Experiences with care co-ordination among people with cerebral palsy, multiple sclerosis, or spinal cord injury.

Abstract:

PURPOSE:To describe the experiences with care co-ordination of people with cerebral palsy, multiple sclerosis, or spinal cord injury; to determine barriers to effective care co-ordination; and to compare experiences across disability and health plan types. METHOD:Qualitative, semi-structured telephone interviews with 30 people with cerebral palsy, multiple sclerosis, or spinal cord injury. Interviews focused on the care co-ordination experience of individuals in managed care and traditional indemnity health insurance plans in the USA and were analysed using NVivo. RESULTS:Half of the respondents reported that they had a health professional who co-ordinated their care. Participants identified barriers that prevented effective care co-ordination, including a lack of disability specific knowledge, providers' limited time and effort related to care, and insufficient communication among providers. There were few differences between managed care and fee-for-service respondents with regard to these barriers. CONCLUSIONS:Study findings reveal few differences in the care co-ordination experiences amongst people with cerebral palsy, multiple sclerosis, or spinal cord injury in both plan types. All providers need to become more literate about the health care needs of people with physical disabilities, and health plans need to reward communication among providers and the time and effort invested in care co-ordination.

journal_name

Disabil Rehabil

authors

Kroll T,Neri MT

doi

10.1080/0963828031000152002

subject

Has Abstract

pub_date

2003-10-07 00:00:00

pages

1106-14

issue

19

eissn

0963-8288

issn

1464-5165

pii

93G29DKH7KAETWKP

journal_volume

25

pub_type

杂志文章
  • Family-professional collaboration in pediatric rehabilitation: a practice model.

    abstract:PURPOSE:Family--professional collaboration is essential to optimize outcomes of children with disabilities and the families. METHOD:The authors incorporated current knowledge to formulate principles of collaborative service delivery in pediatric rehabilitation, develop a 4-step process of implementation, and recommend...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2013.797510

    authors: An M,Palisano RJ

    更新日期:2014-01-01 00:00:00

  • Reference to ICIDH in French surveys on disability.

    abstract::This article deals with the development of a basis for data collection and statistics on disability in France. After having recalled the first attempts to establish statistics on disability, highlighting the lack of a reliable conceptual basis, its shows how ICIDH spread out from the geriatrics research field to the d...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/0963828031000137153

    authors: Roussel P,Barral C

    更新日期:2003-06-03 00:00:00

  • Assessments of disability in women with rheumatoid arthritis in relation to grip force and pain.

    abstract::The aim of this study was to assess disability with the Health Assessment Questionnaire (HAQ) and to evaluate the relationships between grip force, pain and difficulty in daily activities. Twenty women with rheumatoid arthritis were assessed with measurements of grip force and pain before and after grip test. Both the...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638289709166440

    authors: Nordenskiöld U,Grimby G

    更新日期:1997-01-01 00:00:00

  • Problems with accessibility to health services by persons with disabilities in São Paulo, Brazil.

    abstract:PURPOSE:To describe the occurrence of self-reported problems of accessibility to health services used by persons with disabilities in terms of social and health services variables. METHODS:We performed a cross-sectional household survey designed to assess problems with accessibility to health services faced by persons...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.541542

    authors: Castro SS,Cieza A,Cesar CL

    更新日期:2011-01-01 00:00:00

  • The development of intimate relationships in adolescent girls and women with traumatic brain injury: a framework to guide gender specific rehabilitation and enhance positive social outcomes.

    abstract::Background: Traumatic brain injury is a neurological disorder of biopsychosocial nature influenced by sex and gender interactions across the lifespan. Traumatic brain injury sustained during adolescence can result in cognitive and social communication impairments that compromise the development and maintenance of inti...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1597180

    authors: Wiseman-Hakes C,Saleem M,Poulin V,Nalder E,Balachandran P,Gan C,Colantonio A

    更新日期:2020-12-01 00:00:00

  • Coping strategies in individuals after traumatic brain injury: associations with health-related quality of life.

    abstract:PURPOSE:This study investigates coping strategies after traumatic brain injury (TBI) and their associations with health-related quality of life (HRQoL). METHODS:Participants were 141 adults followed up 3 months to 15 years after TBI of all severity degrees. Coping was assessed by the Freiburg Questionnaire of Coping w...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2014.893029

    authors: Sasse N,Gibbons H,Wilson L,Martinez R,Sehmisch S,von Wild K,von Steinbüchel N

    更新日期:2014-01-01 00:00:00

  • Inclusivity in neo-liberal policy environment: preparedness of mass media to support disability awareness campaigns in Ghana.

    abstract::Purpose: The mass media have been described as an important institution in educating society about persons with disabilities and in facilitating their acceptance. However, calls to project a positive public image of persons with disabilities and to develop an inclusive society have coincided with the neo-liberal appro...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1582718

    authors: Amoako S,Opoku MP,Nketsia W,Edusei AK,Afriyie SA,Badu E

    更新日期:2020-10-01 00:00:00

  • Factors associated with home environmental problems among community-living older people.

    abstract:PURPOSE:This paper describes the types of difficulties older people have with their home environments and the factors associated with having such difficulties. METHOD:Data were used from 296 study participants of the University at Buffalo's Consumer Assessments Study that examines the home modification needs and envir...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280110062167

    authors: Gitlin LN,Mann W,Tomit M,Marcus SM

    更新日期:2001-11-20 00:00:00

  • Community-based rehabilitation in South Korea.

    abstract::This paper gives a brief introduction to the geography and demography of the Republic of South Korea. Since 1988 South Korea has been actively legislating and implementing welfare policy for the disabled of the Republic. An overview of these policy changes is presented. The extent to which the policy has been implemen...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/096382899297297

    authors: Kim YH,Jo NK

    更新日期:1999-10-01 00:00:00

  • Perceptions of ability among adults with upper limb absence: impacts of learning, identity, and community.

    abstract::Aims: The purpose of this research was to examine the lived experiences of adults with upper limb absence, specifically the interplay of device use, ability, and quality of life through semi-structured interviews. We sought to draw insight from these experiences to improve the practice and perceptions of adults with u...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1592243

    authors: McDonald CL,Bennett CL,Rosner DK,Steele KM

    更新日期:2020-11-01 00:00:00

  • Access to and engagement with cervical and breast screening services for women with disabilities in Aotearoa New Zealand.

    abstract:PURPOSE:To describe access to and engagement with cervical and breast screening services for women who are Deaf or live with a physical or sensory disability in Aotearoa New Zealand (NZ). METHOD:We carried out an online survey on a convenience sample of 84 women. Tests of association were undertaken between socio-demo...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1817158

    authors: Pearson J,Payne D,Yoshida K,Garrett N

    更新日期:2020-09-15 00:00:00

  • Let's not go back to 'normal'! lessons from COVID-19 for professionals working in childhood disability.

    abstract:PURPOSE:The worldwide COVID-19 pandemic has changed almost all aspects of our lives, and the field of childhood disability is no exception. METHODS:This article is based on an invited lecture by the first author at a conference-the eHealth Summit ("Pediatric Rehabilitation in a Digital Space")-organized by the other a...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1862925

    authors: Rosenbaum PL,Silva M,Camden C

    更新日期:2020-12-23 00:00:00

  • What is important in transdisciplinary pain neuroscience education? A qualitative study.

    abstract:PURPOSE:The main focus of Pain Neuroscience Education is around changing patients' pain perceptions and minimizing further medical care. Even though Pain Neuroscience Education has been studied extensively, the experiences of patients regarding the Pain Neuroscience Education process remain to be explored. Therefore, t...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2017.1327990

    authors: Wijma AJ,Speksnijder CM,Crom-Ottens AF,Knulst-Verlaan JMC,Keizer D,Nijs J,van Wilgen CP

    更新日期:2018-09-01 00:00:00

  • How is right hemisphere communication disorder disabling? Evidence from response mobilizing actions in conversation.

    abstract::Aim: Assessment and intervention strategies for communication disorders caused by right hemisphere stroke are at an early stage of development. There is also little evidence on how right hemisphere communication disorder is disabling for everyday life. This study explores how a woman with conversational problems follo...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1766123

    authors: Barnes S,Beeke S,Bloch S

    更新日期:2020-05-23 00:00:00

  • Involvement in volunteering: an exploration of the personal experience of people with aphasia.

    abstract::This article reports results from a qualitative study in the U.K. of people with aphasia who have been involved in volunteering. The study describes their experiences; explores, from their perspective, the effects of involvement; and identifies key facilitators and barriers to the successful participation of people wi...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2010.549285

    authors: Pearl G,Sage K,Young A

    更新日期:2011-01-01 00:00:00

  • Home-based psychoeducational and mailed information programs for stroke-caregiving dyads post-discharge: a randomized trial.

    abstract:PURPOSE:This randomized trial compared 6- and 12-month outcomes of a home-based psychoeducational program to mailed information provided to 159 survivors of stroke (SS) and their spousal caregivers (CG). METHODS:SS (age 50+) and CG were recruited as dyads post-discharge from inpatient rehabilitation. All dyads receive...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,随机对照试验

    doi:10.3109/09638288.2013.777806

    authors: Ostwald SK,Godwin KM,Cron SG,Kelley CP,Hersch G,Davis S

    更新日期:2014-01-01 00:00:00

  • Systematic review of subjective memory measures to inform assessing memory limitations after stroke and stroke-related aphasia.

    abstract::Aim: Primary aims of this systematic review were to: (1) identify the range of subjective memory measures used in the stroke and stroke-related aphasia literature and (2) critically appraise their psychometric properties as well as (3) the methodological qualities of studies that included them, (4) investigate whether...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1668485

    authors: Salis C,Murray L,Vonk JMJ

    更新日期:2019-09-27 00:00:00

  • Developing and validating equations to predict [Formula: see text]O2 peak from the 6MWT in Childhood ALL Survivors.

    abstract::Introduction: The 6-Minute Walking Test (6MWT) is a safe, standardized and well utilized method to assess the functional capacity. Recently, it was reported that the published prediction equations cannot accurately predict a valid maximal oxygen consumption ([Formula: see text]O2 peak) value in cancer survivors. Thus,...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2020.1725159

    authors: Labonté J,Caru M,Lemay V,Alos N,Drouin S,Bertout L,Andelfinger G,Krajinovic M,Laverdière C,Sinnett D,Curnier D

    更新日期:2020-02-11 00:00:00

  • The cross-cultural equivalence of participation instruments: a systematic review.

    abstract:PURPOSE:Concepts such as health-related quality of life, disability and participation may differ across cultures. Consequently, when assessing such a concept using a measure developed elsewhere, it is important to test its cultural equivalence. Previous research suggested a lack of cultural equivalence testing in sever...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.3109/09638288.2012.731132

    authors: Stevelink SA,van Brakel WH

    更新日期:2013-07-01 00:00:00

  • Validity of the de Morton Mobility Index (DEMMI) for measuring the mobility of patients with hip fracture during rehabilitation.

    abstract:PURPOSE:Many patients suffer long term loss of mobility after hip fracture but there is no gold standard method for measuring mobility in this group. We aimed to validate a new mobility outcome measure, the de Morton Mobility Index (DEMMI) in a hip fracture population during inpatient rehabilitation. METHOD:The DEMMI ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2012.705220

    authors: de Morton NA,Harding KE,Taylor NF,Harrison G

    更新日期:2013-02-01 00:00:00

  • Refinements of the ICF Linking Rules to strengthen their potential for establishing comparability of health information.

    abstract::Purpose The content of and methods for collecting health information often vary across settings and challenge the comparability of health information across time, individuals or populations. The International Classification of Functioning, Disability and Health (ICF) contains an exhaustive set of categories of informa...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2016.1145258

    authors: Cieza A,Fayed N,Bickenbach J,Prodinger B

    更新日期:2019-03-01 00:00:00

  • The impact of psychosocial factors on neck pain and disability outcomes among primary care patients: results from the UCLA Neck Pain Study.

    abstract:PURPOSE:The purpose of this study is to estimate the associations of psychosocial factors with pain and disability outcomes among neck-pain patients enrolled in a randomized clinical trial of chiropractic treatments. METHODS:Neck-pain patients were randomized to one of 8 modes of chiropractic treatment. Health status ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1080/09638280600641509

    authors: Hurwitz EL,Goldstein MS,Morgenstern H,Chiang LM

    更新日期:2006-11-15 00:00:00

  • Characterization of elderly patients in rehabilitation: stroke versus hip fracture.

    abstract:PURPOSE:To compare the characteristics of elderly patients hospitalized for rehabilitation following stroke with those following hip fracture (HF). METHODS:A prospective study in a geriatrics department of a general university hospital in southern Israel. Five hundred and sixteen hospitalized elderly patients were inc...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/096382899297198

    authors: Lieberman D,Friger M,Fried V,Grinshpun Y,Mytlis N,Tylis R,Galinsky D,Lieberman D

    更新日期:1999-12-01 00:00:00

  • Doctor of physical therapy students' attitudes towards people with disabilities: a descriptive study.

    abstract::Purpose To describe attitudes of doctoral physical therapy (DPT) students towards people with disability and examine predictive ability of demographic variables on those attitudes. Methods Two established surveys, Attitudes Towards Disabled Persons-Form O (ATDP-O) and Disability Attitudes in Health Care (DAHC) were co...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.3109/09638288.2016.1140830

    authors: Yorke AM,Ruediger T,Voltenburg N

    更新日期:2017-01-01 00:00:00

  • Rehabilitation professionals' views on social media use in traumatic brain injury rehabilitation: gatekeepers to participation.

    abstract::Purpose: Rehabilitation professionals support people with traumatic brain injury (TBI) to return to meaningful participation in life and society - which now includes the use of social media. However, the role of health professionals in supporting the use of social media by adults with TBI is not yet known. This study ...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1685604

    authors: Brunner M,Togher L,Palmer S,Dann S,Hemsley B

    更新日期:2019-11-07 00:00:00

  • The clinical challenge of chronic neuropathic pain.

    abstract:BACKGROUND:The clinician often faces the problem that certain types of chronic pains remain refractory to the commonly used analgesic treatment options. Neuropathic pain, which is defined as pain caused by direct nerve lesions, may have different causes and a variety of clinical presentations. A correct management of c...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章,评审

    doi:10.1080/09638280500287270

    authors: Vissers KC

    更新日期:2006-03-30 00:00:00

  • Cross cultural adaptation of the Greek sarcopenia quality of life (SarQoL) questionnaire.

    abstract::Purpose: To translate and validate into the Greek language and setting the Sarcopenia Quality of Life (SarQoL®) questionnaire.Methods: A convenience sample of 176 Greek elderly people (136 females, 40 males; aged 71.19 ± 7.95 years) was recruited, 50 of which (36 females, 14 males) were diagnosed sarcopenic. Questionn...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2018.1514076

    authors: Tsekoura M,Billis E,Gliatis J,Tsepis E,Matzaroglou C,Sakkas GK,Beaudart C,Bruyere O,Tyllianakis M,Panagiotopoulos E

    更新日期:2020-04-01 00:00:00

  • Concerns and expectations about returning to work with low back pain: identifying themes from focus groups and semi-structured interviews.

    abstract:PURPOSE:Studies of occupational low back pain (OLBP) have shown that return to work after injury is influenced by workers' concerns and expectations; however, these theoretical constructs have not been explored. The specific aim of this study was to identify themes related to self-efficacy and outcome expectancy for re...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280500076269

    authors: Shaw WS,Huang YH

    更新日期:2005-11-15 00:00:00

  • Child and family factors that predict participation attendance in daily activities of toddlers with global developmental delay.

    abstract::Purposes: Enhancing children's daily participation is the optimal goal of early childhood intervention. This study aimed to identify child and family predictors of participation for toddlers with global developmental delay. Methods: Fifty-nine toddlers with global developmental delay (aged 24-43 months) and their moth...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638288.2019.1678685

    authors: Wang PJ,Liao HF,Kang LJ,Chen LC,Hwang AW,Lu L,Tu YK,Morgan GA

    更新日期:2019-10-24 00:00:00

  • Dutch adaptation and content validity of the 'Pediatric Evaluation Of Disability Inventory (PEDI)'.

    abstract:PURPOSE:To adapt the American PEDI into a Dutch version, and to establish the content validity of this pediatric functional status instrument. METHODS:The adaptation process was based on current scientific guidelines in the field of cross-cultural research. Thirty-one allied health professionals completed a validity q...

    journal_title:Disability and rehabilitation

    pub_type: 杂志文章

    doi:10.1080/09638280110076036

    authors: Custers JW,Wassenberg-Severijnen JE,Van der Net J,Vermeer A,Hart HT,Helders PJ

    更新日期:2002-03-20 00:00:00