Abstract:
PURPOSE:The aim of this study was to examine relatives' perception of an assistive technology intervention aimed at persons with dementia (PwDs) and their relatives, and to examine whether, and how, experiences of the intervention process differed between relatives valuing the intervention to be of high, and relatives perceiving it to be of low significance. METHOD:A total of 47 relatives of PwDs within the Swedish Technology and Dementia project were interviewed telephonically using a modified version of the Patient perspective on Care and Rehabilitation process instrument. A total of 46 participants were divided into two groups depending on whether they valued the intervention to be of great significance (GS group; N = 33) or of some/no significance (SNS group; N = 13). RESULTS:Several aspects of the intervention were perceived as highly important, e.g. being shown consideration and respect, and having somewhere to turn. The results indicate that relatives in the GS group perceived certain aspects of the intervention process as highly fulfilled to a larger extent than did relatives in the SNS group. CONCLUSIONS:This study illustrates how process evaluations can be used to increase the understanding and to identify improvement aspects of interventions. IMPLICATIONS FOR REHABILITATION:Process evaluation is a good method for understanding how interventions can be improved - a keystone for quality work. Based on relatives' ratings, a high fulfilment of the AT intervention process was associated with the perception of a significant outcome of the intervention.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Alwin J,Persson J,Krevers Bdoi
10.3109/09638288.2012.743603subject
Has Abstractpub_date
2013-08-01 00:00:00pages
1519-26issue
18eissn
0963-8288issn
1464-5165journal_volume
35pub_type
杂志文章abstract:PURPOSE:To describe the experiences with care co-ordination of people with cerebral palsy, multiple sclerosis, or spinal cord injury; to determine barriers to effective care co-ordination; and to compare experiences across disability and health plan types. METHOD:Qualitative, semi-structured telephone interviews with ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000152002
更新日期:2003-10-07 00:00:00
abstract:PURPOSE:To investigate the extent to which selected individual, family and environmental variables were associated with participation of children who have cerebral palsy in activities outside school. METHODS:Data were gathered through a population-based survey of 114 children born in 1994 or 1995 in Victoria, Australi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280902971406
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:Quality of Life (QoL) is an important outcome measure in health care and pharmacological trials. The trend towards multinational clinical trials may be problematic because it is unclear as to whether, or to what extent, QoL-measures are comparable across cultures. This study compared QoL between English and Ger...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110072913
更新日期:2001-12-15 00:00:00
abstract:PURPOSE:The main focus of Pain Neuroscience Education is around changing patients' pain perceptions and minimizing further medical care. Even though Pain Neuroscience Education has been studied extensively, the experiences of patients regarding the Pain Neuroscience Education process remain to be explored. Therefore, t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1327990
更新日期:2018-09-01 00:00:00
abstract::Purpose. HIV/AIDS has grown to become the biggest epidemic in modern history. Southern Africa is at the epicentre of the global epidemic, with just of a third of the world's HIV-positive population living here. It is known that HIV/AIDS affect vulnerable population groups. It is surprising then, that persons with disa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280802280585
更新日期:2009-01-01 00:00:00
abstract:PURPOSE:To describe activity level, operationalized as ADL capacity and performance of occupations, and occupational balance, operationalized as time use and satisfaction with occupations, in women with limited systemic sclerosis, and to investigate the relationship between these occupational factors and disease charac...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701190083
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To investigate what characterizes the process of becoming a user of an osseointegrated prosthesis following transfemoral amputation. METHOD:The study is based on the descriptive phenomenological framework Reflective Lifeworld Research. Data were collected through in-depth interviews with seven participants who...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1385651
更新日期:2019-02-01 00:00:00
abstract:PURPOSE:The aim of this study was to investigate associations between socio-demographic factors, experiences of positive/negative encounters with healthcare professionals, and the encounters' impact on the ability to return to work in a population of people on sick leave due to heart failure. METHODS:This was a cross-...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2015.1031289
更新日期:2016-01-01 00:00:00
abstract:PURPOSE:The aim of the present study was to investigate sense of coherence (SOC) in adults with cerebral palsy (CP) compared to the general population. METHOD:A questionnaire was sent to a representative sample of adults with CP, including the 3-item version of SOC and items on their life situation and follow-up progr...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280110108805
更新日期:2002-07-10 00:00:00
abstract::Population ageing has become a global concern. As persons age they are likely to experience multiple changes, declines, and losses, resulting in multifaceted needs. Psychosocial needs are varied and diverse, reflecting the extreme heterogeneity of the older population and the frequent co-morbidity of physical and ment...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289409166293
更新日期:1994-07-01 00:00:00
abstract:PURPOSE:To describe aspects of process and outcome during early inpatient rehabilitation of younger adults after single incident brain injury. METHOD:Analysis of a database of 290 patients discharged from an inner-city hospital based inpatient unit for younger adults after single incident neurological events, over a 5...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/0963828031000062642
更新日期:2003-04-22 00:00:00
abstract:PURPOSE:Concepts such as health-related quality of life, disability and participation may differ across cultures. Consequently, when assessing such a concept using a measure developed elsewhere, it is important to test its cultural equivalence. Previous research suggested a lack of cultural equivalence testing in sever...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2012.731132
更新日期:2013-07-01 00:00:00
abstract:PURPOSE:In this case study, we investigated the use of repetition in an individual with a neurogenic communication disorder. METHOD:We present an analysis of interaction in natural conversations between a woman with advanced Huntington's disease (HD), whose speech had been described as sometimes characterised by echol...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.514971
更新日期:2011-01-01 00:00:00
abstract:PURPOSE:The article considers the extent to which disability has been recognized and included in two main documents produced to date as part of the United Nations Post-2015 Development agenda process. This is the process that is defining the Sustainable Development Goals (SDGs), which will succeed the UN Millennium Dev...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.972589
更新日期:2015-01-01 00:00:00
abstract:AIMS:It is a generally shared opinion that rehabilitation is not (yet) 'fully person-centred' and that it should be more. For a certain number of authors, this deficit in person-centredness has originated from the important weight of a 'medical framework' within rehabilitation. In this paper, we will discuss this criti...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701618620
更新日期:2007-10-30 00:00:00
abstract:PURPOSE:The aim of this study was to understand the views of falls service practitioners regarding: their role in supporting self-management of falls prevention; and a transition pathway from National Health Service (NHS) exercise-based falls interventions to community-run exercise programmes. METHOD:Semi-structured i...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1849423
更新日期:2020-11-19 00:00:00
abstract::Purpose: Fugl-Meyer Assessment (FMA) is the most widely used and recommended clinical scale for evaluation of sensorimotor impairment post stroke, but an official Spanish version is not available today. This study aimed to establish methodological structure for translation and cultural adaptation process and perform a...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1464604
更新日期:2019-09-01 00:00:00
abstract:PURPOSE:To identify facilitators and barriers frequently experienced by families of children with cerebral palsy (CP) and associated with being at the pre-intention, intention and action stages for physical activity. METHOD:Qualitative study involving in-depth focus group interviews with 33 ambulatory children and ado...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.748844
更新日期:2013-09-01 00:00:00
abstract:PURPOSE:To describe functioning and health of elderly patients in an early post-acute rehabilitation facility and to identify the most common problems using the International Classification of Functioning, Disability and Health (ICF). METHODS:Cross-sectional survey in a convenience sample of elderly patients requiring...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400014055
更新日期:2005-04-08 00:00:00
abstract:PURPOSE:While most studies of Duchenne muscular dystrophy (DMD) have focused on physical impairment, there is a need to explore how impairment impacts real-life experiences in order to provide intervention strategies focused on participation. Objectives were: (1) to investigate the domains of participation in a sample ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.883444
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:Whilst research tells us about the benefits and challenges of using prostheses, little attempt has been made to account for and provide explanations for the differing experiences of prosthesis users. In this study, a core concern shared by prosthesis users and an account of how this concern is managed are explo...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1312564
更新日期:2018-07-01 00:00:00
abstract:PURPOSE:Previous work has shown that information technology (IT), such as personal computers and other digital devices (e.g. tablets, laptops, etc.), software, online resources and hand-held communication tools (e.g. cellphones), has benefits for health and well-being for persons with chronic health conditions. To date...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.963708
更新日期:2015-01-01 00:00:00
abstract:OBJECTIVE:This study examines whether the relationships between activity limitations and independence are mediated by coping efficacy. METHOD:Data come from a cross-sectional survey of 286 adults, aged 55 or older, with osteoarthritis (OA) and/or osteoporosis (OP). Physical independence was assessed by asking to what ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280410001684578
更新日期:2004-07-08 00:00:00
abstract:PURPOSE:To develop a better understanding of the experiences of volunteer work among youth with disabilities. METHOD:A scoping review was undertaken to assess the benefits and challenges of volunteering among youth with disabilities. Comprehensive searches using six international databases were conducted. Eligible art...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638288.2015.1107634
更新日期:2016-08-01 00:00:00
abstract::Objective: The aim of this study was to clarify the association of scoliosis and windswept hips with immobility, lying position, and time in lying, in adults with cerebral palsy (CP).Methods: This cross-sectional study included 830 adults (469 males and 361 females) with a diagnosis of CP, 16-73 years, and classified ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1492032
更新日期:2019-12-01 00:00:00
abstract:BACKGROUND:Persons with multiple sclerosis (MS) often experience a decrease in walking performance while simultaneously performing a cognitive task. This decrease in walking performance is termed dual task cost (DTC). OBJECTIVE:To examine if mobility and cognitive function are correlates of DTC in persons with MS. ME...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2013.782361
更新日期:2014-01-01 00:00:00
abstract:PURPOSE:It has been argued, by many, that mathematical formulae for estimating sample size are unnecessarily complex, so much so that researchers may be reluctant to seek statistical advice. METHOD:This paper reviews methods of sample size estimation arguing that two formulae (one based on comparison of proportion of ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289809166102
更新日期:1998-11-01 00:00:00
abstract:PURPOSE:To measure the frequency of participation in life situations. METHODS:A sample of 83 persons with systemic sclerosis (SSc) completed questionnaires regarding the presence and severity of disease symptoms, disability [the Health Assessment Questionnaire (HAQ)], depression [the Center for Epidemiologic Studies D...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.944624
更新日期:2015-01-01 00:00:00
abstract::Background: "Ehlers-Danlos syndrome" (EDS) is a heritable connective disorder influencing multiple aspects of daily life. Most studies have focused on describing the physical symptoms and level of disability, but little knowledge exists about the psychosocial effects of the pathology. Participation in employment is an...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1636316
更新日期:2019-07-09 00:00:00
abstract:OBJECTIVE:to provide test-retest reliability for the TGlittre-P in children and adolescents with cystic fibrosis (CFG) and healthy controls (HCG), to establish the minimal detectable change for time in TGlittre-P and comparing the performance in the TGlittre-P test between these populations. METHOD:A cross-sectional s...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1864037
更新日期:2021-01-26 00:00:00