Abstract:
:This article raises the concern that biobanks are failing to realize the expected research and health service outcomes. Rather than biobanking, we have been engaging in 'biohoarding', where building a quantifiable collection of tissue samples is the primary basis of the bio-resource. The root cause of 'biohoarding' is an ideological and motivational confusion as to the purpose for collecting the tissue in the first place. We have lost sight of the knowledge gain that biobanks should generate. The obligation to prevent 'biohoarding' lies not with researchers, funders or managers but with policy makers.
journal_name
J Health Serv Res Policyjournal_title
Journal of health services research & policyauthors
Catchpoole Ddoi
10.1177/1355819615599014subject
Has Abstractpub_date
2016-04-01 00:00:00pages
140-2issue
2eissn
1355-8196issn
1758-1060pii
1355819615599014journal_volume
21pub_type
杂志文章abstract::'Knowledge transfer' has become established as shorthand for a wide variety of activities linking the production of academic knowledge to the potential use of such knowledge in non-academic environments. While welcoming the attention now being paid to non-academic applications of social research, we contend that terms...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/jhsrp.2008.008055
更新日期:2008-07-01 00:00:00
abstract:OBJECTIVES:Randomized controlled trials are important for evaluating health care interventions, but recruitment can be difficult. Studies of potential participants' perspectives on trial participation are accumulating, but their collective contribution is not obvious. In 2007, we conducted a meta-ethnographic synthesis...
journal_title:Journal of health services research & policy
pub_type: 杂志文章,评审
doi:10.1177/1355819613483126
更新日期:2013-10-01 00:00:00
abstract:OBJECTIVE:Our aim was to evaluate whether the involvement of health care managers in research projects improves the quality and relevance of research, and whether collaboration builds capacity in the managerial community. METHODS:The NIHR Service Delivery and Organization Management Fellowship programme supports the d...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/jhsrp.2011.011099
更新日期:2012-04-01 00:00:00
abstract:OBJECTIVES:To evaluate whether the Clinical Priority Assessment Criteria (CPAC), used to prioritise access to elective surgery, was associated with: (a) patients' access to surgery in practice; (b) patients' level of need; and (c) patients' ability to benefit from surgery. Patients' perceptions of the 'booking system' ...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/135581902320176322
更新日期:2002-07-01 00:00:00
abstract:OBJECTIVE:To evaluate the effectiveness and cost of obtaining consent for review of medical records within the passively observed non-intervention arm of a cluster randomized controlled trial, 'Comparison Arm for ProtecT'. METHODS:Two hundred and thirty men, who had been notified to the trial by cancer registries as h...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/jhsrp.2008.008085
更新日期:2009-04-01 00:00:00
abstract:INTRODUCTION:Levels of management staffing in the UK National Health Service (NHS) have received considerable political and media attention in the last four years or so. Both the previous and current governments committed themselves to reducing management expenditure in the health service, and significant cuts appear t...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/135581969900400104
更新日期:1999-01-01 00:00:00
abstract:OBJECTIVES:To compare open heart surgery services provided by public and private hospitals in Catalonia (Spain) according to case mix, procedures undergone and surgical mortality. METHODS:Data on all adult patients undergoing open heart surgery procedures were collected prospectively in a sample of public and privatel...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/135581969900400204
更新日期:1999-04-01 00:00:00
abstract:OBJECTIVES:To determine whether geographical areas with relatively low overall hospitalization rates have higher population-based rates of admission of patients with advanced stages of disease. METHODS:Age- and sex-standardized hospital admission rate were calculated for the residents of the 80 Local Health Units in L...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/135581969700200406
更新日期:1997-10-01 00:00:00
abstract:OBJECTIVES:To critically evaluate the quality of hospital medical care at the beginning, during and shortly after regionalization of health boards in Newfoundland and Labrador, and aggregation of hospitals in the St John's region. METHODS:Retrospective chart audits for the years 1995/96, 1998/99 and 2000/01 (at the be...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/135581905774424465
更新日期:2005-10-01 00:00:00
abstract:OBJECTIVES:Successful partnership working has theoretically been linked to improvements in service delivery and is dependent on the strength of the partnership, trust, communication, professional roles and resource sharing. Empirical evidence to confirm the relationships between these factors and improved service provi...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/1355819612473584
更新日期:2013-07-01 00:00:00
abstract:OBJECTIVES:English primary care organisations (primary care groups and trusts - PCGs, PCTs) were, and are, responsible for the quality of general practice but lack hierarchical structures and, frequently, contractual relationships through which to influence it. The theory of soft governance describes how managers can i...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/1355819041403295
更新日期:2004-07-01 00:00:00
abstract::People with serious and persistent mental illness require a range of community services typically provided by different specialized agencies. At the clinical level, assertive team case management is the strategy commonly used to achieve integration of services across specialized sectors. The USA also has used various ...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/135581969700200206
更新日期:1997-04-01 00:00:00
abstract::Diagnosis-related groups are widespread across Europe and they are meant to be a central instrument to improve the activity and efficiency of hospitals. However, there are many examples of diagnosis-related groups having adverse effects which are difficult to control and which endanger the goals of health care systems...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/1355819615586444
更新日期:2016-01-01 00:00:00
abstract::Policy-makers and managers have always used a wide range of sources of evidence in making decisions about policy and the organization of services. However, they are under increasing pressure to adopt a more systematic approach to the utilization of the complex evidence base. Decision-makers must address complicated qu...
journal_title:Journal of health services research & policy
pub_type: 杂志文章,评审
doi:10.1258/1355819054308576
更新日期:2005-07-01 00:00:00
abstract:OBJECTIVES:The National Health Insurance (NHI) system in Taiwan launched a trial capitation provider payment programme in 2011, with the capitation formula based on patients' average NHI expenditure in the previous year. This study seeks to examine the concentration and persistence of health care expenditure among the ...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/1355819615577711
更新日期:2015-07-01 00:00:00
abstract::The purpose of this paper is to expand understanding of academic-practitioner knowledge-sharing in the service of enhanced knowledge creation in health care. To this end, we describe the tacit and explicit knowledge of academics and practitioners and how this knowledge exists within their communities of practice. We a...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/135581903322405199
更新日期:2003-10-01 00:00:00
abstract::We summarise and evaluate Harris' criticisms of cost-effectiveness analysis (CEA) and the alternative processes he commends to health care decision makers. In contrast to CEA, Harris' asserts that individuals have a right to life-saving treatment that cannot be denied on the basis of their capacity to benefit. We conc...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/jhsrp.2012.011057
更新日期:2013-01-01 00:00:00
abstract::The incorporation of genetics into health services research has largely floundered, despite the rapidly accelerating availability of, and access to, such data. This is expected given the ethical questions involved. However, using these new resources robustly to examine population choices when it comes to health insure...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/1355819616664374
更新日期:2017-01-01 00:00:00
abstract:OBJECTIVES:To identify the barriers to shifting services from secondary to primary care perceived by the involved stakeholders. METHODS:Forty-five semi-structured interviews with stakeholders from primary care, acute and community hospitals, purchasers (health authorities) and other agencies involved in two contrastin...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/135581969900400306
更新日期:1999-07-01 00:00:00
abstract:AIMS:To evaluate the extent to which structural variation between English general practices is accounted for at higher organisational levels in the National Health Service (NHS). METHODS:We analysed data for 11 structural characteristics of all general practices in England. These included characteristics of general pr...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/135581903321466058
更新日期:2003-04-01 00:00:00
abstract:OBJECTIVES:The introduction of an internal market in the British National Health Service (NHS) has highlighted the importance of developing appropriate, valid and timely measures of hospital activity, both for the purposes of specifying and monitoring contracts and for evaluating the success of the NHS reforms in gener...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/135581969600100104
更新日期:1996-01-01 00:00:00
abstract:OBJECTIVE:To explain recent rapid audited change in the uptake of locally implemented, evidence-based clinical guidelines for asthma and angina in primary care. METHODS:A case study of primary care in two matched, adjacent districts in Northern England, focusing on a stratified random sample of 49 general practitioner...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/135581903322029494
更新日期:2003-07-01 00:00:00
abstract::Moral hazard in public insurance for long-term care may be counteracted by strategies influencing supply or demand. Demand-side strategies may target the patient or the insurer. Various demand-side strategies and how they are implemented in four European countries (Germany, Belgium, Switzerland and the Netherlands) ar...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/1355819615575080
更新日期:2015-07-01 00:00:00
abstract::Research can contribute to resolving some of the workforce challenges that all heath care systems face. In an attempt to identify the research agenda, key stakeholders in the UK were brought together and background papers were presented by academics with expertise in seven related but distinct areas: global issues; pr...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/135581904322724158
更新日期:2004-01-01 00:00:00
abstract::Hospitals are awash with patient experience data, much of it collected with the ostensible purpose of improving the quality of patient care. However, there has been comparatively little consideration of the nature and capacities of data itself. Using insights from actor-network theory, we propose that paying attention...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/1355819616685349
更新日期:2017-04-01 00:00:00
abstract::Objectives To investigate the effects of four factors on perceptions of fairness in access to outpatient services: proportions of walk-in versus scheduled registration, consultation queues, regulations for late patients and particular categories of patients getting better access. Methods A total of 124 young adults we...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/1355819617725546
更新日期:2018-01-01 00:00:00
abstract:OBJECTIVE:The effects of demographic, locational and socio-economic disadvantage, and the influence of private health care on five-year mortality rates in patients with lung cancer or after breast cancer surgery in Western Australia were examined. METHODS:The Western Australian Record Linkage Project was used to extra...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/1355819042248116
更新日期:2004-10-01 00:00:00
abstract:OBJECTIVES:To establish current guidance and practice in UK on presentation of indirect comparison and mixed treatment comparison analyses; to provide recommendations to improve indirect comparison/mixed treatment comparison reporting and to identify research priorities for improved presentation. METHODS:Existing inst...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/1355819613498379
更新日期:2013-10-01 00:00:00
abstract::It is important to include non English speakers in health services research to ensure not only the generalisability of findings but also to address health inequalities and promote social justice. One approach is to use interpreters but there is little guidance for working with an interpreter in interviews. Involving a...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1258/JHSRP.2012.012003
更新日期:2012-07-01 00:00:00
abstract::The way that public involvement in research has been evaluated as a complex intervention has derailed the development of an evidence base. Two alternative approaches are available for constructing and evaluating patient involvement, each of which requires us to revisit the purposes and values that underpin it in each ...
journal_title:Journal of health services research & policy
pub_type: 杂志文章
doi:10.1177/1355819615612510
更新日期:2016-07-01 00:00:00