Stakeholder Perspectives on Research and Practice in Autism and Transition.

Abstract:

OBJECTIVES:Individuals with autism spectrum disorder (ASD) are reported to experience significant challenges during the transition to adulthood. Although recent evidence indicates that individuals with ASD experience poor outcomes in adulthood, little is understood about the contributing factors. In this qualitative study, we investigated the barriers to and needs in research and practice in the transition to adulthood among individuals with ASD. METHODS:Thirteen researchers, including service providers, family members, and an individual with ASD participated in 30- to 60-minute, semistructured, open-ended telephone interviews. Interviews were transcribed, and data were analyzed by using an inductive approach to identify themes related to barriers to and needs in the transition to adulthood for youth with ASD. RESULTS:Stakeholders identified the need for transition planning and preparation to begin earlier and for systems to better accommodate the interests and varying abilities of individuals with ASD. Stakeholders also felt that parent and service provider expectations and perceptions influence early opportunities and experiences offered throughout the transition process. CONCLUSIONS:This study reveals the multilevel barriers to and needs in the transition to adulthood and the need for interagency and multidisciplinary collaboration and research to address the varying levels of needs, abilities, and multisector challenges.

journal_name

Pediatrics

journal_title

Pediatrics

authors

Kuo AA,Crapnell T,Lau L,Anderson KA,Shattuck P

doi

10.1542/peds.2016-4300F

subject

Has Abstract

pub_date

2018-04-01 00:00:00

pages

S293-S299

issue

Suppl 4

eissn

0031-4005

issn

1098-4275

pii

peds.2016-4300F

journal_volume

141

pub_type

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