accessibility in measurement in the field of rehabilitation is informed by 2 assumptions: (1) cognitive accessibility results from an interaction between the individual's capacities and the demands of the assessment and assessment context, and (2) individuals with cognitive impairments have the right to be involved in decisions about their lives, including health care decisions. This article proposes 3 design features that can be optimized for cognitive accessibility: content, layout, and administration procedures. We end with a discussion of next steps that the field of rehabilitation measurement can undertake to advance our understanding of cognitive accessibility.

journal_name

Arch Phys Med Rehabil

authors

Kramer JM,Schwartz A

doi

10.1016/j.apmr.2017.03.011

subject

Has Abstract

pub_date

2017-08-01 00:00:00

pages

1705-1715

issue

8

eissn

0003-9993

issn

1532-821X

pii

S0003-9993(17)30225-3

journal_volume

98

pub_type

杂志文章
  • Intratester reliability of the Nicholas Manual Muscle Tester on individuals with intellectual disabilities by a tester having minimal experience.

    abstract::The purpose of this investigation was to determine the intratester reliability of measurements obtained with the Nicholas Manual Muscle Tester (NMMT) by a tester having minimal experience on individuals with intellectual disabilities. Seventeen individuals classified as moderately mentally retarded between the ages of...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Horvat M,Croce R,Roswal G

    更新日期:1994-07-01 00:00:00

  • Low-energy helium neon laser treatment of thumb osteoarthritis.

    abstract::Eighty-one patients with symptomatic osteoarthritis of the thumb took part in a blinded, controlled study to assess the effectiveness of 0.9 mw continuous wave HeNe laser treatment. The subjects were randomly placed in either a control group or a treatment group. In each group the carpometacarpal (CMC), metacarpophala...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:

    authors: Basford JR,Sheffield CG,Mair SD,Ilstrup DM

    更新日期:1987-11-01 00:00:00

  • Short-term outcomes of a back school program for chronic low back pain.

    abstract:OBJECTIVE:To assess the short-term outcome of a back school program for patients suffering from chronic, nonspecific low back pain (LBP). DESIGN:Quasi-experimental cohort study with a waiting list control group. SETTING:Dutch rehabilitation department. PARTICIPANTS:Experimental group (n = 14) participating in the ba...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1053/apmr.2001.23899

    authors: Hodselmans AP,Jaegers SM,Göeken LN

    更新日期:2001-08-01 00:00:00

  • Patient experience of neurologic rehabilitation: a qualitative investigation.

    abstract:OBJECTIVE:To understand the experiences of patients who had undergone neurologic rehabilitation. DESIGN:An interpretative phenomenological analysis of semistructured interviews. SETTING:Neurologic rehabilitation unit. PARTICIPANTS:A purposive convenience sample of 8 past patients. INTERVENTIONS:Not applicable. MAI...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2007.11.050

    authors: Wain HR,Kneebone II,Billings J

    更新日期:2008-07-01 00:00:00

  • The Erlangen Fitness Osteoporosis Prevention Study: a controlled exercise trial in early postmenopausal women with low bone density-first-year results.

    abstract:OBJECTIVE:To investigate the effect of a 2-year vigorous, combined high-impact, strength, and endurance training program on bone mineral density (BMD) determined by dual-energy x-ray absorptiometry (DXA), quantitative computed tomography (QCT), and ultrasound in early postmenopausal women with osteopenia. DESIGN:Nonra...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0003-9993(02)04908-0

    authors: Kemmler W,Engelke K,Weineck J,Hensen J,Kalender WA

    更新日期:2003-05-01 00:00:00

  • Neuropsychologic and functional outcome after complicated mild traumatic brain injury.

    abstract:OBJECTIVE:To investigate the extent to which neuropsychologic and functional outcome after complicated mild traumatic brain injury (TBI) parallels that of moderate TBI recovery. DESIGN:A longitudinal study comparing neuropsychologic and functional status of persons with complicated mild TBI and moderate TBI at dischar...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2007.12.029

    authors: Kashluba S,Hanks RA,Casey JE,Millis SR

    更新日期:2008-05-01 00:00:00

  • Electromyogram-triggered neuromuscular stimulation for improving the arm function of acute stroke survivors: a randomized pilot study.

    abstract:OBJECTIVE:To assess the efficacy of electromyogram (EMG)-triggered neuromuscular stimulation (EMG-stim) in enhancing upper extremity motor and functional recovery of acute stroke survivors. DESIGN:A pilot randomized, single-blinded clinical trial. SETTING:Freestanding inpatient rehabilitation facility. PATIENTS:Nine...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 临床试验,杂志文章,随机对照试验

    doi:10.1016/s0003-9993(98)90074-0

    authors: Francisco G,Chae J,Chawla H,Kirshblum S,Zorowitz R,Lewis G,Pang S

    更新日期:1998-05-01 00:00:00

  • Sensory loss in stroke patients: effective training of tactile and proprioceptive discrimination.

    abstract::Although somatosensory loss following stroke is common, with negative consequences for functional outcome, studies of existing somatosensory retraining programs are limited by theoretical weaknesses, poor methodology, and negative findings. We, therefore, developed a new program for stroke patients and investigated it...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/0003-9993(93)90158-7

    authors: Carey LM,Matyas TA,Oke LE

    更新日期:1993-06-01 00:00:00

  • Comparison of virtual wheelchair driving performance of people with traumatic brain injury using an isometric and a conventional joystick.

    abstract:UNLABELLED:Cooper RA. Comparison of virtual wheelchair driving performance of people with traumatic brain injury using an isometric and a conventional joystick. OBJECTIVE:To compare wheelchair driving performance in a driving simulator using a conventional joystick and an isometric joystick. DESIGN:Randomized, cohort...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.apmr.2011.03.011

    authors: Mahajan H,Spaeth DM,Dicianno BE,Collins DM,Boninger ML,Cooper RA

    更新日期:2011-08-01 00:00:00

  • Risk factors for median mononeuropathy of the wrist in postpoliomyelitis patients.

    abstract::There is evidence that chronic cane, crutch, and wheelchair users are at increased risk for developing pain and functional compromise of the wrist and hand. This investigation examined the prevalence and risk factors for median mononeuropathy at the wrist in the postpoliomyelitis population. The medical records of 148...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/0003-9993(89)90008-7

    authors: Werner R,Waring W,Davidoff G

    更新日期:1989-06-01 00:00:00

  • Waveform analysis of compound nerve action potentials: a computer simulation.

    abstract::A compound nerve action potential (CNAP) recorded from surface of the skin is composed of single nerve fiber action potentials propagating at various conduction velocities (CVs). Based on this assumption, we constructed two CNAPs simulating those at the digit elicited by stimulation of the median nerve at the wrist (C...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Okajima Y,Chino N,Tsubahara A,Kimura A

    更新日期:1994-09-01 00:00:00

  • Herpes zoster-induced trunk muscle paresis presenting with abdominal wall pseudohernia, scoliosis, and gait disturbance and its rehabilitation: a case report.

    abstract::Herpes zoster (HZ)-induced abdominal wall pseudohernia has been frequently reported, but there has been no report describing HZ-induced trunk muscle paresis leading to functional problems. We describe a 73-year-old man with T12 and L1 segmental paresis caused by HZ presenting with abdominal wall pseudohernia, scoliosi...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2009.10.011

    authors: Tashiro S,Akaboshi K,Kobayashi Y,Mori T,Nagata M,Liu M

    更新日期:2010-02-01 00:00:00

  • Rehabilitative functional outcome of patients with neoplastic spinal cord compressions.

    abstract:OBJECTIVE:To examine functional outcome and descriptive data of individuals with neoplastic spinal cord compression admitted to a rehabilitation unit. DESIGN:A 5-year review of consecutive patients admitted to a spinal cord injury rehabilitation unit with a diagnosis of neoplastic spinal cord compression. SETTING:A t...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/s0003-9993(96)90276-2

    authors: McKinley WO,Conti-Wyneken AR,Vokac CW,Cifu DX

    更新日期:1996-09-01 00:00:00

  • Sciatic neuropathy caused by disorder of a nutrient artery: a case report of thromboembolism secondary to profunda femoral artery aneurysm.

    abstract::This report describes a case of sciatic neuropathy caused by an obstruction of the nutrient artery of the nerve. The patient was a 76-year-old man who had an aneurysm in his right thigh and suddenly complained of pain and weakness in his right leg. Computed tomography scan and ultrasonography of the right thigh showed...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1053/apmr.2001.9625

    authors: Eguchi K,Majima M

    更新日期:2001-02-01 00:00:00

  • Changes of tibia bone properties after spinal cord injury: effects of early intervention.

    abstract:OBJECTIVE:To evaluate the effectiveness of an early intervention program for attenuating bone mineral density loss after acute spinal cord injury (SCI) and to estimate the usefulness of a multimodality approach in diagnosing osteoporosis in SCI. DESIGN:A single-case, experimental, multiple-baseline design. SETTING:An...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/s0003-9993(99)90124-7

    authors: de Bruin ED,Frey-Rindova P,Herzog RE,Dietz V,Dambacher MA,Stüssi E

    更新日期:1999-02-01 00:00:00

  • Comparative biomechanical analysis of current microprocessor-controlled prosthetic knee joints.

    abstract:OBJECTIVE:To investigate and identify functional differences of 4 microprocessor-controlled prosthetic knee joints (C-Leg, Hybrid Knee [also called Energy Knee], Rheo Knee, Adaptive 2). DESIGN:Tested situations were walking on level ground, on stairs and ramps; additionally, the fall prevention potentials for each des...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2009.12.014

    authors: Bellmann M,Schmalz T,Blumentritt S

    更新日期:2010-04-01 00:00:00

  • Health-related quality of life in childhood cerebral palsy.

    abstract:OBJECTIVE:To describe the health-related quality of life (HRQOL) of a cross-section of children with cerebral palsy (CP) using the Child Health Questionnaire. DESIGN:Survey of the parents or guardians of children with CP. SETTING:Outpatient clinics at a tertiary care children's hospital. PARTICIPANTS:Children (N=177...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2004.10.036

    authors: Vargus-Adams J

    更新日期:2005-05-01 00:00:00

  • Support-specific modulation of grip force in individuals with hemiparesis.

    abstract:OBJECTIVE:To investigate whether use of auxiliary sensory input will result in modulated grip force. DESIGN:Case-control study. SETTING:Free-standing acute inpatient rehabilitation hospital. PARTICIPANTS:Six people with unilateral hemiparesis due to unilateral stroke and 6 control subjects without neurologic disorde...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 临床试验,杂志文章

    doi:10.1016/j.apmr.2004.06.070

    authors: Aruin AS

    更新日期:2005-04-01 00:00:00

  • Chronic pain and the questionable use of the Minnesota Multiphasic Personality Inventory.

    abstract::Several studies have observed that patients who complain of chronic pain have significantly elevated scores on the first 3 clinical scales of the Minnesota Multiphasic Personality Inventory (MMPI). Some studies imply that this profile allows one to conclude that such patients exaggerate their symptoms, have strong fee...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Rook JC,Pesch RN,Keeler EC

    更新日期:1981-08-01 00:00:00

  • Sciatic nerve compression by preexisting heterotopic ossification during general anesthesia in the dorsal lithotomy position.

    abstract::This report documents the 4th patient reported with sciatic nerve compression by heterotopic ossification and the 1st case occurring during general anesthesia. A 25-year-old woman developed right sciatic nerve dysfunction after a 30-minute dilatation and curettage in the dorsal lithotomy position. Postoperative x-rays...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:

    authors: Reinstein L,Eckholdt JW

    更新日期:1983-02-01 00:00:00

  • Proof of principle of a brain-computer interface approach to support poststroke arm rehabilitation in hospitalized patients: design, acceptability, and usability.

    abstract:OBJECTIVE:To evaluate the feasibility of brain-computer interface (BCI)-assisted motor imagery training to support hand/arm motor rehabilitation after stroke during hospitalization. DESIGN:Proof-of-principle study. SETTING:Neurorehabilitation hospital. PARTICIPANTS:Convenience sample of patients (N=8) with new-onset...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2014.05.026

    authors: Morone G,Pisotta I,Pichiorri F,Kleih S,Paolucci S,Molinari M,Cincotti F,Kübler A,Mattia D

    更新日期:2015-03-01 00:00:00

  • Assessment of verticality perception by a rod-and-frame test: preliminary observations on the use of a computer monitor and video eye glasses.

    abstract::A computer-based version of the rod-and-frame test for verticality perception has been developed. The task tested verticality perception of subjects by using the computer mouse to rotate a bright rod to a vertical orientation within a square frame that was tilted through a range of angles from 30 degrees counterclockw...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2004.05.022

    authors: Bagust J

    更新日期:2005-05-01 00:00:00

  • Longitudinal Recovery and Reduced Costs After 120 Sessions of Locomotor Training for Motor Incomplete Spinal Cord Injury.

    abstract:OBJECTIVE:To determine the impact of long-term, body weight-supported locomotor training after chronic, incomplete spinal cord injury (SCI), and to estimate the health care costs related to lost recovery potential and preventable secondary complications that may have occurred because of visit limits imposed by insurers...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2017.10.003

    authors: Morrison SA,Lorenz D,Eskay CP,Forrest GF,Basso DM

    更新日期:2018-03-01 00:00:00

  • Wheelchair curb climbing: randomized controlled comparison of highly structured and conventional training methods.

    abstract:OBJECTIVES:Our primary objective was to test the hypothesis that a highly structured training method for wheelchair curb-climbing requires less training time than conventional training. Our secondary objectives were to test the hypotheses that this training method increases success rate, reduces the need for spotter in...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.apmr.2008.04.028

    authors: Kirby RL,Bennett S,Smith C,Parker K,Thompson K

    更新日期:2008-12-01 00:00:00

  • Clinician Perceptions of Robotic Exoskeletons for Locomotor Training After Spinal Cord Injury: A Qualitative Approach.

    abstract:OBJECTIVE:To describe the experiences of clinicians who have used robotic exoskeletons in their practice and acquire information that can guide clinical decisions and training strategies related to robotic exoskeletons. DESIGN:Qualitative, online survey study, and 4 single-session focus groups followed by thematic ana...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2020.08.024

    authors: Ehrlich-Jones L,Crown DS,Kinnett-Hopkins D,Field-Fote E,Furbish C,Mummidisetty CK,Bond RA,Forrest G,Jayaraman A,Heinemann AW

    更新日期:2021-02-01 00:00:00

  • Exercise testing and training in a cancer rehabilitation program: the advantage of the steep ramp test.

    abstract:OBJECTIVE:To compare the short maximal exercise capacity test (steep ramp test) with the submaximal test to determine the most appropriate exercise test in cancer rehabilitation. DESIGN:A prospective study in which a submaximal test, a maximal short exercise capacity test (steep ramp test), and a maximal oxygen consum...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2007.02.013

    authors: De Backer IC,Schep G,Hoogeveen A,Vreugdenhil G,Kester AD,van Breda E

    更新日期:2007-05-01 00:00:00

  • Predicting neurologic recovery in traumatic cervical spinal cord injury.

    abstract:OBJECTIVE:Traumatic spinal cord injury (SCI) affects 8,000 to 10,000 individuals per year in the United States. One of the most difficult tasks confronting the clinician is the discussion of neurologic recovery and prognosis with the patient and/or family. Our objective is to provide a guide for practitioners to accura...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1016/s0003-9993(98)90244-1

    authors: Kirshblum SC,O'Connor KC

    更新日期:1998-11-01 00:00:00

  • Postural balance during quiet standing in patients with total hip arthroplasty with large diameter femoral head and surface replacement arthroplasty.

    abstract:OBJECTIVE:To compare postural balance between patients who have had either a large diameter head total hip arthroplasty or surface replacement arthroplasty. DESIGN:Observational study. SETTING:Outpatient biomechanical laboratory. PARTICIPANTS:Two groups of 14 patients with surface replacement or large diameter head ...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2009.01.033

    authors: Nantel J,Termoz N,Ganapathi M,Vendittoli PA,Lavigne M,Prince F

    更新日期:2009-09-01 00:00:00

  • Easily Administered Patient-Reported Outcome Measures: Adolescents' Perceived Functional Changes After Completing an Intensive Chronic Pain Rehabilitation Program.

    abstract:OBJECTIVE:To determine whether patient-reported measures would be clinically sensitive and useful for identifying functional change within an intensive chronic pain program setting by examining 2 patient-reported measures administered as part of physical and occupational therapy for chronic pain. DESIGN:A retrospectiv...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2016.08.471

    authors: Kempert H,Benore E,Heines R

    更新日期:2017-01-01 00:00:00

  • Independent Association of Vitamin D With Physical Function in People With Chronic Spinal Cord Injury.

    abstract:OBJECTIVE:To explore the relation between vitamin D and physical function outcomes in people with spinal cord injury (SCI). DESIGN:Cross-sectional study. SETTING:Rehabilitation institute. PARTICIPANTS:Consecutive patients (N=100; 72 men and 28 women) with chronic SCI admitted to a rehabilitation program. INTERVENTI...

    journal_title:Archives of physical medicine and rehabilitation

    pub_type: 杂志文章

    doi:10.1016/j.apmr.2016.01.002

    authors: Barbonetti A,Sperandio A,Micillo A,D'Andrea S,Pacca F,Felzani G,Francavilla S,Francavilla F

    更新日期:2016-05-01 00:00:00